Literature Review
All posts tagged with “Clinical News.”
The Hastings Center’s 2024 highlights
12/31/24 at 03:00 AMThe Hastings Center’s 2024 highlights The Hastings Center; 12/26/24 It has been a successful 2024 thanks to our community of readers and supporters who trust The Hastings Center to illuminate and thoughtfully explore ethical issues in health, science, and technology. Here are some of the past year’s highlights, with a personal message from President Vardit Ravitsky.
Children’s Hospital New Orleans dedicates new ‘Bella’s Room’ ComfortCare Suite
12/30/24 at 03:15 AMChildren’s Hospital New Orleans dedicates new ‘Bella’s Room’ ComfortCare Suite NewOrleans.com, New Orleans, LA; by Site Staff; 12/26/24 Children’s Hospital New Orleans recently celebrated the opening of “Bella’s Room,” a ComfortCareSM suite designed to serve as a sanctuary for children in need of end-of-life care and their families. ... “With the generous support of the Bella Bowman Foundation, honoring Bella’s lasting legacy, Bella’s Room will transform the way children and families across Louisiana and the Gulf South experience serious illness and end of life care,” said Lindsey Casey, RN, senior vice president and chief nursing officer for Children’s Hospital, said in a release. “This beautiful space will help our team provide family-centered end of life care, while offering a comfortable and serene home-like setting for the entire family to be a part of the care experience.”
What does a hospital chaplain do for patients seeking health care in Connecticut?
12/30/24 at 03:00 AMWhat does a hospital chaplain do for patients seeking health care in Connecticut? Shelton Herald; by Jordan Nathaniel Fenster; 12/29/24 Rev. ReBecca Sala described her work as “archaeology of the soul.” Her first masters’ degree, long before she became a hospital chaplain, was in museum administration of archeological collections. She doesn’t see the two roles as very different. “I've been a searcher my whole life,” she said. In the same way that an archaeologist gently brushes away the silt and stone of centuries, Sala said she attempts to gently allow emotions and spirituality to emerge from patients and their families receiving care at Stamford Hospital. ... “That people even allow me to be there with them is humbling.” ... “It's meeting the patient where they are, not where I want them to be, what we as chaplains want them to be. It's finding out what's most important to them in that moment,” she said. .. Sala said if there was a bridge between the physical and the spiritual, it would be palliative care. The goal of palliative medicine is to improve the quality of a patient’s life physically, emotionally and spiritually.
As a hospice nurse, Jaffrey's Nancy Folsom helps make the journey easier
12/30/24 at 03:00 AMAs a hospice nurse, Jaffrey's Nancy Folsom helps make the journey easier The Keene Sentinel, Keene, NH; by Elijah de Castro; 12/28/24 Nancy Folsom has been working around death since she was a teenager in her family’s funeral home, where she was an embalmer apprentice. From there, she took a step back, pursuing a career as a home hospice nurse in the Monadnock Region, where she helps those who are dying confront death. “Death is never easy, at any age or any time,” Folsom said. “We want to make it as human as possible. I’ve always been comfortable with death.” ... Folsom, 62, of Jaffrey, “has never had a boring day” on the job. When she’s not out in the community working, she’s in the Peterborough office of Home Healthcare, Hospice and Community Services, a local nonprofit provider of home health services that also has offices in Keene and Charlestown. ... Over the years, Folsom has gained experience in how to best read a situation when she gets a new patient. Building trust between a hospice nurse and a patient, Folsom said, takes time, something many of her patients don’t have. Folsom resolves this dilemma by first making sure she is comfortable herself and cultivating a calm, abiding presence. ...
Muslim community-engaged research highlights Muslim Americans' end-of-life-healthcare gaps and needs
12/26/24 at 03:00 AMMuslim community-engaged research highlights Muslim Americans' end-of-life-healthcare gaps and needs WisconsinMuslimJournal.org; by Sandra Whitehead; 12/20/24 Few Muslim Americans use hospice care, despite its posited benefits. A multi-sectoral team of academicians and community leaders in southeastern Wisconsin decided to find out why. ... Muslims are one of the fastest-growing religious communities in the United States, numbering between 3 to 5 million, with projections it will double by 2050. “With an aging Muslim population, there is a growing need for specialized healthcare services like hospice and palliative care,” the team’s research explains. ... Through a qualitative descriptive study with a Muslim patient and 10 family caregivers, the research team identified their perceptions of hospice care, ethical concerns and experiences. Among their varied perceptions, many saw it as useful only in the last hours of life. Participants also had ethical concerns about the use of sedative medication and with cessation of feeding terminally ill patients. Some had concerns about how hospice care might lead to unnecessary interventions or even hasten death. ... The team is developing an informational resource, Islamic Bioethical Considerations for the End of Life: A Guide for Muslim Americans, to help Muslims who struggle when thinking about death and dying.
For young adults, caregiving isn't just hard. It can shape you for life.
12/26/24 at 03:00 AMFor young adults, caregiving isn't just hard. It can shape you for life. National Public Radio - CAI - Local NPR for the Cape, Coast & Islands; by Kat McGown; 12/23/24 ... There are days when Jordyn Glick, 27, can't eat or drink at all. She gets so tired and weak she can barely stand up. She has gastroparesis, where food stalls out in her stomach and doesn't get digested. It comes with unpredictable bouts of nausea, periods of agony in her guts, and malnutrition. ... Dakota Heath, her 26-year-old boyfriend of four years, is her watchman, "always picking up on the small things," he says. He's on alert for her next flareup, the kind that can leave her bedridden for a week. ... Young caregivers have always been there, doing all the same things that adults do — ... About one-quarter of all family caregivers are between 18 and 36, according to the National Alliance for Caregiving. One survey suggests that almost half of them are men. They're more likely to be Latino or Black; a survey in 2018 found that only 17% were white. They've just been invisible. "They fall into every potential crack that exists," says Melinda Kavanaugh, a professor of social work at the University of Wisconsin Milwaukee who is one of the few researchers who study this population. In terms of resources, "Nothing is targeted for a 22-year-old. Nothing."
Meet the Santas helping Pa. families with sick children weather holidays in hospitals
12/26/24 at 03:00 AMMeet the Santas helping Pa. families with sick children weather holidays in hospitals PennLive.com; by Sarah Boden; 12/24/24 Katelyn Pownall wasn’t sure her 3-year-old son would ever meet Santa Claus. Nash was born with Menkes disease, a rare genetic disorder that disrupts the body’s ability to absorb and distribute copper. This causes severe damage to the nervous system, as well as connective tissue abnormalities in the skin, joints, and bones. Menkes is terminal, and since May, Nash has lived at the Children’s Home of Pittsburgh, Pownall told Spotlight PA. The hospital provides specialized pediatric care to medically fragile children. “We just count our moments, not our days,” Pownall said. Earlier this month, Pownall and Nash relished a magical moment: They met both Santa and Mrs. Claus at the hospital. ...
'We do more than just pray': Chaplains take active role at Milwaukee VA and in community
12/26/24 at 03:00 AM'We do more than just pray': Chaplains take active role at Milwaukee VA and in community U.S. Government Veterans Administration; by David Walter; 12/23/24 If you think hospital chaplains just pray at bedsides, think again. At the Milwaukee VA Medical Center, chaplains are much more than comfort providers. They are fully integrated into the everyday workings of the hospital, serving on committees, participating in numerous events and consulting with other subject matter experts. Their work also goes beyond the walls of the hospital, interfacing with the community to help better reach those Veterans who may not venture into the hospital. And while they continue to meet one-on-one with patients on a daily basis, they also extend their services to hospital staff, providing solace and support for those dealing with the emotional toll that caregiving can sometimes take on health care professionals. “There’s been a really big shift here,” said Chaplain Robert Allen, chief of the Milwaukee VA’s Chaplain Services, adding that for too long chaplains were “put in this corner, thinking that we only just pray.” Editor's note: To strengthen your understanding of chaplaincy roles, standards, training, and certification, examine the national Association of Professional Chaplains.
Fall River sees slight uptick in tuberculosis cases. How the city's TB clinic handles it.
12/23/24 at 03:30 AMFall River sees slight uptick in tuberculosis cases. How the city's TB clinic handles it. The Herald News, Fall River, MA; by Emily Scherny; 12/19/24 Tuberculosis is rare in Fall River, though rates of the disease are higher here than the country's average — and it was classified by the World Health Organization as the world's deadliest disease in 2023. Fall River has a TB clinic with a constant presence year-round, serving adult and pediatric patients alike. ... According to the Department of Public Health’s Bureau of Infectious Diseases report that tracks TB cases in the state’s top 25 largest cities, Fall River had approximately 8.5 cases out of every 100,000 residents in 2023; a major uptick after the year before, when none were counted. That compares to the United States average of 2.5 cases per 100,000 that same year. ... TB is very communicable in winter months, Kosior said, which is partly the reason for the 105 CMR state mandate, which dictates stringent measures of managing TB outside of hospitals in outpatient settings.
Hospice study reveals contrasting views on managing dementia behaviors
12/23/24 at 03:00 AMHospice study reveals contrasting views on managing dementia behaviors McKnights Long-Term Care News; by Donna Shryer; 12/20/24 A new study finds that healthcare providers and family caregivers often disagree on how best to manage dementia behaviors during end-of-life care. The research, published in the Journal of the American Geriatrics Society, involved interviews with 23 hospice clinicians and 20 family caregivers. With dementia affecting 33% of adults over age 85 and now ranking as the primary diagnosis for Medicare hospice services, understanding these differing perspectives about managing dementia behaviors has become increasingly important. The study found that while both groups identified agitation as the most concerning behavioral symptom, they approached it from different angles. Clinicians primarily worried about physical safety risks, while family caregivers were more distressed by personality changes in their loved ones.
Rabbi emphasizes balancing tradition, innovation in culturally competent care
12/23/24 at 03:00 AMRabbi emphasizes balancing tradition, innovation in culturally competent care Yeshiva University; by Dave DeFusco; 12/20/24 Rabbi Dr. Edward Reichman, professor in the Department of Emergency Medicine at Albert Einstein College of Medicine, underscored the importance of understanding various religious practices to provide culturally competent care in his presentation, “Are Pig Heart Transplants Kosher? Judaism and Modern Medicine in the 21st Century,” as part of an interprofessional practice seminar ... Rabbi Reichman offered practical advice for healthcare professionals treating Jewish patients. Key considerations included: ...
Palliative care, mental health services underutilized in pancreatic cancer
12/20/24 at 03:00 AMPalliative care, mental health services underutilized in pancreatic cancer Healio; by Jennifer Byrne; 12/19/24 Individuals with pancreatic cancer underutilized palliative care and mental health services, according to a retrospective analysis. ... Researchers from Saint Louis University used electronic health record data from Optum’s Integrated Claims-Clinical Data set to identify 4,029 patients with newly diagnosed pancreatic cancer. The investigators then used ICD-9/10 codes to identify subsequent diagnoses of anxiety and depression, as well as palliative care consultations. ... Results showed higher prevalence of anxiety (33.9% vs. 22.8%) and depression (36.2% vs. 23.2%) among patients who had palliative care consultations than those who did not have documented consultations. ... Healio: Did any of your findings surprise you? Divya S. Subramaniam, PhD, MPH: It was unexpected to see that palliative care consultations, despite identifying higher levels of anxiety and depression, did not increase treatment rates for these mental health conditions. This suggests mental health might not yet be a central focus in palliative consultations, which often concentrate on managing physical symptoms.
States ranked by nurse communication
12/18/24 at 03:00 AMStates ranked by nurse communication Becker's Hospital Review; by Mackenzie Bean; updated 12/13/24 Hospitals in Louisiana, Minnesota, North Dakota, Nebraska and South Dakota have the highest nurse communication scores, while hospitals in the District of Columbia have the lowest, CMS data shows. CMS collects and publicly reports data on nurse communication as part of its HCAHPS survey data. The nurse communication measure assesses the percentage of patients who reported that their nurses "always" communicated well. The data was collected in 2023 and published in CMS' Provider Data Catalog Oct. 30. Nationwide, 80% of patients reported nurses always communicated well, up one percentage point from the year prior, according to CMS data. [Click on the title's link for this ranked list.]
Weekly US Map: Influenza summary update
12/17/24 at 03:00 AMWeekly US Map: Influenza summary updateCDC - U.S. Centers for Disease Control and Prevention; ongoing, retrieved from the internet 12/16/24A Weekly Influenza Surveillance Report Prepared by the Influenza Division Editor's note: Bookmark this page to your web browser to monitor flu activity in your service areas through these more vulnerable winter months. Click on the map's "State" button for macro data at the state level. Click on the map's "CBSA" to drill down to counties.
Supporting grieving kids during the holiday season: Susan Hamme
12/17/24 at 02:00 AMSupporting grieving kids during the holiday season: Susan Hamme Cleveland.com, Cleveland, OH; Guest columnist Susan Hamme, director of grief services for Hospice of the Western Reserve ... Childhood grief is tricky no matter the time of year, but the holidays can be a time of especially heightened emotion. The sights and sounds of the season can be triggers for children and adults alike. Combine that with an awareness that things will be very different without your special person, and you have the perfect recipe for emotional meltdowns and miscommunication all around. While it may be impossible to avoid this altogether, there are things you can do to lessen the stress and build in moments of peace and celebration.
What they love and loathe: Medscape Nurse Career Satisfaction Report 2024
12/16/24 at 03:00 AMWhat they love and loathe: Medscape Nurse Career Satisfaction Report 2024 Medscape; by Jon McKenna; 12/13/24 Despite well-publicized issues buffeting their profession, nurses in a Medscape survey overwhelmingly said they are happy with their career choice, and most said they would make it again. They also told us about their most- and least-favored job features, recounted any experiences with abuse at work, revealed possible alternative careers, and reported union membership, among other insights. [Click on the title's link to continue reading.]
Families value flexibility and compassion in end-of-life care for children with cancer
12/13/24 at 03:00 AMFamilies value flexibility and compassion in end-of-life care for children with cancer Hematology Advisor; by Megan Garlapow, PhD; 12/12/24 Bereaved families of children who died of cancer expressed a strong desire for high-quality end-of-life care that balanced comfort with continued treatment efforts, particularly chemotherapy, according to results from a study published in Cancer. Families did not perceive a conflict between comfort care and the pursuit of chemotherapy, seeking both as integral parts of their child’s final days. Despite variations in race and location, there was no clear preference for home or hospital deaths, ... Instead, decisions surrounding the location of death were often driven by the child’s preferences, medical needs, the impact on other family members, and prior experiences with death. ... Family decision-making was centered on maintaining hope, avoiding harm, and doing what was best for their child and themselves, with religious beliefs playing a significant role.
The biggest lesson physicians learned in 2024
12/13/24 at 03:00 AMThe biggest lesson physicians learned in 2024 Becker's Physician Leadership; by Patsy Newitt; 12/10/24 Five physician leaders joined Becker's to discuss the biggest lesson they learned in 2024. ... [Summary topics include:]
Helping Korean Americans with end-of-life planning is her passion
12/12/24 at 03:00 AMHelping Korean Americans with end-of-life planning is her passion Penn Medicine News; by Daphne Sashin; 12/10/24 Eunice Park-Clinton, DNP, MSN, MBE, is standing before a crowd of Korean American senior citizens, and she wants to talk about the end of life. ... Park-Clinton, a nurse case manager in the Hospital of the University of Pennsylvania’s Emergency Department and an assistant nursing professor at West Chester University, is undeterred. Speaking in Korean, she takes a kind but frank approach as she walks the seniors through life-sustaining treatments they might be offered in their final days and the need to decide what they will—and won’t—want for a dignified end of life. ... As a Korean American herself, Park-Clinton’s passion for culturally sensitive planning comes from her personal familiarity with the community and its norms. In her work as a nurse, she has personally witnessed older Korean and other Asian immigrants experience health disparities due to their lack of knowledge of the concept.
Commentary: The coat my mother never wore
12/12/24 at 03:00 AMCommentary: The coat my mother never wore National Public Radio - WBUR, Boston, MA; by Karen Propp; 12/11/24 Shortly before Thanksgiving 2018, I bought my 87-year-old mother a winter coat — a silvery-gray one that matched her hair. None of us could remember the last time she had left the house, spoken in full sentences or walked without assistance, but my father hoped that a new ultra-light coat might change things. ... Having been close to others with progressive or terminal illnesses, I did not share his optimism. But it felt cruel to dash my father’s hope, so I hung the coat in the front hall closet, as if it were a talisman that could bring us a miracle. My mother died peacefully, late in the morning that December 24. By the time the men from the funeral home arrived, it was already dark outside. ...Editor's note: Click on the title's link to read how this simple coat evoked a daughter's grief, coping, and realization of her mother's qualities within herself. Non-clinical leaders: in case you're not aware, the extensive body of grief research reveals that grief does not have a last "stage" of "acceptance." Rather, mourning begins with a first step or "task" of accepting realities of the loss (Worden), with another step or "task" of establishing enduring connection (Worden)--which this daughter found within herself. These are not stages. Rather, they are ongoing cycles (mini and macro), with other identified, individualized dynamics.
Caring for emotional and spiritual needs of ICU families
12/12/24 at 02:00 AMCaring for emotional and spiritual needs of ICU families Medical Xpress; by Regenstrief Institute; 12/10/24 Family members of intensive care unit (ICU) patients often experience psychological and spiritual distress as they deal with serious illness and potential death. A new paper authored by a national team of experts at the intersection of health and spirituality highlights the critical role of the spiritual care provided by chaplains in supporting family members of ICU patients. ... "Our model describes three important ways that chaplain care supports ICU family members and helps them when faced with difficult decisions," said study co-author and chaplain-researcher George Fitchett, DMin, Ph.D., professor of religion, health and human values at Rush University Medical Center. "Chaplains provide family members with spiritual and emotional support. They also facilitate conversation with the medical team and help family members process the information from those conversations. Significantly, our study highlights the care provided by chaplains to ICU patient families and its impact on important outcomes." Editor's note: Click here for Improving Outcomes for for ICU Family Members: The Role of Spiritual Care, published in the Journal of Palliative Medicine, Oct 2024.
New fellowship will help imprisoned women plan for end of life
12/11/24 at 03:10 AMNew fellowship will help imprisoned women plan for end of life Washington State University - WSU Insider; by Scott Swybright; 12/9/24 Incarcerated individuals have few personal rights, but one they do retain is the ability to create advance directive plans for their health care. Unfortunately, few know that this is the case. A new project led by a Washington State University graduate student will educate more incarcerated people about their options as they approach the end of their lives. “When folks are incarcerated, they lose most of their bodily autonomy and basically become property of the government,” said Tosha Big Eagle, a doctoral student in WSU’s prevention science program at the WSU Vancouver campus. “Advance directives are one outlier, but nobody tells them about that right.” To help educate prisoners, Big Eagle recently received a fellowship from The Order of the Good Death, a group helping all people face end-of-life concerns, fears, and legalities. Big Eagle’s project will focus on ensuring incarcerated people at the Washington Corrections Center for Women (WCCW) have access to end-of-life resources.
HSPN Staffing Summit: Leveraging technology for person-centered care
12/11/24 at 03:00 AMHSPN Staffing Summit: Leveraging technology for person-centered care Hospice News; by Sophie Knoelke; 12/9/24 This article is sponsored by CareXM. This article is based on a virtual discussion with Kathleen Benton, President and CEO of Hospice Savannah. ... Dr. Benton has a master’s degree in medical ethics and a doctorate in public health. She has offered and reviewed many publications relevant to the topics of palliative care, ethics, hospice, and communication. [Dr. Benton:] I was schooled in clinical ethics and really mediating ethical dilemmas in health care. Looking at, is this in the best interest of the patient? Are we truly following the patient’s wishes? Many of the dilemmas, I would say a good 90%, occur at the end of life. ... [At] the root of [really trending] cases was one missing element. That element was the lacking area of communication. What do I mean by that? I believe that health care does the worst job of probably all other areas of communicating with folks. We have really taken what it is to be human out of what it is to treat a patient and a person. [Click on the title's link to continue reading this insightful discussion.]
What adult children should know when discussing their parents’ end-of-life care
12/10/24 at 03:00 AMWhat adult children should know when discussing their parents’ end-of-life care StudyFinds; by StudyFindsStaff, reviewed by Christ Melore; 12/8/24 Talking about death can be difficult for anyone at any time. For adult children who need to know their parents’ final wishes, it can be excruciating. A new survey is revealing the stark disconnect between our beliefs and actions when it comes to end-of-life planning. While an overwhelming 90% of adults recognize the importance of these critical conversations, half have yet to take the first step with their closest loved ones. ... The numbers tell a revealing story. Twenty-six percent of respondents simply keep putting off the conversation, while 23% admit they don’t know how to approach the topic. Sixteen percent are outright scared to broach the subject, creating a wall of silence around a universal human experience. ... When people do open up, the conversations prove surprisingly rich and multifaceted.
Gift packages made for hospice patients in west Alabama
12/10/24 at 03:00 AMGift packages made for hospice patients in west Alabama WBRC 6 News, Birmingham, AL; by Kelvin Reynolds; 12/9/24 While it’s usually between people who know each other, that’s not always the case. A group in west Alabama arranged gift packages for folks using hospice and or home healthcare services who may not have many more holidays to celebrate. Anita Jones and others assembled dozens of care packages, working with Aveeno Home Health and Aveeno Hospice offices in Demopolis and Livingston to identify people in need. The company will distribute the care packages to its patients. ... McElroy Trucking from Cuba, Alabama helped pay for the items. They included books, blankets, shaving equipment, and other personal items.