Literature Review

U.S. health care spending reaches $4.9 trillion Hospice News; by Jim Parker; 12/20/24 The nation’s total health expenditures rose 7.5% to $4.9 trillion in 2023, a new analysis by the U.S. Centers for Medicare & Medicaid Services (CMS) found. This growth took place at a faster pace in 2023 than prior years. In 2022, health care spending rose at a rate of 4.6%. Total Medicare hospice spending accounted for $25.7 billion last year, according to a separate report from the Medicare Payment Advisory Commission (MedPAC). ... About 21% of U.S. health care spending in 2023 was via Medicare, with private insurance representing a 30% share. Medicaid accounted for 21%, and the remaining 10% were out-of-pocket costs. “Hospital care, physician and clinical services, and nursing care facilities and continuing care retirement communities, which collectively accounted for 33% of all out-of-pocket spending in 2023, were the main contributors to the faster growth in 2023,” CMS indicated.

'The Grief Lady:' NC woman uses mother's funeral flowers to create art, help others heal WRAL TV News, Raleigh, NC; by Heather Leah; 4/18/24 Grief is a journey--and you never know for sure where it'll take you. When Janet Willis' mom passed away from small cell lung cancer in her 70s, Willis said she felt like she lost more than a mother; she lost a piece of herself. The loss launched her on a 100 day journey, creating art with the dried flower petals saved from her mother's funeral and sharing her grief experience with her followers. Each day she created a new piece of art – and each day it's as much a surprise for her as it is for her viewers. 

Hospice gets huge response as it finds Tad a new home Beatrice Daily Sun; by Christina Lyons; 7/17/24 When the Cottonwood Hospice team wrote a Facebook post about a patient’s dog that needed to be rehomed, they were not expecting the overwhelming response they received. Owner Anni Paulmeyer said Katie Genrich, a hospice nurse, had come to her with concern for a patient who needed to rehome a dog because of declining health. ... Genrich said her patient had found the white Swiss shepherd when he was a year to 2 years of age. He named him Tad because he always said “the dog was a tad much when he was younger.” The patient cared for Tad for about nine years, but due to declining health and the need to move to a nursing facility, wanted to rehome Tad. Paulmeyer wrote a Facebook post and asked people to share the post. “A day or so later the post had been shared 2,800 times. ..." Editor's Note: We celebrate Tad's new home! For ongoing rehoming of hospice patients' pets, become familiar with the national "Pet Peace of Mind" program, click here for info, with a list of hospice organizations with whom they partner.

Music therapist helps patients navigate end-of-life journey on Long Island CBS New York / YouTube; by Jenna DeAngelis; 10/15/24 The healing power of music is being brought to hospice patients on Long Island, by Yuzuko DeGrottole, LCAT, MT-BC, a board-certified music therapist with MJHS Hospice.  “Everyone has a song that takes them to a special place. “Are you going to sing with me?” [Sings a beautiful Jewish song.] That's the power of music. It moves us. It connects us, and for Sarah Jacobowitz it just makes her feel good. “I like it.  It makes me happy.”  The 95-year-old Holocaust Survivor is proud of her Jewish Heritage which she celebrates in song since she's bedridden.  Yuzuko brings the music to her, even learning to sing in many languages for her patients. Music communicates with you directly to your heart. Music brings up a lot of emotion, with or without words. … Sarah's son who often sits bedside says music therapy hits all the right notes. Sarah is attentive instead of just sleeping all day or just doing nothing. Music brings back memories and it gives her pleasure just to be alive.Editor's note: Having a board-certified music therapist is significantly more valuable--therapeutically, clinically, meaning-making, mission-oriented--than simply having musicians play music. For more information visit "Facts for Music Therapy in Hospice Care" by American Music Therapy Association and the Certified Board for Music Therapists.

PositivelyJAX Award - The purple bench of compassionate St. AugustineNews4JAX; by Melanie Lawson; 11/1/24 [Posted as a Headline as we move through this important Election Week.] This month’s PositivelyJAX Award goes to something unique: a bench. But it’s no ordinary bench—it’s The Purple Bench, powered by people and conversation. The concept was brought to life by a group called Compassionate St. Augustine, sparking empathy and understanding in anyone willing to sit down and listen. This purple bench, located just outside the gates of the Lincolnville Community Garden in St. Augustine, often sits empty, waiting for someone to take a seat and begin a conversation.  When I approached, Eileen Reid was happy to join me. In just a short 10-minute conversation, I got to know her—a retired hospice nurse ... “I’ve been around a lot of endings, and endings are beginnings, but now, now I’m beginning a whole different phase of my life, and it’s interesting. ...”Editor's note: Click on the title's link for the community news article. Click here for a photo and description of this Purple Bench Initiative: "The Purple Bench initiative was formed to challenge the community to engage in compassionate practices despite different backgrounds, religions, ethnicities, and views. In a world divided by polarizing opinions, it is increasingly important to find common ground to help those in need." May we find creative ways to use these principles in our own settings and relationships.

Meijer donates $10,000 in memory of longtime employee WoodTV.com, Algoma Township, MI; by Kyle Mitchell; 11/1/24 A longtime employee at the Rockford Meijer store who died earlier this year was honored Friday with a $10,000 donation made in her name. The store director presented a check to representatives of Faith Hospice in honor of Pat Julien. Julien, the mother of WOOD TV8 engineer Michael Julien, died in July following a battle with breast cancer. She worked at the Rockford Meijer for 15 years. The impact she made inspired the employees to select a charity for the store to support in her memory. ... The store selects a charity to donate to every year through the Meijer Team Gives program. This year, the employees wanted to do something in Pat Julien’s memory. The store originally planned to donate $5,000, but decided to donate the full $10,000 amount on behalf of the company, assistant store director Kurt Guarisco said. “We voted on that as a team within the store and what happened is we chose Faith Hospice,” Guarisco said. Editor's note: Click here for Faith Hospice, in Byron Center, Michigan.

Corby boy, 10, set for Arctic trek in tribute to fatherBBC News, by Kate Bradbrook & Brian Farmer; 2/2/24A 10-year-old boy once told he might never walk can look forward to days of "wonder" as he prepares to trek in the Arctic in memory of his late father. Caeden, who has cerebral palsy, was born 12 weeks early. But Caeden, of Corby, Northamptonshire, has climbed Ben Nevis and is now set to meet the Arctic challenge. Mountain guide John Cousins said the "biggest danger in such conditions comes from the cold". Caeden is due to travel to Sweden on Monday with mother Lisa, brother Ashton, 12, and sister Khya, 14.

Fearless hospice patient takes joyrideWest Valley View (AZ); by Lin Sue Flood; 8/7/24Don Tamuty, a beloved former Madison Unified School District teacher, had one thing left on his bucket list. The 95-year-old shared with his hospice nurse, Monisha Roe, that he would love to ride in a driverless car. Monisha and the rest of Don’s Hospice of the Valley care team knew exactly how to fulfill that wish! They booked a driverless cruise on Waymo One to take Don out to a nice restaurant.

Art Ellison has one dying wish: Feed all New Hampshire students Concord Monitor, by Michaela Towfighi; 3/15/24 Art Ellison isn't one to mince words. With red blanket over his lap and a "support public education" t-shirt on, he has one final request as he rests at the Granite VNA hospice house. ...

Musician mom, 31, enters hospice in final days, writes song for young son: 'My art is all I have to leave behind'People, by Jordan Greene; 1/25/24Cat Janis shared her final wish – for her song 'Dance You Outta My Head' which she wrote for her 7-year-old son — to go viral. 

10 Years of making the world a more livable place for all bereaved people Evermore; by Joyal Mulheron, Executive Director; 12/21/24   Fourteen years ago today, I was sitting on my couch, trying to make sense out of what just happened to our family. Our terminally ill daughter, Eleanora, had died a few weeks prior. While others sang holiday songs and gleefully exchanged gifts, it was a profoundly painful, dark, and isolating time for me. Within a few short years, I quit my career because I saw tragedies saturating our national headlines, leaving a trail of unseen and unsupported bereaved people in their wake, and I believed our nation should prioritize the needs of all bereaved people. ... This is what I set out to change. ... Evermore’s groundbreaking advocacy efforts resulted in our nation’s first Report to Congress, which provided an overview of grief and bereavement services in the United States. Next year, a report analyzing more than 8,000 scientific studies will be published, reviewing the highest quality interventions for bereaved people — which was championed by Evermore and endorsed by Congress. Editor's note: Click on the title's link to continue reading Evermore's trailblazing, state-of-the-art leadership and advocacy with Congress, the government's Substance Abuse and Mental Health Services Administration (SAMHSA), Newsweek, PBS, Harvard's Public Health magazine, Penn State, the University of California, and more. Click here to join Evermore's mailing list, and to learn from Joyal Mulhuron, Evermore's inspiring, soulful Founder/Executive Director. 

Advance care planning, end-of-life preferences, and burdensome care-A pragmatic cluster randomized clinical trialJAMA Internal Medicine; Jennifer L. Wolff, PhD; Danny Scerpella, MPH; Erin R. Giovannetti, PhD; David L. Roth, PhD; Valecia Hanna, MS; Naaz Hussain, MD; Jessica L. Colburn, MD; Martha Abshire Saylor, PhD; Cynthia M. Boyd, MD; Valerie Cotter, DrNP; Maura McGuire, MD; Christine Rawlinson, MSN, RN; Danetta H. Sloan, PhD; Thomas M. Richards, MS; Kathryn Walker, PharmD; Kelly M. Smith, PhD; Sydney M. Dy, MD; for the SHARING Choices Investigators; 12/24Advance care planning (ACP) is a communication process that supports adults at any age or stage of health in understanding and sharing their personal values, life goals, and preferences regarding future medical care. In this pragmatic cluster randomized clinical trial, the SHARING Choices intervention increased new documentation of end-of-life preferences but also increased potentially burdensome care at end of life. Mixed findings underscore the importance of comprehensive support for those with serious illness and prioritizing patient-relevant outcomes in ACP interventional research. 

Researcher explores using AI to overcome language barriers with patientsJAMA Network; Yulin Hswen, ScD, MPH; Kate Schweitzer; 12/24In the US, 25 million people with language barriers receive worse health care by nearly every standard than those who speak English fluently. In a recent Viewpoint in JAMA, K. Casey Lion, MD, MPH, an associate professor of pediatrics at the University of Washington School of Medicine, listed the poorer-quality outcomes: inferior comprehension, lower adherence, higher costs, and more frequent serious safety events, to name a few. In this study, we want to understand how it performs under real-world conditions because those are the conditions we would be using it in. I would also encourage other health care systems that are thinking about implementing AI for language access to think about talking to and involving their patients and families in the work to be sure that it’s reflecting what our patients and families actually want rather than what we think they want.