Literature Review

Head and neck cancer mortality in the Appalachian regionJAMA Otolaryngology-Head and Neck Surgery; Todd Burus, MAS; Pamela C. Hull, PhD; Krystle A. Lang Kuhs, PhD, MPH; 12/24In contrast to non-Appalachian US, where HNC [head and neck cancer] mortality rates declined considerably between 1999 and 2020, HNC mortality rates in the Appalachian region have remained stubbornly stable. Moreover, statistically significant increasing rates of HNC mortality in rural Appalachia provide evidence that the lack of rural HNC mortality improvements nationwide are associated with Appalachian disparities. While the exact factors driving these trends are unknown, the Appalachian region has an increased prevalence of multiple risk factors associated with cancer mortality, such as adverse social determinants of health, heightened alcohol and tobacco use, later stage at diagnosis, and limited access to care. Investments in the Appalachian region—such as through the Bipartisan Infrastructure Law or by expanding coverage of the National Cancer Institute’s Surveillance, Epidemiology, and End Results Program among Appalachian states—could help reduce the burden of HNC mortality by improving cancer surveillance and serving the unique needs and experiences of the Appalachian population. These investments could also aid efforts to improve other cancer sites with known disparities in Appalachia, such as lung and colorectal cancers. 

Winter snow storm slams into over a dozen states in the East, Midwest USA Today; by Julia Gomez; 1/6/25 The Central Plains and Midwest are getting slammed by a winter storm , according to officials, and it's leaving over a dozen inches of snow in some places. Here's a look at what the storm is leaving behind. Over 60 million people in the Central Plains, Midwest and along the East Coast are being bombarded by heavy snowfall because of the "disruptive" winter storm moving through the area, according to the National Weather Service. Some areas could see snowfall anywhere between 8 to 14 inches. The storm is also expected to impact travel in Kansas City, St. Louis, Indianapolis and Cincinnati and bring the cities to a standstill.Editor's note: Are you ready for emergencies in your service areas? Click here for the CMS.gov Emergency Preparedness Rule. Click here for Wisconsin's CMS Emergency Preparedness Rule Toolkit: Hospices.

The Alliance celebrates the Dole Act becoming law, expanding access to care and benefits for veteransNational Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 1/7/25 The National Alliance for Care at Home (the Alliance) issued the following statement in response to President Biden signing S. 141, the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act, into law on Thursday, January 2. This landmark legislation includes several key provisions to enhance care and benefits for Veterans and their families, including Section 301, Gerald’s Law. Gerald’s Law addresses a critical gap in benefits for Veterans by ensuring that families of terminally-ill Veterans receiving Veterans Affairs (VA)-furnished hospice care—whether at home, in a nursing home, or in another non-VA setting—retain access to their full VA burial allowance. ... “We are deeply grateful for the bipartisan support that made these critical reforms possible,” said Dr. Steve Landers, CEO for the Alliance. “This legislation ensures that Veterans and their families have greater flexibility and support when accessing the care they need, whether through hospice services, home care, or other settings. ...”

The Jimmy Carter White House Connection to Hospice & Palliative Care TodayCohen-Fyfe Communications; by Mark Cohen; 1/3/25Jimmy Carter’s impact on the hospice movement goes further than his very public decision to be admitted to hospice in February 2023 ... and even further than his administration’s decision in 1980 to launch the Hospice Demonstration Project that directly led to congressional passage of the Medicare Hospice Benefit, with strong bipartisan support, in 1981 during the first year of the Reagan Administration. How much further? You might not be reading this daily newsletter if were not for the Carter White House. If you were a fan of Hospice News Today, which I published from 2012 to 2023, and/or if you’re a fan of Hospice & Palliative Care Today, then you should know that Jimmy Carter(and his long-time senior aides Jody Powell and Hamilton Jordan) deserve some of the credit for these two unique daily environmental scans that have served the hospice movement now for more than a dozen years. ... [Fascinating story and with this spoiler alert:] So, Inauguration Day in 1977 found me walking into the Old Executive Ofice Building as the youngest person on the 369-person staf of The Office of the President. My job? One of six stafers who produced the daily News Summary for the President and nearly 200 senior oficials throughout the White House and the Cabinet and executive agencies. [Click on the title's link to read more.]Editor's note: As President Carter's body is taken to the Capitol today, we celebrate the simple moments that can change the course of another's life. Did you read Jimmy Carter's questions to the young Mark Cohen? At Hospice & Palliative Care Today, we are grateful for Mark's journey and long-lasting impact. What interest are you taking in the lives of those who serve in your organization? May we pause. Learn. And live.

Family advocates for hospice care, says it doesn't always mean end-of-life: Highlights case of the late Former President Jimmy Carter who spent nearly 2 years in hospice CBS WTKR 3, Hampton Roads | Northeast NC; by Jay Greene; 12/20/24 Dana Romano's mom, Marilyn, headed home from the Dozoretz Hospice House of Hampton Roads in Virginia Beach on Monday evening after spending a few days in respite care while her family was out of town. "The whole reason not to have my mom in a facility is we want her with us. But when you're doing long periods of time, every once in a while, you need a break, so having a place where you know they're going to take care of her and treat her like, almost like family," Dana said. "We kind of look at this more like a resort than a hospice." ... When at home Marilyn receives hospice care, but it's not because she needs care, the Romano's said. It's because she needs supervision. ... The family told News 3's Jay Greene this is a case where hospice does not mean end-of-life. It actually helped alleviate some stress. ... The Romano's told News 3's Jay Greene hospice ["has no time limit"] is all about extending life as comfortably as possible, citing Former President Jimmy Carter who died at the age of 100 this weekend.Editor's note: These misunderstandings by the family about hospice care is both alarming and expected. Throughout Jimmy Carter's extended hospice Length Of Stay (LOS), far too many hospice organizations misused messaging for its marketing purposes. We have addressed this discrepancy in a dozen posts throughout the year. Click here for the CMS "Face-to-Face Requirement Affecting Hospice Recertification." Disclaimer: We do not specifics about what this hospice communicated with this family. We simply refer readers to this as publicly reported news story.

Monroe Clinic & Hospital Foundation supports hospice home with financial gift The Monroe Times, Monroe, WI; 12/25/24 The Monroe Clinic & Hospital Foundation, a member of SSM Health, recently presented the SSM Health Monroe Hospice Home with a donation of $120,000. The annual support of $120,000 fulfills the gift the Foundation Board pledged to give every year upon the opening of the hospice home. This gift is primarily comprised of dollars raised at the annual “Little Golf” & Grill event, as well as memorials and other hospice gifts throughout the year. “Gifts given to hospice through the Foundation help provide a continued option for end-of-life patients who wish to be close to their families but are unable to remain in their home,” said Jane Sybers, Monroe Clinic & Hospital Foundation Executive Director. “This cumulative gift reflects the strong support and love our community has for local hospice care, which we are so grateful for.” 

Cannabidiol for scan-related anxiety in women with advanced breast cancer - A randomized clinical trialJAMA Network Open; Manan M. Nayak, PhD, MA; Peter Chai, MD; Paul J. Catalano, ScD; William F. Pirl, MD, MPH; James A. Tulsky, MD; Stephanie C. Tung, MD; Nancy U. Lin, MD; Nicole Andrade, BA; Sabrina Johns, MPH; Clint Vaz, MD; Melissa Hughes, MSc; Ilana M. Braun, MD; 12/24The findings of this randomized clinical trial show that CBD [cannabidiol] can be used safely in women with advanced breast cancer and clinical anxiety. Although the study did not meet its primary end point comparing preingestion vs postingestion anxiety change scores between study arms, anxiety levels in the CBD arm were significantly lower 2 to 4 hours after ingestion, suggesting a possible anxiolytic effect and warranting further investigation. 

“I had no words”: The patient gifts doctors never forgetMedscape; by Sarah Yahr Tucker; 12/19/24[Three unforgettable gifts...]

Estimation of cancer deaths averted from prevention, screening, and treatment efforts, 1975-2020JAMA Oncology; Katrina A. B. Goddard, PhD; Eric J. Feuer, PhD; Jeanne S. Mandelblatt, MD, MPH; Rafael Meza, PhD; Theodore R. Holford, PhD; Jihyoun Jeon, PhD; Iris Lansdorp-Vogelaar, PhD; Roman Gulati, MS; Natasha K. Stout, PhD; Nadia Howlader, PhD; Amy B. Knudsen, PhD; Daniel Miller, BA; Jennifer L. Caswell-Jin, MD; Clyde B. Schechter, MD; Ruth Etzioni, PhD; Amy Trentham-Dietz, PhD; Allison W. Kurian, MD, MSc; Sylvia K. Plevritis, PhD; John M. Hampton, MS; Sarah Stein, PhD; Liyang P. Sun, MS; Asad Umar, DVM, PhD; Philip E. Castle, PhD; 12/24Overall US mortality has declined over time for most major cancer sites because of progress in prevention, screening, and treatment. Nevertheless, the reignited Cancer Moonshot goal to reduce the age-adjusted cancer mortality rate by 50% in the next 25 years will not be achieved without accelerating progress. In this model-based study using population-level cancer mortality data, an estimated 5.94 million deaths were averted from these 5 cancers [breast, cervical, colorectal, lung, and prostate] combined. Prevention and screening accounted for 8 of every 10 averted deaths, and the contribution varied by cancer site. A comprehensive plan to reduce cancer mortality includes interventions in cancer prevention, detection, diagnosis, treatment, and survivorship care. 

The HAP Foundation partners with Communities in Schools of ChicagoHAP Foundation press release; 12/16/24The HAP Foundation has partnered with Communities in Schools of Chicago to fulfill the need for grief workshops for students in Chicago Public Schools. Through HAP’s Missing Pieces program, we have provided support for nearly 10 students and families that have experienced a death of a sibling or friend through this partnership. Missing Pieces provides grief navigation support for families who experience the loss of a child. This year, over 350 families have been served.

Tributes to President Jimmy CarterThe Rosalynn Carter Institute for Caregivers invites you to visit the official tribute website to the life of President Carter at www.jimmycartertribute.org for the official online condolence book, arrangements, and schedule of events as well as print and visual biographical materials commemorating his life. ... 

Awards and Recognitions: Dec 2024

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