Literature Review

Home-based care companies improve outcomes by training family caregivers Home Health Care News; by Joyce Famakinwa; 10/25/25 Home-based care companies are increasingly recognizing the importance of training family caregivers to improve patient outcomes. By engaging family caregivers through education and mobilization, these companies can keep patients out of hospitals longer and maintain them in their homes, contributing to their overall happiness and health. 

Mentorship, military legacy, and making a difference with Susan Combs Advisor Today; podcast with Susan Combs; 10/25/25 Susan Combs is the Founder of Pancakes for Roger, a nonprofit that honors veterans and amplifies their stories through a grassroots “pancakes” movement. She created it after her father, a Major General, asked for pancakes while on hospice, inspiring a campaign, book, and advocacy project.Editor's Note: Though Veteran's Day is only two weeks away, you have time to implement Susan's amazing "Pancakes for Roger" for the veterans you serve, via their annual national (and international) campaigns each February. Explore more information. 

The essential role of Speech-Language Pathologists in end-of-life swallowing intervention: A narrative reviewASHA Perspectives; by Sanora Yonan; 9/25Speech-language pathologists (SLPs) are essential in the intervention of dysphagia, particularly at the end of life (EoL), where their guidance can significantly improve patients' comfort and quality of life. However, despite a growing recognition of their importance in this palliative setting, SLPs continue to face obstacles for consistent involvement on the palliative care team. Three primary themes emerged [from this study]: diet texture adjustment, compensatory swallowing strategies, and patient and caregiver education. The review also identified significant barriers to SLP involvement, including inconsistent practices, limited resources, legal concerns, and a lack of interdisciplinary integration.Assistant Editor's note: In my experience, SLPs were rarely, if ever, utilized with hospice patients. However, this article clearly describes ways that SLPs could be helpful for patients with swallowing difficulties. SLPs can also be very useful for patients with speech difficulties. I think the IDT simply does not think of it-does not think of how a SLP could be helpful. Maybe it is also partly due to lack of knowledge of their value. Perhaps, both hospice and palliative care teams might consider arranging for an inservice from a SLP so that team members can learn more about how such therapy could be helpful in improving the quality of life of patients.

Alzheimer’s Association, Maine Chapter sees largest turnout for annual fundraiser walk WABI-5, Bangor, ME; by Grace Bradley; 10/11/25 For more than two decades, folks have hit the streets of Bangor to help raise money and awareness for Alzheimer’s. On Saturday, Maine’s chapter of the Alzheimer’s Association says they saw the largest crowd yet of about 400 people for their largest annual fundraiser. “We provide free care and support for families and community members walking through this disease, whether it’s Alzheimer’s or other forms of dementia. So what we do enables us to do everything for free. But we also take a portion of that money and put it towards research,” explains Kris Baker, Development Manager of Alzheimer’s Association Maine. Editor's Note: Do you support and partner with the Alzheimer's Association?

[Italy] The implantable cardioverter-defibrillators at the end of life: A double-edged sword of a life-saving technologyTrends in Cardiovascular Medicine; by Giacomo Mugnai, Davide Genovese, Luca Tomasi, Alessia Gambaro, Flavio Ribichini; 9/25Implantable cardioverter-defibrillators (ICDs) are critical for preventing sudden cardiac death, but their function poses a significant challenge in palliative care, where goals shift from life prolongation to comfort. A substantial percentage of patients receive painful, futile shocks in their final days, causing significant distress. This review synthesizes evidence on the impact of these shocks and underscores the gap between clinical practice and patient-centered care. Key barriers to timely ICD deactivation include clinician discomfort, patient misconceptions, and systemic flaws like fragmented care and absent institutional protocols. This review argues for a paradigm shift towards proactive, interdisciplinary care, calling for structured communication, routine advance care planning, and the integration of palliative cardiology models to ensure this life-saving technology does not compromise a dignified death.

Emergency Department care coordination program for assisted living residents with dementia-A qualitative studyJAMA Network Open; Grace F. Wittenberg, Peter T. Serina, Nichole E. Stetten, Ann Reddy, Ellen McCreedy; 8/25Care transitions to the emergency department (ED) from assisted living centers (ALCs) for residents may include incomplete or inaccurate information during transfer. These transitions can be especially difficult for vulnerable populations, including persons living with dementia (PLWD). In this qualitative study of a care coordination intervention, CCMs [complex care managers] advocated for their patients remotely by filling information gaps, particularly for PLWD and patients in hospice, and perceived that the intervention was associated with improved patient care. CCMs also identified key areas for improvement, such as to increase ED staff awareness of the program and to expand program hours.

Neil Heinen: We give precious little thought to the meaning of life Madison Magazine, Madison, WI; by Neil Heinen; 9/17/25 An Op-Ed on the importance and profundity of being with a person at the end of their life, and how hospice plays a special role. We don’t think about death enough. How’s that for an opening sentence? ... We’d be considerably better off if we did think about life’s end a little more. The main topic of this column is hospice, which adds a bit of a buffer to the existential angst of contemplating death. ... Being with a person at the end of their life is one of the most profound and loving of life’s many possible experiences. And what brings meaning to a dying person is as varied as life itself. A song, a poem, a pet, a knitting needle and yarn, a recognition of service, stories, pictures, memories, another person who will listen, who cares; the list is long and filled with small acts of kindness so many of us could easily provide.

O’Neill Healthcare Hospice creating Moments of Joy The Villager Newspaper, Bay Village, OH; 9/15/25 At O’Neill Healthcare Hospice, our mission goes beyond providing exceptional clinical care ... One way we do this is through our Moments of Joy program, an initiative devoted to creating meaningful experiences and lasting memories for those we care for. Recently, we had the privilege of honoring our patient, Frank, with a very special moment of joy outing, ... "back to the ballpark in person." ... Programs like Moments of Joy enable us to honor our patients’ stories and interests, celebrate their passions, and provide families with cherished moments to remember.Editor's Note: See our recent related posts, "Fulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care" and "Baptist Health Floyd's 'Three Wishes' project provides comfort during end-of-life process."

Has human life expectancy already peaked?Vice; by Luis Prada; 9/10/25 For most of the 20th century, human life expectancy skyrocketed. Advancements in hygiene science, a wide variety of medical innovations and discoveries ... have all helped our collective life expectancies tremendously. According to a new study, however, we may have topped out. In the study, published in PNAS and spotted by Science Alert, an international team of researchers crunched the numbers on people born between 1939 and 2000 in 23 high-income countries, using six different forecasting models.Editor's Note: I recall a hospice CE conference around 2005, where a healthcare data statistician presented projections on mortality trends. Based on the previous century’s gains, the data suggested that babies born then could live well past 100—with 120 years as a realistic possibility. This new study raises the provocative question of whether those optimistic forecasts may already have reached their limits.

The role of PMHNPs in palliative psychiatry: An ethical framework for care when remission is unattainableJournal of Hospice and Palliative Nursing; by Trae Stewart; 8/23Patients with serious and persistent mental illness may experience intractable suffering despite exhaustive treatment, challenging the dominant curative paradigm in psychiatry. Palliative psychiatry offers an emerging alternative-prioritizing comfort, dignity, and quality of life when remission is no longer attainable. This article presents a comprehensive ethical and clinical framework for integrating palliative psychiatry into psychiatric-mental health nurse practitioner (PMHNP) practice. Drawing parallels with somatic palliative care, the author explores the theoretical foundations, diagnostic complexities, and ethical imperatives guiding palliative psychiatry. Legal challenges, such as hospice eligibility criteria and involuntary treatment statutes, are also examined, with recommendations for practice and policy reform. Assistant Editor's note: As I search for pertinent articles to add to this newsletter, I am delighted to find so many that address a variety of aspects of palliative care. I see articles on palliative care in the ED, palliative care for special populations, palliative care for transplant patients, and as highlighted in this article, palliative care in psychiatry. It makes me think that maybe, just maybe(!), the many benefits of palliative care are finally being recognized and embraced by mainstream health care.

From panic to purpose: Tulane student’s bell project brings hope to cancer patients nationwide CBS WWL-4, New Orleans, LA; by Meg Farris; 9/8/25 A little girl whose mother was diagnosed with a very serious illness could have never dreamed that several years later, she'd be helping patients across the country and beyond. ... Belle Spar vividly remembers, ... “I had a panic attack, hysterically crying. I thought I was going to lose my mom. I was 12. I was terrified ...” Belle Spar, 21. [The ritual of ringing the bell at the end of cancer treatment became a symbol of hope.] That 12-year-old ... is now a senior at Tulane University. During those nine years as an adolescent, she and her sister, Alexa, accomplished something remarkable. They have raised money to donate 130 bells, so far, to radiation and transplant centers around the U.S., and even in South America.

Would you go to a local Death Cafe? It's a chance to eat cake and talk end-of-life issues Times Telegram, Utica, NY; by Amy Neff Roth; 8/12/25 Key Points:

Sovereign Hospice highlights nutrition's role in hospice home care services News Channel Nebraska (NCN), reprinted from Aubrey, TX; Press Release; 8/8/25 Eating becomes more than a necessity during serious illness—it becomes a part of daily care that supports comfort, strength, and emotional connection. At Sovereign Hospice in Aubrey, Texas, nutrition is integrated into the services hospice offers, especially for patients receiving hospice at home services. The goal is to use food as a gentle tool to improve quality of life. Serious illnesses can change how patients eat. Appetite loss, difficulty swallowing, and taste changes are common, but they can be managed through small adjustments.