Literature Review

Aging for Amateurs: Valentine's Day brings out the poetry of aging in love The Post and Courier, Charleston, SC ; by Bert Keller; 2/10/2 The week of Valentine’s Day breathes love. Many elders have lived through love’s changing seasons consciously, experiencing what an alive, evolving, hazardous and soul-satisfying thing love is. ... In every long love, the emotional part undergoes a change as the stages of life are lived through. Marriage begins like a bonfire that melts and merges us: our togetherness wants no separation. Then it eases into a practical fire for cooking meals and washing dishes — those years of getting up with the baby, balancing the books, taking out the garbage. ... And then in old age ... love is less a feeling alongside other feelings, and more a shared sense of being with the other. My wife calls it “with-ness.” ... What was transactional in an earlier stage has become grace. After retirement I volunteered to do chaplaincy with a local hospice. I recall a moment sitting at the bedside of a 93-year-old man whose memory was erased by Alzheimer’s disease. He was now dying ... His wife, who also had Alzheimer’s and was no longer capable of much conversation, sat in a wheelchair by his bed and held his hand. She kept repeating to me, tears flowing, “We’ve been married for 73 years, you know.” It was a kind of mantra. How could I know what it’s like to be at the deathbed of a partner with whom you’ve intimately shared 73 years of life? All the stories, all the peaks and valleys, of such a lifetime? ... Editor's note: May we listen and learn.

HealthcareBusinessToday.com series on hospice careEditor's note: The following articles were posted on 2/10/25 by HealthcareBusinessToday.com.

Learning from death: New memoir If We Never Meet Again imparts lessons from working with hospice patientsThe MarCom Journal, Charleston, SC; by Globe Newswire; 2/6/25While the topic of death is generally considered taboo, English teacher turned hospice administrator Matthew Cornett believes there is much to be learned from death. After becoming an empty nester, Cornett left the classroom behind and began a second career in hospice care. And the more time he spent with people as they approached the end of their life, the more he realized that their deaths had meaning. And what emerged from those final moments was something profound. Hoping to make others feel more comfortable when it comes to preparing for and talking about death, he presents a memoir of his journey into the world of hospice care. In If We Never Meet Again, Cornett chronicles his experiences providing compassion and support to hospice patients while adjusting to his new role. Finding inspiration in his patient’s “death stories,” he found himself on an unexpected path of self-discovery. Cornett’s personal reflections on these intimate and emotional interactions encourage readers to reconsider how they view death and dying.

The Handbook of LGBTQIA-inclusive Hospice and Palliative Care, 2nd edition Review in Ageing & Society, published online by Cambridge University Press; book authored by Kimberly D. Acquavia, review authored by Luis Stoisser; 1/23/25 The Handbook of LGBTQIA-inclusive Hospice and Palliative Care is a comprehensive guide to providing inclusive palliative and hospice care to everyone, regardless of their self-identification. Following the author's belief that LGBTQIA+ hospice and palliative care requires change at three levels - individual, institutional and systemic - the book extends state-of-the-art palliative and hospice practices (US focused) by including LGBTQIA+ perspectives. Such a rethinking educates hospice and palliative care practitioners on how to provide person-centered care, how to be self-reflexive on a daily basis and how to handle their own stereotypes and stigmas. [This book is available via Columbia University Press and Amazon.]

Palliative care is essential for seriously ill patients—at any ageAMA (American Medical Association); by Kevin B. O'Reilly; 1/27/25 The AMA House of Delegates has adopted new policies outlining physicians’ ethical obligation to provide or seek optimal palliative care for patients with serious illnesses who can benefit from comprehensive management of pain and other distressing symptoms—not only those with terminal illnesses or on the precipice of death. “Physicians have clinical ethical responsibilities to address the pain and suffering occasioned by illness and injury and to respect their patients as whole persons,” says one of the new policies adopted at the latest AMA Interim Meeting, held in Lake Buena Vista, Florida. “These duties require physicians to assure the provision of effective palliative care whenever a patient is experiencing serious, chronic, complex or critical illness, regardless of prognosis.” 

New data reveals the hidden costs of workplace violence in healthcare Perceptyx; by Ellen Lovell, PhD and Stephanie Schloemer, PhD; 1/17/25 Workplace violence has become an impossible-to-ignore crisis in healthcare, threatening the safety of medical professionals, patients, and institutions. The severity and frequency of these incidents have reached alarming levels, demanding immediate attention and action. ... The human cost is staggering.  ... While our research confirms the widespread nature of safety concerns in healthcare, a deeper analysis reveals significant variations across different healthcare environments and roles. This granular view helps us understand where intervention is most urgently needed. Editor's note: Although "hospice settings reported the lowest agreement at 54%," this statistic should be considered too high for comfort. Actions need to be taken to reduce it. From your professional leadership role, examine the importance of protecting hospice professionals' safety--typically in home settings--and through moments such vulnerable, emotional, conflicted times within families. What can your agency improve?

Why some doctors have started asking patients about their spiritual lives KCLU - NPR for the California Coast; by Ben Thorp; 1/14/25 ... [Some] hospitals have begun to embrace programs targeted at spiritual support in addition to physical care. Those programs are supported by a growing body of research on the health benefits of spiritual practice. One of those programs is out of the Indiana University Health system, which connects patients being discharged from the hospital with individuals called "connectors," if the patient doesn't have a community support network of their own. ... [Case description of Timothy Moss:] After Moss' struggles were identified by his doctor, he was connected to a unique program within the Indiana University Health system called the Congregational Care Network. That program pairs patients with members of local faith groups who spend time with patients over a 12-week period.

Home … where we all want to be The Journal; Dr. Sarah Phillips, Medical Director Hospice of the Panhandle; 1/12/25 Two days before Christmas, I arrived at the home of a patient who had been recently admitted to Hospice services. ... [Story of the patient being on a ventilator in a hospital.] This courageous and self-determined woman expressed the desire to be free from pain, suffering, and the complications and progression of her disease. Knowing that the ventilator was life-sustaining and essentially breathing for her, she made the decision to stop it. To ensure her comfort during discontinuation of the ventilator, the hospice team was present before, during, and after the procedure. Medications were used to ease shortness of breath, pain, and anxiety. ... “It’s a Wonderful Life” was playing on the TV, the Christmas tree was lit. I looked over and see the daughter wiping away her mother’s tears. Each reassured the other that everything will be OK and that they are at peace with this decision. As the medications took effect, the patient drifted off to sleep. The ventilator was stopped. Next, something happens that I will never forget. The daughter leans in and whispers to the patient, “Mom, the ventilator is off now, you are back in total control. This was profound to me on many levels. It certainly spoke to the power and importance of autonomy, the ability to make independent decisions that are aligned with one’s values and goals. ... Despite working in end-of-life care for over a decade, I still have these moments of being overwhelmed by the human spirit.

Human composting is rising in popularity as an earth-friendly life after death CNN; by Ella Nilsen; 12/29/24 The first time Laura Muckenhoupt felt a glimmer of hope after the death of her 22-year-old son Miles was the drive home from the Washington state facility that had turned his body into hundreds of pounds of soil. There was an empty seat in the family pickup truck where Miles should have been sitting. But riding with her husband and daughter on the 12-hour drive home, Laura felt her son’s presence clearly. ... Human composting turns bodies into soil by speeding up “what happens on the forest floor,” according to Tom Harries, CEO of Earth Funeral, the human composting company the Muckenhoupt family worked with. “What we’re doing is accelerating a completely natural process,” Harris told CNN. Human composting is emerging as an end-of-life alternative that is friendlier to the climate and the Earth — it is far less carbon-intensive than cremation and doesn’t use chemicals involved to preserve bodies in traditional burials.

[Cure] Top palliative care stories from 2024 Cure; by Alex Biese; 12/28/24 This year, CURE® worked to provide education and insight that underscored the importance of palliative care in cancer treatment. Early integration of palliative care, whether through in-person visits, telehealth or ongoing emotional support, can make a significant difference in a patient's quality of life. Here are some of the top articles on the topic of palliative care from 2024.

'We do more than just pray': Chaplains take active role at Milwaukee VA and in community U.S. Government Veterans Administration; by David Walter; 12/23/24 If you think hospital chaplains just pray at bedsides, think again. At the Milwaukee VA Medical Center, chaplains are much more than comfort providers. They are fully integrated into the everyday workings of the hospital, serving on committees, participating in numerous events and consulting with other subject matter experts. Their work also goes beyond the walls of the hospital, interfacing with the community to help better reach those Veterans who may not venture into the hospital. And while they continue to meet one-on-one with patients on a daily basis, they also extend their services to hospital staff, providing solace and support for those dealing with the emotional toll that caregiving can sometimes take on health care professionals. “There’s been a really big shift here,” said Chaplain Robert Allen, chief of the Milwaukee VA’s Chaplain Services, adding that for too long chaplains were “put in this corner, thinking that we only just pray.” Editor's note: To strengthen your understanding of chaplaincy roles, standards, training, and certification, examine the national Association of Professional Chaplains.

Hospice study reveals contrasting views on managing dementia behaviors McKnights Long-Term Care News; by Donna Shryer; 12/20/24 A new study finds that healthcare providers and family caregivers often disagree on how best to manage dementia behaviors during end-of-life care. The research, published in the Journal of the American Geriatrics Society, involved interviews with 23 hospice clinicians and 20 family caregivers. With dementia affecting 33% of adults over age 85 and now ranking as the primary diagnosis for Medicare hospice services, understanding these differing perspectives about managing dementia behaviors has become increasingly important. The study found that while both groups identified agitation as the most concerning behavioral symptom, they approached it from different angles. Clinicians primarily worried about physical safety risks, while family caregivers were more distressed by personality changes in their loved ones.

Rabbi emphasizes balancing tradition, innovation in culturally competent care Yeshiva University; by Dave DeFusco; 12/20/24 Rabbi Dr. Edward Reichman, professor in the Department of Emergency Medicine at Albert Einstein College of Medicine, underscored the importance of understanding various religious practices to provide culturally competent care in his presentation, “Are Pig Heart Transplants Kosher? Judaism and Modern Medicine in the 21st Century,” as part of an interprofessional practice seminar ...  Rabbi Reichman offered practical advice for healthcare professionals treating Jewish patients. Key considerations included: ...