Literature Review

Families demand end to Medicare waiting period for early-onset Alzheimer’s patients Washington Examiner; by Elaine Mallon; 6/15/25 Jason Raubach was diagnosed at 50 years old with early-onset Alzheimer’s disease — a diagnosis that affects nearly 200,000 Americans. He received the diagnosis in 2018, completely upending life for his family. His youngest child was just a freshman in high school. ... Shortly before receiving an official diagnosis, Jason Raubach lost his job, having to move his family onto a consolidated omnibus budget reconciliation act health plan, or COBRA plan, which allows a person to keep their health insurance even after losing their job. “It wasn’t cheap,” Elizabeth Raubach said.However, once diagnosed, Jason Raubach had to wait two and a half years before he could receive coverage under Medicare, health insurance for those 65 years and older or those with qualifying disabilities. But Elizabeth Raubach, along with dozens of other caretakers for people diagnosed with Alzheimer’s, called on Congress in a letter to eliminate the 29-month waiting period required for those under the age of 65 to receive coverage under Medicare. ...

10 Signs death is near for dementia patients The Healthy; by Dr. Patricia Varacollo, DO; 6/2/25 For families and caregivers, recognizing the final stages of dementia can be difficult, but understanding the signs can help ensure comfort and dignity in a loved one's last days. Dr. Koncilja highlights these key indicators that may suggest the end of life is near:

A ‘cloak of comfort’: an integrated approach to palliative care for cancer patients Sinai Health; 5/26/25 At Mount Sinai Hospital, palliative care is fully integrated into cancer care, providing comprehensive, person-centered support for those with advanced illness. Palliative care, derived from the Latin pallium meaning “cloak,” offers comfort and support to individuals with serious illnesses. Often misunderstood as solely end-of-life care, it actually provides relief at any stage of a life-threatening illness and can be provided in tandem with cancer treatment. This holistic approach addresses physical, emotional, and spiritual needs, aiming to improve quality of life for both patients and their families. In fact, early integration of palliative care can enhance symptom management, extend life and offer greater support to caregivers. Patients can receive care at Mount Sinai Hospital’s Cancer Care Clinic, at home through the Temmy Latner Centre’s home palliative care program, and in the palliative care unit at Hennick Bridgepoint Hospital.  

BrightSpring Health Services (NASDAQ:BTSG) Q1 earnings: Leading the senior health, home health & hospice pack StockStory; by Jabin Bastian; 5/22/25 The end of an earnings season can be a great time to discover new stocks and assess how companies are handling the current business environment. Let’s take a look at how BrightSpring Health Services (NASDAQ:BTSG) and the rest of the senior health, home health & hospice stocks fared in Q1. ... The 7 senior health, home health & hospice stocks we track reported a strong Q1. As a group, revenues beat analysts’ consensus estimates by 2.3%. ... 

You might live to be 100. Are you ready? The Guardian; by Andrew J. Scott; 5/15/25 Ethel Caterham, at the age of 115 years, is said to be the oldest person alive. She offers the sage life advice to “say yes to every opportunity because you never know what it will lead to. Have a positive mental attitude and have everything in moderation.” When she was born in 1909, the average life expectancy of a British female was 52 years – becoming a centenarian was a remote prospect. ... Today, according to the United Nations, centenarians are the fastest growing age group. By 1950, there were an estimated 14,000 whilst today there are nearly 750,000, projected to reach nearly 4 million by 2054. ...  Today, there is too large a gap between average lifespan and healthspan. The number of years we are likely to live has increased more than the number of years we are likely to remain healthy. Reducing this gap is critical for seizing the advantages of longer lives.

‘Surprisingly hopeful’ story emerges about LGBTQ+ rights, efforts in senior living McKnights Senior Living; by Kimberly Bonvissuto; 5/14/25 ... The Human Rights Campaign Foundation and LGBTQ+ elder advocacy group SAGE on Tuesday released its 2025 Long-Term Care Equality Index, a national benchmarking tool focused on LGBTQ+ inclusion in senior living and care. The key takeaway, the organizations said, is the “defiant progress” occurring despite political attacks against inclusion efforts.  As cuts to the Medicaid program — which many LGBTQ+ older adults rely on — come more into focus, participation in the latest survey jumped 37% from the 2023 report, with 274 long-term care settings across 33 states expressing commitment to inclusive care for more than 29,000 residents and 18,000 staff members. Participants included independent living, assisted living, memory care, continuing care retirement / life plan and affordable housing communities, as well as skilled nursing facilities and hospice settings.

Hidden at Home: Alarming questions, few state investigations of NJ group home deaths app., North Jersey.com, part of the USA Today Network; by Ashley Balcerzak and Jean Rimbach; 5/3/25 Fourteen. That’s how many times Michael Lombardi tried to dial 911 in the hours before he was found dead at age 39 in a state-licensed group home for adults with disabilities. ... Key Points:

Understanding Conservatory Care Services: A comprehensive overview Articlescad.com; by Jonassen Randall; 4/27/25 As the population ages and healthcare requires evolve, conservatory care services have become a crucial part of the continuum of care for numerous individuals. Unlike standard medical treatment environments, conservatory care services focus on supporting people with persistent conditions or impairments, providing a holistic technique that promotes self-respect and quality of life. This short article will explore what conservatory care services entail, who can benefit from these services, and the various kinds they can take.

As the ‘Silver Tsunami’ hits the Flathead Valley, dementia diagnoses are rising while caregivers reach a breaking point Flathead Beacon, Kalispell, MT; by Maggie Dresser; 3/23/25 ... As baby boomers age and Americans live longer than previous generations, the elderly population will continue to grow and overwhelm many local resources, which includes nursing homes and memory care facilities. ... According to 2020 Census data, the national demographic of people ages 65 and over grew nearly five times faster than the total population over the 100-year period stretching from 1920 to 2020, and the population segment has recently reached 55.8 million. But Montana’s senior citizen population is disproportionately higher than many other states, ranking No. 6 overall, with 19.7% of its population considered geriatric, according to 2020 Census data.  Of this population, 9.8% of individuals in Montana suffer from Alzheimer’s.Editor's note: Click here for the national 2024 Alzheimer's Disease Facts and Figures - Special Report: Mapping a Better Future for Dementia Care Navigation.

HHS proposal slashes Medicare SHIP funds MSN; by Mary Helen Gillespie; 4/22/25 The Trump administration is proposing federal budget cuts to Medicare State Health Insurance Assistance Programs (SHIP) and seven additional elder health care safety net programs that assist older Americans. ... SHIP programs have been under the umbrella of the Health and Human Services agency Administration for Community Living. The pre-decisional budget lists funds for seven other ACL programs that would be eliminated are:

Death matters: Is there really no place like home when it comes to dying? Sequim Gazette, Sequim, WA; by Jeanette Stehr-Green Volunteer Hospice of Clallam County; 4/16/25 While not everyone has the chance to decide where they will die, most Americans say that given the choice, they would prefer to die at home. For most people, home is familiar and comfortable. It is more private than a room in a hospital or nursing facility, and more likely to allow intimate gatherings with family and friends. In the home, the dying person and their caregivers are more in control, deciding when to have visitors, eat, drink, or take medications. ... Planning, realistic expectations, and adequate support are key to keeping a dying person at home. Consider the following steps: ... Home might not be best ...

HHS cuts pose threat to older Americans' health and safety Newsweek; by Kristin Lees Haggerty and Scott Bane - The National Collaboratory to Address Elder Mistreatment at Education Development Center (EDC); The John A. Hartford Foundation; 4/17/2 On March 27, 2025, the federal government announced major cuts to the department of Health and Human Services (HHS). ... Sounding the Alarm for Elder Justice: The population of older adults is rapidly growing, and one in 10 experience abuse, neglect, and/or exploitation—a risk that is even higher for those living with dementia. ... Cutting services to older adults will increase these risks and costs. Moreover, ... 11.5 million family and friend caregivers provide over 80 percent of help needed for people living with dementia in the U.S. Without access to services like Meal on Wheels, adult day care, and respite care, we can expect caregiver burden and strain to increase significantly and with it, rates of elder abuse, emergency department visits, hospitalizations, and nursing home placements. We know this because of the abuse spike seen clearly during the COVID-19 pandemic, which doubled to over 20 percent of older adults, as services were limited, and older adults were socially isolated. HHS cuts are also likely to result in loss of specialized expertise in identifying and addressing elder mistreatment, so that when elder abuse does occur, we won't have the services to stop it and make sure it won't happen again.