Literature Review
All posts tagged with “Clinical News.”
4 things nobody tells you about watching a loved one die of cancer
03/26/24 at 03:00 AM4 things nobody tells you about watching a loved one die of cancer The New York Post; by Jessica Ariel Wendroff; 3/23/24 ... “The surgery was successful. However, tests after the operation found cancer had been present,” the Princess of Wales, 42, revealed in a bombshell videotaped statement Friday. ... While the royal insisted she is “well and getting stronger every day,” other patients’ real pain begins when the cancer has spread too far and chemotherapy and radiation no longer work, so doctors stop treatment. As the daughter of a Stage 4 bladder cancer patient, I’ve empirically learned four realities that people usually don’t talk about ...
Incurable but not hopeless: How hope shapes patients’ awareness of their advanced cancer prognosis
03/26/24 at 03:00 AMIncurable but not hopeless: How hope shapes patients’ awareness of their advanced cancer prognosis The Conversation, by Jean Mathews and Michael Brundage; 3/24/24Hope is defined as the expectation of achieving a future good. Patients with cancer, whether it is curable or not, prioritize cure as their highest hope. ... Previous research indicates that less than half of patients with incurable cancer are aware of their prognosis. This is often attributed to a failure of communication. ... In the context of advanced cancer, the relationship between hope and hopelessness is balanced by acceptance, which can re-direct hope to new goals beyond cure, such as hope for connection with others and enjoyment of daily pleasures.
End-of-life care in heart failure
03/25/24 at 03:00 AMEnd-of-life care in heart failure MedPageToday; by Crystal Phend, reviewed by Andrew Perry, MD; 3/22/24 Palliative care has a perception problem. It's often associated with end of life or advanced cancer. However, cardiovascular disease actually accounts for a higher proportion of adults in need of palliative care than does cancer (38.5% vs 34%), according to the World Health Organization. Patients with heart failure (HF) have a median survival of about 5 years -- on par with many types of cancer, yet patients with cancer are much more likely to be referred to palliative care.
"A strong reason why I enjoy coming to work": Clinician acceptability of a palliative and supportive care intervention (PACT) for older adults with acute myeloid leukemia and their care partners
03/25/24 at 03:00 AM"A strong reason why I enjoy coming to work": Clinician acceptability of a palliative and supportive care intervention (PACT) for older adults with acute myeloid leukemia and their care partners Journal of Geriatric Oncology; by Ayomide Okanlawon Bankole, Natasha Renee Burse, Victoria Crowder, Ya-Ning Chan, Rachel Hirschey, Ahrang Jung, Kelly R Tan, Susan Coppola, Mackenzi Pergolotti, Daniel R Richardson, Ashley Leak Bryant; 3/20/24 Introduction: ... In this study, we examined clinician acceptability of a NIH-funded interdisciplinary PAlliative and Supportive Care inTervention (PACT) for older adults with acute myeloid leukemia (AML) and their care partners that transcends both inpatient and outpatient settings. Results: ... Five themes were identified in the thematic analysis: (1) Emotions and affect towards the intervention, (2) Intervention coherence and self-efficacy, (3) Barriers, burden, and opportunity costs of delivering the intervention, (4) Usefulness and effectiveness of the intervention, and (5) Recommendations to improve intervention delivery.
Racial/ethnic differences in care intensity at the end of life for patients with lung cancer
03/25/24 at 03:00 AMRacial/ethnic differences in care intensity at the end of life for patients with lung cancer The ASCO Post, by Matthew Stenger; 3/21/24 The study used data from the California Cancer Registry linked to patient discharge data abstracts. The primary outcome measure was intensity of care in the last 14 days before death, with greater intensity defined as any hospital admission or emergency department visit, intensive care unit (ICU) admission, intubation, cardiopulmonary resuscitation (CPR), hemodialysis, and death in an acute care setting. ... The authors concluded: “Compared with [non-Hispanic White] patients, [Asian/Pacific Islander], Black, and Hispanic patients who died with lung cancer experienced higher intensity of [end-of-life] care. Future studies should develop approaches to eliminate such racial and ethnic disparities in care delivery at the [end of life].”
Physicians often shy away from preparing their patients to die
03/25/24 at 02:00 AMPhysicians often shy away from preparing their patients to dieToday'sHospitalist, by Colleen Poggenburg, MD, MS; 3/22/24 There's beauty in death if we can tolerate looking. ... The beauty in death is the reflections that occur in the weeks, days and minutes prior to it, which together make up a summary of someone’s life. Why then do physicians view this time-honored decline as a series of clustered medical problems, when it really is just someone moving toward death? Are we so concerned about treating just one more condition, and do we actually think it will solve the growing list of medical problems that dying patients have? ... I compared dying to pregnancy to “soften” the description of this decline. Here’s how I see that comparison: ...Editor's Note: The author offers a fascinating, meaningful comparison of physician/patient conversations with someone who is pregant versus someone who is dying. I encourage you to share this article with your clinical leaders (and adapt it for staff), as this model beautifully reframes important conversations that can empower patients and their families.
$4.25 million gene therapy for kids becomes world's priciest drug
03/22/24 at 03:00 AM$4.25 million gene therapy for kids becomes world's priciest drug NBC LEX18, by Alex Arger; 3/20/24 A lifesaving gene therapy for children born with a rare and debilitating disease has just been approved by the U.S. Food and Drug Administration. The catch? Its wholesale cost has been set at $4.25 million, making it the most expensive medicine in the world. Orchard Therapeutics announced the hefty price for Lenmeldy Wednesday, two days after the FDA approved the therapy as the only treatment for kids with metachromatic leukodystrophy, or MLD.
Student-run Arizona non-profit uses origami to connect with hospital [and hospice] patients
03/21/24 at 03:45 AMStudent-run Arizona non-profit uses origami to connect with hospital [and hospice] patients The State Press, by Pippa Fung; 3/19/24The Wishing Crane Project, founded by Arizona student Charles Zhang, serves hospice and hospital patients through art. In the story of Sadako and the Thousand Paper Cranes, a young girl tried to fold 1,000 paper cranes in the hopes that it would help her push through a terminal illness. Years later, students across Arizona and at ASU are folding their own cranes [and writing hopeful messages] to support others through their difficult journeys.
Multinational Association of Supportive Care in Cancer (MASCC) expert opinion/guidance on the use of clinically assisted hydration in patients with advanced cancer
03/21/24 at 03:35 AMMultinational Association of Supportive Care in Cancer (MASCC) expert opinion/guidance on the use of clinically assisted hydration in patients with advanced cancer
Frailty needs to be a factor in drug development, proposed guidelines suggest
03/21/24 at 03:30 AMFrailty needs to be a factor in drug development, proposed guidelines suggest McKnights Long-Term Care News, by Kristen Fischer; 3/20/24A new report on strategies for geriatric drug development and assessment determined that drugs need to consider age as well as other factors that older adults face such as cognitive impairment, frailty and polypharmacy. This is according to the International Union of Basic and Clinical Pharmacology (IUPHAR) Geriatric Committee, which published the report. The strategies specifically focused on integrating frailty as a factor in drug development. The report, published in the Journal of the American Geriatrics Society earlier this month, includes 12 principles pertaining to frailty in reference to drug development. The recommendations include measuring frailty at the start of when a person goes on a drug they’ll likely take regularly.
Music Therapy intervention to reduce symptom burden in hospice patients: A descriptive study
03/21/24 at 03:00 AMMusic Therapy intervention to reduce symptom burden in hospice patients: A descriptive study American Journal of Hospice & Palliative Care; by Madison H Estell, Kevin J Whitford, Angela M Ulrich, Brianna E Larsen, Christina Wood, Maureen L Bigelow, Travis J Dockter, Kimberly L Schoonover, Amy J Stelpflug, Jacob J Strand, Monica P Walton, Maria I Lapid; 3/19/24 online ahead of printResults: Patients reported a reduction in symptom severity and emotional distress and an increase in QOL. All patients endorsed satisfaction with music therapy, describing it as particularly beneficial for stress relief, relaxation, spiritual support, emotional support, and well-being. Scores on overall QOL and stress were worse for caregivers.
Reducing adverse events with clinical audit
03/21/24 at 03:00 AMReducing adverse events with clinical audit Healthcare Connection; by Annette Schandl, George Bezzerides, Erin Meyer; 3/19/24 Patient safety is at the core of healthcare. Yet, clinical audits remain underrepresented on many healthcare organizations’ internal audit plans. ... Planning clinical audits: A checklist ...
Are the robots coming for my nursing job?
03/21/24 at 03:00 AMAre the robots coming for my nursing job? Minority Nurse; 3/20/24 While medication-dispensing robots, telemetry, electronic fetal monitoring, artificial intelligence, and other technological advances have altered our work as nurses, fears that robots will replace us and send nurses into the historical career dustbin are likely unfounded. ... The human side of nursing is the art that maintains the sacredness of the nurse-patient bond. Nursing may be partially driven by plans of care developed within the parameters of the nursing process, but where the rubber hits the road is where person-to-person interaction informs the patient experience and the nurse’s calling.
Health care utilization and opioid use in patients receiving an integrated palliative care intervention for treatment of head and neck cancer compared to a historical control
03/20/24 at 03:00 AMHealth care utilization and opioid use in patients receiving an integrated palliative care intervention for treatment of head and neck cancer compared to a historical control Elsevier, International Journal of Radiation; by F. Rizwan. C. D'Avella, M. Albert, T. King, B. Egleston, T.J. Galloway, M. Chwistek, C. Fang, A. El-jawahri, J.R. Bauman; online access for 4/1/24 release Patients receiving chemoradiation therapy (CRT) for head and neck cancer (HNC) can develop significant symptomology (odynophagia, malnutrition) resulting in frequent hospitalizations and decreased quality of life (QOL) and continue to have chronic symptoms such as dysphagia and/or pain. The integration of a palliative care (PC) team during CRT has the potential to address the high symptom burden and improve QOL.
Giving hospice patients a dignified end-of-life experience
03/20/24 at 03:00 AMGiving hospice patients a dignified end-of-life experience Steve Adubato On the Air, with Charles Vialotti, MD; 3/13/24On--location at Villa Marie Claire Residential Hospice, Steve Adubato is joined by medical director, Charles Vialotti, MD to talk about his personal commitment to hospice care and giving residents and their families a dignified end-of-life experience.
Improvements in interdisciplinary communication following the implementation of a standardized Handoff Curriculum: SAFETIPS
03/20/24 at 02:30 AMImprovements in Interdisciplinary Communication Following the implementation of a standardized Handoff Curriculum: SAFETIPS (Statistics, Assessment, Focused Plan, Pertinent Exam findings, to Dos, If/Thens, Pointers/Pitfalls, and Severity of Illness) Cureus, by Shaefali Shandilya and Justen M. Aprile; 3/18/24 Handoffs between medical providers serve a crucial patient safety function. While most published literature on the topic studies the handover process among physicians, robust literature is available on interdisciplinary medical communication. Little is known about the downstream effects of effective physician handover on subsequent physician and nursing interactions. ...Results: Statistical analysis revealed significant post-intervention mean score increases of one full point in four categories, namely organization and efficiency, communication, content, and clinical judgment.
Lubbock author publishes "I'm on Hospice: A Children's Book"
03/20/24 at 02:00 AMLubbock author publishes "I'm on Hospice: A Children's Book for Processing & Coping With a Terminal Illness" CBS WDTV 5; book is by Sydney Crane (author) and Nina Broen (illustrator); tv interview 3/14/24While a child is in the care of a hospice team, they will likely hear words and phrases that they do not know or have questions they are unsure how to ask. Presenting information through Riley's story, I'm On Hospice encourages conversations and facilitates a space for questions, discussion, and understanding within any relationship dynamic surrounding a terminally ill child. Riley is a nine-year-old boy whose life purpose is all about baseball, and he shares how each of his hospice caretakers helps him be comfortable and safe.Editor's Note: This book is available on Amazon and Kindle. The description above is from Amazon, as the tv interview is video.
Hospice prepares to thank Vietnam era vets
03/19/24 at 03:00 AMHospice prepares to thank Vietnam era vetsMid Hudson News; 3/17/24In early 2017, Congress passed the Vietnam War Veterans Recognition Act, establishing March 29 as National Vietnam War Veterans Day. The holiday is also known as “Welcome Home Vietnam Veterans Day” and in honor of those who served during the Vietnam era, the Hospice of Orange & Sullivan Counties will host its fourth annual “Thank You” and Memorial Ceremony on March 29 at 10 a.m. at the Cornwall Yacht Club. Hospice of Orange & Sullivan Counties is a community partner of “We Honor Veterans,” a campaign developed by the National Hospice and Palliative Care Organization in collaboration with the Department of Veterans Affairs.Editor's Note: Click here for information about March 29th, National Vietnam War Veterans Day.
How a Florida woman’s NYC selfie led to her brain tumor diagnosis
03/19/24 at 03:00 AMHow a Florida woman’s NYC selfie led to her brain tumor diagnosis New York Post, by Chris Harris; 3/16/24 It was a life-changing selfie. ... “I looked at the picture, and my eyelid was drooping,” Troutwine recalled. “I thought it was odd, so when I returned home, I mentioned it to my neurologist.” The doctor ordered an MRI, and on her way home from the scan, she got a call: They had found a benign mass inside her brain that was growing at an aggressive rate.
Tensions between grieving hearts and Western minds: Brave spaces for grief literacy and mystical experiences
03/19/24 at 03:00 AMTensions between grieving hearts and Western mind: Brave spaces for grief literacy and mystical experiences
We Honor Veterans: Examples and resources from partners
03/18/24 at 03:30 AMWe Honor Veterans: Examples and resources from partners NHPCO; 3/14/24 This webpage has been designated for partners to share any resources they created to share with others. Includes:
Clinician perspectives on integrating neuro-oncology and palliative care for patients with high-grade glioma
03/18/24 at 03:00 AMClinician perspectives on integrating neuro-oncology and palliative care for patients with high-grade glioma Oxford Academic Neuro-Oncology Practice; by Rita C Crooms, MD MPH; Jeannys F Nnemnbeng, MD MS RRT; Jennie W Taylor, MD MPH; Nathan E Goldstein, MD; Ksenia Gorbenko, PhD; Barbara G Vickrey, MD MPH; 3/14/24 Background/objectives: Patients with high-grade glioma have high palliative care needs, yet few receive palliative care consultation. This study aims to explore themes on 1) benefits of primary (delivered by neuro-oncologists) and specialty (SPC) palliative care and 2) barriers to SPC referral, according to a diverse sample of clinicians.
Breast cancer palliative care and metastatic disease: Looking beyond end of life
03/18/24 at 03:00 AMBreast cancer palliative care and metastatic disease: Looking beyond end of life MedPage Today, by Shalmali Pal; 3/15/24 ... It is important to inform patients that they can receive palliative care at any timeopens in a new tab or window during their treatment, from the time of diagnosis to end of life. ... At some juncture, the options for metastatic breast cancer treatment become limited. Progression can be classified into four general types:
Preventing adverse drug events in hospice care
03/18/24 at 03:00 AMPreventing adverse drug events in hospice care Hospice News, by Holly Vossel; 3/15/24 Documentation errors and a fragmented health system pose the greatest risks for adverse drug events among hospices. ... Evaluating these risks involves having solid medication reconciliation processes in place — both at the time of a patient’s admission and throughout their end-of life care experience, according to Mary Lynn McPherson, professor and executive program director of advanced post-graduate education in palliative care at the University of Maryland’s School of Pharmacy. McPherson also serves on the board of the American Academy of Hospice and Palliative Medicine (AAHPM).
Beautiful people: Busy 14-year-old still finds time to volunteer for local hospice [creating legacy books]
03/18/24 at 03:00 AMBeautiful people: Busy 14-year-old still finds time to volunteer for local hospice [creating legacy books]