Literature Review

“I just feel alone and by myself”: how adolescents experience loneliness when their parent has cancer BMC Public Health; by Lydia Mckeown, Martin Dempster, Jenny Groarke & Lisa Graham-Wisener; 3/31/26... Adolescents experiencing parental cancer report intrapersonal loneliness and interpersonal loneliness across their peer group and family life. Healthcare professionals should identify if patients have young dependent children early on so they can support parents to provide age-appropriate information about cancer to their young people and signpost parents to relevant support for their children. Editor's Note: This need becomes even more urgent when a parent is dying. The Centers for Medicare & Medicaid Services Hospice Conditions of Participation reference “family” 423 times—an intentional reminder that hospcie care extends beyond the patient. Supporting parents as they support their children is both essential and expected.

Inspiration from a hospice patient to a medical student [story in the article, "Students from various bacgrounds succeed with WWAMI]University of Wyoming - Washington, Wyoming, Alaska, Montana and Idaho (WWAMI) Medical Education Program; by Communications Department; 3/31/26[Various medical students' stories ...]

American Academy of Hospice and Palliative Medicine announces 2026 annual Presidential Citation HonoreesPR Newswire; by American Academy of Hospice and Palliative Medicine; 2/3/26The three honorees this year are the

Neenah pastor finds deeper calling after brother’s hospice journey WFRV Green Bay, WI; by Breanna Reinhart; 3/30/26 For the Reverend Niveen Ibrahim Sarras, walking with people through their final moments of life is more than a calling. It’s deeply personal. ... For years, Sarras has guided families through grief, offering prayers and presence at the end of life. But last summer, she found herself navigating that journey from a different perspective. Her brother, Odeh, traveled from Palestine to visit after a long battle with cancer. Just days later, doctors delivered devastating news. “The doctor, after having a CT scan, told me my brother was dying, and I shouldn’t let my brother go back,” Sarras said. Her family turned to hospice care, ... Through language barriers, cultural differences and grief, a team of local caregivers stepped in to help. What followed was a shared experience of compassion and learning. “I just want people to know that with hospice we are there to support you wherever you are at, no matter the cultural background,” said ThedaCare hospice nurse Briana Eggert.Editor's Note: To what extent does your hospice put this into action—supporting persons “no matter the cultural background”? Whatever your strengths, where are your cultural gaps, and how can you better align commitments with action through training, access to translated materials, interpreters, and community partnerships?

Expanded palliative care program in Dubuque addresses a 'significant need' Telegraph Herald; by Grace Burwell; 3/28/26 A “meant to be” collaboration between two Dubuque providers is offering the local aging population expanded palliative support. UnityPoint Health-Finley Hospital and Hospice of Dubuque recently launched an expanded palliative care program, bringing three nurse practitioners to the Dubuque hospital. Lavonne Noel, executive director of Hospice of Dubuque, said the new resource sprung out of “more need than ever before. It’s more important than ever that we work together in the health care environment right now, so we’re excited to join forces and collaborate on this."

New program and book examine best practices around end-of-life care for people living with Alzheimer’s Disease and related dementias (ADRD) Hospice Foundation of America, Washington, DC; by Lisa Veglahn;3/25/26 Hospice Foundation of America (HFA) will present its 33rd annual Living with Grief® educational program, Best Practices in Hospice Care for Advanced Dementia, addressing optimal care for the fastest growing segment of the hospice population. The program will be held live via Zoom on April 14, 2026, from noon—2 pm ET. According to the National Institutes of Health, researchers estimate that 42% of Americans over the age of 55 will at some point develop a form of dementia, all of which are terminal illnesses. ... In addition to the upcoming program, HFA has published a new volume of scholarly and personal work, Alzheimer’s Disease and Dementia: A Guide for Hospice Clinicians, edited by Kenneth J. Doka and Amy S. Tucci. The book offers valuable insights and practical approaches to delivering compassionate, person-centered end-of-life care to individuals with dementia and their loved ones. Editor's Note: Hospice Foundation of America has long defined standards for hospice education, and once again leads at a pivotal moment as dementia impacts Baby Boomers' end-of-life care. From their early satellite broadcasts that convened clinicians nationwide to today’s expansive reach, HFA has consistently translated complexity into practical, practice-changing insight. This work challenges us not only to learn, but to lead—bringing greater clarity, skill, and compassion to those living with dementia and those who walk beside them.

The clinical dilemma of withholding futile treatment Medscape; by Brenda Sandburg; 3/27/26 During hospital rounds, Kenneth Covinsky, MD, MPH, a professor of medicine and clinician researcher in the Division of Geriatrics at the University of California San Francisco, sometimes meets families at a wrenching crossroads: a loved one with advanced dementia is no longer eating, slowly losing weight because they no longer are hungry. They ask the question almost every time — can’t something be done? ...

Palliative care should be integrated into cardiology therapy earlier, says study Medical Xpress; by Inka Väth; 3/25/26 An international group of authors has called for a shift in cardiovascular care. ... For clinical practice, the group of authors therefore recommends a stronger structural integration of palliative care content into cardiology. This includes interdisciplinary care teams, shared treatment models, and more intensive training in internal communication and symptom management. Palliative care should also be given greater consideration in medical education. ... Palliative care should be the standard in cardiology, not the exception. After all, the success of sustainable cardiology will not be measured solely by how long people live, but by how well they can live.

Building excellence: The journey to American Heart Association Certification Journal of Hospice & Palliative Nursing; by Fahey, Donna M. MSN, MFA, RN, AHN-BC, CHPN, CNL; 3/24/26 Heart failure patients often arrive at hospice with advanced symptoms, variable care plans, and limited coordination across settings. To address this, Samaritan Healthcare and Hospice pursued the American Heart Association Palliative/Hospice–Heart Failure Certification. The initiative required a full system redesign focused on standardizing education, documentation, care coordination, and performance measurements. This article outlines the challenges encountered ... and describes the process used to achieve certification in October 2025. 

End-of-life care planning for individuals with special needsJD Supra; by Chamblis, Bahner & Stphel, P.C.; 3/23/26 Takeaways

Trauma-informed palliative care: A systematic scoping review of evidence sources describing concepts relevant to an emerging field of practice Palliative Medicine; by Rebecca Salama, Jane Simpson, Fiona J. R. Eccles, Maddy French; 3/23/26 Background: Trauma-informed palliative care aims to improve end-of-life experiences by recognising and responding to the presence of psychological trauma. While many practitioners support the approach, they also acknowledge the need to build a stronger evidence base.Results: ... the review identified a substantial body of evidence that describes concepts relevant to its approach. These findings provide a valuable starting point for future research.

What we get wrong about comfort at the end of life: Jennifer Martnick Cleveland.com, Cleveland, OH; by guest columnist Jennifer Martnick; 3/22/26 When people hear the word comfort in the context of serious illness or the end of life, they often picture something passive. A quiet room. Soft blankets. And a sense that medical care has somehow stepped back. That misunderstanding is one of the most persistent myths in health care. Comfort care is not about doing less. In many ways, it requires more skill, more attention and more presence than almost any other kind of medicine. At Reserve Care (formerly Hospice of the Western Reserve), comfort care means active, expert care delivered by clinicians trained to manage pain, ease symptoms and support the emotional and spiritual needs of patients and families facing serious illness.