Literature Review
All posts tagged with “Education | Community.”
[UK] Campaign focuses on hospice's work: [This Is Hospice Care]
02/21/25 at 03:00 AM[UK] Campaign focuses on hospice's work: [This is Hospice Care] The Free Library; by Sam Volpe; 2/17/25 Tyneside Hospice is taking part in a new national campaign highlighting their "vital role" - while one son has paid tribute to the care his mother received in her final days. St Oswald's Hospice in Newcastle is one of more than 140 hospices taking part in a new campaign called "This is Hospice Care" which is designed to demystify the role hospices play in our communities. [England, Scotland and Wales] Click here for "This is Hospice Care | UK," on the St. Oswald's Hospice website.
Juniper House on National Historic Register
02/20/25 at 03:00 AMJuniper House on National Historic Register K103, Portland, OR; 2/18/25 The Juniper House is among Oregon's latest entries in the National Register of Historic Places ... for its statewide significance as Oregon's first end-of-life care home dedicated exclusively to residents with HIV/AIDS [May 1987] and for its substantial impact on statewide healthcare and LGBTQ+ history. ... In addition to caring for residents, the work of Juniper House included advocacy and educational efforts that were crucial in shaping public opinion and responses to HIV/AIDS.
Mayo Clinic Hospice to present improv show on end-of-life care at Marion Ross theater
02/20/25 at 03:00 AMMayo Clinic Hospice to present improv show on end-of-life care at Marion Ross theater Albert Lea Tribune; 2/18/25 In honor of Mayo Clinic Hospice celebrating 45 years of service to Southeast Minnesota, in collaboration with Danger Boat Productions, the Naeve Health Care Foundation, and the Mayo Clinic Dolores Jean Lavins Center for Humanities in Medicine, invites the community to attend “End-of-Life: Live and Unscripted.” The event will be held at the Marion Ross Theatre from 6 to 7 p.m. March 27, with doors opening at 5:30 p.m. This unique improv show aims to bring the community together for an evening of laughter and learning. Attendees will gain insights into advanced care planning, important end-of-life care considerations and ways to support the community during end-of-life stages.Editor's note: Though readers surely will not be able to attend, we post this to spark your collaborations for community engagement and education through the arts.
20 high-performing healthcare website designs that get results
02/19/25 at 03:00 AM20 high-performing healthcare website designs that get results Just Digital; by Just Digital Team; 2/17/25 As healthcare becomes more digital, a well-crafted healthcare website design is essential for serving patients, sharing information, and building trust. It’s often the first point of contact, making usability, clarity, and accessibility non-negotiable. ... The majority of visitors to healthcare websites are searching for information. As a result, these healthcare website designs must be appealing to the eye, user-friendly, and simple to navigate. Our team at Just Digital compiled a list of some of the best healthcare website design inspirations online. [Click on the title's link for website examples and descriptions of design elements "that get results."]
Death Matters: The gift of presence: Tips for visiting someone who is dying
02/17/25 at 03:00 AMDeath Matters: The gift of presence: Tips for visiting someone who is dying Squim Gazette, Squim, WA; by Jeanette Stehr-Green, Volunteer Hospice of Clallam County; 2/12/25 We sometimes avoid visiting friends or family members who are terminally ill. We make lots of excuses. We don’t know what to say. We don’t know how to act. We don’t want to be a bother. The hard truth is that dying, the final stage of life, can be a lonely experience without the presence of family and friends. A visit during this time can bring comfort to the dying person and their family. It can also provide an opportunity to share feelings, reminisce, and say goodbye. Visiting a dying person seems difficult because most of us lack experience. It only takes a little courage and a few ideas to create a meaningful moment. ... Editor's note: These excellent guidelines empower hospice patients' families and friends--and protect patients' vulnerable energies and emotions--in multiple settings across the trajectory of dying. How might you adapt these for your own patient/caregiver support and community outreach?
UC professor seeks to make death care more inclusive: Equal Deathcare offers resources for the LGBTQIA+ community
02/14/25 at 02:00 AMUC professor seeks to make death care more inclusive: Equal Deathcare offers resources for the LGBTQIA+ community University of Cincinnati News (UC News); by Kyle Shaner; 2/12/25Jennifer Wright-Berryman, PhD, an associate professor of social work in UC’s College of Allied Health Sciences, is one of the founders of Equal Deathcare, a web-based resource where LGBTQIA+ individuals can find inclusive and affirming end-of-life and death care (funerals, memorials and pre-planning). “Groups that are at risk or marginalized, such as sexual and gender minorities — groups that I’m particularly interested in outcomes for — those voices weren’t included in these conversations around death care, especially when we talk about transgender individuals whose bodies and identities are often maligned in society,” Wright-Berryman said. ...
What do you say to a friend who is dying
02/13/25 at 03:00 AMWhat do you say to a friend who is dying Equity Atlas; 2/12/25 It’s a situation no one wants to find themselves in – facing the imminent death of a friend. The emotions that come with this can be overwhelming, leaving you at a loss for words. You may find yourself grappling with what to say, how to act, and how to provide support during such a difficult time. In this article, we will explore some insights on what to say to a friend who is dying, as well as provide guidance on how to navigate this delicate and heartbreaking situation.
HealthcareBusinessToday.com series on hospice care
02/12/25 at 03:00 AMHealthcareBusinessToday.com series on hospice careEditor's note: The following articles were posted on 2/10/25 by HealthcareBusinessToday.com.
Kamloops Hospice's Messages of Love Campaign runs all month long
02/11/25 at 03:00 AMKamloops Hospice's Messages of Love Campaign runs all month long Castanet - Kamloops.net, Kamloops, British Columbia, Canada; by Eagle Anderson, 2/9/25 Kamloops residents are being invited to stop by a cafe, grab a cup of coffee and share some positive words as part of Kamloops Hospice’s Messages of Love Campaign, which is running all month. Four local eateries — 5 Bean Brew Bar (Sahali), The Vic, Cafe Motivo, Yew Street — and the Kamloops Hospice will each provide sticky notes, pens and a board for posting. “It’s essentially an awareness campaign,” Kamloops Hospice’s Fund Development Lead Sarah Irvine said. ... Participants are encouraged to write a positive message on each note. They can then keep the note, stick it to a board or give it away. Messages can be written to friends, family, community groups, lost loved ones and even to themselves.
Learning from death: New memoir If We Never Meet Again imparts lessons from working with hospice patients
02/10/25 at 03:00 AMLearning from death: New memoir If We Never Meet Again imparts lessons from working with hospice patientsThe MarCom Journal, Charleston, SC; by Globe Newswire; 2/6/25While the topic of death is generally considered taboo, English teacher turned hospice administrator Matthew Cornett believes there is much to be learned from death. After becoming an empty nester, Cornett left the classroom behind and began a second career in hospice care. And the more time he spent with people as they approached the end of their life, the more he realized that their deaths had meaning. And what emerged from those final moments was something profound. Hoping to make others feel more comfortable when it comes to preparing for and talking about death, he presents a memoir of his journey into the world of hospice care. In If We Never Meet Again, Cornett chronicles his experiences providing compassion and support to hospice patients while adjusting to his new role. Finding inspiration in his patient’s “death stories,” he found himself on an unexpected path of self-discovery. Cornett’s personal reflections on these intimate and emotional interactions encourage readers to reconsider how they view death and dying.
Central Coast VNA & Hospice expands hospice and support programs in the Central Coast region
02/07/25 at 02:20 AMCentral Coast VNA & Hospice expands hospice and support programs in the Central Coast region Chicago News; Press Release, media contact Jane Russo; 2/5/25 Central Coast VNA & Hospice, a trusted leader in home health and hospice care for over 70 years, is proud to announce the expansion of its comprehensive hospice and support programs throughout the Central Coast. ... With an increased focus on hospice care, education, and support, Central Coast VNA & Hospice is reaching more communities, including Monterey, Salinas, Hollister, and Santa Cruz. The organization’s enhanced programs include:
Advice on navigating complex caregiving
02/05/25 at 03:00 AMAdvice on navigating complex caregiving Philadelphia Corporation for Aging; by Jay Nachman; 2/3/25 The biggest challenge for someone taking care of a parent or loved one is “accepting your loved one for who they are now. Not who you knew them to be,” said Dr. Kiplee Bell, an internal medicine physician who has created a practice focused on caregiving. ... It’s not uncommon, according to Bell, for minority community members to live in multi-generational households. Additionally, in some homes, grandparents are raising grandchildren. Then there is the flipside, where young children are helping to take care of their older family members. And when English is not a native tongue, language barriers can preclude an adequate understanding of how to navigate the social service and health care systems. ...
Does confronting mortality make our lives more meaningful? | The Ethical Life podcast
01/31/25 at 03:00 AMDoes confronting mortality make our lives more meaningful? | The Ethical Life podcast SC Now, Florence, SC; podcast hosts Richard Kyte and Scott Rada; 1/29/25 Hosts Richard Kyte and Scott Rada discuss how our awareness of mortality shapes the way we live. Kyte begins by discussing how ancient philosophers, particularly the Stoics, believed we should keep death constantly in mind, [helping] us avoid self-deception about our mortality and the tendency to become overly attached to material possessions and markers of success. Later, the hosts discuss how major religions have grappled with the question of what happens after death. ... Rada and Kyte share their personal reflections on mortality. ... Kyte says he ponders it daily, not in a morbid way, but to remind himself to use his finite time wisely. They discuss how people near the end of life often shift their priorities to relationships, forgiveness and small joys.
How a St. Louisan helps her community navigate death by filling out advance directives
01/30/25 at 03:00 AMHow a St. Louisan helps her community navigate death by filling out advance directives NPR - St. Louis on the Air; by Jada Jones; 1/28/25 When Vivial Lopez’s grandmother was on life support, her family was faced with many difficult decisions. Her grandmother did not have an advance directive, so her family did not know her final wishes. The experience of navigating her grandmother’s end-of-life plan without any direction led Lopez to advocate for families to prepare advance directives - especially those in Black and brown communities. Approximately only on ein three adults complete an advance directive for end-of-life care. Lopez works with the Gateway End-of-Life Coalition to empower members of the St. Louis community to navigate death through quality end-of-life care. Editor's note: Click here for AARP - Find Advance Directives Forms by State, also available in Spanish.
Bettis Academy instills leadership skills with Eagles L.E.A.D. Program
01/29/25 at 03:00 AMBettis Academy instills leadership skills with Eagles L.E.A.D. Program The Post and Courier, North Augusta, SC; by Bianca Moorman; 1/27/25 Bettis Preparatory Leadership Academy is helping to build the next generation of leaders with its new Eagle's L.E.A.D. Initiative. Eagle's L.E.A.D. – which stands for Learn through Experience, Excel in Academics, Aspire to Inspire and Drive for Change – aims to teach students the skills needed to become leaders through hands-on service projects. The school officially launched the program on Oct. 28, 2024. ... Each grade level has selected a unique service project for the program. ... First-graders are partnering with Gentiva Hospice to learn about the work of first responders. Second-graders are collaborating with heart doctors to raise awareness about childhood heart disease. Third-graders are creating "little libraries" to place in various locations throughout the community. [Click on the title's link for grades 4-8.]
Community invited to see Edina Thespians' one-act play, 'Wit'
01/22/25 at 03:00 AMCommunity invited to see Edina Thespians' one-act play, 'Wit' Sun Current, Coon Rapids, MN; by Alex Kautzman; 1/20/25Edina High School Thespians are ... looking forward to showing off their hard work to the community in two performances at the Edina Performing Arts Center. ... "Wit" centers on Vivian Bearing, a brilliant poetry professor, as she undergoes an experimental and extremely aggressive chemotherapy treatment. As Vivian undergoes treatment at the hands of impersonal doctors, she discovers that human compassion may be more important than intellectual wit.Editor's note: This Wit telepay is based on the 1999 Pulitzer Prize-winning play by Margaret Edson. Its 2001 television drama film was directed by Mike Nichols, written by and starring Emma Thompson. Wit has been used extensively for community and clinical education, fostering conversations about ethics, palliative care/hospice, advance directives, quality of life, and more. Click here for more information. Wit can be streamed via Max and the Max Prime Video Channel.
Free Death Cafés provide a venue for difficult conversations
01/22/25 at 03:00 AMFree Death Cafés provide a venue for difficult conversations The Northern Virginia Daily. Stephens City, VA; by Brian Brehm; 1/20/25... Blue Ridge Hospice, in partnership with Bowman Library, wants to spark the death-related conversations that many people want to have but are comfortable initiating. Starting this month, the two organizations will be hosting a Death Café on the fourth Thursday of every other month. ... According to a media release from Blue Ridge Hospice, “Death Café is not a grief support group or a counseling session, but rather a casual and welcoming space for people to reflect on death-related topics, with the aim of helping us live life more fully. Whether you’re curious, thoughtful or seeking meaningful conversation, come as you are and engage in this judgment-free, agenda-free discussion.”
Sovereign Hospice empowering young adults to understand hospice
01/21/25 at 03:00 AMSovereign Hospice empowering young adults to understand hospice Fox-40; Press Release by Sovereing Hospice; 1/20/25 Sovereign Hospice ... in Aubrey, Texas, is shedding light on the essential role young adults play in understanding and supporting hospice and palliative care services. Through their latest blog, “Spreading Insight: What Young Adults Should Know About Hospice & Palliative Care,” the organization aims to debunk myths, explain key differences between hospice and palliative care, and emphasize why early awareness is critical for families navigating complex health journeys. Many young adults assume caregiving responsibilities earlier than expected, often balancing personal and professional commitments. Studies show that nearly 1 in 4 adults aged 18–34 provide care for a loved one, underscoring the need for awareness about hospice and palliative care.
Michigan hospice's training empowers African Americans to dialogue
01/20/25 at 03:00 AMMichigan hospice's training empowers African Americans to dialogue Catholic Health world; by Lisa Eisenhauer; 1/16/25 Rev. Diane Smith knows the hospice education program she leads for predominantly Black churches resonates with those who enroll. ... Rev. Smith directs The African American Church Empowerment Project at Livonia, Michigan-based Angela Hospice and gives certificates those who complete the training. She is also the hospice's director of ministry engagement and chief diversity officer. The Empowerment Project isn't about promoting Angela Hospice's services, Rev. Smith explains, but rather about educating the community on hospice care and listening to concerns about end-of-life issues. Rev. Smith sees another primary reason for the disconnect between Black Americans and hospice providers. She says many people of color have a distrust of the medical community that is rooted in historically being both denied care and exploited ...
Introduction: ‘Those who have made death their life’
01/16/25 at 02:00 AMIntroduction: ‘Those who have made death their life’The Daily Yonder - Keep It Rural; by Hannah Clark; 1/15/25 Hannah Clark spent six months riding along with the nurses and certified nursing assistants (CNAs) of Hearth Hospice who provide in-home care to those living in Northwest Georgia and Southeast Tennessee. These hospice workers often drive up to a hundred miles a day to visit a handful of patients scattered across the Appalachian landscape in both rural towns and urban centers. What will follow this introductory essay is her photo reportage in three parts, documenting what she has witnessed accompanying these caregivers. The intimate portraits and vignettes show tender moments at different stages towards the end of one’s life. Their beauty lies in the companionship Clark captured in moments of need and vulnerability.
Muslim community-engaged research highlights Muslim Americans' end-of-life-healthcare gaps and needs
12/26/24 at 03:00 AMMuslim community-engaged research highlights Muslim Americans' end-of-life-healthcare gaps and needs WisconsinMuslimJournal.org; by Sandra Whitehead; 12/20/24 Few Muslim Americans use hospice care, despite its posited benefits. A multi-sectoral team of academicians and community leaders in southeastern Wisconsin decided to find out why. ... Muslims are one of the fastest-growing religious communities in the United States, numbering between 3 to 5 million, with projections it will double by 2050. “With an aging Muslim population, there is a growing need for specialized healthcare services like hospice and palliative care,” the team’s research explains. ... Through a qualitative descriptive study with a Muslim patient and 10 family caregivers, the research team identified their perceptions of hospice care, ethical concerns and experiences. Among their varied perceptions, many saw it as useful only in the last hours of life. Participants also had ethical concerns about the use of sedative medication and with cessation of feeding terminally ill patients. Some had concerns about how hospice care might lead to unnecessary interventions or even hasten death. ... The team is developing an informational resource, Islamic Bioethical Considerations for the End of Life: A Guide for Muslim Americans, to help Muslims who struggle when thinking about death and dying.
10 Years of making the world a more livable place for all bereaved people
12/23/24 at 03:00 AM10 Years of making the world a more livable place for all bereaved people Evermore; by Joyal Mulheron, Executive Director; 12/21/24 Fourteen years ago today, I was sitting on my couch, trying to make sense out of what just happened to our family. Our terminally ill daughter, Eleanora, had died a few weeks prior. While others sang holiday songs and gleefully exchanged gifts, it was a profoundly painful, dark, and isolating time for me. Within a few short years, I quit my career because I saw tragedies saturating our national headlines, leaving a trail of unseen and unsupported bereaved people in their wake, and I believed our nation should prioritize the needs of all bereaved people. ... This is what I set out to change. ... Evermore’s groundbreaking advocacy efforts resulted in our nation’s first Report to Congress, which provided an overview of grief and bereavement services in the United States. Next year, a report analyzing more than 8,000 scientific studies will be published, reviewing the highest quality interventions for bereaved people — which was championed by Evermore and endorsed by Congress. Editor's note: Click on the title's link to continue reading Evermore's trailblazing, state-of-the-art leadership and advocacy with Congress, the government's Substance Abuse and Mental Health Services Administration (SAMHSA), Newsweek, PBS, Harvard's Public Health magazine, Penn State, the University of California, and more. Click here to join Evermore's mailing list, and to learn from Joyal Mulhuron, Evermore's inspiring, soulful Founder/Executive Director.
Greater education needed to bring palliative care to cancer patients
12/19/24 at 03:00 AMGreater education needed to bring palliative care to cancer patients Hospice News; by Jim Parker; 12/18/24 Cancer patients generally need palliative care, but widespread misperceptions often stand in their way, both among the public and many clinicians themselves. This is according to Nadine Barrett, president of the Association of Cancer Care Centers (ACCC). The organization has been holding a series of webinars designed to better educate the oncology community about palliative care. The association is also in the process of studying racial and ethnic gaps in advance care planning, among other projects funded by its research arm, the ACCC Community Oncology Research Institute. Palliative Care News sat down with Barrett to discuss the barriers that cancer patients often experience when it comes to accessing palliative care. [Click on the title's link to read more.]
[United Kingdom] 'My son died at 24 - now I'm doing his bucket list'
12/19/24 at 03:00 AM[United Kingdom] 'My son died at 24 - now I'm doing his bucket list' BBC News; by Adam Eley and Alison Holt; 12/16/24 Alex Spencer's son Declan - who had Duchenne muscular dystrophy - died last year at the age of 24, and she admits she has still not gone a day without crying. "I think society has a misconception that a carer gets their life back [when a loved one dies]," she said. Declan had drawn up a bucket list but died before he could finish it. Now Alex, who wants to raise awareness of the difficulties disabled people face in getting the right care, is taking up the challenge - including visiting Paris, getting a tattoo Declan designed and taking his adapted van around a famous German race track.
Tips for older adults and caregivers this holiday season
12/17/24 at 03:00 AMTips for older adults and caregivers this holiday seasonAcantha Choteau, Choteau, MT; 12/16/24 The holidays are coming up, and many people will be celebrating with family and friends. The start of colder months also means flu, COVID-19 and RSV can surge. That can be dangerous for older adults. “Holidays are a time to gather with family and friends,” said Charlene Wong, MD, MSHP, senior advisor for health strategy at the Centers for Disease Control and Prevention (CDC), “but for older people, this can come with risk of serious respiratory illness. Get your updated flu, COVID-19 and RSV vaccines to reduce your risk and do more together.” Editor's note: Pair this with other posts in our newslettter today: Characteristics of patients enrolled in hospice presenting to the emergency department and Weekly US Map: Influenza summary update.