Literature Review

Saying goodbye to Dad MidlandsLife; by Jeff Becraft; 3/27/25 I know my last article talked about my Dad moving on to Higher Ground, but while it is still fresh on my mind, I’m going to delve into the process of saying goodbye.  Perhaps it will resonate with someone who has already been down this path… or maybe someone who will be going down this path. I know that many people have been on a longer road than what I am going to describe. I won’t try to cover everything and there are some very significant things that are left out because of space; I will be simply giving my perspective on the overall experience of the last days. [Continue reading ...]Editor's note: If you have to dive into only one article today, this is the one. If you have experienced the vigil of a loved one's final days, this likely gives voice to your journey: "Each day we thought was going to be Dad’s last. It was certainly a time of changing emotions." If you have not experienced this, read to learn common rhythms and themes, dissonances harmonies, and final release into death. Thank you Jeff Becraft for your meaningful reflection.

Trellis Supportive Care to host day of support for caregiversThe Chronicle, Winston-Salem, NC; by WS Chronicle; 3/22/25 Trellis Supportive Care is hosting a day of support for caregivers, free of charge and open to the public.  The program, “Caring for You: A Day of Support for Family Caregivers,” is set for Friday, April 4, from 8:30 a.m. – 3:30 p.m. at the Intergenerational Center for Arts and Wellness in Winston-Salem. This full-day program is both a retreat and educational day for caregivers. “We understand that caregivers are often unable to attend events such as this, therefore, we are removing that barrier,” shared Jacob Gordon, director of community programming with Trellis Supportive Care. For those responsible for caring for an adult family member, Trellis is arranging respite care in coordination with local partner agencies so that caregivers can attend.   ... “We hope this provides an opportunity for people to regroup, rejuvenate, and leave with valuable tips for moving forward as a caregiver,” shared Gordon.   

Mt. Hood Hospice to present third Grief Made Visible art exhibit in April Sandy Post, West Linn, OR; by Brit Allen; 3/23/25 Aside from in-home hospice services, Mt. Hood Hospice offers numerous other resources to the community, regardless of income or if they have any other ties to the organization. Among them are grief support groups that utilize art as a tool of healing. As a result of these groups, 16 artists will have the art that they created in these groups on display at AntFarm Café & Bakery, 39140 Proctor Blvd., throughout the month of April, from April 3-30, while the cafe is open. ... “This art show creates a space that normalizes talking about mental health and grief,” said Mt. Hood Hospice Bereavement Services Director Laura Lirette. “In a culture where grief is often experienced alone and behind closed doors, our hope is that this exhibit will invite conversations about grief and supporting grievers.”

10 things hospice doesn’t tell you, shared by a Cleveland Clinic doctor The Healthy; by Patricia Varacallo, DO (author) with Laura Hoeksema, MD, MPH, FAAHPM (medical director for Cleveland Clinic Hospice); 3/19/25 ... Dr. Hoeksema shares key insights about hospice care and reminds patients and families that the hospice team is always available to answer questions and provide support when things feel uncertain.What hospice does not tell you, but you should know:

Leadership with grit, grace, and a bold heartTeleios Collaborative Network; by Lynn Flanagan and Tina Gentry; 3/14/25 Leadership is not for the faint of heart!  It demands adaptability, resilience, and empathy. We all know that when we talk about leadership, we often use metaphors. The metaphor that strikes a chord with both of us is that of “grit, grace, and a bold heart.”  Leading in this way sometimes comes with titles such as “The Velvet Hammer” or “The Big Heavy,” but we digress. Grit, grace, and a bold heart may seem contradictory, but they are all essential elements to create an environment where people and ideas thrive. ... When these three elements - grit, grace, and a bold heart —come together in a leader, they create a powerful combination. It is the resilience to weather storms, the empathy to connect deeply with others, and the passion and courage to drive transformative changes. ...

[Multi-cultural] Honouring traditions: Integrating cultural wisdom into palliative care - Saif Mohammed ehospice; by Saif Mohammed; 3/10/25[Personal Story] ... "Reflecting on this experience, I realize that caregiving is deeply embedded in tradition and culture, a natural extension of communal life." Caregiving is as old as humanity itself. One of the earliest known cases of palliative care dates back 45,000 years to Shanidar 1, a Neanderthal male found in present-day Iraq. His skeletal remains indicated severe injuries, yet he had survived for decades, suggesting that his community had cared for him. This example highlights that palliative care is a deeply human and historical practice, far predating modern medicine. Cultures around the world continue to recognize the importance of caregiving, often embedding it in traditions and religious beliefs. ... In some societies, the emphasis on independence can make caregiving more complex, as patients may refuse assistance to maintain self-sufficiency. ... Palliative care workers must be equipped to understand and respect the cultural traditions of the communities they serve. This requires training in cultural competence, which involves:

"The hospice heart": Hospice industry battles misconceptions, staffing shortages as expectations grow Pharos-Tribune, Logansport, IN; by  Josh Flynn Pharos; 3/9/25 ... There are a lot of misconceptions about hospice care and one of the largest is that entering hospice care is equal to giving up. ...Hospice care is one of the fastest growing industries as the Baby Boomer generation continues to age. The hospice care industry was valued at $34.5 billion in 2022 and is expected to grow in value to $67.7 billion by 2030. But misconceptions about hospice care and nursing shortages could threaten that future success. ... Maria Rogers is the public relations liaison at Guardian Angel Hospice in Logansport and she has devoted herself to tackling the misconceptions that surround hospice care. ... “You don’t have to be actively passing away to receive our services,” Rogers said. ... Jennifer Edwards, executive director of Heart to Heart in Mishawaka and Logansport, said many families don’t understand the role of medicine in hospice care. While something like chemotherapy would be discontinued, a hospice staff would never discontinue medications or fail to treat new problems that came up. ...

Children and family bereavement needs on the rise at Hospice of Santa Barbara Santa Barbara Independent, Santa Barbara, CA; by Hospice of Santa Barbara; 3/5/25 It’s not just adults who are impacted by grief and loss in our community. Children are as well. One in five children will experience the death of someone close to them by age 18, and one in twenty children will experience the death of one or both parents before reaching adulthood. Although death and grief are inevitable parts of life, these statistics highlight just how many children are impacted. Children are especially vulnerable when they lose a close loved one, and without professional support, grief can be especially paralyzing and overwhelming. ... Hospice of Santa Barbara’s Children and Family Services program provides free professional support and coping tools for children, teens and their families ... HSB is active in local campuses, providing professional weekly support groups from elementary to college age students. On-campus counseling services provide a vital space for open communication, support and the development of coping skills.Editor's note: What specialized child, teen and family bereavement services are you providing? Missing? What more can you do, with life-changing outcomes for those you serve?

The project: This is hospice care PA Mediapoint, United Kingdom; 3/1/25 Hospice UK approached us to support the launch of their national “This is Hospice Care” campaign. The campaign aimed to raise awareness about hospice care and encourage people to leave a gift in their will to their local hospice. ... To further strengthen the campaign’s storytelling, we encouraged hospice nurses to bring objects representing the diverse services offered by hospices. Some of props included a pug to represent pet therapy, a potted plant symbolising hospice gardens and outdoor spaces, a birthday cake reflecting the sense of community and celebration within hospices, and a gift box to emphasise the theme of leaving a legacy. Bringing together nurses from twelve hospices, the shoot successfully blended visual storytelling with the core campaign messages. The imagery not only highlighted the importance of hospice care but also created compelling content for national and regional media.Editor's note: This creative initiative can be adapted easily for hospice teams (clinical and non-clinical), volunteers, and more. Click on the title's link to read more about this project's meaningful design, implementation, and outcoms.

World Hospice and Palliative Care Day Theme 2025 ehospice; by the Worldwide Hospice and Palliative Care Alliance (WHPCA) team; 2/18/25 Every year the second Saturday of October marks World Hospice and Palliative Care Day (WHPCD). This year WHPCD will be on Saturday 11 October 2025. Each year the WHPCD campaign has a theme that is carefully thought through and selected by the Worldwide Hospice and Palliative Care Alliance (WHPCA) team.  The theme for 2025 is Achieving the Promise: Universal Access to Palliative Care.... More than 60 million people both adults and children need palliative care services every year with over 80% living in low-middle-income countries (LMIC’s) countries. WHPCA has estimated that over half of the need for palliative care is being met in high-income countries while only 4% of the bigger need is met in LMICs, a continuing and shocking disparity.Editor's note: What can you do to help "Achieve the Promise" in your corner of our world? Click here for more information from ehospice/WHPCA.

The journey to elite leadership  with Mike Harbour Teleios Collaborative Network (TCN); podcast by Chris Comeaux; 2/26/25 In this episode of the Anatomy of Leadership podcast, Chris Comeaux and Mike Harbour explore the themes of leadership, personal growth, and the essence of elite leadership.  Mike shares his insights on perseverance, self-mastery, and evaluating experiences to foster growth.  They discuss the concept of elite leadership, emphasizing the need for integrity, vision, and empowerment in leadership roles. The conversation culminates in practical advice for aspiring leaders on developing traits contributing to elite leadership.  Then, it highlights Mike’s unique upcoming Elite Leadership Summit in Colorado in April, which aims to foster growth and connection among leaders in a unique and picturesque setting. Join us; many leadership pearls of wisdom are packed into this episode. 

‘Global problem’: Numerous factors, biases contribute to overtreatment at end of life Healio; by Josh Friedman; 2/26/25 Nathan I. Cherny, MD, has worked all around the world. At every stop — from Australia to Israel, and Memorial Sloan Kettering Cancer Center in between — he has seen people with cancer receive overly aggressive treatment at the end of life. ... In a review published in ESMO Open, Cherny and a cohort of multinational colleagues highlighted numerous reasons why overtreatment occurs among patients approaching the end of life, ... They listed more than 20 contributing factors, including desire for control of the cancer, denial and anger, family pressure and hope preservation. The two factors that contribute most to overtreatment are optimism bias and the “counterphobic determination to treat,” which involves clinicians having a difficult time introducing the suggestion of palliative care revert to offering further treatments, Cherny said. ... Responsibility for decisions does not need to fall solely on oncologists, Cherny added. Palliative care physicians, social workers, chaplains and others can be part of a team to assist patients with their choices. ... The number of patients who are overtreated differs at each institution. “Each institution has its own culture of care,” Cherny said. Editor's note: This article puts forth significant insights for all palliative and hospice clinicians, interdisciplinary teams, and palliative/hospice executive leaders. Apply Cherny's to your referral sources: "Each institution has its own culture of care." Apply these findings to your own palliative and hospice services.