Literature Review

All posts tagged with “Clinical News.”



The evolving landscape of Amyotrophic Lateral Sclerosis: A fatal disease!

09/25/24 at 03:00 AM

The evolving landscape of Amyotrophic Lateral Sclerosis: A fatal disease!  Delveinsight; 9/24/24 Amyotrophic Lateral Sclerosis (ALS) is a devastating neurodegenerative disease characterized by the progressive degeneration of motor neurons, leading to muscle weakness, paralysis, and ultimately, death. ... Despite ALS being relatively rare, affecting 2-5 per 100,000 people worldwide, the question Is ALS on the rise? is gaining attention. While global prevalence has not significantly increased, improved diagnostic techniques, earlier detection, and greater awareness have led to a more accurate identification of ALS cases. Many researchers believe that enhanced surveillance and better tools for genetic testing are uncovering more cases than previously recognized, rather than a true rise in the disease’s incidence. However, with an aging global population, the burden of ALS may grow, as age is a major risk factor. Editor's note: Do you provide disease-specific training for your staff? ALS patients' and families' needs are unique. A significant disease comparison is between ALZ (Alzheimer's) and ALS. With ALZ (Alzheimer's), the brain decreases its abilities to function while the body can remain strong; the person is mobile with cognitive limitations. In contrast, with ALS, the body decreases its abilities to function while the brain/mind/emotions can remain strong. The person is immobile with cognitive awareness, but extreme physical limitations in communicating one's thoughts, emotions, and needs. ALS-specific communication tools provide crucial help for all. For more information in your location, visit The ALS Association's USA map.

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Report: US has worst healthcare of 10 developed countries

09/24/24 at 03:00 AM

Report: US has worse healthcare of 10 developed countriesMcKnight's Long-Term Care News; by Kristen Fischer; 9/19/24Americans die earlier and are the sickest — and have the worst healthcare on the whole — compared with nine other developed countries, a new report shows. “The United States is failing one of its principal obligations as a nation: to protect the health and welfare of its people,” Joseph Betancourt, MD, president of the Commonwealth Fund, said in a HealthDay article... Despite its deficiencies, the US spends the most on healthcare, the report noted. Australia, the Netherlands and the United Kingdom had the highest rankings, data showed. The other countries included in the report were Germany, New Zealand, Sweden, Canada, France, and Switzerland.

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From pigs to payouts, weighing solutions for the US kidney shortage

09/24/24 at 03:00 AM

From pigs to payouts, weighing solutions for the US kidney shortageHealthcare Brew; by Caroline Catherman; 9/18/24About one out of every 20 people waiting for a kidney transplant die each year, according to the United Network for Organ Sharing. Scientists, policymakers, and other experts are scrambling to find a solution. Kidneys are currently the most needed organ in the country, and an ongoing crisis has left tens of thousands in limbo. As of September, nearly 90,000 people in the US are waiting for kidneys, but only around 27,000 transplants were performed in 2024, according to data from the Organ Procurement and Transplantation Network (OPTN).Publisher's note: Hospice Analytics, a Hospice & Palliative Care Today sponsor, posted this blog and has given presentations on opportunities and challenges for hospices to honor patient wishes regarding organ and tissue donation.

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Wind phones help the bereaved deal with death, loss and grief − a clinical social worker explains the vital role of the old-fashioned rotary phone

09/23/24 at 03:15 AM

Wind phones help the bereaved deal with death, loss and grief − a clinical social worker explains the vital role of the old-fashioned rotary phone The Conversation; by Taryn Lindhorst; 9/20/24 My mother died in my home in hospice in 2020, on the day my state of Washington went into COVID-19 lockdown. Her body was taken away, but none of the usual touchstones for grief were available to our family. ... As a clinical social worker and health scholar with 40 years of experience in end-of-life care and bereavement, I knew that I needed some way to tend to my grief for my mother. While in lockdown, I began looking for resources to help me. Then I heard about the wind phone. What is a wind phone? At its simplest, a wind phone is a rotary or push-button phone located in a secluded spot in nature, usually within a booth-type structure and often next to a chair or bench. The phone line is disconnected. People use the wind phone to “call” and have a one-way conversation with deceased loved ones. Here they can say the things left unsaid. Wind phones offer a setting for the person to tell the story of their grief, to reminiscence and to continue to connect to the person who is gone. For many, it is a deeply moving, life-affirming experience. About 200 wind phones are scattered throughout the United States. Editor's note: This creative tool is similar to common clinical tools of writing a letter to the deceased person, and the "Empty Chair" technique. Caution: This should never be used as a gimmick. This can be terribly confusing and upsetting for persons with dementia, or supportive if used with professional sensitivity for the patient's awareness and experience. For persons with dementia, be familiar with the ground-breaking "Validation Therapy" techniques by Naomi Feil. 

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Guidelines for supporting the dying and their families

09/23/24 at 03:00 AM

Guidelines for supporting the dying and their families Psychiatric Times; by Ken Druck, PhD; 9/19/24 There are few subjects that most of us, including those who work in mental health, avoid more than death and dying. Meeting the needs of the dying and their families requires a deep and clear understanding of competent and compassionate care for health care professionals and caregivers. Since the death of my 21-year-old daughter several decades ago, I have had the honor and privilege of helping countless individuals, families, and communities that have suffered losses. I have also been given the opportunity to teach and train mental health professionals and developed several programs and guidelines for supporting the dying and their families. My top 7 guidelines to share with patients and their families are as follows:

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Families value flexibility and compassion in end-of-life care for children with cancer

09/23/24 at 03:00 AM

Families value flexibility and compassion in end-of-life care for children with cancerOncology Nurse Advisor; by Megan Garlapow, PhD; 9/18/24 Bereaved families of children who died of cancer expressed a strong desire for high-quality end-of-life care that balanced comfort with continued treatment efforts, particularly chemotherapy, according to results from a study published in Cancer. Families did not perceive a conflict between comfort care and the pursuit of chemotherapy, seeking both as integral parts of their child’s final days. Despite variations in race and location, there was no clear preference for home or hospital deaths, with the median preference score being neutral at 3.0 on a 5-point Likert scale, ... Instead, decisions surrounding the location of death were often driven by the child’s preferences, medical needs, the impact on other family members, and prior experiences with death. ... Family decision-making was centered on maintaining hope, avoiding harm, and doing what was best for their child and themselves, with religious beliefs playing a significant role.

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How can we make dementia care more human? Practical insights for providers.

09/23/24 at 02:00 AM

How can we make dementia care more human? Practical insights for providers. CHAP - Community Health Accreditation Partner; by Jennifer Kennedy, PhD; 9/20/24 This year’s World Alzheimer’s Day brings a renewed focus on advancing dementia care, especially with the recent launch of the CMS GUIDE Model. This groundbreaking approach emphasizes comprehensive, coordinated care, not only improving the lives of patients but also significantly easing the burden on caregivers. As healthcare providers, there’s a critical opportunity to adopt strategies that go beyond clinical treatment, focusing on the human experience and addressing the emotional, physical, and financial challenges that dementia brings. ... As we reflect on the progress made in dementia care, there are several actionable strategies healthcare providers can implement to enhance their programs:

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The catalyst for a 25% drop in sepsis mortality at Jefferson Health

09/20/24 at 03:10 AM

The catalyst for a 25% drop in sepsis mortality at Jefferson Health Becker's Clinical Leadership; by Erica Carbajal; 9/19/24 In the healthcare quality space, clinicians must track a plethora of metrics and measures, creating an environment where it can be easy to lose focus of ongoing priorities. To help center focus and ensure alignment of clinical priorities, Philadelphia-based Jefferson Health developed a quality and safety management system called OnPoint, which is now in place across all of its 17 hospitals. ... The platform is central to strides Jefferson Health has made in managing sepsis in recent years, ... Since 2021, the system has achieved a 25% reduction in average annual sepsis mortality, which is estimated to have saved the lives of nearly 700 patients and $30 million in costs.

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Suffering revisited: Tenets of intensive caring

09/20/24 at 03:00 AM

Suffering revisited: Tenets of intensive caring Psychiatric Times; by Harvey Max Chochinov, MD, PhD, FRCPC Patients approaching death experience many losses, including losing a sense of self. This is perhaps one of the most substantive existential challenges dying patients face, as they find the essence of who they are—along with who they were or who they want to be—under assault. This notion of disintegration or fractured sense of personhood often lies at the heart of human suffering, which Eric Cassell, MD, MACP, defined as a person’s severe distress at a threat to their personal integrity. Although suffering can often lead to feelings of hopelessness and therapeutic nihilism for patients and health care professionals, it is important for those of us who care for the dying to understand the nature of suffering and how to be most responsive and therapeutically effective. [This author's Tenets of Intensive Caring include the following:]

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Family members' health can suffer when relative has cancer: Study

09/19/24 at 03:00 AM

Family members' health can suffer when relative has cancer: Study Becker's Hospital Review; by Elizabeth Gregerson; 9/13/24 Individuals are at an increased risk of cardiovascular disease and psychological illness after a family member is diagnosed with cancer, according to a study published Sept. 9 in Cancer. Researchers from institutions across the U.S. analyzed data of patients diagnosed with genitourinary cancer between 1990 and 2015 who had first-degree relatives or spouses, from the Utah Population Database. The cohort of 49,284 patients and 77,938 relatives was matched with a similar control group and followed up within one-, three- and five-year periods. Among patients with genitourinary cancer, their family members had a "10% increased risk of developing a psychological illness and a 28% increased risk of developing cardiovascular disease" one year after diagnosis, according to the study. "This study provides population-level evidence to support the hypothesis that cancer diagnoses will lead to adverse health outcomes for family members of patients with cancer," the study authors wrote.

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When should you refer patients with COPD to palliative care?

09/19/24 at 03:00 AM

When should you refer patients with COPD to palliative care? Physician's Weekly; by Jennifer Philip; 9/17/24 Researchers identified 17 major and 30 minor criteria to guide physicians in referring their patients with COPD to specialty palliative care. ...

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Death is no enemy

09/19/24 at 03:00 AM

Death is no enemy Psychiatric Times; by Sidney Zisook, MD; 9/17/24... As mental health clinicians, we often confine our conversations about death and dying to recognizing suicide risk and preventing suicide. And for good reason. Suicide is the 11th leading cause of death in the United States, ... Far less attention is paid by mental health clinicians to other aspects of death and dying. But we are human, first and foremost, and coping with a host of issues related to the end of life is inextricably bound to both our professional and personal lives. Like it or not, death is part of life. We, as mental health clinicians, are not always as prepared as we would like to be to help ourselves, our loved ones, our patients, and their loved ones deal with loss, dying, death, and bereavement. For many physicians, 1 or 2 hours in medical school and perhaps another few hours during residency are all the training we receive in these complex and challenging clinical issues. ...  Chochinov provides a clinician’s guide for “being with” dying patients. He offers ways of providing intensive caring to enhance empathy, respect, connectivity, and hope, and to make the experience of a dying patient more tolerable than it otherwise might be. ... I have utilized his Patient Dignity Question, which asks, “What do I need to know about you as a person to take the best care of you possible?” on several occasions with gratifying results for both the patient and me.

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How music therapy helps this young cancer patient in Louisville hold on to 'pure joy'

09/18/24 at 03:00 AM

How music therapy helps this young cancer patient in Louisville hold on to 'pure joy' ABC WHAS-11, Louisville, KY; by Brooke Hasch; 9/17/24Music therapists come prepared for any mood, hoping to bring light to a dark situation. Within the Norton Healthcare system, they help patients cope with pain, discomfort, and anxiety often associated with hospitalization. Brett Northrup's the music therapist for Norton Children's Cancer Institute, a role he stepped into 13 years ago. "I didn't know it existed, and then when I discovered this field, I said, 'this is it. This is what I'm going to do the rest of my life,'" he said. Northrup doesn't miss a beat when a patient's in need of a smile or a moment of normalcy. He's been there many times for 4-year-old Trey Lowman, who's gone through more than most people will in a lifetime. ... "When you put [Trey] and Brett together, it's magic," [Trey's mom] said. "He's full of joy and that's one thing that cancer hasn't been able to take from him."

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The 9 college majors that lead to the most fulfilling careers ... [Music therapy]

09/17/24 at 03:00 AM

The 9 college majors that lead to the most fulfilling careers ... NBC 7 San Diego, CA; by Kamaron McNair; 9/14/24 If you want your degree to help you land a fulfilling job, consider studying music therapy. The medical and therapeutic fields are among the college majors helping graduates get jobs that make the world a better place, according to graduates surveyed in a recent Payscale report.24/7 San Diego news stream: Watch NBC 7 free wherever you are Alumni with bachelor's degrees in music therapy are most likely to do this kind of fulfilling work, with 95% of degree-holders saying their work makes the world a better place, Payscale finds. Music therapy programs cover coursework in music, music therapy, science and psychology, according to the American Music Therapy Association. ... Music therapists may work in traditional settings, offering services to clients working through physical disabilities or mental health issues. People in hospice care, substance abuse programs and cancer treatment centers have also benefited from music therapist visits, according to the AMTA.Editor's note: Click here for facts and descriptions about "Music Therapy in Hospice Care," by the American Music Therapy Association (AMTA). To recruit a certified music therapist for hospice (or other setting), visit AMTA's Job Hotline.  

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It pays to know: How to be an effective health care agent

09/16/24 at 03:00 AM

It pays to know: How to be an effective health care agent The Rafu Shimpo; by Judd Matsunaga, Esq; 9/12/24 Being asked to be someone’s health care agent is a special honor — it means the person is saying, “I trust you with my life.” That said, it’s also a huge responsibility. As a health care agent, you will be in charge of making healthcare decisions for your loved one when they can no longer make decisions for themselves. ... Advance care planning is a process. It’s not something that gets done all at once. To help you be an effective health care agent, here are some questions you can ask your loved one: (Source: www.mskcc.org, “How to Be a Health Care Agent”)

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Age-friendly care: What it is and how reporters should cover it

09/16/24 at 03:00 AM

Age-friendly care: What it is and how reporters should cover itAssociation of Health Care Journalists; by Liz Seegert; 9/13/24You may have heard of age-friendly care... Age-friendly care, an initiative of The Institute for Health Care Improvement and The John A. Hartford Foundation, is modeled on the evidence-based 4Ms framework:

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Helping patients keep their dignity in their final moments

09/13/24 at 03:00 AM

Helping patients keep their dignity in their final moments Physician's Weekly; by Linda Girgis, MD, FAAFP; 9/11/24 In the US, approximately $365 billion is spent annually on end-of-life care, or ten percent of total healthcare expenditures. While some of this is essential, such as hospice care, much is spent on futile care. The Merriam Webster Dictionary defines futile as “serving no useful purpose, completely ineffective.” While we may be able to keep patients alive longer, such as using ventilators, it should be evaluated as to the endpoint. It is futile if the patient has no hope of recovery. ... How can we help our patients die with dignity?

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Indiana music therapy specialists talk about the practice

09/13/24 at 03:00 AM

Indiana music therapy specialists talk about the practice BallStateDailyNews.com; by Hannah Amos; originally posted 9/3/24, distributed 9/12/24 The strum of a guitar, the hum of a voice and the steady beat of a drum makes more than just music. It provides a way for people to work through their emotions.  Kirby Gilliam, owner and founder of Plainsong Music Services in Anderson, Indiana, said she noticed music creates a safe space.  ... [She] uses different techniques: expressive, receptive, recreated and the ISO principle. Expressive music therapy is when the patient makes music. The receptive technique is when the therapist makes music and the patient listens. Recreated is when patients sing songs made by other artists. Finally, the ISO principle is when the music matches the patient’s mood, and through music, they shift the mood in a positive direction, Gilliam said.  “Music therapy is an evidence-based field, based and rooted in science and research,” Gilliam said. “If it didn't have the evidence base, it would be more like hippie-dippy and anecdotal … The why is [that] music opens up your entire brain — all of the pathways.” ... Another worker at Plainsong is Hospice Coordinator Kinsey Lavy, who primarily works with geriatrics and individuals with intellectual and developmental disabilities.  Editor's note: For a book specific to music therapy and music for hospice and grief care, with practical uses by mental health practitioners, I invite you to examine my book, Music of the Soul - Composing Life Out of Loss, published in Routledge's Series in Death, Dying and Bereavement, edited by Robert A. Neimeyer.

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Competency standards for quality are needed now more than ever

09/13/24 at 02:00 AM

Competency standards for quality are needed now more than everModern Healthcare; by Stephanie Mercado; 9/11/24Stephanie Mercado is CEO of the National Association for Healthcare Quality. Healthcare quality is foundational to achieving the overarching goals of every care provider: improving population health, enhancing patient experiences, controlling costs, and more. Yet we are not where we need to be – and sustainably achieving quality and safety goals continues to be just outside of our reach. Why? New research from the National Association for Healthcare Quality reveals that people working in healthcare define quality very differently from one another. They use a range of terms like compliance, utilization management, safety, equity, population health, value. When stakeholders see quality differently and see each effort to advance quality as separate and distinct, it’s no wonder we are not further along in this quest for quality.Publisher's note: This article discusses concerns including care, cost, the workforce cliff, and how quality is achieved.

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[Opinion] Public health’s spirituality disconnect

09/12/24 at 03:10 AM

[Opinion] Public health’s spirituality disconnect Harvard Public Health; by Katelyn N.G. Long, David H. Rosmarin, and Howard K. Koh; 9/10/24The separation of church and state has long represented a hallowed legal principle. As a result, perhaps, the field of public health has often divorced itself from spirituality—to the detriment not only of the diverse populations we serve but also of ourselves. ... Our team from the Harvard Initiative on Health, Spirituality and Religion studies ways to bridge the public health disconnect between body and soul. As part of our commitment to research and practice, we worked in 2022 alongside several dozen colleagues nationwide to analyze the most rigorous studies published on the topic this century and to make recommendations for the future. ...

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Why so many patients are confused about CPR and do-not-resuscitate orders

09/12/24 at 03:00 AM

Why so many patients are confused about CPR and do-not-resuscitate orders STAT; by Lindsey Ulin; 9/11/24 Inherently difficult conversations are made more so by a lack of physician training. When a patient is admitted to the hospital in the U.S., there’s a standard question physicians like me are supposed to ask: “If your heart stops beating, do you want us to do CPR?” On the surface, this may seem like a mechanic asking a customer, “If your car stalls, do you want us to jumpstart the engine?” Who would say no to this, especially in a hospital? The problem is that this exchange, which we call asking about “code status” in medicine, centers around a closed-ended question. Talking to a patient about their preferences for cardiac resuscitation, intubation, and/or other life-sustaining treatments needs to be a complete, often lengthy discussion, not just a box to check. ...

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A dying wish: Longtime hospice volunteer has a challenge for GV

09/12/24 at 03:00 AM

A dying wish: Longtime hospice volunteer has a challenge for GV Green Valley News, Green Valley, AZ; by Dan Shearer; 9/10/24 ... The woman who walked alongside dying patients as a hospice volunteer for more than 20 years is now herself in hospice. She smiles but says the glistening in her eyes are sad tears. But cancer hasn't taken her joy, and she’s emotionally strong enough to meet with a reporter in her final weeks to make a request of Green Valley: Please consider taking up just the kind of work she’s been doing for two decades. It’s tough, but it comes with lessons and blessings that last a lifetime. ...

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Too Much, Too Little, Just Right: Optimizing cancer care for older adults

09/11/24 at 03:15 AM

Too Much, Too Little, Just Right: Optimizing cancer care for older adults The ASCO Post, American Society of Clinical Oncology; by Ramy Sedhom, MD; Bobby Green, MD; and Julia  Frydman, MD, MS; 9/10/24 Imagine walking into a fancy restaurant only to find a menu consisting mostly of kids’ dishes. It would make no sense. Just 25% of restaurant diners are younger than age 12, and they rarely write Yelp reviews. But when it comes to cancer treatment, this is not very far from what we do. The median age for a new cancer diagnosis is 67, and among those who die of cancer each year, 73% are older adults. Yet just one in four clinical trial participants is aged 70 or older. Consequently, guidelines for most new cancer therapies are based on a median age that is significantly younger than the patient population who actually receives these therapies. That’s quite a conundrum. More than half of patients older than age 65 experience toxicity of grade 3 or worse while undergoing standard chemotherapy. ... Palliative Care—For a 40-year-old mother of two young children, the goal of cancer treatment is usually clear: complete remission and long-term survival. But when you ask older patients with cancer about their priorities, a majority regard symptom control, emotional coping, and other quality-of-life measures at least as much as longevity and sometimes more.

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Mental health jobs to grow 3X more than the rate of all US jobs

09/11/24 at 03:00 AM

Mental health jobs to grow 3X more than the rate of all US jobs Becker's Hospital Review; by Erica Carbajal; 9/9/24 By 2033, employment growth in mental health professions is expected to triple that of average job growth in the U.S., according to a CNN analysis of data from the Bureau of Labor Statistics. While the median projected employment growth for all occupations across the next decade is 4%, the rate for mental health-related jobs is 12%. This includes psychiatrists, psychologists, therapists, counselors, psychiatric aids and social workers, according to CNN's report published Sept. 7. Editor's note: Too often, mental health health jobs in hospice and palliative care are relegated to low status on priorities for staffing, instead of the regulatory high priority for "whole-person" care defined throughout the CMS Hospice Conditions of Participation. As significant changes continue to unfold for hospice and palliative services, we will continue to report trends and shifts that emerge in the healthcare landscape for mental health jobs.  

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One healthcare job poised for the greatest shortage

09/11/24 at 02:00 AM

One healthcare job poised for the greatest shortage Becker's Hospital Review; by Molly Gamble; 9/6/24 Nursing assistants face the greatest projected deficit over any other analyzed healthcare occupation, with a projected shortage of more than 73,000 assistants nationwide by 2028. The forecast comes from Mercer, which projects a nationwide shortage of more than 100,000 healthcare workers by 2028. The need for nursing assistants is expected to be greatest, with only 13 states expected to meet or exceed future demand. "The projected supply of nursing assistants — an occupation that constitutes 8% of the total US healthcare workforce and 40% of healthcare support occupations in 2023 — is discouraging," Mercer consultants wrote in their Aug. 29 report, "Future of the U.S. Healthcare Industry: Labor Market Projections by 2028."

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