Literature Review

Harvey Max Chochinov, MD PhD - selected publicationsHospice & Palliative Care Today compilation; Cordt Kassner; 9/17/25Publisher's note: This week I attended a brilliant webinar by Dr. Chochinov, "Dignity, personhood and intensive caring: New insights into patient suffering", part of the McGill University "Lessons in living from the dying" lecture series. To highlight a few of his books and 200+ articles:

Hands Journal of the American Medical Association (JAMA); by R. Jordan Williams, MD, MPH; 8/13/25Lend me your handCallused or calaminedWrinkled or plump,Nails bittenNails extendedSplintered and pittedNails neatly or never cropped.Lend me your handStrong or weakCold or warmingSwollen and swanned;Gnarled in knots ...Editor's Note: Continue reading this powerful poem. Reflecting on its meanings, JAMA paired "Hands" with this description of the poem in "Poetry and the Medicine of Touch" by Rafael Campo, MD, MA: "In this deeply felt poem, the hand becomes a potent metaphor for our shared humanity ... Aspiring clinicians are still taught to assess, to palpate, to diagnose through touch. Yet, as “Hands” reminds us, patients’ hands hold far more than clinical signs—they reflect stories, histories, fears, and hopes. ..."

Contemporary patterns of end-of-life care among Medicare beneficiaries with advanced cancer JAMA Network - JAMA Health Forum; by Youngmin Kwon, PhD; Xin Hu, PhD, MPSH; Kewei Sylvia Shi, MPH; Jingxuan Zhao, MPH, PhD; Changchuan Jiang, MD, MPH; Qinjin Fan, MS, PhD; Xuesong Han, PhD; Zhiyuan Zheng, PhD; Joan L. Warren, PhD; K. Robin Yabroff, PhD, MBA; 2/21/25Conclusions: In a contemporary cohort of older Medicare decedents originally diagnosed with advanced breast, prostate, pancreatic, or lung cancer, we found that many patients continue to receive potentially aggressive interventions at EOL at the expense of supportive care services. To make meaningful improvements in the quality of EOL care, a multifaceted approach that addresses patient, physician, and system-level factors associated with persistent patterns of potentially aggressive care will be required. Editor's note: Though published just one week ago--February 21--this journal article is already being used extensively, as demonstrated in our posts on 2/24 and 2/25.

"Taps" Bugle Call: USMC Drum & Bugle Corps [YouTube]YouTube filmed at the National Mall's Vietnam Memorial, Washington DC; compilation by Joy Berger, Editor in Chief; retrieved from the internet 5/22/25We invite you to begin this Memorial Day with this reflective playing of "Taps." Its simple, 24 notes evoke poignant memories and emotions for persons of all generations. Ongoing, we share with you these resources below for the veterans and their families whom you serve.

Flu cases continue to rise across the countryABC 6 News, Rochester, MN; by KAALTV; 2/10/25Flu cases are continuing to rise across the country as doctor visits for flu-like symptoms are now reaching their highest point in 15 years. The CDC estimates at least 24 million illnesses this flu season alone, with 13,000 turning deadly. Right now, about 31% of flu tests are coming back positive, nearly double the peak from last season. Doctors say your best line of defense is vaccination. Editor's note: We see this surge across news media sources, and compiled this state-specific list for you. 

One year after Hurricane Helene: Lessons in resilience, recovery, and renewal Hospice & Palliative Care Today; Joy Berger and Cordt Kassner with Vern Grindstaff, Millicent Burke-Sinclair, and Chris Comeaux; 9/26/25 At this time last year, Hospice & Palliative Care Today brought you a series of articles reporting on the devastating impact of Hurricane Helene across the Southeast, focusing on hospices in the North Carolina mountains. We remain deeply grateful for the many ways you—our readers and colleagues—rallied in support of those hospice organizations and their communities during their time of urgent need. This Saturday, September 27, 2025, marks the one-year anniversary of that epic disaster. To reflect on what has been learned and how recovery has unfolded, Vern Grindstaff (CEO of Compassionate Care WNC, Burnsville, NC), Millicent Burke-Sinclair (President and CEO of Four Seasons, Flat Rock, NC), and Chris Comeaux (President and CEO of Teleios Collaborative Network, Flat Rock, NC) gathered in conversation with Cordt Kassner (publisher) and Joy Berger (editor-in-chief). The insights that follow honor the hospice employees who persevered to provide urgent patient care. We celebrate their spirit of compassionate community and courageous problem-solving from the onset one year ago through ongoing recovery.

Follow-up: Helene and hospice care in the western North Carolina mountains Hospice & Palliative Care Today; summary from a meeting between Vern Grindstaff (CEO, Compassionate Care Western North Carolina), Chris Comeaux and Tina Gentry (Teleios Collaborative Network), Cordt Kassner and Joy Berger (this newsletter); 1/28/25 Hospice recovery efforts from Hurricane Helene in North Carolina's mountains have been massive, with extensive long-term needs ahead. Vern Grindstaff, CEO of Compassionate Care Western North Carolina described the "new normal" they are experiencing.  Photos of this hospice and its service area vividly portrayed this hospice before, soon after Helene, and in its current recovery. Key topics included unthinkable patient care challenges with creative problem-solving, financial implications amounting to a $350,000 deficit for repairs, and the trauma experienced by staff—both professionally and personally. Discussions highlighted the importance of long-term recovery strategies, including the involvement of larger trusts for sustained funding, while also recognizing community support efforts by organizations like the Cajun Navy and Samaritan's Purse. Additionally, Chris Comeaux is presenting to hospice organizations about Emergency Disaster Management, equipping leaders to learn from this tragedy. Editor's note: Click here for a map of Compassionate Care Western North Carolina's service area (CCWNC). Click here to donate to their ongoing recovery. We thank our readers for your previous support to this and other hospices affected by emergency disasters. Additional resources:

After her son’s painful death, a Cheshire mother highlights Connecticut’s pediatric hospice gap New Haven Register, Norwalk, CT; by Cris Villalonga-Vivoni; 10/26/25 Carolyn Torello believes that no parent should outlive their children, yet that became her reality. ...  As his condition worsened, the family faced his impending death without the support of pediatric palliative or hospice care. No provider, she said, seemed to know how to help or where to begin. He died at 15 years old in 2021. ... In 2020, an estimated 7,800 children in Connecticut were living with complex medical conditions that limited their life expectancy and could have benefited from palliative or hospice care, according to data from the National Survey of Children's Health. ... Torello thinks that if Michael had access to hospice care, he could have died with greater dignity, and their family could have focused on simply being together. ... Efforts to create a more formalized pediatric palliative care system have been underway since 2024, led by a state-commissioned working group that will make recommendations to the legislature on potential reforms.Editor's Note: Editor's Note: This article puts forth significant information (with links) for all states, for all hospices. Having served on the firmly rooted Pediatrics Team of Hospice & Palliative Care of Louisville (begun in 1980) for four years (1997-2001), I take for granted how some type of pediatric hospice care needs to be available in every region. For related articles we have recently posted:

Risk of dementia diagnosis after injurious falls in older adultsJAMA Network Open; Alexander J. Ordoobadi, MD; Hiba Dhanani, MD, ScM; Samir R. Tulebaev, MD; Ali Salim, MD; Zara Cooper, MD, MSc; Molly P. Jarman, PhD, MPH; 9/24In this cohort study, new ADRD [Alzheimer disease and related dementias] diagnoses were more common after falls compared with other mechanisms of injury, with 10.6% of older adults being diagnosed with ADRD in the first year after a fall. To improve the early identification of ADRD, this study’s findings suggest support for the implementation of cognitive screening in older adults who experience an injurious fall that results in an ED visit or hospital admission. 

The hospice conversations that defined 2025 - Best of TCNtalks Teleios Collaborative Network (TCN); by Chris Comeaux; 12/24/25 With nearly 45,000 total downloads across TCNtalks and Anatomy of Leadership, this milestone reflects a shared commitment to thoughtful leadership, courageous conversations, and care as it should be. We’ve curated standout moments from episodes that challenged assumptions, clarified complexity, and pointed toward a better future for serious-illness care. ... This highlight episode isn’t just a recap—it’s a reflection of where hospice and serious-illness care has been, where it is, and where it must go next. These conversations underscore the urgency of leadership rooted in clarity, compassion, and courage. Whether you’re revisiting a favorite or discovering an episode you missed, we hope this collection sparks insight, conversation, and renewed purpose as we head into 2026.

When the nurse becomes the daughter: Lessons from my father's final daysAmerican Journal of Hospice & Palliative Care; by Keshia R Brown; 11/25Military service demands sacrifice, but no professional challenge prepared me for the deeply personal experience of caring for my father at the end of his life. This experience transformed my understanding of nursing by revealing the profound impact of presence, love, and dignity-centered care. Caring for my father illuminated the intersection of professional skill and personal devotion, demonstrating that the heart of nursing extends beyond clinical interventions. It resides in honoring the whole person and offering unwavering compassion in their most vulnerable moments. This narrative reflects on the emotional, ethical, and spiritual lessons learned as I walked my father through his final chapter-an unexpected gift and the greatest honor of my nursing career.

Is moral adequacy possible in the face of structural disadvantage? The experiences of health and social care staff in supporting homeless people using substances at the end of life Palliative Care and Social Practice; by Gary Witham https, Gemma Anne Yarwood, Sarah Galvani, Lucy Webb, and Sam Wright; 11/26/25 Background: Homeless people using substances at the end-of-life face many challenges in accessing and receiving good care. These can relate to poor interdisciplinary working by health and social care practitioners, stigma and structural disadvantage.Results: The data analysis resulted in three key discourse positions relating to how practitioners position themselves in relation to the practice challenges of supporting homeless people using AODs and approaching end of life. These were as follows: (i) what constitutes a good death and where, (ii) the limitations of professional boundaries and (iii) maintaining moral adequacy in the face of traumatic death.