Literature Review

Patients' perceptions of autonomy in palliative care: Two patient interview exemplars Palliative Care and Social Practice; by Kristen Tulloch, Julia Acordi Steffen, John P Rosenberg; 1/19/26 Results: Four themes were identified: (a) my involvement in healthcare decisions, (b) change to my autonomy during illness progression, (c) self-assessing my abilities to exercise autonomy and (d) my coping mechanisms for loss of autonomy. Palliative care patients perceived and managed their autonomy amidst their illnesses, revealing a sense of loss of autonomy extending beyond healthcare into many daily activities. Participants wished to exercise autonomy in nuanced ways, varying in intensity across many aspects of their lives, underscoring the importance of recognising and respecting individuals' wishes for autonomy.Editor's Note: The authors’ focus on coping with loss of autonomy is essential. As illness progresses, autonomy can erode not only in medical decisions but across daily life, identity, and meaning—losses that are too often overlooked in clinical care. The frequently misapplied “Five Stages of Grief” can further blur this reality, reducing complex, personal experiences to linear expectations not supported by contemporary grief research. Understanding how patients adapt to loss of autonomy is foundational to truly person-centered palliative care.

An Anderson Township nursing home patient died of natural causes — until the coroner called it homicide ABC WCPO-9, Cincinnati / Anderson Township, OH; by Dan Monk; 1/21/26 An Anderson Township nursing home is under scrutiny after a patient’s death was changed from natural causes to homicide by the Hamilton County Coroner. Robert Meyer was a patient at Forest Hills Healthcare Center, ... He died on Sept. 6, 2025, soon after being transferred to a hospice facility in Blue Ash. No autopsy was conducted because the original death certificate said Meyer died of natural causes. However, as his funeral approached, his daughter raised concerns about his care at Forest Hills. Tammy Maham sent the coroner pictures of neck bruises that Meyer incurred in the days before his death. That led to Meyer’s disinterment, a Sept. 22 autopsy and a revised death certificate that lists “physical elder abuse” as the immediate cause of death by homicide.

Preparedness as a bridge: How religious coping shapes acceptance of death in dementia caregivingClinical Gerontologist; by L. Blake Peeples, Lauren Chrzanowski, Benjamin T. Mast; 12/25This study examined the role of religious coping and preparedness in shaping caregivers’ acceptance of death following the loss of a care recipient with Alzheimer’s disease or related dementias. Bivariate analyses indicated that both positive and negative religious coping were significantly associated with greater preparedness, and preparedness was strongly related to acceptance. Findings suggest that interventions focused on religious coping enhance preparedness which improves caregivers’ acceptance in the bereavement process.

Top 10 leadership pivots for 2026 Forbes; by Julie Kratz; 1/4/26 ... “Psychological safety is the most powerful differentiator in building high-performing teams. Those who report feeling psychologically safe are 31% more likely than those who don’t to be a high performer,” as stated in a recent Wiley Workplace Intelligence study of high performing teams. When cultural factors like psychological safety are linked to performance, leaders pay attention. Consider these leadership pivots heading into 2026:

“Can We Talk?” A community-based training to improve serious illness communication Home Healthcare Now; by Ashley Kaminski Petkis, DNP, APRN, AGACNP-BC and Eric Hackenson, DPT; Jan/Feb 2026 Serious illness conversations (SICs) are often delayed or avoided in community-based healthcare due to clinician discomfort and lack of training. Given that many patients wish to die at home, yet often do not, there is a need for structured communication training in home care and hospice settings to ensure the care we provide aligns with patient and family preferences. ...  By embedding SIC training within a community-based organization, this work demonstrated how modest interventions can catalyze a change in practice, reinforcing the idea that SICs are a standard of quality care rather than an optional enhancement.

'It’s comfort, dignity and time': Agrace receives CuddleCot donation from JackPack GazetteXtra, Janesville, WI; by Kylie Balk-Yaatenen; 1/4/26 For nearly a decade, a Janesville family has worked to ensure that parents facing the loss of a baby are given something they themselves never had: Time. Through The Jack Pack, a local nonprofit founded after the stillbirth of their son, Jack, in 2015, Jackie Harwick and her husband, Garrick, have donated 14 CuddleCots to hospitals and hospice providers across southern Wisconsin. Their most recent donation went to ... Agrace’s pediatric hospice program. A CuddleCot is a temperature-controlled bassinet insert that slows natural changes after death, allowing families to spend extended time with their baby; ... That time can allow parents to hold their child, invite loved ones to meet the baby, create memories and begin grieving in a more supported way.

Hands Journal of the American Medical Association (JAMA); by R. Jordan Williams, MD, MPH; 8/13/25Lend me your hand Callused or calaminedWrinkled or plump,Nails bittenNails extendedSplintered and pittedNails neatly or never cropped.Lend me your hand Strong or weak Cold or warmingSwollen and swanned; Gnarled in knots ...Editor's Note: Continue reading this powerful poem. Additionally, JAMA published this description of the poem, "Poetry and the Medicine of Touch" by Rafael Campo, MD, MA: "In this deeply felt poem, the hand becomes a potent metaphor for our shared humanity ... Aspiring clinicians are still taught to assess, to palpate, to diagnose through touch. Yet, as “Hands” reminds us, patients’ hands hold far more than clinical signs—they reflect stories, histories, fears, and hopes. ..."

She has a young hospice patient who can’t financially afford the $2,400 to die ChipChick; by Emily Chan; 12/17/25 Most people worry about how they’ll live, not how much it costs to die. But for TikToker Jordan ..., who is a hospice nurse, one heartbreaking conversation with a young patient exposed a reality that many people don’t want to think about. She has a young patient who is dying and needs to make plans for the end of her life. She was looking into cremations because those are usually cheaper than caskets. Still, they are expensive, and this patient told Jordan that she cannot financially afford to die.

'Music makes everything better': Austin doctor spins vinyl to give patients a sense of home KUT 90.5, Austin, TX; by Olivia Aldridge; 12/16/25 Lying in her bed at Dell Seton Medical Center, 64-year-old Pamela Mansfield sways her feet to the rhythm of George Jones’ “She Thinks I Still Care.” Mansfield is still recovering much of her mobility after a recent neck surgery, but she finds a way to move to the music floating from a record player that was just wheeled into her room. “Seems to be the worst part is the stiffness in my ankles and the no feeling in the hands,” she says. “But music makes everything better.” Mansfield was being visited by the ATX-VINyL program, a project dreamed up by Dr. Tyler Jorgensen to bring music to the bedside of patients dealing with difficult diagnoses and treatments. He collaborates with a team of volunteers who wheel the player on a cart to patients’ rooms, along with a selection of records in their favorite genres.

My patient was gone. I had to help his family see it: The art of medicine means sitting with families’ grief and hope Stat10 - First Opinion; by Raya Elfadel Kheirbek; 12/15/25 Bullets tore through Michael Thompson’s car at a stop sign, ending the life of a 35-year-old father in an instant. Just minutes earlier, he had dropped his 8-year-old daughter, Emma, at dance class, her pink tutu bouncing as she waved goodbye. Now, in the ICU, his young body lay tethered to machines — ... a ventilator’s hiss forcing his chest to rise. ... His family’s grief filled the room, raw and heavy, as I prepared to document our meeting. On the screen, a pop-up appeared: “Patient is deceased; do you want to continue?” Its cold bluntness paled against their pain. Michael looked alive. His chest rose and fell with the ventilator. ... Medicine isn’t just tests or machines. It is presence — sitting with families in their grief, faith, and love. Our tools should support that presence, not interrupt it with cold prompts. ... Most U.S. hospitals lack clear guidelines for these situations, leaving families and clinicians alike in limbo. They also worried about organ donation — a decision fewer than 1% of families consent to after brain death, often because the body still looks alive.Editor's Note: We thank the palliative care physicians, nurses, social workers, and chaplains who provide sensitive presence with families in the unbearable spaces between hope and loss, especially when life support decisions arise. In this season, may we pause to honor those who carry this sacred work—and remember the families who have had to accept harsh truths while machines still “breathe.”

Hospice chaplain gets prison for sexual assault at facility in Sacramento County The Sacramento Bee, Sacramento, CA; by Rosalio Ahumada; 12/8/25A judge on Thursday [12/4] sentenced a man who worked as a hospice chaplain last year when he sexually assaulted a woman living in an elder care facility in Sacramento County.  ... [The chaplain] worked for a company that was contracted by care facilities, and the elderly woman was sexually assaulted within a week before the arrest. ... The District Attorney's Office did not include the name of the company or the care facility in the news release.

I went to a conference about death. Everyone was laughing. USA Today, Los Angeles, CA; by David Oliver; 12/2/25 Welcome to the EndWell Summit, a gathering of more than 700 caregivers, clinicians and advocates who've grieved, are grieving or are working with those at the end of their lives. Speakers included a pediatric palliative care physician, a global health economist and a prison hospice advocate, not to mention celebrities like Emma Heming Willis (Bruce Willis' wife) and Katherine LaNasa ("The Pitt"). It's an inviting space – ... --where casual conversations and formal talks about death are tear-jerking one second and laugh-out-loud funny the next. ... The conference's theme was "radical bravery." Don't get it twisted, though. Radical bravery is not about being fearless, but staying present even when dark clouds form above you.

Bridging the gap: A scoping review of clinical decision support systems in end-of-life care for older adults Journal of Palliative Medicine; by Susanny J Beltran, Lainey Dorris, Marie Hamel, Shanelle Harvey, Mustafa Ozkaynak, Kenan Sualp; 11/17/25 online ahead of print Background: ...  This scoping review maps the current landscape of clinical decision support (CDS) systems in EOL care, identifies key system types, and examines their effectiveness in guiding clinical decisions. ... Results: A total of 31 studies were included, categorizing CDS systems into prognostic tools, referral tools, and care informing tools. ...