Literature Review

The nurse who helps dying patients write poetryThe Telegraph (UK News), by Flora Bowen; 1/25/24What will happen to me after I die? Will my family cope? How will I be remembered? These are familiar questions for Rekha Vijayshankar. As a palliative care nurse who is now Marie Curie’s deputy head of quality and clinical governance, she has helped thousands of patients to explore their feelings towards such themes through writing poetry and journal entries together.

Cutting hair, growing care: Stylists volunteer for hospice patients Montrose Press, by Katharhynn Heidelberg; 1/22/24... [Kathy] King is among several stylists who volunteer to cut hospice patients’ hair — just a way, they said, of giving back by making others feel good. ... “Contributing is probably the highest gift you can give,” said King. “As far as HopeWest goes, I lose the word sometimes as to what they do, and what they do for the community. I’m just so proud to (volunteer) for them.”

Head chef at Jersey Hospice cherishes the privilege of cooking for end-of-life patientsBNN, by Mahnoor Jehangir; 1/19/24The head chef at Jersey Hospice, Sam Sherwood, has a deeply personal mission. His role is not merely a professional one, but a labor of love, driven by the memory of his father who passed away just days before Sherwood took the helm of the hospice kitchen. For Sherwood and his team, preparing meals for patients in end-of-life care is more than just a job; it’s a calling.

Hollywood's portrayal of cancer in movies fuels misconceptions, new study findsPR Newswire; 1/17/24... Researchers reviewed more than 100 films released between 2010-2020 and found several key findings about films' lasting impact on public perception of cancer treatment, prevention and care options. Key findings from the study include:

Increasing longevity, decreasing health quality: A close look at American health trendsBNN, by Ayesha Mumtaz; 1/16/24Recent data paints a concerning picture of Americans’ health despite an increase in longevity. While people are living longer, the quality of their health during these extended years is deteriorating. 

Man with cancer once wanted assisted suicide, but was glad he chose natural death insteadLive Action, by Cassy Fiano-Chesser; 1/15/24“In our last moments, when he was awake, I sat on his bed and sang to him — Joni Mitchell’s Both Sides Now. He had watched her sing it at the Isle of Wight pop festival and it was a magical memory he had relived with us.

Moving beyond death anxiety to reflections on mortalityPsychology Today, by Shoba Sreenivasan and Linda E. Weinberger, reviewed by Lybi Ma; 1/15/24For the healthy, it may be considered macabre to contemplate their mortality; it may seem fatalistic, negative, and something that pulls one away from the present joy of living today. Yet, it can also remind us of the inevitable and consider how we want to spend today as well as whatever time we have left.

Maine governor dedicates $2.5 million to support elderly population through innovative programBNN, by Saboor Bayat; 1/9/24In an unprecedented move, Governor Janet Mills is allocating $2.5 million of federal funding from the American Rescue Plan Act to bolster support for Maine’s aging population. Aiming to enhance the lives of older adults and their caregivers, this initiative pioneers the establishment of community-based navigator roles for a more efficient connection to essential resources.

Bringing peace and joy: Evensong performs familiar music for hospice patientsThe Ellsworth American, by Jess Cummings; 1/8/24Evensong, a group of choral singers operating under the Hospice Volunteers of Hancock County, has spent the last 15 years singing for individuals nearing the final moments of their lives. The group specializes in hospice and palliative care, traveling upon request all over Hancock County to sing at the bedsides and homes of patients in need. ... “Music is a huge thing,” [musical director] Cookie Horner says. “It goes to a different part of your brain than everything else…we’ve seen that firsthand.” Evensong’s repertoire includes music like spiritual and secular hymns, familiar folk songs and even popular special requests.

Financial hardship drives unhappiness in people living with dementia, study findsMcKnights Long-Term Care News, by Kristen Fischer; 1/4/24A new study is uncovering just how tough it can be financially to live with dementia. The report, published Dec. 29 in the Journal of the American Geriatrics Society, found that nearly 56% of people with dementia face financial hardships. Those financial challenges are linked with worse reported satisfaction with life and healthcare. ... The study examined data from 534 participants with dementia who shared details on satisfaction with their lives and their healthcare. The researchers compared that data to information from questionnaires from 576 people who were newly diagnosed with cancer and receiving treatment.

How to live: What the dying tell usPsychology Today, by Tasha Seiter; 1/2/24Subtitle: The top regrets of the dying and how we can use them to better our lives.Bronnie Ware, a hospice nurse, asked the dying what they regretted most. While it may have been too late for her patients, their answers can tell us about how we should be living while we still have the chance. Here are the top five regrets of the dying, according to her research (both qualitative and quantitative):

Palliative medicine helps stage IV melanoma survivor reclaim her life after treatmentAtrium Health; 1/1/24After a stage IV malignant melanoma diagnosis, brain surgery, radiation therapy and immunotherapy, Kate Crawford, 45, has reclaimed her quality of life thanks to palliative medicine at Atrium Health Levine Cancer. ...  While she has a vibrant, positive energy, the cancer treatments and disease itself led to numerous side effects and symptoms that drastically affected her quality of life. But thanks to palliative medicine at Levine Cancer, Kate says she feels more clear than she has in years. And her family says: “Kate is back.”

I Promised My Sister I Would Write About How She Chose to DieBy Steven Petrow, Guest ColumnistNew York TimesDecember 28, 2023On the day before my sister Julie died, I lay down on her bed and held her gingerly in my arms, afraid that any pressure would hurt her. She had lost so much weight that she looked like a stick figure I might have drawn when we were kids.