Literature Review

All posts tagged with “Education | Community.”



[UK] Students face the realities of hospice care in powerful visit

05/29/25 at 03:00 AM

[UK] Students face the realities of hospice care in powerful visitDevonLive; by Lewis Clarke; 5/27/25 A visit to Exeter Hospice gave South Devon UTC students a moving insight into care careers—and the deep compassion behind them. Students from South Devon UTC in Newton Abbot have been given a rare glimpse into the realities of end-of-life care during a visit to Exeter Hospice, in what educators described as an eye-opening and inspiring experience. The visit formed part of the students’ health and social care curriculum and broader enrichment programme. Involving pupils from Years 10 to 13, the day provided an in-depth look at the range of careers within the hospice setting—from nursing and palliative care to occupational therapy, physiotherapy, counselling, and volunteer coordination.

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Mount Sinai establishes Steven S. Elbaum Family Center for Caregiving

05/26/25 at 03:00 AM

Mount Sinai establishes Steven S. Elbaum Family Center for Caregiving Mount Sinai, New York, NY; Press Release; 5/20/25 Mount Sinai announced that it will establish the Steven S. Elbaum Family Center for Caregiving, a groundbreaking initiative designed to improve how America's health care system recognizes and supports caregivers. Allison J. Applebaum, PhD, an expert in the psychological needs of caregivers and a Professor of Geriatrics and Palliative Medicine at the Icahn School of Medicine at Mount Sinai, will lead the new Center. Dr. Applebaum joined Mount Sinai in early September from Memorial Sloan Kettering Cancer Center, where she was the founding director of the Caregivers Clinic, an innovative program providing targeted psychosocial care to family caregivers of patients with cancer, from diagnosis through bereavement.  

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Experts discuss what hospice and palliative care are and how they can help

05/26/25 at 03:00 AM

Experts discuss what hospice and palliative care are and how they can help ideastream public media; by Leigh Barr; 5/21/25Contemplating a life-limiting or life-changing illness or even death can be difficult topics for Americans.  Last year, USA Today conducted a survey which found about 30% of Americans surveyed found it difficult to talk about or even contemplate their own mortality. When it comes to managing serious illness or the final phase of life, surveys show that a majority of Americans say they have at least heard of hospice or palliative care but most admit they may not know a lot about either topic. We're going to talk about both to begin Wednesdays “Sound of Ideas” and try to dispel some of the myths that may surround hospice and palliative care. 

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6 ways to successfully implement clinical communication tools

05/20/25 at 03:00 AM

6 ways to successfully implement clinical communication tools Forbes; by Judit Sharon; 5/19/25 In the high-stakes environment of healthcare, communication breakdowns can have life-or-death consequences. Yet too often, hospitals and healthcare systems assume that simply deploying new clinical communication and collaboration (CC&C) tools will solve the problem. The reality is more complex: Successful implementation depends just as much on operational alignment, cultural change and thoughtful execution as it does on the technology itself. To turn communication tools into real transformation, here are six ways to drive successful CC&C adoption.

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What is at-home hospice care and how it works near NYC

05/20/25 at 03:00 AM

What is at-home hospice care and how it works near NYC Medical Device News Magazine; 5/19/25 

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NorthStar Care Community launches 'Life's Big Moments' campaign to initiate nationwide conversation about end-of-life hospice care

05/20/25 at 03:00 AM

NorthStar Care Community launches 'Life's Big Moments' campaign to initiate nationwide conversation about end-of-life hospice care PR Newswire, Ann Arbor, MI; by NorthStar Care Community; 5/19/25 NorthStar Care Community has launched Life's Big Moments, a campaign that celebrates the beauty of life's journey from the big milestones to the small, everyday moments that leave the deepest impact on our well-being and purpose. The campaign aims to initiate conversation and awareness around end-of-life care while also raising money to benefit the members of NorthStar Care Community. Companies, organizations, and individuals are invited to support these efforts throughout the campaign, focusing on recognizing the needs of our Veterans.

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Dementia patient discharged from hospice over Medicare requirement. Here’s why it happened

05/15/25 at 03:00 AM

Dementia patient discharged from hospice over Medicare requirement. Here’s why it happened WKMG-6, Deltona, FL; by Erika Briguglio and Louis Bolden; 5/14/25A Volusia County family is left scrambling after their loved one is abruptly dropped from hospice care. To qualify for hospice, patients must have a life expectancy of six months or less. However, for dementia patients, the prognosis can be unpredictable. Hospice care can be extended as long as the patient continues to meet Medicare requirements. Unfortunately, these requirements are why Amy Yates lost coverage for her 91-year-old grandmother. ... “I think it’s she hasn’t died fast enough, and it’s costing them money that they don’t want to spend,” Yates told News 6. ... What Yates’ family is dealing with is what Medicare calls live discharge, and they are not alone. The Hospice Foundation of America reports that 17% of people in 2022 who were admitted to hospice care were discharged; about 6% of the total caseload was discharged because they no longer met Medicare requirements for care under the hospice benefit.Editor's note: What are your hospice stats for live discharges? For Length of Stay (LOS)? This factor--with the face-to-face recertification requirement--is crucial. Unfortunately, many hospices misused President Jimmy Carter's extraordinarily long LOS with misleading information about hospice care. They watered down "end-of-life" care and never mentioned anything about a basic recertification process. Warm, user-friendly language can be used with integrity, authenticity, and patient/caregiver support.

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A powerful film chronicles one man’s last days within a loving community for all to witness.

05/02/25 at 03:00 AM

A powerful film chronicles one man’s last days within a loving community for all to witness. Monterey County Now, Seaside, CA; by Pam Marino; 5/1/25 Facing certain death from a brain tumor, Ethan “E3” Sisser adopted a mantra. “I am embodied. I am empowered. I am ecstatic,” the 36-year-old would tell himself, in order to ward off oncoming seizures, carry himself through pain or recite for his many followers on social media. “E3” became his nickname. We see Sisser, looking into the camera, recite the mantra early in the documentary, The Last Ecstatic Days, released in 2024. We also meet his hospice and palliative care physician, Aditi Sethi, who leaves her position to become his death doula and friend. She fulfills his wishes for a peaceful death surrounded by a caring community, filmed for others to learn from. Director Scott Kirschenbaum – who made one of the definitive documentaries about birth, These Are My Hours – spent the last two weeks of Sisser’s life near his side with a camera, capturing each moment.

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Interim HealthCare expands Alzheimer’s offerings through new partnership

05/02/25 at 03:00 AM

Interim HealthCare expands Alzheimer’s offerings through new partnership Home Health Care News; by Audrie Martin; 4/30/25 Interim HealthCare has expanded its Alzheimer’s care program through a new partnership with the Alzheimer’s Association. The partnership, announced on Wednesday, will enable Interim to bolster its existing Alzheimer’s offerings through additional educational programs and opportunities to participate in Alzheimer’s Association events.

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[United Kingdom] New UK Centre hopes to change public attitudes towards grief

04/29/25 at 03:00 AM

[United Kingdom] New UK Centre hopes to change public attitudes towards grief University of Bristol, Bristol, UK; Press Release; 4/24/25 Grief affects everyone but is still very much a taboo subject in the UK. A new Centre - the first of its kind in the UK - hopes to shift public attitudes towards grief and create communities that are compassionate and connected in their support of people who are bereaved. The Centre for Grief Research and Community Engagement (Grief Centre) at the University of Bristol is launched today [24 April]. The Grief Centre will focus on interdisciplinary and multidisciplinary research into grief, death and loss, aiming to increase understanding of these fundamental aspects of being human and provide the space for new thinking, ideas and approaches.

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Prevention of acute hospital transfers for long-term care residents at the end of life

04/24/25 at 02:00 AM

Prevention of acute hospital transfers for long-term care residents at the end of life American Journal of Hospice and Palliative Medicine (AJHPM); by Kirsten Lanpher, DMS, MSPA, PA-C and Kirsten Brondstater, DMS, MSPAS, PA-C; 3/24/25 Findings: Long-term care residents are a vulnerable population with advanced comorbidities who often require high acuity care and are subject to preventable transfers to the hospital at the EOL. These disruptions in EOL care cause harm and complications, negatively impacting quality of care. The consequences of these events can be mitigated with early advance care planning to include documentation of EOL care goals, onsite medical clinicians to make critical decisions and provide care within LTC facilities, and adequate staffing with proper palliative and hospice care training. Conclusion: Immediate action is needed to advocate for this high risk population and implement interventions to prevent hospital transfers at the EOL, therefore improving quality of care and positively influencing LTC residents’ EOL experience.

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When they don't recognize you anymore

04/23/25 at 02:30 AM

When they don't recognize you anymore The New York Times - The New Old Age; by Paula Span; 4/20/25 People with dementia often forget even close family members as the disease advances. "It can throw people into an existential crisis," one expert said. [Additional access may require subscription.]

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Closing the gap in end-of life care coverage: The role of nonprofits in policy advocacy

04/15/25 at 03:00 AM

Closing the gap in end-of life care coverage: The role of nonprofits in policy advocacy Forbes; by James Dismond; 4/14/25... As the demand for end-of-life care grows, so will the gap between the care that patients need and what they receive. ... Workforce shortages, restrictive regulations, outdated reimbursement models and misconceptions around hospice services are keeping millions of Americans from accessing quality hospice and palliative care services. ... These barriers disproportionately affect low-income families, rural communities and communities of color. ... Unlike for-profit entities, we can prioritize community needs over shareholders. We can prioritize patient well-being over profits—or, to say it more directly, we put people over profits. And I’ve seen firsthand how advocacy can drive progress. Nonprofits must engage in:

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Family Hospice partners with Alzheimer’s Association to expand educational outreach

04/10/25 at 03:10 AM

Family Hospice partners with Alzheimer’s Association to expand educational outreach EIN Presswire.com, Atlanta, GA; by Brittany Brown; 4/8/25 Family Hospice announces an official partnership with the Alzheimer’s Association, Georgia Chapter, to enhance educational outreach and raise awareness of available resources for individuals facing Alzheimer’s or other dementia.This collaboration will provide families, caregivers, and healthcare professionals with critical information on hospice and Alzheimer’s and dementia-related support. As part of this effort, Family Hospice and the Alzheimer's Association are planning an upcoming statewide initiative in Georgia aimed at expanding awareness and support. Both organizations will share educational materials at community events and through social media to ensure families and caregivers have access to the guidance they need. [Continue reading ...]

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Conversations today to empower tomorrow: VITAS Healthcare elevates National Healthcare Decisions Day

04/10/25 at 02:00 AM

Conversations today to empower tomorrow: VITAS Healthcare elevates National Healthcare Decisions Day VITAS Healthcare; Press Release; 4/7/25 Only one in three adults in the United States have a written advance directive, a document critical in providing guidance to medical teams regarding one’s end-of-life wishes. As a pioneer and national leader in hospice and palliative care, VITAS Healthcare advocates for National Healthcare Decisions Day (April 16) and advance care planning––regardless of a person’s age or health status....  On April 16, VITAS will host a free webinar, Advance Directives and Advanced Care Planning, exploring the history, application and types of advance directives. VITAS Regional Medical Director Heather Veeder, MD, will provide practical advice to help healthcare professionals engage in difficult but necessary conversations with patients and families/caregivers. [Continue reading ...]

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Art meets history, grief, boots and landscapes at First Friday Artwalk

04/09/25 at 03:00 AM

Art meets history, grief, boots and landscapes at First Friday Artwalk Steamboat Pilot & Today, Northwest Colorado; by John Componeschi; 4/3/25  April’s First Friday Artwalk will celebrate artistic diversity and storytelling, both of which form the framework of the Yampa Valley’s creative arts community. [Published 4/3/25, before Fri. 4/4/25] ... An emotionally powerful exhibit entitled “Good Grief” will open at the Depot Art Center, ... The works of Krystal Mackey will be presented in partnership with Northwest Colorado Health’s Hospice program. Mackey, who has a background in design and architecture, created the series as an emotional coping outlet. Her pastel on sanded paper and digital drawing pieces offer the viewer an honest and vulnerable exploration of grief. Selected works were displayed during “Tuesdays with Morrie” at Perry-Mansfield in March. “Grief may be scary, sad and hard to look at,” said Mackey. “But it’s worth it.” Influenced by artists Chagall, Kandinsky, Warhol and Lichtenstein, Mackey’s style combines vibrant color with feeling- and grief-based introspection. The exhibit invites viewers to reflect on whether grief has affected them and if they would benefit from talking about their experiences with it.

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What to do if a loved one is evacuated from a nursing home or assisted living

04/07/25 at 03:10 AM

What to do if a loved one is evacuated from a nursing home or assisted living AARP; by Emily Paulin; 1/10/25, updated 1/23/25 Running from a wildfire is a terrifying ordeal for anyone. But there’s added fear for those who have limited mobility, rely on medical equipment or suffer from dementia and struggle to comprehend what is happening. ... Evacuating these vulnerable, high-needs residents is a complex and precarious operation. Family members may be unsure of how to find their loved one or what to do to support them in a disaster situation. We’ve gathered advice from disaster response and long-term care experts on five topics to help family caregivers navigate these situations.

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‘The most someone wants is to be heard’: Students foster connection, create memoirs for hospice patients

04/07/25 at 03:00 AM

‘The most someone wants is to be heard’: Students foster connection, create memoirs for hospice patients The Daily Texan - University of Texas, Austin, TX; 4/3/25 ... Brought to UT in 2023, Last Writers is a service organization where student volunteers interview hospice patients over the course of several months to write a memoir that is then printed and given to the patients and their families. The process is intended to bring comfort to hospice patients and create a physical memento for the families, representing their lives once they pass. ... “It’s not often that you’re a college student and you get to meet someone who is going to pass away in the next few months,” Nguyen said. “To be with them in that very vulnerable point, it gives you a lot of perspectives. A lot of our members come out of it realizing how much they have to live for. … It makes us more grateful in life and puts our mortality into perspective.” [Continue reading ...]

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Terri Schiavo's death 20 years ago sparked lingering debate about death and politics

04/07/25 at 03:00 AM

Terri Schiavo's death 20 years ago sparked lingering debate about death and politics USA Today; by Marc Ramirez; 3/31/25 Monday [March 31st marked] 20 years since the death of Terri Schiavo, whose landmark case became the symbol of the "right to die" movement, generated political controversy and sparked public outcry as her husband and family members took their fight over her fate to the courts. Schiavo died on March 31, 2005, after a dragged-out legal and political battle ... The case thrust discussions about end-of-life care into the public consciousness, a topic that continues to provoke heightened emotions among Americans. “It became the most reviewed, debated end-of-life case in history,” said Arthur Caplan, who heads the division of medical ethics at New York University’s Grossman School of Medicine. [Continue reading ...]

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Practical tools and heartfelt hope: How Nancy Y Treaster is empowering dementia caregivers worldwide

04/07/25 at 03:00 AM

Practical tools and heartfelt hope: How Nancy Y Treaster is empowering dementia caregivers worldwide Thrive Global; by Stacey Chillemi; 4/2/25 In this empowering interview, dementia care expert Nancy Y Treaster shares practical strategies, emotional insights, and vital resources to help family caregivers navigate the challenges of caregiving with confidence and compassion. ...

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Hospice Savannah partners with Live Oak Public Libraries for ‘Aging in Place’ series

04/07/25 at 03:00 AM

Hospice Savannah partners with Live Oak Public Libraries for ‘Aging in Place’ series WTOC 11, Savannah, GA; by Simone McKenny; 4/2/25 A year-long series of free seminars will be coming to Live Oak Public Libraries through a partnership with Hospice Savannah to educate the community on aging and hospice care. One of the topics will be virtual reality in healthcare. Part of the seminars will be on the benefits of virtual reality in healthcare and they will be taught by Dr. Kathleen D. Benton, the president and CEO of Hospice Savannah and Healthcare Outreach Educator Kellie Whelchel. They will discuss topics from the book Virtual Reality for Serious Illness which is co-authored by Dr. Benton and Teri Yarbrow, the president and CEO of MagikaVRx. Organizers say the seminars will highlight the way virtual reality engages the brain’s neurological pathways using immersive three-dimensional experiences to reduce anxiety, fear, and chronic pain.Editor's note: Many of my colleagues know that I was born and raised in Savannah, GA. Imagine my delight when clicking on this article and viewing the photo Savannah's downtown library. I have wonderful memories in this building as child and teen. For years, my mom took us every Wednesday, with her guidance to return books and check out new ones. As a teen, I learned to research school papers beyond the encyclopedias our parents kept stocked in our home (pre-internet). Surely, these helped instilled my passion for learning, researching, and disseminating info. Years later, Hospice Savannah has tended many family members and friends. Thank you, Hospice Savannah and Live Oak Public Libraries (formerly Savannah Public Library)!

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National Healthcare Decisions Week highlights the importance of Advance Care Planning

04/07/25 at 02:00 AM

National Healthcare Decisions Week highlights the importance of Advance Care Planning JAX Chamber - Jacksonville News, Jacksonville, FL; 4/1/25 National Healthcare Decisions Week kicks off on April 14, 2025, with a nationwide effort to raise awareness about the importance of advance healthcare decision-making. This initiative encourages individuals to take proactive steps in planning for their future healthcare needs. Through various events and resources, the week aims to promote thoughtful conversations about healthcare decisions and the completion of advance directives to ensure patients' wishes are known and respected. ... For more information about National Healthcare Decision Day, please visit http://nhdd.org.

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Hospices must ‘evolve’ to better support next generation of caregivers

04/03/25 at 03:00 AM

Hospices must ‘evolve’ to better support next generation of caregivers Hospice News; by Holly Vossel; 3/31/25 Individuals in the millennial and generation Z (Gen Z) age groups represent a swelling proportion of today’s family caregivers. They face unique challenges when providing support for hospice patients compared to others, recent research has found. ... Understanding the competing, complex priorities of these generations is pivotal for hospices’ ability to deliver quality care, according to Nicole McCann-Davis, senior client advisor and research director at Transcend Strategy Group. [Continue reading ...]

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Study raises questions about GUIDE model’s helpfulness for caregivers of loved ones with dementia

04/02/25 at 03:00 AM

Study raises questions about GUIDE model’s helpfulness for caregivers of loved ones with dementia McKnights Home Care; by Adam Healy; 4/1/25 The Guiding an Improve Dementia Experience may need to be fine-tuned to better serve caregivers of those living with dementia, according to a new study published in Alzheimer’s & Dementia. The researchers identified 565 older adults and 555 caregivers eligible for GUIDE using data from the 2022 National Health and Aging Trends Study and National Study of Caregiving. They found that approximately half of GUIDE-eligible people with dementia received care from two or more caregivers, and about a third of these caregivers reported experiencing high caregiving strain. [Continue reading ...] 

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What is death positivity?

04/02/25 at 03:00 AM

What is death positivity? Healthline; by Sarah Choi, medically reviewed by Joslyn Jelinek, LCSW, ACSW, RDDP; 3/28/25 Death positivity involves acknowledging death as simply the final phase of life. It emphasizes open discussions around death and education on the options, rights, and choices surrounding it. ... The Death Positivity Movement was coined in 2011 by funeral director Caitlin Doughty, but the sentiment existed long before — the movement’s origins date back to the 1970s, drawing on the hospice movement. ... Elements of the Death Positivity Movement:

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