Literature Review

It's time to talk about LGBTQ+ elder care Psychology Today - Caregiving; by Stephanie Sarazin, M.P.P.; 5/6/25 A once-hidden story is helping us think about queer kinship and caregiving. Key points:

New York State Department of Health announces revision of Medical Orders for Life-Sustaining Treatment (MOLST) form New York State Department of Health, Albany, NY; 5/2/25 The New York State Department of Health announced the revision of the Medical Orders for Life-Sustaining Treatment (MOLST) Form, a form that records a patient's preferences for life-sustaining treatments, such as CPR, ventilation, and other interventions, to ensure all patients are considered. The comprehensive revision was a collaboration of the Department, New York State Office for People with Developmental Disabilities (OPWDD), the New York State Office of Mental Health (OMH), and the MOLST Statewide Implementation Committee. ... All information regarding the MOLST, including the form, supporting checklists, glossary, and instructions are available on the NYSDOH Center for Hospice & Palliative Care's webpage.

Breaking with the status quo in end-of-life care through de-implementation Journal of Internal Medicine; by Chetna Malhotra and Ellie Bostwick Andres; 4/17/25... In the realm of serious illness, many patients undergo interventions that may marginally prolong life but often sacrifice quality of life and entail significant costs. These interventions, categorized as ‘low-value care’, often involve complex procedures, frequent hospitalizations and intense medical management, leading to considerable discomfort, reduced functional ability and overall decreased well-being and calling into question the efficiency and effectiveness of current end-of-life (EOL) care practices. ... How to conduct de-implementation in EOL contexts:

[Switzerland] Comforting styles of serious illness conversations: a Swiss wide factorial survey studyBMC Medicine; by Robert Staeck, Carsten Sauer, Steven M. Asch & Sofia C. Zambrano; 4/14/25 Background: Serious illness conversations can cause discomfort in patients, potentially impeding their understanding and decision-making. Identifying ways in which physicians can reduce this discomfort may improve care. This study investigates which physician communication styles and characteristics individuals perceive as comforting in physician–patient serious illness conversations. ...  Methods: We conducted a nationwide online factorial survey in German, French, and Italian with 1572 Swiss participants from the public (51.4% women) aged 16 to 94. ...Conclusions: Taking time, providing clear information, and ensuring continuity of care are pivotal in enhancing comfort. Also relevant are the expression of sadness, physician self-disclosure, and a prior relationship with the patient.

Special team at Norton Children's Hospital focused on giving the gift of life CBS WLKY-32, Louisville, KY; by Jennifer Baileys; 4/21/25 Caring for sick and dying children is a tough and heartbreaking job. One special group at Norton Children's Hospital is focused on helping these children and their families. ... "She's missing the left side of her heart," Kindra Edwards, patient mother, said. ... Edwards said there was one consistent source of strength and encouragement the Norton Pediatric Support Team. "They're always there. You know, coming in, checking on us when in our multiple stays at the hospital," Edwards said. The team is made up of pediatric and palliative care specialists, nurses, social services, therapist and pastoral care. ... [Through two decades,] pediatric palliative care has evolved. At Norton Children's Hospital it has grown into a team of almost a dozen people, specializing in not just treating, but caring for the sickest patients and their families.

Palliative care and advanced cardiovascular disease in adults: Not just end-of-life care: A scientific statement from the American Heart Association AHAIASA Journals - American Heart Association; by Lucinda J. Graven, PhD, APRN, FAHA, Lisa Kitko, PhD, RN, FAHA, Martha Abshire Saylor, PhD, MSN, BA, RN, Larry Allen, MD, MHS, FAHA, Angela Durante, PhD, RN, Lorraine S. Evangelista, PhD, RN, CNS, WAN, FAHA, Amy Fiedler, MD, James Kirkpatrick, MD, Lakeisha Mixon, MSW, and Rachel Wells, PhD, MSN, BA on behalf of the American Heart Association Complex Cardiovascular Nursing Care Science Committee of the Council on Cardiovascular and Stroke Nursing; and Council on Cardiovascular Surgery and Anesthesia; 4/17/25  ... This scientific statement (1) discusses the application of effective communication, shared decision-making, age-friendly care, and advance care planning in advanced cardiovascular disease palliative care; (2) provides a summary of recent evidence related to palliative care and symptom management, quality of life, spiritual and psychological support, and bereavement support in individuals with advanced cardiovascular disease and their care partners; (3) discusses issues involving diversity, equity, and inclusion in cardiovascular disease palliative care; (4) highlights the ethical and legal concerns surrounding palliative care and implanted cardiac devices; and (5) provides strategies for palliative care engagement in adults with advanced cardiovascular disease for the care team.

Patient-centered communication drives supportive care needs in incurable cancer Oncology Nursing News; by Kristie L. Kahl; 4/16/25 The Primary Palliative Care Communication Intervention (PRECURSOR) may improve the psychosocial experiences of patients with incurable gynecologic cancer and their caregivers in the outpatient setting, according to results of a pilot study presented at the 50th Annual ONS Congress. ... Currently, most of the conversation around supportive care is provider-driven, and clinical tendency is to insert palliative care in the terminal setting. However, the study investigators aimed to integrate supportive care across the cancer continuum.

Brain activity before death: Do we see our lives flash? Time.News; interview with Dr. Eleanor Vance; 4/12/25 What flashes through our minds in the final moments of life? Could it be an intense reel of our most cherished memories or a profound sense of calm? Recent studies suggest that the brain may not simply shut down at death; instead, it could be engaged in a powerful replay of life’s most significant moments, offering a glimpse into the mysteries of consciousness and the human experience.

What role do immigrants play in the direct long-term care workforce? KFF; by Priya Chidambaram and Drishti Pillai; 4/2/25 President Trump has made a slew of immigration policy changes focused on restricting entry at the border and increasing interior enforcement efforts to support mass deportation. While these actions are focused on undocumented immigrants, they likely will have ripple effects across immigrants of all statuses and millions more people living in immigrant families. Mass deportations could negatively impact the U.S. economy and workforce, given the role immigrants play, particularly in certain industries. ...

[Spain] SECPAL and AETSyS will promote the recognition of social workers as health professionals The Spanish Association of Social Work and Health (AETSyS) and the Spanish Society of Palliative Care (SECPAL); Press Release; 4/4/25The Spanish Association of Social Work and Health (AETSyS) and the Spanish Society of Palliative Care (SECPAL) have announced the signing of a collaboration agreement to promote the recognition of social workers as healthcare professionals in the National Health System (SNS), highlighting their "essential role" in the field of palliative care and in all dimensions of healthcare. ... "We social workers have been working in healthcare for a long time. We are part of the World Health Organization's (WHO) definition of 'health', which integrates the biological, psychological and social. We complete this definition within the teams, addressing the social dimension of health," explained the president of AETSyS, Miguela Arévalo García-Gasco. ... [The] vice-president of Social Work at SECPAL, Alejandro González Peña, ... has stressed that the figure of the social worker in palliative care teams is "indispensable" for providing comprehensive, quality care, ... Editor's note: Further access to this Spanish press release is limited. The title's link goes to a February post, for which you may be able to translate to English via your computer or mobile device.

‘The most someone wants is to be heard’: Students foster connection, create memoirs for hospice patients The Daily Texan - University of Texas, Austin, TX; 4/3/25 ... Brought to UT in 2023, Last Writers is a service organization where student volunteers interview hospice patients over the course of several months to write a memoir that is then printed and given to the patients and their families. The process is intended to bring comfort to hospice patients and create a physical memento for the families, representing their lives once they pass. ... “It’s not often that you’re a college student and you get to meet someone who is going to pass away in the next few months,” Nguyen said. “To be with them in that very vulnerable point, it gives you a lot of perspectives. A lot of our members come out of it realizing how much they have to live for. … It makes us more grateful in life and puts our mortality into perspective.” [Continue reading ...]

Hosparus celebrates social workers' impact on healingCorydon Democrat; 3/26/25 Hosparus Health Southern Indiana offers comprehensive grief support services to help individuals heal from loss in a caring and understanding environment. While recognizing National Social Work Month, Hosparus celebrates the compassionate guidance of its social workers and grief counselors who support individuals and families during their most difficult moments. Editor's note: Today's the last day of March as Social Worker month. You still have time to thank your all-important social workers. For more, see our post Social Media Toolkit for Social Work Month 2025. And, appreciation and recognition is not limited to the month of March. It needs to be alive and well all year long. 

Hidden battles: Keeping cancer secret Harvard Health Publishing - Harvard Medical School; by Maureen Salamon; post is dated 4/1/25, retrieved from the internet 3/25/25 Some people choose to conceal their diagnosis and treatment. Here's why — and reasons that approach can sometimes backfire. ... [In addition to privacy motives, Cristina Pozo-Kaderman, a senior psychologist at Harvard-affiliated Dana-Farber Cancer Institute] says cancer patients may also wish to: