Literature Review

National Alliance for Care at Home publishes CONNECT to Care Report National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 5/27/25 The National Alliance for Care at Home (the Alliance) published the results of new research conducted by Transcend Strategy Group exploring perceptions of hospice care among underserved communities. This research compiles findings from a series of surveys of 2,000 people and explores perceptions of hospice care among Black, Hispanic, Asian American, LGBTQ+, and rural communities. Using the CONNECT acronym – Communication, Outcomes, Network, Nurture, Engagement, Collaboration, and Transparency – the report aims to help providers support equitable, inclusive, and comprehensive access to care and is part of the Alliance’s ongoing commitment to increasing access to hospice and home care through knowledge sharing, data collection, and collaborative discussion.  Along with key research findings, CONNECT to Care offers recommendations for hospice providers to help increase understanding of hospice care and help overcome barriers to access.  

MLN Fact Sheet: Creating an efffective Hospice Plan of CareCenters for Medicare & Medicaid Services, Medicare Learning Network (MLN); 5/10/25 The hospice plan of care (POC) maps out needs and services given to a Medicare patient facing a terminal illness, as well as the patient’s family or caregiver. CMS data shows that some hospice POCs are incomplete or not followed correctly. This fact sheet educates on creating and coordinating successful hospice POCs. The primary goal of hospice care is to meet the holistic needs of an individual and their caregiver and family when curative care is no longer an option. To support this goal:

Memorial Day: 3:00 pm National Moment of RemembranceUSMilitary.com - A non-government, privately sponsored website; retrieved from the internet 5/22/25The day is not just about looking back but also about engaging with the present and future. It provides an opportunity for communities and individuals across the nation to come together in a shared spirit of remembrance. ... This year, as we commemorate Memorial Day, we invite you to join us in honoring the legacy of our heroes through active participation and thoughtful reflection. ... At 3:00 PM local time on Memorial Day, Americans are encouraged to pause for a moment of silence to remember and honor the fallen. The National Moment of Remembrance is a collective act of unity, acknowledging the sacrifices made for our country. Whether you are at home, at a parade, or spending time with family, take a moment to reflect on the true meaning of the day. This simple yet profound gesture serves as a nationwide expression of gratitude and respect.

Navigating the Future: HOPE, Wage Index, and CMS Quality Measures Teleios Collaborative Network (TCN; podcast by Chris Comeaux with Annette Kiser and Judi Lund Person; 5/21/25 What happens when ancient philosophical questions about "the good life" collide with modern healthcare regulations?  In this compelling episode of TCNtalks, host Chris Comeaux welcomes Hospice leaders Annette Kiser, Chief Compliance Officer with Teleios, and Judi Lund Person, Principal, Lund Person & Associates LLC,  for a deep dive into the regulatory crossroads facing hospice providers. In this episode,  we discuss the FY 2026 Proposed Rule, which focused on implementing the HOPE initiative, and two RFIs (Requests for Information) that were part of it. 

[Australia] Overtreatment of older people near end of life: A qualitative scoping review of modalities, drivers, and solutionsOmega-Journal of Death and Dying; Samantha Fien, Emily Plunkett, Daniel Wadsworth, Magnolia Cardona; 4/24This study aimed to understand the drivers better to help minimise further risks of overtreatment for older people near the end of life (dysthanasia). Determinants included healthcare system factors, patient-centered care, family and caregiver, and clinician perspectives. This review confirms that despite almost two decades of recognition of the potential harms of overtreatment near the end of life, society, patients, and health systems have a role to play in reducing and addressing the determinants. We offer a range of solutions for clinicians, health service managers, and members of the public to consider.

Proposed bill would require MA to pay for hospice care Hospice News; by Jim Parker; 5/21/25 Rep. David Schweikert (R-Ariz.) has introduced the Medicare Advantage Reform Act, which among other provisions would require health plans to pay for hospice care. If enacted, the bill, numbered H.R. 3467, would make wholesale changes to the Medicare Advantage program. It would mandate capitated payment models, change risk adjustment methodologies and create new exemptions for physician self-referrals, among other provisions. The potential impacts of moving hospice into Medicare Advantage at this time would be “devastating,” according to the National Alliance for Care at Home. 

Home health use remains high among beneficiaries with dementia, study findsMcKnight's Home Care; by Adam Healy; 5/19/25Medicare beneficiaries who have dementia increasingly are using home healthcare, according to a new study published Friday in JAMA Network Open... Home health utilization increased by roughly 17% among beneficiaries with dementia between 2010 and 2019 and decreased slightly between 2020 and 2022, the study found. Beneficiaries with dementia were also more likely to initiate home healthcare from community-dwelling settings, rather than from post-acute care settings.

A narrative review—Characterizing palliative care curriculum aimed at high school adolescents and young adultsIllness, Crisis and Loss; by Austin B. Elder; 4/25The aim of this narrative review is to explore the characteristics of palliative care curriculum developed for high school adolescent and young adults (AYAs). Characteristics including a variety of designs, methods, and strategies were all identified to have positive participation, feedback, and experiences from high school AYA being provided palliative care curriculum. Conclusions: The literature indicates that the use of subject matter experts within palliative care curriculum for high school students is a core characteristic in meeting the World Health Organizations recommendation to embed palliative care curriculum into public awareness strategies.

Best Places to Work in Healthcare - 2025 Modern Healthcare; 5/12/25 Modern Healthcare is proud to present the 150 companies and organizations that have been named to its Best Places to Work in Healthcare for 2025. The recognition program honors employers that empower workers to provide patients and customers with the best possible care, products and services. An alphabetical list is provided ... Modern Healthcare will reveal the ranked order Oct. 8 at the Best Places to Work in Healthcare Gala in Nashville and also in an Oct. 13 magazine supplement. [Hospice organizations include the following:]

Medicare Program: Fiscal Year 2026 Hospice Wage Index and Payment Rate Update and Hospice Quality Reporting Program RequirementsFederal Register - the Centers for Medicare & Medicaid Services; retrieved from the internet 5/20/25 Public Inspection Document: [On 5/20/25 this webpage reads:] This document is unpublished. It is scheduled to be published on 05/21/2025. Once it is published it will be available on this page in an official form. Until then, you can download the unpublished PDF version.Editor's note: This post has been prepared on Tuesday, 5/20/25, with the hope that--per the notification on this page--it will be available in its official form from this same link/webpage on Wednesday, 5/21/25. Our email delivery time is 6:00 am EDT. If this has not populated yet, please check back later in the day.

The evolution of hospice care The Journal; by Dr. Sarah Phillips, Medical Director, Hospice of the Panhandle; 5/18/25 Historians believe that the first hospices originated in Malta around 1065, dedicated to caring for the ill and dying enroute to and from the Holy Land. The term “hospice” referred to places of shelter for travelers, particularly in medieval Europe. The moder hospice movement began to gain momentum in the 1960’s with Dame Cicely Saunders’s establishment of St. Christopher’s Hospice in London, which emphasized comfort and quality of life for patients and their families. This idea of specialized care for the dying was first introduced to the United States during a lecture at Yale University in 1963. In the early 1970’s the first national hearings on the subject of death with dignity were conducted by the U.S. Senate Special Committee on Aging. In 1978, the National Hospice Organization was established and the U.S. Department of Health, Education, and Welfare task force reports that “the hospice movement … is a viable concept and one which holds out a means of providing more humane care for Americans dying of terminal illness while possibly reducing costs. As such, it is the proper subject of federal support.” [Continue reading ...]

SERIOUS ILLNESS: 10 ways to embrace Mother’s Day with a seriously ill mother Roze Room Hospice, Culver City, CA; Website; retrieved from the internet 5/8/2025Spending Mother’s Day with a seriously ill mother can be emotional, but it’s also an opportunity to create meaningful and loving memories. Here are 10 ways to embrace Mother’s Day with a seriously ill mother:

“I’m as mad as hell and I’m not going to take this anymore!”JAMA Neurology; by David N. Korones; 4/25So shouted news broadcaster Howard Beale in the iconic 1976 film “Network” as he decried pollution, unemployment, inflation, crime, and all that was wrong in the world back then. And so shouted I, as I slammed down the phone after yet another denial from an insurance company—this time denial of treatment for an 8-year-old little girl with a brain tumor.Every day the phone, email, and text messages mount: an antinausea medication is not approved, oral chemotherapy is denied to a child because it is in liquid form, and only tablets are approved, brain surgery is denied because the patient has the misfortune of not living in the same state as the neurosurgeon who has the unique skill set to remove it, an insurance company that had previously approved an essential therapy for one of my patients now, for inexplicable reasons, denies refills half way through her prescribed course of treatment. Perhaps the more we push back, send them bills for our time, follow that up with bill collectors, call our congressional representatives, and summon our hospital leadership, we can gather a chorus of physicians, patients, hospital leaders, and politicians who all open their windows and, following Howard Beale’s lead, scream in unison that they, too, are mad as hell, and it is long past time to change this unjust system of care. To paraphrase Howard Beale, “our children, our patients are human beings, goddammit, their lives have value!”