Literature Review

All posts tagged with “Clinical News | Dementia Care News.”



Carolina Caring launches specialized program to support dementia patients

07/09/25 at 03:05 AM

Carolina Caring launches specialized program to support dementia patients Carolina Caring, Newton, NC; Press Release; 7/3/25 On Tuesday, July 1st, 2025, Carolina Caring launched a new Dementia Care Program designed to provide expert support and services to patients with a dementia diagnosis. As part of this launch, Carolina Caring also announced approval from the Centers for Medicare & Medicaid Services (CMS) to participate in the “Guiding an Improved Dementia Experience” (GUIDE) Model of Care, a national initiative which seeks to improve quality of life for dementia patients. The expansion of this Dementia Care Program builds upon years of Carolina Caring’s internal development and collaboration with universities and professional partners. The program is now accepted as a National Partnership for Healthcare and Hospice Innovation (NPHI) Dementia Care Program.

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Hospice Savannah launches The GUIDE Model for Dementia Care

07/08/25 at 03:00 AM

Hospice Savannah launches The GUIDE Model for Dementia Care Savannah Business Journal; by Staff Report; 6/30/25 Hospice Savannah will launch their latest program, Guiding an Improved Dementia Experience (GUIDE), on July 1 through the Steward Center for Palliative Care in partnership with the Edel Caregiver Institute. The GUIDE model offers enhanced services for people living with dementia along with support for their caregivers. Its’ focus is to bring high-quality dementia care for all individuals, including those in underserved communities.GUIDE recognizes the complex challenges families face in caring for a loved one with dementia. This model provides a framework for delivering care with additional resources that were not available until now.  

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Gentiva unveils 3 disease-specific hospice programs

07/07/25 at 03:00 AM

Gentiva unveils 3 disease-specific hospice programs Hospice News; by Jim Parker; 7/3/25 Gentiva has set in motion three new disease-specific hospice programs branded as Cancer Comfort Care, Dementia Comfort Care and Cardiac Comfort Care. The three new suites of services have launched in select markets with plans for national expansion. They are designed to provide tailored services to serve the unique needs of terminally ill patients suffering from cancer, dementia or cardiac conditions, such as heart failure and other diseases. Those three types of diseases are among the most common diagnoses for hospice patients.

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F.O.U.R. Steps to celebrate July 4th in a dementia-friendly manner

07/03/25 at 03:00 AM

F.O.U.R. Steps to celebrate July 4th in a dementia-friendly manner Alzheimer's Foundation of America; 6/30/25 Fireworks and gatherings are staples of the July 4th holiday, but these can create unique challenges for families affected by Alzheimer’s disease and other dementia-related illnesses. With Independence Day approaching, the Alzheimer’s Foundation of America (AFA) is advising families to follow the F.O.U.R. steps to create a dementia-friendly 4th of July. ... AFA encourages caregivers to follow the F.O.U.R. steps to create a dementia-friendly 4th of July:

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New online dementia care resources available for assisted living communities

06/23/25 at 03:10 AM

New online dementia care resources available for assisted living communitiesMcKnight's Senior Living; by Kimberly Bonvissuto;6/20/25Kimberly BonvissutoA growing number of people are living with dementia and receiving services in assisted living communities as well as in homes in the greater community. Although some states have requirements, some assisted living communities and home care settings may lack the formal dementia care standards required to be followed by nursing homes, so a nonprofit group has released a new toolkit of online resources to support people living with dementia and their caregivers. “It always bothered me that we were not paying attention to the growing number of people living with dementia outside of nursing homes,” Richard Mollot, executive director of the Long Term Care Community Coalition, said Tuesday during a webinar introducing the organization’s new Dementia Care in the Community toolkit. “Although the nursing home standards do not apply in assisted living and home care, every individual deserves the quality of care and services they need to live comfortably and with dignity.”

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Sky Harbor program teaches TSA to help passengers with dementia. It's the 1st of its kind in U.S.

06/18/25 at 03:00 AM

Sky Harbor program teaches TSA to help passengers with dementia. It's the 1st of its kind in U.S. 91.5 KJZZ Phoenix; by Kathy Ritchie; 6/17/25  For the first time anywhere in the U.S., Transportation Security Administration officers at Sky Harbor Airport are learning how to help travelers living with dementia. "So during this simulation, we're going to be wearing sunglasses, headphones, and both pairs of gloves," said Calli Carlson with Hospice of the Valley during a recent training session. "It's going to be about an 8-minute experience.  So those headphones are going to tell you what to do with your blue bag. Do the best that you can." She’s leading the agents in a simulation so they experience what it's like to have dementia. "So this interactive Dementia Moments training is one of the first trainings that has been provided to TSA agents." This simulation uses special glasses that impair vision, headphones to mimic audio distortion and gloves which affect dexterity.Editor's Note: Bravo! Do you provide any similar type of training for your employees and volunteers, designed to simulate contexts and interactions with persons with dementia? Surely, you can! 

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Families demand end to Medicare waiting period for early-onset Alzheimer’s patients

06/17/25 at 03:20 AM

Families demand end to Medicare waiting period for early-onset Alzheimer’s patients Washington Examiner; by Elaine Mallon; 6/15/25 Jason Raubach was diagnosed at 50 years old with early-onset Alzheimer’s disease — a diagnosis that affects nearly 200,000 Americans. He received the diagnosis in 2018, completely upending life for his family. His youngest child was just a freshman in high school. ... Shortly before receiving an official diagnosis, Jason Raubach lost his job, having to move his family onto a consolidated omnibus budget reconciliation act health plan, or COBRA plan, which allows a person to keep their health insurance even after losing their job. “It wasn’t cheap,” Elizabeth Raubach said.However, once diagnosed, Jason Raubach had to wait two and a half years before he could receive coverage under Medicare, health insurance for those 65 years and older or those with qualifying disabilities. But Elizabeth Raubach, along with dozens of other caretakers for people diagnosed with Alzheimer’s, called on Congress in a letter to eliminate the 29-month waiting period required for those under the age of 65 to receive coverage under Medicare. ...

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Navigating the ‘Long Goodbye’ Help for caregivers of those with Alzheimer’s Dementia

06/17/25 at 03:00 AM

Navigating the ‘Long Goodbye’ Help for caregivers of those with Alzheimer’s Dementia The Journal; by Renee Bledsoe, LPN, CHPLN, Hospice of the Panhandle; 6/16/25 ...  [Important statistics:] ... Right now, there are more than 38,000 individuals over the age of 65 in West Virginia with Alzheimer’s Dementia and about 65,000 caregivers. The estimated total lifetime cost of care for someone with Dementia is more than $400,000 and about 70 percent of that cost is borne by family caregivers in the form of unpaid caregiving and out-of-pocket costs. Sixty-six percent of caregivers live with the person for whom they are caring. More than half provide care to a parent or in-law, and about a quarter of those are also caring for at least one child. It comes as no surprise that 59 percent of dementia caregivers report high emotional stress, and 38 percent report high physical stress, according to the 2025 Alzheimer’s Disease Facts and Figures report. ... Hospice of the Panhandle is no stranger to the emotional, physical and financial challenges that the caregivers of those with Alzheimer’s Dementia in our area face every day. ...

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Dementia severity associated with unmet caregiving needs during skilled home health care

06/14/25 at 03:20 AM

Dementia severity associated with unmet caregiving needs during skilled home health careJournal of Applied Gerontology; Julia G. Burgdorf, Jennifer L. Wolff, Yolanda Barrón, Halima Amjad; 5/25One-third of home health care (HHC) patients have dementia. We examined 426,608 older (65+) HHC patients with dementia in 2018. Unmet caregiving needs were determined from HHC clinician reports indicating that (1) no caregiver was present (lack of availability) or (2) the caregiver needed training (lack of capacity). Most (83%) HHC patients with dementia experienced an unmet need for caregiving. Medicaid enrollment and depression were associated with lack of caregiver availability; greater clinical severity and being post-acute were associated with lack of caregiver capacity. Patients with high (compared to low) cognitive symptom severity had higher odds of unmet needs due to lack of caregiver capacity ... Findings illustrate the gap between dementia caregiving needs and capacity, highlighting the importance of supportive resources such as training.

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Trends in home health care among traditional Medicare beneficiaries with or without dementia

06/14/25 at 03:15 AM

Trends in home health care among traditional Medicare beneficiaries with or without dementiaJAMA Network Open; Rachel M. Werner, MD, PhD; Seiyoun Kim, PhD; R. Tamara Konetzka, PhD; 5/25In the US, nearly 7 million people live with Alzheimer disease and other dementias, a number that is expected to increase as the population ages. Although many people with dementia live in nursing homes or other institutional settings, institutional use is decreasing, and a growing majority of people with dementia are opting to live at home and receive care in the community. Home-based care is typically consistent with most people’s preferences and may be particularly important for those with dementia, as institutional settings and transfers can be stressful and disorienting.

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Four Seasons offers virtual dementia training

06/12/25 at 03:00 AM

Four Seasons offers virtual dementia training Four Seasons, Flat Rock, NC; Press Release; 6/10/25 Four Seasons is excited to now offer Virtual Dementia Training to the community! The Virtual Dementia Tour (VDT) is a patented, ground-breaking, and evidence-based method of building a greater understanding of dementia. This training will be provided free for community groups or faith-based communities. There is a cost for external healthcare staff training. Learn more or schedule a training by contacting Mary Jo Powers (Four Seasons Director of Home Care) or Jenny Martin (Four Seasons Home Care Recruitment & Training Coordinator) at 828.696.0946 or HomeCareVM@FourSeasonsCFL.org. ... “Virtual Dementia Training helps caregivers better understand what their patients’ and loved ones’ lives are like. The training helps foster empathy and patience to ensure the best care and quality of life for those living with dementia. We are honored to bring this impactful training to our communities,” says Dr. Ruth Thomson, DO, MBA, HMDC, FAAHPM, FACOI, Four Seasons Chief Medical Officer.

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Local community unites for 'Together in a Day' to transform homes and lives for Georgia families

06/12/25 at 02:30 AM

Local community unites for 'Together in a Day' to transform homes and lives for Georgia families Media Industry Observer, EINPresswire.com, Athens, GA; Press Release; 6/11/25 In a powerful display of community solidarity, Family Hospice and the Alzheimer's Association, Georgia Chapter, are joining forces to host a "Together in a Day" community service day on June 20, 2025. This one-day volunteer effort will provide vital repairs and safety modifications to pre-selected homes, changing the lives of local Athens, Georgia, families affected by Alzheimer's disease and other forms of dementia. The initiative aims to enable individuals living with dementia to remain safe and comfortable in their homes for as long as possible. By tackling essential home improvements, such as installing ramps and adding crucial safety features, this "Together in a Day" directly addresses both the physical and emotional needs of these families. ... For more information on available resources and upcoming initiatives, visit the Family Hospice website or the Alzheimer’s Association Georgia Chapter website.Editor's note: Bravo and thank you, Family Hospice and the Alzheimer's Association!

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Caring for Gladine: A Las Cruces man's account of caregiving for his wife with dementia

06/11/25 at 03:00 AM

Caring for Gladine: A Las Cruces man's account of caregiving for his wife with dementia Las Cruces Sun News; by Leah Romero; 6/10/25 When Gladine Lindly was diagnosed with dementia in 2018, she and her husband Steve Gaskell decided to manage at home. But as Lindly’s dementia progressed, Gaskell quickly realized he needed help taking care of her. ... “She said, ‘I want you to be my caregiver. ... I don’t want to go into a home or facility,’” Glaskell recalled. “I proceeded to walk into the doors of Home Instead to apply for a job because I wanted to learn how to be a caregiver. Never done anything like that before.” ...  By September 2024, Lindly ... was placed on hospice care. By December, the hospice nurse told Gaskell it was time for family and friends to start saying their goodbyes.  ... [Gaskell described her death,] "And it was as peaceful as you can imagine. And that was…this sounds crazy to say, but that was probably the easiest part of the whole process.” Lindly passed on Jan. 7, 2025 at the age of 77. [Go to the source article for more of this inspiring story about caregiving through dementia.]

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[Kazakhstan] Mechanisms of chronic pain in Alzheimer's Disease: A narrative review

06/07/25 at 03:00 AM

[Kazakhstan] Mechanisms of chronic pain in Alzheimer's Disease: A narrative reviewCurrent Medicinal Chemistry; Roman Konovalov, Mina Aubakirova, Dmitriy Viderman; 4/25AD [Alzheimer's Disease] causes structural and functional alterations in the affected brain, including shrinkage of gray matter volume and disruptions in brain network connectivity. Besides memory loss, pain is a significant yet often neglected symptom. Effective pain management in AD is challenged by the adverse effects of pain-relief medications and communication difficulties, especially as the disease progresses. Pharmacological options include opioids, nonsteroidal anti-inflammatory drugs, paracetamol/acetaminophen, and adjuvant pain relievers like antidepressants and antiepileptic medications, though these are not officially approved for pain relief in AD. Non-pharmacological strategies, such as exercise therapy, music therapy, Reiki, reflexology, and behavioral therapy, are preferred to prevent the side effects of medication. The review highlights a crucial link between neurological changes in AD and the perception of pain, underscoring the need for customized pain management approaches for this population.

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10 Signs death is near for dementia patients

06/04/25 at 03:00 AM

10 Signs death is near for dementia patients The Healthy; by Dr. Patricia Varacollo, DO; 6/2/25 For families and caregivers, recognizing the final stages of dementia can be difficult, but understanding the signs can help ensure comfort and dignity in a loved one's last days. Dr. Koncilja highlights these key indicators that may suggest the end of life is near:

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The Roaring ‘20s: Hospice of the Valley hosts senior prom

06/04/25 at 03:00 AM

The Roaring ‘20s: Hospice of the Valley hosts senior prom Arcadia News, Phoenix, AZ; by Mallory Gleich; 6/1/25 At the Dementia Care and Education Campus in Arcadia, the spirit of the Roaring ’20s came to life as Hospice of the Valleyhosted its second annual senior prom. With pearls, feathers, vintage flair, and a whole lot of heart, this unforgettable evening was more than just a dance, it was a joyful celebration of life, connection, and music. Around 80 guests – a mix of Adult Day Club members, assisted living residents, spouses, family members, staff, and volunteers – attended the soiree. From the start, the event buzzed with anticipation and excitement. For many, this was a chance to relive a moment they had missed, or rewrite one that had fallen short in their youth. 

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OP-ED: How hospice care falls short for people living with dementia

06/02/25 at 03:15 AM

OP-ED: How hospice care falls short for people living with dementia Being Patient - Alzheimer's News, Advice, Stories & Support; by Maria J. Silveira; 5/30/25Only 12 percent of Americans with dementia ever enroll in hospice. This may be due to how hospice is structured and paid for in the U.S., explains University of Michigan associate professor of internal medicine Maria J Silveira. ... In contrast to the former president [Jimmy Carter's extended hospice care], his wife, who had dementia, lived only nine days under hospice care. Palliative care physicians like myself who treat both conditions are not surprised at all by this disparity. ... Strikingly, only 12 percent of Americans with dementia ever enroll in hospice. Among those who do, one-third are near death. This is in stark contrast to the cancer population: Patients over 60 with cancer enroll in hospice 70 percent of the time.

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Why CMS’ GUIDE Model could move home care from side act to main stage

06/02/25 at 03:00 AM

Why CMS’ GUIDE Model could move home care from side act to main stage Home Health Care News; by Joyce Famakinwa; 5/29/25 The Guiding an Improved Dementia Experience (GUIDE) Model might be one of the biggest steps in the right direction for recent Medicare policy. The eight-year voluntary nationwide program was launched last year by the Centers for Medicare & Medicaid Services (CMS), with the goal of supporting individuals living with dementia, as well as their unpaid caregivers. The program’s focus is more important than ever, with an estimated 6.7 million people living with dementia. This amount is expected to skyrocket to 14 million cases by 2060, according to data made available by CMS.

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The dementia care workforce: Essential to care but large research gaps exist

05/31/25 at 03:05 AM

The dementia care workforce: Essential to care but large research gaps existAlzheimer's and Dementia; Jasmine L Travers Altizer, Jennifer M Reckrey, Bianca K Frogner, David C Grabowski, Joanne Spetz; 5/25People living with dementia and their care partners benefit from services and supports from a wide variety of healthcare and social service professionals. This article provides an overview of the dementia care workforce and highlights gaps and opportunities for data collection and research to advance the workforce and its contributions to high-quality care. There are notable gaps in our ability to track career pathways, assess the impact of training, identify best practices for recruitment and retention, and understand attributes of the workforce that may affect the quality of both workers' lives and the care they provide to people living with dementia. The dementia care workforce works in multiple settings and includes many occupations. Evaluation research is needed to improve direct care worker recruitment, retention, and knowledge.

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Referral criteria for specialist palliative care for patients with dementia

05/31/25 at 03:00 AM

Referral criteria for specialist palliative care for patients with dementiaJAMA Network Open; Yuchieh Kathryn Chang, DO; Jennifer Philip, PhD, MMed, MBBS; Jenny T. van der Steen, PhD; Lieve Van den Block, PhD, MSc; Allyn Yin Mei Hum, MD; Pedro E. Pérez-Cruz, MD, MPH; Carlos Paiva, MD, PhD; Masanori Mori, MD; Ping-Jen Chen, MD; Meera R. Agar, PhD, MPC, MBBS; Laura Hanson, MD, MPH; Catherine J. Evans, PhD, MSc, BSc; David Hui, MD, MSc; 5/25Dementia is an ever-growing public health issue with currently more than 55 million people worldwide living with this disease. Due to an aging global population, this number is projected to triple by 2050. As the number of people with dementia continues to grow worldwide, there is a need and an opportunity to collaborate and provide seamless integration of specialist palliative care with the primary palliative care already delivered to enhance the care of patients with dementia. To help advance this goal, the 15 major criteria identified here represent a first step toward clarification of primary and specialist palliative care roles and consideration for systematic screening of symptom and supportive care needs.

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[Australia] What voluntary assisted dying options are available for those with dementia?

05/28/25 at 03:00 AM

[Australia] What voluntary assisted dying options are available for those with dementia? ABC News Melbourne, Australia; by Emily JB Smith; 5/24/25 John Griffiths suspects his mind is starting to fail. It is a horrifying prospect for the father-of-three, former Monash University engineering lecturer and CSIRO research scientist. The Melbourne man spends much of his time with his wife Rachel, who lives in residential aged care, reading her poems and short stories. While doctors say he is all clear at the moment, he will be assessed for dementia in the next year. If he does develop the condition, he would rather die than let it take hold. But his options are limited. Although voluntary assisted dying (VAD) will be legal in every Australian jurisdiction except the Northern Territory by the end of this year, it remains entirely off-limits for people with dementia. ...

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Perspectives on the challenges of planning for and accessing long-term dementia care services through Medicaid and Medicaid Waivers

05/24/25 at 03:10 AM

Perspectives on the challenges of planning for and accessing long-term dementia care services through Medicaid and Medicaid WaiversJournal of Applied Gerontology; Justine Scattarelli, Kelly Moeller, Dana Urbanski, Marguerite DeLiema; 4/25 Formal long-term services and supports (LTSS) are essential to support older Americans with chronic conditions, such as Alzheimer’s disease and related dementias (ADRD). However, few older adults have saved enough to pay for LTSS, and navigating Medicaid eligibility criteria presents significant challenges. We conducted semi-structured, in-depth interviews with aging services professionals and caregivers of older adults with ADRD to assess challenges to planning for and accessing LTSS coverage through Medicaid and Medicaid waivers. Using concept mapping, three main themes were identified: (1) Proactive planning, (2) decision points, and (3) the application process. Participants described misconceptions about LTSS coverage, challenges with enrollment, and lack of information about eligibility affecting the LTSS planning trajectory. Results demonstrate a critical need for resources that help caregivers estimate costs and guide them through the eligibility determination, application, and spend down processes for Medicaid programs.

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First FDA-cleared Alzheimer's blood test could make diagnoses faster, more accurate

05/23/25 at 03:00 AM

First FDA-cleared Alzheimer's blood test could make diagnoses faster, more accurate NPR; by Jon Hamilton; 5/21/25 A new blood test that detects a hallmark of Alzheimer's is poised to change the way doctors diagnose and treat the disease. The test, the first of its kind to be cleared by the Food and Drug Administration, is for people 55 and older who already have memory problems or other signs and symptoms of Alzheimer's. The results show whether the brain of a person with cognitive symptoms also has amyloid plaques, clumps of toxic proteins that build up in the spaces between brain cells. The presence of plaques in a person with cognitive symptoms usually confirms an Alzheimer's diagnosis.Editor's note: Game-changer!

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What caregivers should know about end-of-life rallies

05/22/25 at 03:00 AM

What caregivers should know about end-of-life rallies  AARP; by Jamie Ducharme; 5/19/25People with advanced illnesses sometimes experience unpredictable bursts of energy or clarity. Here’s how caregivers should handle these episodes. Roughly a decade after her mother was diagnosed with Alzheimer’s disease, Liz Donnarumma got her back — but only for an instant. It happened one evening in 2021, more than a year after Donnarumma first realized her mother, Theresa, didn’t recognize her. Theresa took Donnarumma’s face in her hands, called her by her nickname and thanked her. “When she put her hands on my face and I looked into her eyes, she was totally there. It was my mother,” Donnarumma says. “It was like a second, just one second, and it was gone.” Donnarumma’s mother had an episode of “paradoxical lucidity” — that is, an unexpected burst of mental clarity, despite her advanced condition. While these moments are as unexplained as they are unexpected, experts say they are more common than many people realize. ...

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Home health use remains high among beneficiaries with dementia, study finds

05/20/25 at 03:00 AM

Home health use remains high among beneficiaries with dementia, study findsMcKnight's Home Care; by Adam Healy; 5/19/25Medicare beneficiaries who have dementia increasingly are using home healthcare, according to a new study published Friday in JAMA Network Open... Home health utilization increased by roughly 17% among beneficiaries with dementia between 2010 and 2019 and decreased slightly between 2020 and 2022, the study found. Beneficiaries with dementia were also more likely to initiate home healthcare from community-dwelling settings, rather than from post-acute care settings.

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