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All posts tagged with “General News | Caregiver News.”
Parting Stone celebrates serving 10,000 families with solidified remains service
03/06/25 at 03:00 AMParting Stone celebrates serving 10,000 families with solidified remains service Business Insider, Santa Fe, NM; Press Release; 3/5/25Parting Stone, an innovative death care company transforming the way families memorialize loved ones, is proud to announce that it has served 10,000 families with its solidified remains service. … s more families choose cremation for a loved one or pet, they seek meaningful ways to navigate grief, Parting Stone has emerged as a trailblazer in reshaping the narrative around death and memorialization. By offering a new form of remains that resembles a collection of 40–80 smooth stones, the company is helping people find comfort and connection in the grieving process. Solidified remains are a complete alternative to conventional “ashes.” … The National Funeral Directors Association predicts that by 2030, nearly 80% of Americans will choose cremation over traditional burial. Editor’s note: Click on the title’s link to see a photo.
A walk in the Bywater was just the medicine I needed
03/06/25 at 03:00 AMA walk in the Bywater was just the medicine I needed NOLA.com, New Orleans, LA; by Danny Heitman; 3/2/25 Last fall, I asked Pico Iyer, a travel writer and spiritual thinker I’ve followed for years, how he keeps a sense of hope in a troubled world. Iyer touched on several points, but his parting comment is the one I remember most vividly. “During the worst days of the pandemic,” Iyer recalled, “I was asked to give a talk to a local hospice organization. At the end, the moderator asked me to offer some advice. I’m sure he was expecting something wise or sonorous or lofty. All I could say was, ‘Take a walk. If the world doesn’t look better after you do, you will almost certainly feel better.'” A few days later, Iyer’s words came back to me as my wife and I took a weekend walk in the Bywater neighborhood of New Orleans. ... Editor's note: Just in time for Mardi Gras, enjoy this inspirational story. Whether at work or at home, find time to use this advice, "Take a walk."
Bride rushes wedding so dying dad can walk her down aisle
03/05/25 at 03:00 AMBride rushes wedding so dying dad can walk her down aisle Doniphan Herald, Doniphan, NE; by TImogen Howse; 3/4/25 A bride planned her wedding in less than 24 hours - so her dying dad could walk her down the aisle. Maurice Haynes, 69, is currently being cared for at St. Giles Hospice in Whittington, Staffs. [UK], ... His daughter Hannah Haynes, 29, was desperate for him to be present at her upcoming wedding - and knew Maurice had always wanted to walk her down the aisle. So she made sure her dad's dream came true. With the help of the hospice staff, Hannah and her partner, Josh, also 29, organized their special day in less than 24 hours. Carers transformed the hospice's chapel into a beautiful venue - complete with bunting and candles - and Hannah managed to secure a wedding dress on the morning of the ceremony. Just hours later, on February 18, Maurice, from Cannock, Staffs. [UK], walked Hannah down the aisle ... Hannah said: "What St Giles have done for my dad is unbelievable.
My mother and brother have terminal cancer. I'm worried I won't feel anything when they die.
03/05/25 at 02:00 AMMy mother and brother have terminal cancer. I'm worried I won't feel anything when they die. Business Insider; essay by Kimanzi Constable; 3/1/25 ... My brother was diagnosed with Cutaneous T-cell lymphoma (CTCL) three years ago, and my mother found out she had stage four lung cancer a year ago. I got a call earlier this year that the cancer was spreading, and I flew to spend time with them. I knew it would be hard seeing them battling late-stage cancer, but what I walked into was my brother in the Advanced Cancer Care Center, unable to move, and my mother wanting to hold an "end of life" planning meeting. It was worse than I anticipated. It was hard to see him not moving and the nurses having to help him do everything. My mother looked like she weighed 50 pounds ... I'm worried I won't feel anything when they pass away. ... I think it might be just another day when they pass away. I've been thinking — what does that say about me? Am I a bad person for not falling on the ground and losing it for over half of my family dying? Or is this nothingness an OK feeling due to the complicated relationship we've had most of my life? ... Editor's note: Leaders, welcome to the daily world of your clinicians, especially your social workers, chaplains, and grief counselors. Read this with openness to the normalcy of this author's conflicted relationships, emotions, thoughts, and empowered actions toward "not wanting to regret how I handled this opportunity to say goodbye more healthily."
Breaking bad news: Guidance on disclosing a dementia diagnosis
03/04/25 at 03:00 AMBreaking bad news: Guidance on disclosing a dementia diagnosis Medscape; by Megan Brooks; 3/3/25 As biomarker testing for Alzheimer’s disease (AD) evolves, timely and compassionate disclosure of a diagnosis is more complex than ever. Yet, clinicians may struggle with how — or in some cases whether — to disclose that a patient has mild cognitive impairment (MCI) or dementia. A recent perspective offers a practical roadmap to help clinicians navigate these challenging conversations. The authors from the Perelman School of Medicine, University of Pennsylvania, Philadelphia, noted that disclosure of a dementia diagnosis “is particularly nuanced and requires a conscientious approach. Clinicians must assess patients’ understanding and appreciation of symptoms, goals for the evaluation, and desire for information.”
How much does end-of-life care generally cost?
03/04/25 at 03:00 AMHow much does end-of-life care generally cost? 50 Plus Finance; by David Leto; 3/3/25 [For the public] ... Knowing how much end-of-life care generally costs can help you manage and prepare your finances appropriately to ease the burden on you and loved ones when the time comes. ... The cost of end-of-life care can vary widely depending on the services required. On average, however, Americans spend between $10,000 and $70,000 on such care, with the majority of expenses often occurring in the last year or month of life. These costs can stem from hospital stays, at-home care, or nursing facility care. Hospice, which focuses on comfort and pain management, typically costs less than intensive medical treatments but still averages several thousand dollars each month, or around $150 a day with insurance. Understanding these figures helps you set realistic financial expectations and prepare for them. ...
Aging With Adventure: The challenge of caring
03/03/25 at 03:00 AMAging With Adventure: The challenge of caring Daily Hampshire Gazette, Northampton, MA; by Eric Weld; 2/28/25 I made a mistake. I took a hiatus from writing in this space about aging with adventure because I thought I was taking a hiatus from adventure. Boy, was I wrong. I errantly thought that spending more than a year caring for my elderly mother in her final time on earth was taking me away from adventure. I am honored to have enabled my mother’s final days spent at home — not her home, but my sister’s private home — instead of in a public or private nursing facility. ... I assumed, in taking on the role of her co-caretaker, I would temporarily preempt my semi-retirement modus operandi of striking out on great adventures. To the contrary, what I learned from spending nearly two years co-caring for my aging mother is that end-of-life care is, indeed, every bit an adventure on many levels. And of course, it’s certainly about aging. [Click on the title's link to continue reading this inspirational caregiver story.]
'Dear God, I need help on this one': How a prayer from Hildegard House's founder was answered
03/03/25 at 02:15 AM'Dear God, I need help on this one': How a prayer from Hildegard House's founder was answered ABC News WHAS-11, Louisville, KY; by Doug Proffitt; 2/27/25 Up from the dirt of an 1800's camelback style house on Story Avenue, in Louisville’s Butchertown neighborhood, Karen Cassidy has a plan. "We’re standing on the original dirt floor of the house, that’s the way they built things," she said. She's the former nurse who founded the Hildegard House 11 years ago. Hildegard is a place for the terminally ill to die in peace. With three private bedrooms and around the clock care, it’s a peaceful haven for people who have no home, or loved ones to care for them, so that they may die with dignity. ... It is funded successfully and solely by both private donations and foundations. Now, in the new space, the plan is to build a refuge called the "Center for Care Giver Education" at the Story Avenue location. “This is for caregivers that are at home trying to maintain their loved ones at home," Cassidy said. ... At the new center they will teach families the basics. ... The owners of the historic Story Avenue house helped by cutting her a deal. She says they told her they would sell it to her $100,000 less than what they put it on the market for. Donations from foundations helped her buy the house with cash. But then, she got estimates for the renovation and restoration totaling $450,000. “I said 'dear God, I need help on this one,'” Cassidy said. Then God, from that prayer, appeared in a most modern way. ... “Two weeks later I got an email from an attorney who said, ‘Can you meet me for lunch? Somebody has left their estate to Hildegard House,'" she told WHAS11 News. "It was $450,000. That did it!” The out-of-the-heavens donation means they are funding the renovation, top to bottom with cash. Nothing will be owed. Cassidy later learned why that money came her way. “We had cared for someone’s mother and they were so grateful,” she said. Editor's note: I am honored to serve on the Board of Directors of the Hildegard House. I continue to be amazed at the profound care and superb systems envisioned, implemented and moved forward by Karen Cassidy, her staff, 80+ volunteers, the Board, and community support.
Hospice caregiver spends days with family during Arkansas winter storm
02/25/25 at 03:30 AMHospice caregiver spends days with family during Arkansas winter storm NBC News KARK - Maumelle, AR; by Neal Zeringue; 2/20/25 In icy conditions, many would not risk going up and down the steepest hills, but in-home care workers have. One in Maumelle even stayed away from home for days to be with a family on top of a dangerous hill. ... [Nelda] Michael’s husband has dementia and has had in-home care for 15 months. He needs constant attention. Because of the ice, nurses with Arkansas Hospice could not see him Wednesday, but on Thursday they were determined to give him care. However, Morgan Bartley and Michelle Kelley’s cars slid down the hill on one side of the road the Michaels live on top of. KARK 4 News found them stuck and helped them up from the other end of the road. “We were prepared to park our vehicles at the bottom and hike a mile up. Anything to get to him and to her,” Bartley said. [Click on the title's link to continue reading.]
Pennsylvania lawmaker introduces ‘No Patient Left Behind Act’
02/25/25 at 03:00 AMPennsylvania lawmaker introduces ‘No Patient Left Behind Act’ WHTM - PA Homepage; by Brady Doran; 2/19/25 A Pennsylvania lawmaker introduced a bill that would ensure hospitals have visitation policies that balance patient needs with public health protocol. According to Sen. Doug Mastriano (R-33), elderly patients left alone in hospitals experience faster physical and cognitive decline. The No Patient Left Behind Act, introduced by Mastriano, would ensure Pennsylvanians with medical treatment or end-of-life care have support by their sides. “Hospitals should be places of healing. However, for far too many, they have become places of loneliness, despair, and unnecessary suffering,” Mastriano said.
Still Waters Hospice hosts "Sweet Treats Celebration" for Valentine’s Day
02/19/25 at 03:00 AMStill Waters Hospice hosts "Sweet Treats Celebration" for Valentine’s Day ABC KLAX 31, Alexandria, LA; by Sarah Drell; 2/17/25Still Waters Hospice in Alexandria, Louisiana, hosted a "Sweet Treats Celebration" on Valentine’s Day, bringing joy to patients and their families. ... Sarah Zito, Owner, Nurse Practitioner, and Administrator of Still Waters explained why they hosted this lovely event. “We wanted to put this on today because not everyone's Valentine's Day looks the same. And we have a lot of people in our community that are celebrating their first Valentine's Day without their loved ones. And we have a roomful of people and that situation. And so we wanted to take this opportunity and show them that they are still love and we value them and we grieve with them.” ... The "Sweet Treats Celebration" was more than just an event; it served as a testament to the hospice’s dedication to holistic care.
Americans who’ve become caregivers rose by a third in 10 years
02/18/25 at 03:00 AMAmericans who’ve become caregivers rose by a third in 10 years The Daily Sentinel, Grand Junction, CO; 2/14/25 A growing numbers of family members now provide care for older adults who live at home or in residential care settings, a new study shows. Their ranks increased 32%, from 18.2 million to 24.1 million, between 2011 and 2022, according to new research in the journal Health Affairs. The number of hours that these folks spent caring for older adults with dementia jumped by nearly 50%, from an average 21.4 hours per week in 2011 to 31 hours in 2022. Exactly what is driving the increase in family or unpaid caregiving is not fully understood, but researchers speculate that it may be due to a rise in the number of people who live with the folks who they assist. For the study, researchers culled data from the National Health and Aging Trends Study (NHATS) and the National Study of Caregiving (NSOC) in 2011 and 2022.
Hearts for Hospice showers patients with love
02/18/25 at 03:00 AMHearts for Hospice showers patients with love Davidson Local, Davidson County, NC; 2/14/25 As people prepare to shower each other with love each Valentine's Day, the annual Hearts for Hospice provides comforting packages to more than 350 patients and families. Staff says that the community initiative is a highly regarded event at [Hospice of Davidson County] HODC, eagerly anticipated by volunteers and staff each year. This Valentine-themed event begins with contributions of sweet treats, stuffed animal items, and personal care items donated by individuals, civic groups, and the business community. Following the drop-offs, a team assembles Valentine-themed goodie bags filled with delightful treats. These lovingly prepared gifts are then delivered to participating patients throughout the service area on Valentine’s Day, creating an opportunity to spread joy, warmth and affection.
The number of family caregivers helping older US adults increased from 18 million to 24 million, 2011–22
02/17/25 at 03:00 AMThe number of family caregivers helping older US adults increased from 18 million to 24 million, 2011–22 Health Affairs; by Jennifer L. Wolff, Jennifer C. Cornman, and Vick A. Freedman; 2/25 The evolving composition and experiences of the family caregiver workforce have profound ramifications for public policy but are not well understood. Drawing on the linked National Health and Aging Trends Study and National Study of Caregiving, we found that the numbers of family caregivers providing help to older adults increased by nearly six million between 2011 and 2022, rising from 18.2 million to 24.1 million. ... For family caregivers as a whole, challenges persist, and for those assisting people with dementia, tailored surveillance and effective support programs are needed.
Death Matters: The gift of presence: Tips for visiting someone who is dying
02/17/25 at 03:00 AMDeath Matters: The gift of presence: Tips for visiting someone who is dying Squim Gazette, Squim, WA; by Jeanette Stehr-Green, Volunteer Hospice of Clallam County; 2/12/25 We sometimes avoid visiting friends or family members who are terminally ill. We make lots of excuses. We don’t know what to say. We don’t know how to act. We don’t want to be a bother. The hard truth is that dying, the final stage of life, can be a lonely experience without the presence of family and friends. A visit during this time can bring comfort to the dying person and their family. It can also provide an opportunity to share feelings, reminisce, and say goodbye. Visiting a dying person seems difficult because most of us lack experience. It only takes a little courage and a few ideas to create a meaningful moment. ... Editor's note: These excellent guidelines empower hospice patients' families and friends--and protect patients' vulnerable energies and emotions--in multiple settings across the trajectory of dying. How might you adapt these for your own patient/caregiver support and community outreach?
Delivery driver’s heartbreaking realization after he picks up hospital job
02/17/25 at 03:00 AMDelivery driver’s heartbreaking realization after he picks up hospital job Newsweek Life; by Lydia Patrick; 2/13/25 A food delivery driver's shift took an unexpected and poignant turn when he accepted a hospital order that carried a heartbreaking significance. Reddit user u/ondasher808, who chose to remain anonymous, shared that delivering to hospitals is common, as many staff members place orders. However, this particular request included a room number in the ICU, which does not allow direct deliveries. ... He called the customer upon arrival. ... The woman who answered thanked him and assured him that someone would come down to retrieve the food. Then, she added something that left him stunned-it was "someone's final meal." ... Five minutes later, a nurse arrived to collect the bag. ... "I noticed that the bag contained a Happy Meal and that was a bit of a shock because I didn't expect it." ... Later that night, he turned to Reddit to process his emotions, surprised by the outpouring of support from fellow drivers, customers who had ordered final meals for loved ones, and health-care workers who had witnessed similar moments.
Father of 3 stages 'Grief Photo Shoot' to remember wife who died of cancer (exclusive)
02/14/25 at 02:00 AMFather of 3 stages 'Grief Photo Shoot' to remember wife who died of cancer (exclusive): CJ Infantino and his late wife Ariana were high school sweethearts People; by Jordan Greene; 2/13/25 There are many moments forever etched in CJ Infantino’s memory, but one stands out above the rest. It was Sept. 5, 2020, when CJ and his wife, Ariana, sat their three kids down at the kitchen table in their California home and told them that Ariana, 35, was going to die. ... Ariana was diagnosed with stage 4 breast cancer in 2015 — coincidentally, on CJ’s 30th birthday. "We spent the next five-and-a-half years trying to live as much life as we could. We wanted to pack 30 years into 10," CJ says. ... After her last breath, he recalls that everyone "just went silent." ... Right away, the father of three felt isolated, as if no one could relate to his experience. He found that the things people said were often unhelpful and, at times, unintentionally harmful. ... "I really just wanted to show my kids that, even though she’s not physically here, it’s okay to talk about her. We’re still allowed to laugh, even when we’re in so much pain," he says. "I remember the first moment I laughed or felt a hint of joy, and I thought, 'Are we allowed to do this?' " ... [Click on the title's link for the inspirational story and family photos before and after Ariana's death.]
What do you say to a friend who is dying
02/13/25 at 03:00 AMWhat do you say to a friend who is dying Equity Atlas; 2/12/25 It’s a situation no one wants to find themselves in – facing the imminent death of a friend. The emotions that come with this can be overwhelming, leaving you at a loss for words. You may find yourself grappling with what to say, how to act, and how to provide support during such a difficult time. In this article, we will explore some insights on what to say to a friend who is dying, as well as provide guidance on how to navigate this delicate and heartbreaking situation.
Bringing children home: Kentucky Children’s Hospital’s approach to pediatric end-of-life care
02/12/25 at 03:00 AMBringing children home: Kentucky Children’s Hospital’s approach to pediatric end-of-life care American Hospital Association; 2/8/25 When parents have a child with a serious illness, all they want is for their child to get well. If that no longer becomes a possibility, often all they want is to bring their child home. Most — around 70% — of pediatric deaths related to illness occur in the hospital, but the Kentucky Children’s Health Pediatric Advanced Care Team offers some families the chance to transport their child home using life-sustaining technology. That’s not an easy feat; these patients are medically fragile, and the outcome can be unpredictable. A team made up of hospital administrators, hospice providers, coroner and the transportation team comes up with a plan. The child’s parents complete an informed consent procedure, recognizing that their child may not survive the journey home. The transportation team tries to ensure that the journey is as comfortable as possible, as well as planning what to do if the child’s condition deteriorates on the journey. If that happens, he or she will be supported as they pass without resuscitation efforts.
Family caregivers who support older relatives are on the rise due to aging-in-place preferences
02/07/25 at 03:00 AMFamily caregivers who support older relatives are on the rise due to aging-in-place preferences HousingWire; by Chris Clow; 2/5/25 The number of family caregivers who support older relatives in either home-based or residential care settings increased by 32% between 2011 and 2022 ... Researchers also say this could be partially tied to rising preferences for aging in place. This is according to a joint study from the Johns Hopkins Bloomberg School of Public Health and the University of Michigan’s Institute for Social Research. Additional support came from the National Institute on Aging, a division of the National Institutes of Health (NIH). The raw number increase went from 18.2 million in 2011 to 24.1 million in 2022. The study also found that the number of care hours provided by family and other unpaid caregivers increased by 50% during that time. The average number of weekly hours for such care stood at 21.4 in 2011, but it jumped to 31 in 2022, nine hours short of what is widely considered a full-time weekly work schedule.
New report details financial, emotional toll of Parkinson’s on family caregivers
02/07/25 at 03:00 AMNew report details financial, emotional toll of Parkinson’s on family caregivers McKnights Home Care; by Foster Stubbs; 2/4/25 A new report sheds a light on the unique challenges faced by family caregivers who care for loved ones with Parkinson’s disease (PD). The report, Parkinson’s Disease Caregiving in the US, features insights from secondary analysis and supplementary interviews with 10 PD caregivers. These caregivers average 31 hours of unpaid care per week; half of interviewed caregivers exceed 100 hours each week, according to the report. The National Alliance for Caregiving (NAC), with support from The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and Arcadia University, released the report.
Advice on navigating complex caregiving
02/05/25 at 03:00 AMAdvice on navigating complex caregiving Philadelphia Corporation for Aging; by Jay Nachman; 2/3/25 The biggest challenge for someone taking care of a parent or loved one is “accepting your loved one for who they are now. Not who you knew them to be,” said Dr. Kiplee Bell, an internal medicine physician who has created a practice focused on caregiving. ... It’s not uncommon, according to Bell, for minority community members to live in multi-generational households. Additionally, in some homes, grandparents are raising grandchildren. Then there is the flipside, where young children are helping to take care of their older family members. And when English is not a native tongue, language barriers can preclude an adequate understanding of how to navigate the social service and health care systems. ...
Shameless star Justin Chatwin had a pivotal Law & Order role in a heartbreaking episode
02/04/25 at 03:10 AMShameless star Justin Chatwin had a pivotal Law & Order role in a heartbreaking episode NBC; by Jill Sederstrom; 1/30/25 Attorney Nolan Price found himself at odds with his brother, played by Chatwin, as the siblings were forced to make a painful decision. ... Justin Chatwin — who rose to fame on the hit comedy-drama series Shameless — took on the role of Thomas Price, the brother of Executive Assistant District Attorney Nolan Price, in “The Hardest Thing" episode, which premiered on January 30, 2025. The siblings disagreed about how to handle their father’s failing health. ... The brothers had to decide whether they wanted to put in a feeding tube, which could prolong their dad’s life by a few months, or “manage his pain levels” to “make his passing as comfortable as possible," a doctor explained.
Behind the scenes: Caring for the caregivers
01/31/25 at 03:00 AMBehind the scenes: Caring for the caregivers Harvard Magazine; by Lydialyel Gibson; 1/30/25 When I was in seventh grade, my best friend’s father was diagnosed with early onset Alzheimer’s. He was in his late 50s. ... My sharpest memories from that time are of my friend’s shock and grief as her father deteriorated, and of her mother’s incredible stamina. ... That was more than 30 years ago. ... [When] I heard about the work of Christine Ritchie, a geriatrician and palliative care physician who studies the caregiver experience, I knew I wanted to talk to her. Ritchie directs the Dementia Care Collaborative at Massachusetts General Hospital (MGH) and teaches at Harvard Medical School, and has been doing this research for decades. ... The caregivers are the heart of this story. Across the country there are more than 11 million other people like them, who continue to fill these difficult, precious, necessary roles. [Click on the title's link to continue reading this important article.]
How a St. Louisan helps her community navigate death by filling out advance directives
01/30/25 at 03:00 AMHow a St. Louisan helps her community navigate death by filling out advance directives NPR - St. Louis on the Air; by Jada Jones; 1/28/25 When Vivial Lopez’s grandmother was on life support, her family was faced with many difficult decisions. Her grandmother did not have an advance directive, so her family did not know her final wishes. The experience of navigating her grandmother’s end-of-life plan without any direction led Lopez to advocate for families to prepare advance directives - especially those in Black and brown communities. Approximately only on ein three adults complete an advance directive for end-of-life care. Lopez works with the Gateway End-of-Life Coalition to empower members of the St. Louis community to navigate death through quality end-of-life care. Editor's note: Click here for AARP - Find Advance Directives Forms by State, also available in Spanish.