Literature Review

From sleeping in cars to having an apartment: Season for Caring helps once-homeless families Austin American-Statesman; Austin, TX; by Nicole Villalpando; 12/8/24 When Thamairis Canales Yanez learned this year that she had been selected for the Austin-American Statesman's Season for Caring program, "what I did was thank God," she said. ... The 45-year-old and her 14-year-old daughter, Ivanna, came to the U.S. from Venezuela after Yanez's dental business was taken away by the government, and she feared for her daughter's life. She is trying to rebuild her life in America, but it has been difficult. At one point, she and Ivanna were living in her car. She has breast cancer that has spread to her brain. She is unable to work. Often when Season for Caring comes into the lives of the featured families, it is during one of their darkest times.  ...  "I have seen the impact on families," said Robin Clemons, chief development officer at Hospice Austin. "Imagine facing the end of life, and they can't pay their rent. (With Season for Caring funds) they don't have to worry about those types of needs. The stress for the caregiver, it relieves that burden."

‘Reimagining Hope’ podcast shines a light on the conversation of serious illness The Baltimore Times, Pasadena, MD; podcast hosted by Rachel Jordan; 12/6/24 As families and their loved ones struggle with serious progressive illness, finding information, resources and support is more critical than ever before in our history. In response, Hospice of the Chesapeake and Chesapeake Supportive Care are introducing a new, innovative and informative podcast series, “Reimagining Hope.”  Hosted by Rachel Jordan, Director of Advocacy & Legislative Affairs, the series will feature guests who can provide valuable insight and help you reimagine the hope you may be missing. The podcast will provide quick, easy-to-understand information while giving you the critical skills and real-time tools you can use today to navigate advanced illness. 

The ISNP opportunity for hospice providers  Hospice News; by Jim Parker; 12/5/24 Hospice providers can collaborate with institutional special needs Medicare Advantage plans (ISNP) to reach patients who reside in long-term care facilities. ISNPs restrict enrollment to MA eligible individuals who, for 90 days or longer, have had or are expected to need the level of services provided in a long-term care (LTC), skilled nursing facility, a LTC nursing facility, intermediate care facility for individuals with intellectual disabilities (ICF/IDD), or an inpatient psychiatric facility. The nonprofit senior services organization Empath Health, which operates several hospices, recently partnered with the MA organization American Health Plans to bring their services to ISNP-enrolled patients.

Make the most of a nursing home visit U.S. New & World Report; by Claire Wolters; 12/2/24 If you have a loved one in a nursing home, you know how important it is to be there for them – literally and figuratively – to demonstrate care. A visit may seem like an obvious way to show support, but don’t underestimate the value it can have for your loved one. ... It may also help them fight off feelings of loneliness that can arise in nursing home environments. Dr. Brian D. Madden, a primary care physician and medical director of palliative care at Providence Saint John’s Health Center in Santa Monica, California, says he all too often sees patients waiting around in nursing homes with “nobody coming to visit.” Here’s how you can make the most of your nursing home visit. ... [Click on the title's link for descrptions.]

Homebound seniors living alone often slip through health system’s cracks KFF Health News; by Judith Graham; 12/2/24 Carolyn Dickens, 76, was sitting at her dining room table, struggling to catch her breath as her physician looked on with concern. “What’s going on with your breathing?” asked Peter Gliatto, director of Mount Sinai’s Visiting Doctors Program. “I don’t know,” she answered, so softly it was hard to hear. “Going from here to the bathroom or the door, I get really winded. I don’t know when it’s going to be my last breath.” Dickens, a lung cancer survivor, lives in central Harlem, barely getting by. She has serious lung disease and high blood pressure and suffers regular fainting spells. In the past year, she’s fallen several times and dropped to 85 pounds, a dangerously low weight. And she lives alone, without any help — a highly perilous situation. Across the country, about 2 million adults 65 and older are completely or mostly homebound, while an additional 5.5 million seniors can get out only with significant difficulty or assistance. ... It’s a population whose numbers far exceed those living in nursing homes — about 1.2 million — and yet it receives much less attention from policymakers, legislators, and academics who study aging.

Health system C-suites channel 'hospitality energy' for next year Becker's Hospital Review; by Laura Dyrda; 11/27/24 Health system C-suites are taking their organizations "back to the basics" next year to focus on improving quality outcomes and creating an elite patient experience. This means prioritizing a culture of service and training staff in hospitality. Cliff Megerian, MD, CEO of University Hospitals in Cleveland, said the system has focused on reducing variation in care pathways and optimizing clinical services for maximum quality, safety and efficiency this year, an effort that will continue into 2025. University Hospitals is also doubling down on its reputation for compassionate care, said Dr. Megerian. "The goal is for our patients – our guests – to feel truly cared for at each touchpoint along the patient journey, with clinical and non-clinical caregivers alike both bearing the responsibility to make this happen," he said. "The word 'hospitality' has at its root the word 'hospital' — it's our goal to work to bring that 'hospitality' energy to our work in healthcare, always informed by world-class science."Editor's note: The Latin root word described is "hospitium," which branched into contemporary words "hospitality," European "hostels" for travelers, "host," "hotels," and yes, "hospice." At its core, hospitium refers to travelers on a significant life journey, tended by compassionate hosts who provide rest and nourishment. Click here for more information, which emphasizes the relationship between the host and the guest.

Aged care nursing in the digital future Atlassian Jira, Australia; by Flinders University; 11/27/24 The results call for nurses to be included when digital innovations are in development, so they can actively shape their implementation and ensure high-quality, compassionate care for residents in their final stages of life. "In Australia and around the world, we have seen a significant increase in digital technologies in the health care sector," says study lead author Dr. Priyanka Vandersman, a Senior Research Fellow at Flinders University's Research Center for Palliative Care, Death and Dying (RePaDD).  "In aged care, these digital approaches can include helping with care planning and assisting with managing medication, but we need to ensure that nurses are equipped with the digital skills needed to use these tools effectively, while continuing to provide high quality, person-centered care."

Be a Santa to a Senior helps homebound seniors during holiday season The Joplin Glove; 11/26/24 Home Instead Senior Care is offering a chance to play Santa this year to homebound seniors who might be overlooked during the holidays. The Be a Santa to a Senior is a national program with Home Instead, a company that offers services for homebound seniors. These seniors might not have a family member close by or might not be able to travel to see family. Adam Bokker, owner of Home Instead in Joplin, said hundreds of thousands of gifts have been collected and given to seniors nationally during the holiday season over the years. "It's an opportunity for them to have a little gift, a little joy, some companionship even with someone delivering that gift," Bokker said. "We call it Be a Santa to a Senior because our seniors really benefit from having that extra gift, extra companionship when many times they're not able to go see their families."

Hospice expands compassionate care for nursing home residents McKnights Long-Term Care News; by Liz Barnett and Mat Zucker; 11/22/24 Nursing homes are places of care, community and compassion, particularly for residents in their final stages of life. As we recognize National Hospice and Palliative Care Month, it’s an opportune time to consider how nursing homes can broaden the support they provide by better incorporating hospice services. Hospice offers a path to comfort and dignity at the end of life, yet many families have insufficient information about these services. Our mother, Leslie, benefited from hospice care early this year when her gallbladder cancer no longer responded to treatment. This journey revealed just how powerful hospice can be, not only for the patient but for our entire family. Nursing home staff and administrators can play a crucial role in helping families like ours make informed, compassionate choices like this for their loved ones.

Nursing homes with more black residents lag in care goal discussions Medical Xpress; by Columbia University Irving Medical Center; 11/20/24 New research from Columbia University School of Nursing published in the American Journal of Hospice and Palliative Medicine shows that timely goals of care discussions are less likely to take place in nursing homes with a higher percentage of Black residents. These discussions are crucial to ensuring that nursing home residents receive care that aligns with their wishes, postdoctoral research fellow Jung A. "Chloe" Kang, Ph.D. '24, Professor Patricia Stone, Ph.D., and their colleagues note in the report, published online September 15, 2024. But these conversations are often delayed until patients experience life-threatening events, the authors add, which can lead to unwanted therapies and unnecessary hospitalizations. ... 

The Alliance applauds Gerald’s Law passing through Congress National Alliance for Care at Home (the Alliance; formerly NAHC and NHPCO); Press Release; 11/19/24 The National Alliance for Care at Home (the Alliance) celebrates the historic passage of H.R. 8371, the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act in the U.S. House of Representatives last night with a bipartisan vote of 389-9. This landmark legislation includes Section 301, Gerald’s Law, which addresses a critical gap in benefits impacting seriously-ill veterans and their families receiving hospice care. The story of Gerald “Jerry” Elliott, a U.S. Army veteran, underscores the importance of this legislative achievement. Diagnosed with cancer, Jerry was admitted to his local Veterans Affairs (VA) hospital in 2019 before transitioning to VA hospice care at home to be surrounded by his family. After his passing, his family discovered they were ineligible for full burial and funeral financial support because Jerry died outside of a VA facility.

LECOM Health opens Erie County's first specialty hospice unit Erie Times-News, Erie, PA; by David Bruce; 11/15/24 Erie County will soon have its first specifically designed medical unit for end-of-life care when LECOM Nursing and Rehabilitation Center opens its Visiting Nurses Association Specialty Hospice Unit later this month. Until now, local hospice patients who require a higher level of medical care than what can be provided at home usually lived their final days at a nursing home or hospital. The reluctance to open a dedicated hospice unit in Erie County is due to operating costs, Lin said. State laws require each unit to have a medical director and registered nurses, and the reimbursement for hospice care makes it difficult to cover those costs if there are fewer than four or five patients at a time. "Since this unit is part of the Nursing and Rehabilitation Center, we can share the medical director and registered nurses," Lin said.

Former employees speak out after 89-year-old woman disappeared from care facility, then died WSB-TV 2 Atlanta, GA; by WSBTV News Staff; 11/12/24 An 89-year-old woman died after she disappeared from the facility that was supposed to keep her safe. ... Lee worked for the Marietta Police Department when he and his team searched for a woman who disappeared from the Greenwood Place Assisted Living and Memory Care facility on Whitlock Avenue. ... Police reports reveal more than a dozen investigations at the facility over the past four years. Of those, two arrests were made for two different alleged crimes which include larceny and assault. “I didn’t think the care was at the level I was told it would be at,” Anthony Argano, who removed his dad from the facility, said. Argano said he pulled his dad out of the facility after staff forgot to turn his dad’s oxygen tank on, which he said resulted in a trip to the hospital and eventually a stay in hospice. ...