Literature Review

“What I wish I knew about dementia”: A caregiving only child’s experience The Healthy; by Dr. Patricia Varacallo, DO; 8/20/24 It's no secret dementia affects the brain of the patient, and tests the hearts of their loved ones. Through one woman's personal journey, experts advise on the emotional, medical, and financial aspects of caregiving for dementia. ... Drawing from Ann’s caregiving journey and insights from Dr. Wint and Lucille Carriere, PhD, Cleveland Clinic Angie Ruvo Endowed Caregiving Chair, we share their collective wisdom on what they wish more people knew about dementia.

Future trends in aged care careers Intelligent Living; by Jennifer Barns; 8/21/24Medical advances have increased the average life expectancy. By 2050, older people—or those above 60 years—are expected to comprise 22% of the global population, almost twice compared to 2015, according to the World Health Organization. As the population ages, the demand for skilled professionals in the aged care sector is also going through the roof. ... Editor's Note: This article provides statistics and user-friendly language that might be helpful for your employee recruitment strategies.

Commentary: Prognostication in Alzheimer's disease and related dementias Journal of the American Geriatrics Society / Early View; by Natalie C. Ernecoff PhD, MPH, Kathryn L. Wessell MPH, Laura C. Hanson MD, MPH; 8/8/24  ... Hospice provides comfort-oriented care, emphasizing patient-tailored elements of quality of life, including time with family, access to nature, and music. In late-stage ADRD, studies show that a majority of families prioritize comfort-oriented treatment, and understanding prognosis may help them align treatments accordingly. Yet, only 15% of people enrolled in hospice with a primary diagnosis of ADRD. This is due to difficulty estimating 6-month prognosis required for hospice eligibility—ADRD carries a prognosis of 12–18 months in the latest stage. While low rates of live discharges from hospice are a regulatory requirement for hospices, people who are increasingly experiencing ADRD progression lose access to those beneficial hospice services. ...

Violent dementia patients leave nursing home staffers and residents ‘scared to death’KFF Health News; by Jordan Rau; 8/9/24Violent altercations between residents in long-term care facilities are alarmingly common. Across the country, residents in nursing homes or assisted living centers have been killed by other residents who weaponized a bedrail, shoved pillow stuffing into a person’s mouth, or removed an oxygen mask. A recent study in JAMA Network Open of 14 New York assisted living homes found that, within one month, 15% of residents experienced verbal, physical, or sexual resident-on-resident aggression. Another study found nearly 8% of assisted living residents engaged in physical aggression or abuse toward residents or staff members within one month. Dementia residents are especially likely to be involved in altercations because the disease damages the parts of the brain affecting memory, language, reasoning, and social behavior.

Nursing homes’ high rate of Immediate Jeopardy tags warrants ‘all-hands-on-deck’ responseMcKnight's Long-Term Care News; by Jessica R. Towhey; 8/3/24A return to more “normal” nursing home operations in the post-pandemic world has also often meant a return to certain more serious citations, one industry expert pointed out last week. There has been a particular rise in those labeled as J or greater in scope or severity, which puts them into the Immediate Jeopardy category, she added. Survey tags citing nursing homes for accident hazards, lack of supervision, and inappropriate or misused devices (F-689) continue to run high nationwide this year. The number of Immediate Jeopardy citations on pace to either meet or exceed 2023, expert analysis shows.

Wrongful death lawsuit filed after grandmother murdered at senior care facility in Santa Clara PR Newswire, Santa Clara, CA; by Peacock & Bartlett, a.p.c.; 7/29/24 The family of Vera Plares, a 98-year-old woman murdered at the Mission Skilled Nursing & Subacute Center in Santa Clara, CA filed a wrongful death lawsuit against the facility alleging Mission knowingly placed a patient with a violent past in the same room as their cherished grandmother. According to the complaint, Connie Delucca had a history of being violent at Mission and had a history of prior 5150 holds (a mental illness designation that someone poses a danger to themselves or others.) When Mission negligently placed Vera Plares in the same room as Ms. Delucca, little did Vera or her family know of Ms. Delucca's propensity for violence, or that Mission's decision would prove deadly.

‘Good’ death different for everyone Altoona Mirror, Altoona, PA; 7/26/24 The social and economic inequities patients suffer in life often shapes their death” was a key point of a July 13-14 article in the Review section of the Wall Street Journal. ... In the article, which was written by Dr. Sunita Puri, a palliative care physician and the author of “That Good Night: Life and Medicine in the Eleventh Hour,” Puri focuses on the conundrum many families face when dealing with the question of where to spend the final days of life. ... “New research classifies the rise in home deaths as progress,” the message immediately under the article’s headline begins, “but we need to look more closely at what these deaths look like.” ... Puri, now 10 years into her physician career, says it is now clear to her that there is much more to a “good” death than where it occurs. “Presuming a home death is a success obscures important questions about the process,” she wrote. “Did this person die comfortably? Did their caregivers have the resources and guidance they needed? Was dying at home a choice or simply the only option?” 

The bereavement care crisis in hospice facilities MedCity News; by Cara McCarty Abbott; 7/28/24 Bereavement care is an essential part of the hospice experience, designed to support those coping with loss. Bereavement care is not just a compassionate gesture; it is a critical component of the hospice care continuum. So why is it so underserved in the U.S.? ... Instead of pushing harder on hospice providers to find more ways to deliver comprehensive bereavement care with less, it's key to address the systemic forces hampering their ability to deliver quality care at the scale required and address these challenges. Editor's Note: Additionally, does your hospice still rely on the misnamed, overused "5 Stages of Grief"? These were determined from 1960's persons who were dying, not from bereaved persons who live on--surviving--the death. Extensive fresh, contemporary, hospice-designed grief resources to support bereavement counselors and the persons they serve are provided by Composing Life Out of Loss, a sponsor for our newsletter.

No One Dies Alone: a movement against isolation and loneliness in the final hours The Optimist Daily; by The Optimist Daily Ediorial Team; 7/27/24 The fear of dying alone is one of the most powerful and agonizing feelings that many harbor, especially during the COVID-19 pandemic. For some, this fear sadly becomes a reality. To address this issue, the No One Dies Alone (NODA) initiative trains and supports volunteers who provide companionship to people in their final hours. ... The NODA concept began in 1986 in Oregon, United States [by] Sandra Clarke, a nurse. ... [Alison] Bunce founded Compassionate Inverclyde (CI) in 2016 as an Ardgowan Hospice-funded project, where she worked as director of care. Starting with 20 volunteers, CI sought to sit with people who were dying alone, initially in hospices and local hospitals before extending to private homes. Today, CI has grown substantially, with over 100 volunteers available to provide companionship at a moment’s notice.

Empath Health, Trustbridge leaders are setting home health sights high after integration Home Health Care News; by Joyce Famakinwa; 7/26/24 Empath Health is a company in transition. In the spring, it completed an affiliation process with Trustbridge, which formed the largest nonprofit post-acute provider organization in the state of Florida. ... Since completion of the affiliation process, the company has focused on integration, synergistic opportunities and determining how best to deliver care to the communities it serves. One of the people at the helm of this transition is Tarrah Lowry, Empath Health’s chief operating officer and Trustbridge’s interim president. [Click on the title's link to read the recent interview by Home Health Care News' with Tarrah Lowry.]

Nursing homes ‘can’t escape’ need for increased palliative care access: researchersMcKnights Long-Term Care News; by Josh Henreckson; 7/17/24 Nursing home residents could greatly benefit from expanded access to palliative care, but providers need more access to standardized tools, staff education and relationships with clinicians to make informed decisions about care, specialists say. ... Several key “themes” could be the foundation for a more formalized method of identifying palliative care needs for nursing home patients, researchers found. They included factors such as patients with uncontrolled symptoms and otherwise serious illnesses, as well as patients with indicators of significant decline such as frequent rehospitalizations. 

Waverly nursing home put on probation, nurse suspended in connection to death of a resident, documents show ABC KETV-7, Omaha, NE; by Jake Anderson and Aaron Hegarty; 7/17/24 A nursing facility has been placed on probation by the Nebraska Department of Health and Human Services in connection to the death of a resident. Constance Glantz, 74, was mistakenly declared dead at The Mulberry at Waverly, a nursing home, in June. Glantz was then taken to a funeral home in Lincoln, which realized that she was still breathing. The 74-year-old, who was in hospice care, was declared dead hours later at a Lincoln hospital. A public records request by KETV Investigates shows that a state investigation into the facility in Waverly found the registered nurse on duty failed to take Glantz's blood pressure after it was believed she had died. That nurse was suspended, according to the state investigation. Documents show that the state also found a second case where a patient was not evaluated correctly. ... [Nebraska AARP Director Todd Stubbendieck] points to Medicare.gov's tool, which rates nursing homes, as a resource. He also points to a similar tool from ProPublica.

Senior living and care on track to set mergers and acquisitions record McKnights Senior Living; by Kathleen Steele Gaivin; 7/18/24 Mergers and acquisitions involving senior living communities and skilled nursing facilities set a new quarterly record of 183 publicly announced transactions in the second quarter, and when annualized, the sector is on track to set a new yearly record as well. That’s according to data released this week by LevinPro LTC. The number of mergers and transactions in the second quarter was 21% higher than the 151 transactions recorded in the first quarter and 49% higher than the 123 deals in the second quarter of 2023.