Literature Review

Hospice and palliative care experiences as expressed on the r/hospice and r/palliative subredditsAmerican Journal of Hospice & Palliative Medicine; Riley Shin, BSA; Ashley Shin, MD; Elizabeth K. Nugent, MD, MS; 6/25 Reddit, an anonymous online community forum, provides space for sharing medical information, seeking emotional support, and facilitating open communication. This qualitative study examined the most popular questions on the r/hospice and r/palliative communities on Reddit. Seven primary themes emerged from question and advice-seeking r/hospice comments: (1) the dying process (24%), (2) coping and emotional support for patients and caregivers (22%), (3) logistics of hospice and palliative care (22%), (4) medication treatments and side effects (13%), (5) negative hospice experiences (10%), (6) support for hospice providers (7%), and (7) other less related material (2%). Assessment of posts on the r/hospice and r/palliative subreddits revealed gaps in communication between patients, caregivers, and healthcare providers in several important areas, most importantly in demystifying the dying process and providing patient and caregiver support.

5 ways to have a ‘good death’ — including one of the biggest mistakes people make New York Post; by Reda Wigle; 7/3/25 No one gets out of life alive — but one expert says we can take steps to make sure we leave the earthly plane riding the high of a “good death.” “While 80% of people want to die at home surrounded by loved ones, only 30% actually do,” End Well founder Dr. Shoshana Ungerleider told The Post. “This massive gap reflects our system’s inability to honor what patients actually value.” As our cultural relationship to mortality has changed, Ungerleider notes that we have become disconnected from the process of death and, in turn, fail to plan appropriately for it. But if you’re not sure where to start, she has a helpful checklist of everything you should be doing to avoid a “bad death.”

Hospice of Redmond to host special presentation by Project Recover: Bringing missing military home The Source, Redmond, OR; 7/1/25 Hospice of Redmond is honored to announce a special presentation featuring Project Recover, an organization dedicated to finding and bringing home military personnel missing in action (MIA). The event will take place on Thursday, July 9, 2025, from 1:30-3:00 PM ... The presentation will feature Adrian De La Rosa, Chief Operating Officer of Project Recover, who will share insights into the organization's critical work. ... "At Hospice of Redmond, Veterans are near and dear to our hearts," said Jody Logsdon, Volunteer Coordinator at Hospice of Redmond. "We believe every veteran deserves to be honored, thanked for their sacrifice, and returned home with the dignity they’ve earned. ..."

[United Kingdom] King's College London: Half of UK adults worried about painful death King's College London; 6/24/25 Almost half (47%) of UK adults are worried that they or their loved ones will have a painful or undignified death, according to a survey commissioned by King’s College London. The survey conducted by Focaldata explores public attitudes to death and dying and finds that almost half (44%) of respondents also feel worried about the quality of palliative and end-of-life care in the UK. Previous research indicates that up to 90% of people in the UK will require palliative care before they die. ... 40% of respondents said they did not know how to access palliative care in their area, and almost one third said they did not know enough about the healthcare system to find the support that a dying person needs. 

Nursing home is pressuring my mother-in-law to enter hospiceAging Care - Caregiver Forum - End of Life - Questions; question posed by "concerned8"; 6/12/25 I am her Health Care Surrogate but as they won't declare her incompetent it has not come into effect. I believe the home's intent is to prevent me from making the decision regarding hospice and instead to pressure her to enter it in various ways. ... I am not anti-hospice and expect her to enter it in the near future, but want that to be my decision, not the home's (even if it's portrayed as hers).  ... [An answer from another reader" Our family has only had bad experiences with three different hospice companies. Contrary to what most people believe, many patients are placed on hospice for free equipment and free services. I was told this by more than one hospice worker.Editor's Note: This post raises numerous troubling perceptions, with descriptions of poor hospice experiences. 

Four Seasons offers virtual dementia training Four Seasons, Flat Rock, NC; Press Release; 6/10/25 Four Seasons is excited to now offer Virtual Dementia Training to the community! The Virtual Dementia Tour (VDT) is a patented, ground-breaking, and evidence-based method of building a greater understanding of dementia. This training will be provided free for community groups or faith-based communities. There is a cost for external healthcare staff training. Learn more or schedule a training by contacting Mary Jo Powers (Four Seasons Director of Home Care) or Jenny Martin (Four Seasons Home Care Recruitment & Training Coordinator) at 828.696.0946 or HomeCareVM@FourSeasonsCFL.org. ... “Virtual Dementia Training helps caregivers better understand what their patients’ and loved ones’ lives are like. The training helps foster empathy and patience to ensure the best care and quality of life for those living with dementia. We are honored to bring this impactful training to our communities,” says Dr. Ruth Thomson, DO, MBA, HMDC, FAAHPM, FACOI, Four Seasons Chief Medical Officer.

Death literacy is fostering positive conversations about the end Counterpunch; by Caren Martineau; 5/30/25 “[D]eath literacy is defined as the knowledge and skills that make it possible to understand and act upon the end-of-life and death care options,” according to a 2024 article in the journal Palliative Care and Social Practice, and its four foundational pillars: knowledge, skills, experiential learning, and social action. ... The U.S. Census named 2024 as the start of “Peak 65,” a period that will last through 2027. Around 4.1 million Americans are expected to turn 65 each year from 2024 to 2027 (approximately 11,000 a day). By 2030, all baby boomers will be 65 or older. Implications of “Peak 65” include:

Public: If you think you may have experienced Medicare fraud, call 1-800-Medicare to report it. Posted on X; by Mehmet Oz, "DrOzCMS"; 6/2/25 There’s a Medicare scam out there that can really hurt people, and I want to make sure you’re aware! People are targeting older Americans to trick them to sign up for Hospice without their knowledge.   If you think you may have experienced fraud, call 1-800-Medicare to report it.  To learn more, go to http://Medicare.gov/fraud.

[UK] Students face the realities of hospice care in powerful visitDevonLive; by Lewis Clarke; 5/27/25 A visit to Exeter Hospice gave South Devon UTC students a moving insight into care careers—and the deep compassion behind them. Students from South Devon UTC in Newton Abbot have been given a rare glimpse into the realities of end-of-life care during a visit to Exeter Hospice, in what educators described as an eye-opening and inspiring experience. The visit formed part of the students’ health and social care curriculum and broader enrichment programme. Involving pupils from Years 10 to 13, the day provided an in-depth look at the range of careers within the hospice setting—from nursing and palliative care to occupational therapy, physiotherapy, counselling, and volunteer coordination.

Experts discuss what hospice and palliative care are and how they can help ideastream public media; by Leigh Barr; 5/21/25Contemplating a life-limiting or life-changing illness or even death can be difficult topics for Americans.  Last year, USA Today conducted a survey which found about 30% of Americans surveyed found it difficult to talk about or even contemplate their own mortality. When it comes to managing serious illness or the final phase of life, surveys show that a majority of Americans say they have at least heard of hospice or palliative care but most admit they may not know a lot about either topic. We're going to talk about both to begin Wednesdays “Sound of Ideas” and try to dispel some of the myths that may surround hospice and palliative care. 

6 ways to successfully implement clinical communication tools Forbes; by Judit Sharon; 5/19/25 In the high-stakes environment of healthcare, communication breakdowns can have life-or-death consequences. Yet too often, hospitals and healthcare systems assume that simply deploying new clinical communication and collaboration (CC&C) tools will solve the problem. The reality is more complex: Successful implementation depends just as much on operational alignment, cultural change and thoughtful execution as it does on the technology itself. To turn communication tools into real transformation, here are six ways to drive successful CC&C adoption.

Dementia patient discharged from hospice over Medicare requirement. Here’s why it happened WKMG-6, Deltona, FL; by Erika Briguglio and Louis Bolden; 5/14/25A Volusia County family is left scrambling after their loved one is abruptly dropped from hospice care. To qualify for hospice, patients must have a life expectancy of six months or less. However, for dementia patients, the prognosis can be unpredictable. Hospice care can be extended as long as the patient continues to meet Medicare requirements. Unfortunately, these requirements are why Amy Yates lost coverage for her 91-year-old grandmother. ... “I think it’s she hasn’t died fast enough, and it’s costing them money that they don’t want to spend,” Yates told News 6. ... What Yates’ family is dealing with is what Medicare calls live discharge, and they are not alone. The Hospice Foundation of America reports that 17% of people in 2022 who were admitted to hospice care were discharged; about 6% of the total caseload was discharged because they no longer met Medicare requirements for care under the hospice benefit.Editor's note: What are your hospice stats for live discharges? For Length of Stay (LOS)? This factor--with the face-to-face recertification requirement--is crucial. Unfortunately, many hospices misused President Jimmy Carter's extraordinarily long LOS with misleading information about hospice care. They watered down "end-of-life" care and never mentioned anything about a basic recertification process. Warm, user-friendly language can be used with integrity, authenticity, and patient/caregiver support.

Interim HealthCare expands Alzheimer’s offerings through new partnership Home Health Care News; by Audrie Martin; 4/30/25 Interim HealthCare has expanded its Alzheimer’s care program through a new partnership with the Alzheimer’s Association. The partnership, announced on Wednesday, will enable Interim to bolster its existing Alzheimer’s offerings through additional educational programs and opportunities to participate in Alzheimer’s Association events.