Literature Review

Religion and spirituality in pediatric end-of-life: A systematic reviewJournal of Pediatric Psychology; by Kara Jackson, Alyssa Marchetta, Barry Nierenberg, Jessica M Valenzuela; 2/26Spirituality is a recognized element of palliative care, with documented benefits for adult patients. However, limited research exists on how religion and spirituality affect children at end-of-life (EOL) and their parents. Findings revealed diverse religious and spiritual practices among families, including faith stability, spiritual care use, and prayer. Key outcomes associated with spirituality included enhanced coping, acceptance, meaning-making, hope, caregiver spiritual well-being, decision-making, and improved parent-child communication. Across studies, spiritual support emerged as a vital component of the pediatric EOL experience.

Developing a tool to advance person-centred care in hospice: The little things are the big thingsPalliative Care and Social Practice; by Mary Ellen Macdonald, Sophia Salmaniw, Lisa McNeil-Campbell, Anne Frances D’Intino, Lynette Sawchuk, Cyndi Corbett, Logan Lawrence; 2/23/26 Person-centred care has become the cornerstone of quality palliative and end-of-life care. Yet, there is a dearth of both practical guidance and tools to operationalize how to ensure palliative end-of-life care is optimally person-centred. Noting this lacuna, a new hospice in Eastern Canada developed and piloted their own tool, called the SELFY (Share, Explore, Learn and Focus on You!), the intention being to standardize their institution’s commitment to high-quality person-centred hospice care.

‘Don’t play God’ in end-of-life conversations Medscape; by Medscape's editorial team; 3/5/26 For many clinicians, the most difficult words to utter are not a complex diagnosis but a simple admission: “We have reached the end of what medical care can do to make your loved one better.” An ICU/emergency room (ER) nurse with 30 years of experience says avoiding this reality can “prolong the dying process” rather than an extension of meaningful life — and called “false hope in the next procedure, next drug, next consultation” the “cruelest thing a well-meaning caregiver can do.”

A nurse-led violence prevention program that cut incidents to zero Becker's Clinical Leadership; by Mariah Taylor; 3/2/26 WakeMed Raleigh (N.C.) has gone 20 consecutive months — and counting — without a single workplace violence incident on its medical-surgical unit. It is all thanks to a program created by three nurse leaders. The program started with a partnership between med-surg and psychiatric nurses. ...

Why time becomes ever more precious towards the end of our days ehospice; by Brian Dolan, OBE; 3/2/26 In health care, conversations about finance, workforce, and facilities often dominate the agenda. Yet, the most valuable and universal currency within our health systems is something less tangible but far more immediate: time. ... Time is the thread that connects patients and staff, shaping experiences, outcomes, and well-being. For patients, time is deeply personal. It is the time that comes dripping slow as hours are spent waiting in emergency departments, days of confinement to a hospital bed, and, ultimately, the quality of the life they return to when they are finally discharged. For staff, time determines how effectively they can deliver care, make decisions, and balance the demands of an increasingly pressured system. 

Nurses in ‘key position’ to embed culturally and religiously sensitive end-of-life care Nursing In Practice; by Cahal McQuillan; 3/2/26 Many Muslim patients prioritise end-of-life care that aligns with their faith and culture, with family-based care often being expected to achieve a peaceful death, a new study reports. The review, which was published in BMJ Open in January, collected and analysed data from 18 papers that presented primary research on end-of-life care among Muslims living in the UK. Their findings highlighted challenges faced by healthcare professionals in this area, and put forward several meaningful steps to help providers, such as nurses, provide culturally and religiously sensitive palliative care. 

Navigating end-of-life decisions with Islamic ethics WisconsinMuslimJournal.org; by Sandra Whitehead; 2/20/26 Medical College of Wisconsin Professor Aasim I. Padela, M.D., founder and president of the Initiative on Islam and Medicine, discussed Islamic bioethics during a January workshop on end-of-life decisions at the Islamic Society of Milwaukee. ... About 50 people attended the four-hour workshop, Islamic Bioethics & End-of-Life Healthcare Decisions, held Jan. 31 at the Islamic Society of Milwaukee. It featured experts with backgrounds in medicine, palliative care, hospice and Islam. Speakers made presentations and led discussions about practical steps, resources and strategies to help Muslims “transition from a state of uncertainty about end-of-life healthcare to thoughtful preparation for it,” a workbook given to participants stated.

Relearning the world through grief-informed case formulation: A critique of prolonged grief disorder Journal of Humanistic Psychology; by Eleonora Ramsby Herrera, PhD; 1/31/26 Drawing on existential and humanistic frameworks, this review article critically examines the diagnosis of prolonged grief disorder and questions the usefulness of reducing grieving to a fixed set of symptoms and timelines. ... Rather than viewing grief as a disorder to be treated, the article advocates for understanding it as a natural and potentially transformative human response and argues for integrating grief into the bereaved person’s life story as a way to relearn the world.

Palliative care and quality outcomes in patients with brain metastases and poor prognosis: A multi-institutional analysis JCO Oncology Practice - An American Society of Clinical Oncology Journal; by Rohit Singh, MD, Camilo E. Fadul, MD, Emily Kopp, MS, Guneet Sarai, MD, Roger Anderson, PhD, Ryan F. Amidon, MD, Samantha Schuetz, MD, Amy Chang, MD, Ausia N. Iqbal, MD, Joseph A. Bovi, MD, and Alissa A. Thomas, MD; 2/23/26 Purpose: To analyze the patterns of palliative care (PC) consultation for patients with brain metastases (BMETs) and its association with treatment, overall survival (OS), and quality metrics (eg, advance directives [ADs], hospice enrollment). Conclusion: The involvement of PC services correlated with higher completion rates of ADs and increased hospice utilization, without compromising survival or significantly altering other treatment options. There is an unmet need for PC among patients with BMETs with poor prognosis.

Doing everything FOR the patient, not TO the patient HIStalk - Healthcare IT News & Opinion; by Nassib Charmoun; 2/23/26 “Do as much as possible for the patient and as little as possible to the patient.” That single sentence, written by Bernard Lown, MD in “The Lost Art of Healing,” should serve as a universal guide to thinking about medicine, caregiving, and what it truly means to heal. Dr. Lown was my mentor beginning in my early 20s and remained a close friend until his death in 2021 at age 99, He was decades ahead of his time. He believed that medicine should integrate scientific rigor with moral imagination, and that clinical excellence without compassion is incomplete care. ... Increasingly, the evidence suggests that quality of life, not simply quantity of life, must be the defining outcome.

A patient’s visit home Parkview Health; by Tim O'Sullivan, Parkview Hospice; 2/17/26 The Canal Stock Farm is more than a historical landmark along Old 24 in New Haven, Indiana. It is the home to now six generations of Ronald Hockemeyer’s family. Over the past year, members of the Parkview Hospice team had the privilege of getting to know Ron and the legacy of his familial home. ... Ron expressed his desire to have just one more day on the farm with his Parkview Hospice social worker, Emily Zimmerman. Emily was aware of a new program that makes the wishes of Parkview Hospice patients come true. She filled out the application and identified all the resources needed to secure a safe visit. Through the generosity of donors to the Parkview Foundation Hospice Fund, Ron’s day on the farm was made a reality.

Psychosocial oncology: The Omega Project Taylor & Francis | Death Studies; by Matthew Loscalzo and Linda A. Klein; 2/14/26This article reports on an interview with J. William Worden that focuses initially on the Omega Project (1968–1986) that studied end-of-life care. Worden explains the four phases of the project with specific populations, goals, and key concepts that emerged. The discussion then shifts to the development of psychosocial oncology and palliative care. Finally, Worden offers some thoughts on the development of the hospice movement in the United States, the role of religion in coping with mortality, coping with personal loss, and his advice to new medical or graduate students just starting out.

The impact of religious and spiritual care on parents or caregivers in pediatrics: A scoping reviewJournal of Health Care Chaplaincy; by Salvador Leavitt-Alcántara, Samantha Summers; 1/26This scoping review examines the literature on the impact of spiritual and religious care on parents or guardians of children admitted to high acuity pediatric hospital units. Results reveal themes of positive impact of spiritual or religious care on several components of parents/caregivers' in the areas of emotional coping, grief and bereavement, positive parental perception of the impact of chaplains in high acuity settings, and outside spiritual/religious guidance and support during the medical decision-making process.