Literature Review
All posts tagged with “General News | Quality of Life.”
Patient-and caregiver-identified goals for advance care planning in patients with dementia or cognitive impairment
09/13/25 at 03:30 AMPatient-and caregiver-identified goals for advance care planning in patients with dementia or cognitive impairmentDementia; by Kristin L Rising, Angela M Gerolamo, Nazanin Sarpoulaki, Venise J Salcedo, Grace Amadio, Robin Casten, Anna Marie Chang, Alexzandra T Gentsch, C Virginia O'Hayer, Barry Rovner, Brooke Worster; 8/25Despite an aging population and acknowledged importance of advance care planning (ACP) for persons living with cognitive impairment, few engage in ACP. Most existing tools to facilitate ACP discussions focus on medical outcomes, despite research documenting that persons with cognitive impairment often have quality of life outcomes as primary goals. This qualitative study engaged persons with mild cognitive impairment (MCI) or dementia and their carers to identify outcomes that are most important to inform development of a tool to guide ACP interventions with this population. Participants identified 23 outcome categories for ACP interventions within the following six domains: social life, family involvement, current lifestyle, physical independence, financial independence and healthcare goals. Of the 23 outcome categories, the majority (86%) were quality of life goals and only a small fraction (14%) were healthcare specific.
The role of PMHNPs in palliative psychiatry: An ethical framework for care when remission is unattainable
09/13/25 at 03:20 AMThe role of PMHNPs in palliative psychiatry: An ethical framework for care when remission is unattainableJournal of Hospice and Palliative Nursing; by Trae Stewart; 8/23Patients with serious and persistent mental illness may experience intractable suffering despite exhaustive treatment, challenging the dominant curative paradigm in psychiatry. Palliative psychiatry offers an emerging alternative-prioritizing comfort, dignity, and quality of life when remission is no longer attainable. This article presents a comprehensive ethical and clinical framework for integrating palliative psychiatry into psychiatric-mental health nurse practitioner (PMHNP) practice. Drawing parallels with somatic palliative care, the author explores the theoretical foundations, diagnostic complexities, and ethical imperatives guiding palliative psychiatry. Legal challenges, such as hospice eligibility criteria and involuntary treatment statutes, are also examined, with recommendations for practice and policy reform. Assistant Editor's note: As I search for pertinent articles to add to this newsletter, I am delighted to find so many that address a variety of aspects of palliative care. I see articles on palliative care in the ED, palliative care for special populations, palliative care for transplant patients, and as highlighted in this article, palliative care in psychiatry. It makes me think that maybe, just maybe(!), the many benefits of palliative care are finally being recognized and embraced by mainstream health care.
Winning at work and home with Randy Gravitt
09/12/25 at 03:00 AMWinning at work and home with Randy Gravitt Teleios Collaborative Network (TCN); host Chris Comeaux with Randy Gravitt; 9/10/25 Join us in this insightful episode of "The Anatomy of Leadership" as we explore the challenge of winning at work and family life with Randy Gravitt, CEO of Lead Every Day. When was the last time you examined the connection between your leadership at work and your life at home? In this eye-opening conversation, Randy Gravitt, CEO (Chief Encouragement Officer) of Lead Every Day, reveals that our greatest superpower isn't talent or expertise—it's our ability to choose.
From panic to purpose: Tulane student’s bell project brings hope to cancer patients nationwide
09/10/25 at 03:00 AMFrom panic to purpose: Tulane student’s bell project brings hope to cancer patients nationwide CBS WWL-4, New Orleans, LA; by Meg Farris; 9/8/25 A little girl whose mother was diagnosed with a very serious illness could have never dreamed that several years later, she'd be helping patients across the country and beyond. ... Belle Spar vividly remembers, ... “I had a panic attack, hysterically crying. I thought I was going to lose my mom. I was 12. I was terrified ...” Belle Spar, 21. [The ritual of ringing the bell at the end of cancer treatment became a symbol of hope.] That 12-year-old ... is now a senior at Tulane University. During those nine years as an adolescent, she and her sister, Alexa, accomplished something remarkable. They have raised money to donate 130 bells, so far, to radiation and transplant centers around the U.S., and even in South America.
Serious illness and end of life in LGBTQIA+ older adults
08/30/25 at 03:30 AMSerious illness and end of life in LGBTQIA+ older adultsDelaware Journal of Public Health; by Sarah Matthews; 7/25Gender-affirming care is just as important during serious illness and end of life. Typically, gender-affirming hormone therapy is maintained throughout life to provide masculinizing or feminizing effects as desired. At end-of-life, it may be the person’s wish to continue hormones even if the medication poses additional risk. Whenever possible, gender expression preferences of LGBTQIA+ elders should be honored. TRANSforming Choices Healthcare Decisions Starter Guide is an excellent resource for transgender, gender-diverse, and gender-expansive people to make choices about their healthcare including gender-affirming care. Funeral directives are available to ensure that LGBTQIA+ elders’ funeral wishes are followed, including name, pronouns, and presentation of the body.
Would you go to a local Death Cafe? It's a chance to eat cake and talk end-of-life issues
08/13/25 at 03:00 AMWould you go to a local Death Cafe? It's a chance to eat cake and talk end-of-life issues Times Telegram, Utica, NY; by Amy Neff Roth; 8/12/25 Key Points:
Field notes from the end of life: My thoughts on living while dying
08/12/25 at 03:00 AMField notes from the end of life: My thoughts on living while dying Texarkana Gazette, Texarkana, TX; 7/26/25 As friends are quick to tell me, we are all living with dying. True enough. Especially because I'm 76, or, as my late husband, Alec, would say, "too old to die young." But it's still disturbing to get official notice of your imminent demise. ... In a series of stories, I'll be sharing my field notes as I make my way from here to there, in the hope that others might find it useful. ... When I start feeling grim about my situation, I'm finding it useful to take a "Would it help?" moment to consider whether my response can improve the situation or help me cope.
Sovereign Hospice highlights nutrition's role in hospice home care services
08/11/25 at 03:00 AMSovereign Hospice highlights nutrition's role in hospice home care services News Channel Nebraska (NCN), reprinted from Aubrey, TX; Press Release; 8/8/25 Eating becomes more than a necessity during serious illness—it becomes a part of daily care that supports comfort, strength, and emotional connection. At Sovereign Hospice in Aubrey, Texas, nutrition is integrated into the services hospice offers, especially for patients receiving hospice at home services. The goal is to use food as a gentle tool to improve quality of life. Serious illnesses can change how patients eat. Appetite loss, difficulty swallowing, and taste changes are common, but they can be managed through small adjustments.
How one man’s dying wish was denied by the health care system
08/07/25 at 03:00 AMHow one man’s dying wish was denied by the health care system Synopsi, from MedPage Today; by Caitlin E. Morh, MD; 8/5/25 “This is Dr. Mohr.” I answered a number I didn’t recognize. “It’s Irving,” said the frantic voice. “He collapsed. The paramedics are working on him now.” “They’re doing compressions? Stop! Put the paramedic on the phone!” My father-in-law, Irving, the stoic Danish-American Navy veteran, had been on hospice for 3 months. His POST (physician order for life sustaining treatment) form was on file with the hospice agency and his custodial care facility: DNR/DNI, comfort measures only. ... “I’m Irv’s daughter-in-law. I’m a physician. He’s a DNR, he’s on hospice. Stop doing compressions.” 1, 2, 3, 4, 5, 6, 7, 8, 9, 10 ... I listened to the ACLS algorithm unfold in the background. ...
Hearing loss, loneliness may contribute to cognitive decline in older adults
07/30/25 at 03:00 AMHearing loss, loneliness may contribute to cognitive decline in older adults McKnights Senior Living; by John Roszkowski; 7/28/25 Hearing loss and loneliness can contribute to dementia in older adults, and simple interventions to address hearing loss, such as hearing aids, may reduce cognitive decline in some cases, new research finds. ... Results of the study showed that higher levels and worsening self-reported hearing impairment were associated with steeper decline in episodic memory issues and executive functioning (verbal fluency). Further, the researchers found that individuals who were not socially isolated but still felt lonely saw their cognitive decline accelerate if they were deaf.
Healthy days at home and prognosis of older adults with cancer and non-cancer serious life-limiting illnesses
07/26/25 at 03:00 AMHealthy days at home and prognosis of older adults with cancer and non-cancer serious life-limiting illnessesBMC Geriatrics; Oluwaseun J. Adeyemi, Nina Siman, Allison M. Cuthel, Keith S. Goldfeld, Corita R. Grudzen; 7/25Approximately 75% of U.S. older adults with serious life limiting illnesses visit the emergency department (ED) in the last six months of life, with three quarters of these individuals being admitted to the hospital. In this context, Healthy Days at Home (HDaH) and prognosis have emerged as important concepts for assessing and guiding care among older adults with serious life-limiting illnesses. HDaH is a patient-centered outcome measure that captures the number of days individuals spend at home without hospitalizations or ED visits. Among US older adults with serious life-limiting illnesses, worse prognosis is associated with fewer HDaH. Increasing age is associated with fewer HDaH, with substantial variability by race/ethnicity. In contrast, cancer is associated with more HDaH.Assistant Editor's note: "Healthy Days at Home (HDaH)" is such a fabulous concept, and so in keeping with the intent and goals of palliative care. Perhaps a HDaH is a quality measure that palliative care providers might consider using.
Ok, please help calm my anxiety. My mother has drastically improved in the last couple of days since going on hospice.
07/22/25 at 03:00 AMOk, please help calm my anxiety. My mother has drastically improved in the last couple of days since goin on hospice. Aging Care; by Oedgar23; 7/17/25 So in the hospital, my mother was in kidney failure. The last couple days after stopping vancomycin for about five days, her GFR had come up to 19. That’s the most recent Number and then they stopped drawing labs because we placed her on Hospice. We consulted with palliative care team. They wanted to do a feeding tube and we said no. They said she had advanced dementia. [Describes improvements since hospice.] ... What if she gets taken off hospice? ... What if she no longer qualifies for hospice, passes as normal cognitively, starts demanding to go home, does not qualify for long-term care, Medicaid, etc. ... But I am super unnerved because she looks a whole lot better than she has been looking. ...Editor's Note: Yes, we all know that the person can get better with hospice care, because of holistic person-centered care, caregiver education and support, and many more factors. This can be confusing. The dying trajectory may have been interrupted or simply calmed with better symptom management and quality of life. This daughter is asking normal, crucial questions which the hospice team needs to be addressing with her. Examine your live discharge data, Policies and Procedures, communication practices with the patient and family about recertifications, Incident Reports from upset caregivers/families, and CAHPS Hospice scores.
Mindfulness and tai chi improve mood in cancer survivors
07/01/25 at 02:55 AMMindfulness and tai chi improve mood in cancer survivors Medscape, reposted in AAHPM; ed. by Gargi Mukherjee; 6/25/25 Both Mindfulness-Based Cancer Recovery (MBCR) and Tai Chi/Qigong (TCQ) significantly improved mood in survivors of cancer, whether participants selected their preferred program or were randomly assigned to either type of program. MBCR had greater benefits in reducing tension and anger, while TCQ was particularly effective in reducing depression and boosting vigor.
How long was Adriana Smith on life support? Brain‑dead nurse's baby delivered by C‑section
06/20/25 at 03:00 AMHow long was Adriana Smith on life support? Brain‑dead nurse's baby delivered by C‑section Enstarz; by David Unyime Nkanta; 6/18/25 The 31-year-old nurse was declared brain dead early in her pregnancy—her baby was born via C-section nearly four months later, sparking legal and ethical debate. Adriana Smith, a 31‑year‑old nurse in Atlanta, was declared brain dead in mid‑February after suffering serious blood clots in her brain. Despite devastating diagnosis, she remained on life support for nearly four months—a decision doctors said was legally necessary under Georgia's strict abortion laws. This rare case of maternal somatic support—keeping a brain-dead woman alive to deliver a baby—is highly unusual. On 13 June, doctors at Emory University Hospital performed an emergency c‑section, delivering a boy they named Chance, weighing just 1 lb 13 oz (around 830 g). ... Smith's mother, April Newkirk, described the ordeal as 'torture,' saying: 'I see my daughter breathing, but she's not there.' The family maintain that they were never allowed to make treatment decisions, a situation that has deeply distressed them and prompted calls for change.
Sixteen years with leukemia taught me to savor life
05/22/25 at 02:00 AMSixteen years with leukemia taught me to savor life Cure; by Michelle Lawrence; 5/21/25 I’ve lived with large granular lymphocytic leukemia for 16 years and have learned to spend my energy wisely, embrace palliative care and choose joy over anger. ... It has been an exhausting journey, but I am blessed to have survived 16 years. ... In the beginning, I didn't care; I told everyone because I was treatment-focused, but now I am focused on quality of life. Cancer has robbed me repeatedly. Peers and family members are married and have careers and families. They plan birthday parties and playdates and worry about their kids’ homework. I celebrate the fact that I could take a shower and get dressed by myself. I grieve for those missed opportunities. ... I have recently, in the past couple of years, transitioned into palliative care, a choice I never dreamed of ever making. ... I am a survivor — I am more than my diagnosis. I am not Michelle, the cancer patient; I am Michelle who has cancer. ...
You might live to be 100. Are you ready?
05/21/25 at 03:00 AMYou might live to be 100. Are you ready? The Guardian; by Andrew J. Scott; 5/15/25 Ethel Caterham, at the age of 115 years, is said to be the oldest person alive. She offers the sage life advice to “say yes to every opportunity because you never know what it will lead to. Have a positive mental attitude and have everything in moderation.” When she was born in 1909, the average life expectancy of a British female was 52 years – becoming a centenarian was a remote prospect. ... Today, according to the United Nations, centenarians are the fastest growing age group. By 1950, there were an estimated 14,000 whilst today there are nearly 750,000, projected to reach nearly 4 million by 2054. ... Today, there is too large a gap between average lifespan and healthspan. The number of years we are likely to live has increased more than the number of years we are likely to remain healthy. Reducing this gap is critical for seizing the advantages of longer lives.
5 energy-boosting ways to overcome your leadership fatigue
05/21/25 at 02:00 AM5 energy-boosting ways to overcome your leadership fatigue Fast Company - Mindfulness at Work; by Katharine Manning; 5/16/25 Leaders today are stretched to the breaking point. Many managers enter their roles wanting to coach and care for their teams. But in today’s workplace, that vision is colliding with a lengthening list of competing pressures: performance metrics, shifting workplace norms, and the unrelenting emotional labor of guiding teams through crisis after crisis. As one manager told me, “I want to be an empathetic leader and support my team, but we still have to make the numbers. Mostly, I just stay later myself.” Another admitted, “Last year I ended up in the hospital.” ... How Managers Can Overcome Leadership Exhaustion: ...
‘Don’t be sad. I’ve had a great life’: John Shakespeare on the art of living
05/20/25 at 03:00 AM‘Don’t be sad. I’ve had a great life’: John Shakespeare on the art of livingOur Community Now; by Peter FitzSimons; 5/18/25 JS [John Shakespeare]: I’m a realist at heart, Pete, and once I know that something is irreversible I have no choice but to accept it. There is a certain sense of peace that comes from acceptance. It eliminates the need to ask “why me?” and “if only”. Fitz: I have been told, wonderfully, that since that outpouring of love for you last Friday, there has been a small uptick in your prognosis?JS: Haha, I think I just had a big adrenaline rush from that one! Hard not to feel better with 209 people you love, in turn, lining up to hug you! ... [ More dialogue]Fitz: What you are going through will soon enough confront all of us, as we come face to face with our mortality. What advice do you have for us? JS: My motto is “accept, adjust, adapt”. The key is to be able to accept something that can’t be changed. Only then will you find some peace. Otherwise, it will be a battle with the unmovable. Sort out your financials so that your family will be as secure as possible, and that will give yourself a sense of relief to carry into your final days. Have as much fun as your energy levels allow!
Unintended, percolated work: Overlooked collaborative opportunities during end-of-life care
05/16/25 at 03:00 AMExploring overlooked collaborative opportunities during end-of-life care Medical Xpress; by Institute of Science Tokyo; 5/14/25 [This study's researchers describe:] "Bereaved family members broadly recollected the mixed regretful actions and decisions that should have been taken during the end-of-life care process. Coordination and cooperation challenges that existed between health care professionals and family caregivers emerged as factors that impeded these actions at the time." [They identified three types of] unintended, percolated work (UPW). ...
Palliative and end-of-life care during critical cardiovascular illness: A scientific statement from the American Heart Association
05/16/25 at 02:00 AMPalliative and end-of-life care during critical cardiovascular illness: A scientific statement from the American Heart Association American Heart Association; by Erin A. Bohula, MD, DPhil, Michael J. Landzberg, MD, Venu Menon, MD, FAHA, Carlos L. Alviar, MD, Gregory W. Barsness, MD, FAHA, Daniela R. Crousillat, MD, Nelia Jain, MD, MA, Robert Page II, PharmD, MSPH, FAHA, Rachel Wells, PhD, MSN, and Abdulla A. Damluji, MD, PhD, MBA, FAHA on behalf of the American Heart Association Acute Cardiac Care and General Cardiology Committee of the Council on Clinical Cardiology; and Council on Cardiovascular and Stroke Nursing; 5/15/25 Abstract: Cardiac intensive care units are witnessing a demographic shift, characterized by patients with increasingly complex or end-stage cardiovascular disease with a greater burden of concomitant comorbid noncardiovascular disease. Despite technical advances in care that may be offered, many critically ill cardiovascular patients will nevertheless experience significant morbidity and mortality during the acute decompensation, including physical and psychological suffering. Palliative care, with its specialized focus on alleviating suffering, aligns treatments with patient and caregiver values and improves overall care planning. Integrating palliative care into cardiovascular disease management extends the therapeutic approach beyond life-sustaining measures to encompass life-enhancing goals, addressing the physical, emotional, psychosocial, and spiritual needs of critically ill patients. This American Heart Association scientific statement aims to explore the definitions and conceptual framework of palliative care and to suggest strategies to integrate palliative care principles into the management of patients with critical cardiovascular illness.
Newly Available: Improving Dying
05/12/25 at 03:00 AMNewly Available: Improving Dying Hospice Foundation of America, Washington, DC; Press Release, contact Lisa Veglahn; 5/7/25 Virtual reality, physical therapy, music therapy, pet care, and even a haircut are therapeutic, innovative, and practical ways to improve the quality of life for people with terminal illness and are profiled in a new book and continuing education course recently released by Hospice Foundation of America (HFA). “End-of-life care providers are doing amazing work that rarely gets the attention it deserves,” said Amy Tucci, HFA’s president and CEO. “With Improving Dying, HFA’s goal is to recognize their efforts and provide models that can be replicated to enhance care for dying and the bereaved.”
To the brink and back: How near-death experiences can change how people work
05/08/25 at 02:00 AMTo the brink and back: How near-death experiences can change how people work The Conversation; by Adauri.AI; 5/5/25 What happens when someone comes close to death and then returns to everyday life, including work? For some, the experience can be transformative. ... Although near-death experiences (NDEs) have been studied since the 1970s, we know relatively little about how they affect people after the event. Research suggests people who have near-death experiences may feel increased empathy, spiritual growth, a sense of purpose and even change how they approach their jobs. Our recent study explored how near-death experiences impact people’s return to work. We interviewed 14 working adults who had a near-death experience as a result of medical crises such as a heart attack or accidents such as a car crash. What we found challenges conventional ideas about success, motivation and workplace culture.
Hillsdale woman celebrates 100th birthday [hospice pioneer, 1970's]
05/06/25 at 03:00 AMHillsdale woman celebrates 100th birthday [hospice pioneer, 1970's] HudsonValley360, Hudson, NY; by Tiffany Greenwaldt-Simon; 5/2/25 A Hillsdale resident is celebrating a big milestone - turning 100. Dr. Irma Waldo was born on May 1, 2025, and recently celebrated joining the centenarian club with an openhouse celebration at the Copake Community Center Friday afternoon. ... [Dr. Waldo] opened her own pediatric practice in Hillsdale in 1952 - often making house calls and getting to know the families she was caring for. ... For Waldo, the most rewarding part of her medical career was the hospice service she helped create, Roe Jan Hospice. She received a call in the 1970s from a doctor in New York City who had a 9-year-old patient with a brain tumor. ... The hospice was expanded to cover the all of Columbia County over the course of 18 years, eventually becoming Columbia County Hospice, and then being absorbed into Hudson Valley Hospice. "That was the best thing, most important part of my practice, forming that hospice," Waldo said.Editor's note: Click here for more history.
Breaking with the status quo in end-of-life care through de-implementation
05/03/25 at 03:20 AMBreaking with the status quo in end-of-life care through de-implementation Journal of Internal Medicine; by Chetna Malhotra and Ellie Bostwick Andres; 4/17/25... In the realm of serious illness, many patients undergo interventions that may marginally prolong life but often sacrifice quality of life and entail significant costs. These interventions, categorized as ‘low-value care’, often involve complex procedures, frequent hospitalizations and intense medical management, leading to considerable discomfort, reduced functional ability and overall decreased well-being and calling into question the efficiency and effectiveness of current end-of-life (EOL) care practices. ... How to conduct de-implementation in EOL contexts:
Safe Harbor Estate Law launches “Dignity Drive” to support Minnesota hospice patients during Elder Law Month
05/02/25 at 03:00 AMSafe Harbor Estate Law launches “Dignity Drive” to support Minnesota hospice patients during Elder Law Month The Luverne Journal, PR Underground; 5/1/25 In recognition of May as Elder Law Month, Safe Harbor Estate Law is proud to announce the launch of the Safe Harbor Dignity Drive, a community-wide campaign to collect clean, comfortable clothing and comfort items for hospice patients facing end-of-life care with limited resources. Inspired by conversations with their partners at St. Croix Hospice, Safe Harbor learned that many patients spend their final days without appropriate clothing—often due to significant weight loss, mobility challenges, or a lack of support. Soft, well-fitting clothing can provide warmth, dignity, and peace during an incredibly sacred time. “We believe everyone deserves to feel respected and cared for—especially in their final days,” said Margaret Barrett, founder of Safe Harbor Estate Law. “The Dignity Drive is our way of helping ensure no one spends those moments without the basic comfort of clean, cozy clothing.”