Literature Review

Couple marries at Iowa River Hospice to share day with dying grandfather Times-Republican, by Sara Jordan-Heintz; 3/20/24 It takes a village to coordinate a last-minute wedding, and in the case of Madeline and Quinton Ward, it also took a hospice house. The couple wed at Iowa River Hospice on Monday, February 26 so her grandfather Roger Bauder could officiate. “I wanted our favorite person — my grandfather — to marry us,” Maddie said. “We were blessed to have lots of family and close friends at his side.”

I'm 34 and terminally ill, but I'm not scared of death anymore Metro / Microsoft Start, by Jyoti Smith; 3/31/24 I’ve spent the last nine years living with the idea of dying. In 2015, aged 25, I received my terminal diagnosis. ... My prognosis: three-to-five years. But here I am, almost 10 years on, at 34, and I’m living life to the fullest – if on the edge – and it’s largely down to one thing. Embracing hospice care. ... Editor's Note: Jyoti describes her journey and the care she now received from Marie Curie (hospice), in the United Kingdom.

Antibiotics in end-of-life care NEJM Journal Watch, by Abigail Zuger, MD; 3/27/24Antibiotics often are considered to be among the gentler and more comfort-oriented interventions in end-of-life care, certainly far less aggressive than intubation or last-ditch surgery. ... Still, antibiotics do entail their own costs in the form of toxicities and need for intravenous access, and liberal antibiotic use reliably worsens institutional and community drug-resistance profiles. ... A new review was written for infectious disease consultants but contains specific suggestions that should interest both generalists and other subspecialists caring for dying patients. 

Hospice nurse plays instrumental role in patient’s joyCity Sun Times, by Lin Sue Flood; 3/27/24You see it at every symphony performance - people so enraptured by the music that their eyes close and their fingers dance in the air. Stuart Brown is one of those people. But as illness began to limit his mobility, the 81-year-old relinquished the thought of ever attending a live concert again. That’s when his Hospice of the Valley nurse secretly reached out to the Phoenix Symphony with a request to hold a small private concert in his Scottsdale home. “We absolutely can make this happen for him and his family,“ said Valerie Bontrager, director of community engagement. Editor's Note: Need some inspiration? Read this heart-warming story.

Why California doesn't know how many people are dying while homelessKQED, by Vanessa Rancano; 3/25/24 The grants manager and his team at Alameda County Health Care for the Homeless knew people were dying on the streets, but they wanted more than anecdotal evidence; they wanted data that could show them the big picture and help them hone their strategies. ... Alameda County’s latest homeless mortality report is now prompting the team to focus on how to extend palliative care services to unhoused people with terminal illnesses. Garlin estimates almost one-fifth of those who died in 2022 would likely have been eligible for hospice care.

Last Dance: Holland Home throws prom for retirees, end-of-life patients Fox 17 West Michigan, by Sam Landstra; 3/23/24 The timeless nature of the suit and tie was again proven on Saturday by senior promgoers at Holland Home as they danced with their longtime dates at the Grand Rapids retirement home and hospice care facility. ... Donning formal wear donated by Belding Beauties & Bro's, residents walked and wheeled down a fourth floor hallway in Holland Home, gathering in a room decorated with streamers and disco balls.

Incurable but not hopeless: How hope shapes patients’ awareness of their advanced cancer prognosis The Conversation, by Jean Mathews and Michael Brundage; 3/24/24Hope is defined as the expectation of achieving a future good. Patients with cancer, whether it is curable or not, prioritize cure as their highest hope. ... Previous research indicates that less than half of patients with incurable cancer are aware of their prognosis. This is often attributed to a failure of communication. ... In the context of advanced cancer, the relationship between hope and hopelessness is balanced by acceptance, which can re-direct hope to new goals beyond cure, such as hope for connection with others and enjoyment of daily pleasures. 

Physicians often shy away from preparing their patients to dieToday'sHospitalist, by Colleen Poggenburg, MD, MS; 3/22/24 There's beauty in death if we can tolerate looking. ... The beauty in death is the reflections that occur in the weeks, days and minutes prior to it, which together make up a summary of someone’s life. Why then do physicians view this time-honored decline as a series of clustered medical problems, when it really is just someone moving toward death? Are we so concerned about treating just one more condition, and do we actually think it will solve the growing list of medical problems that dying patients have? ... I compared dying to pregnancy to “soften” the description of this decline. Here’s how I see that comparison: ...Editor's Note: The author offers a fascinating, meaningful comparison of physician/patient conversations with someone who is pregant versus someone who is dying. I encourage you to share this article with your clinical leaders (and adapt it for staff), as this model beautifully reframes important conversations that can empower patients and their families.

Student-run Arizona non-profit uses origami to connect with hospital [and hospice] patients The State Press, by Pippa Fung; 3/19/24The Wishing Crane Project, founded by Arizona student Charles Zhang, serves hospice and hospital patients through art. In the story of Sadako and the Thousand Paper Cranes, a young girl tried to fold 1,000 paper cranes in the hopes that it would help her push through a terminal illness. Years later, students across Arizona and at ASU are folding their own cranes [and writing hopeful messages] to support others through their difficult journeys. 

Giving hospice patients a dignified end-of-life experience Steve Adubato On the Air, with Charles Vialotti, MD; 3/13/24On--location at Villa Marie Claire Residential Hospice, Steve Adubato is joined by medical director, Charles Vialotti, MD to talk about his personal commitment to hospice care and giving residents and their families a dignified end-of-life experience.

Navigating difficult conversations with patients with terminal cancer diagnoses Oncology Nursing News, by Darlene Dobkowski, MA; 3/18/24 Although oncology nurses need strong communication skills to help all of their patients navigate their cancer journeys, it is critical to have the ability to have difficult conversations with patients who received a terminal diagnosis, ... Betty Ferrell, Ph.D., M.S.N., CHPN, director and professor in the Division of Nursing Research and Education in the Department of Population Sciences at City of Hope in Duarte, California, said in an interview with Oncology Nursing News. For the past 24 years, her institution has been directing a project called the End-of-Life Nursing Education Consortium (ELNEC), which is a palliative care training program and includes a module focused on communication.  ... “One of the things that we teach nurses is … that your No. 1 job is to listen,” Ferrell said. “Another thing that we say to nurses is, it is not your job to have all the answers. Patients ask very unanswerable questions. ‘Why me?’ is not an answerable question. But when a patient says, ‘Why me,’ then we want nurses to have good communication skills to say, ‘I can imagine why you're asking that question. Because as you've shared with me, you had no idea that you might be diagnosed with cancer, or you're the first person in your family to ever have cancer.’”

Most Americans would rather feel 25% healthier than live 25% longer. Here’s how to lengthen your health span Fortune Well, by Alexa Mikhail; 3/15/24 Across all generations, more Americans would choose to feel 25% healthier than live 25% longer. Broken down, 60% of Gen Z and millennials say they would choose to feel healthier rather than live longer as compared to 67% of Gen X and 70% of Boomers, according to a consumer trends report from The New Consumer in partnership with Coefficient Capital. Only 15% of Boomers, 22% of Gen X, and about a third of Gen Z and millennials say they would rather live 25% longer.