Literature Review
All posts tagged with “General News | Caregiver News.”
A leading authority in senior care and services: Seniors Blue Book
04/25/24 at 03:00 AMA leading authority in senior care and services: Seniors Blue Book Iowanews Headlines; 4/23/24Seniors Blue Book, a trusted name in senior care and services, has been recognized as a leading authority in the industry. With a dedication to improving the lives of seniors and their families, Seniors Blue Book has consistently demonstrated its commitment to providing high-quality, reliable information and resources for the senior community. ... For over 40 years, Seniors Blue Book has been at the forefront of the senior care and services industry, offering a wide range of resources and solutions designed to improve the lives of older adults and their families.
Operator hopes to expand residents’ digital literacy with unique tech concierge program
04/25/24 at 02:00 AMOperator hopes to expand residents’ digital literacy with unique tech concierge program McKnights Senior Living, by John O'Connor; 4/22/24Beginning in June, residents in some BHI Senior Living communities will be able to take advantage of a unique tech concierge program. For residents, the new service will feature on-demand tech support, alongside virtual assistance, in-home appointments and a curriculum of tailored enrichment classes and training sessions. For the operator, the program will deliver immediate tech support while also gathering and analyzing data that can be used to inform future technology investments and strategic moves.Editor's Note: How might you adapt this creative service for the persons you serve? What differences might it make in patient care? In hospice caregiver/family satisfaction? What tech support do you have for your staff, especially when they are making home or other in-the-field visits? Relating this to today's articles on the importance of "trust" and "nurses' negativity about AI," do your innovative technologies improve or impede the patient/family's needs and experiences with you?
Care for Alzheimer's on Medicaid is unorganized, frustrating, inhuman
04/18/24 at 03:00 AMCare for Alzheimer's on Medicaid is unorganized, frustrating, inhumanThe Indianapolis Star, by Darcy Metcalfe; 4/14/24What it is like to die of Alzheimer’s in America? Without a doubt, it is nothing as it is portrayed on NBC’s hit series This is Us. At the end of this series, the character Rebecca dies from Alzheimer’s and falls peacefully asleep, snuggly tucked in her warm bed at home, surrounded by family and 24-hour skilled nursing care. Throughout the six seasons of This is Us, I simultaneously witnessed my father’s slow dying from Alzheimer’s in a reality that was worlds away from Rebecca’s. ...
NHPCO's CaringInfo program launches new consumer blog, insights
04/17/24 at 03:00 AMNHPCO's CaringInfo program launches new consumer blog, insights NHPCO Press Release; 4/15/24 CaringInfo, a program of the National Hospice and Palliative Care Organization (NHPCO), has launched a new consumer blog, Insights, offering timely and practical content on serious-illness care and services from a variety of perspectives in both English and Spanish. ... CaringInfo also offers more information about advance directives and free advance directives and instructions for all 50 states plus Puerto Rico and Washington DC in both English and Spanish, downloadable as PDF files.
Readers share stories of their loved ones’ deathbed visions
04/12/24 at 03:00 AMReaders share stories of their loved ones’ deathbed visions DNYUZ; 4/10/24 When I started reporting “What Deathbed Visions Teach Us About Living,” about the visions, often of loved ones, that some people have in the final stretches of their lives, I had no idea just how universal the experience was. But within minutes of the story’s publication, readers took to the comments section to post their own memories of having witnessed the phenomenon. The stories were rich, deeply personal, and seemed to confirm something that the researcher featured in my story, Dr. Chris Kerr, knew in his years of studying such visions: they bring peace to the dying and solace to the living. Family members wrote in with stories of watching loved ones have visions, as did health care workers, who had years of experience witnessing them. [Click on the article's title to read more stories.]
'I just want to take everybody fishing': Dose of the Coast provides a much needed respite
04/11/24 at 03:30 AM'I just want to take everybody fishing': Dose of the Coast provides a much needed respite Nola.com - Louisiana Inspired, by Jack Barlow; 4/9/24 Dealing with a serious illness is all consuming. One nonprofit strives to give people suffering life-altering illnesses a much-needed break. Baton Rouge-based Dose of the Coast takes people dealing with cancer and other similar illnesses out for a day on the water. ... The genesis of the organization began in 2014, with a fishing trip for Ashley Ferguson's father, Donald Walker. ...
Family caregivers can help shape the outcomes for their loved ones – an ICU nurse explains their vital role
04/11/24 at 03:00 AMFamily caregivers can help shape the outcomes for their loved ones – an ICU nurse explains their vital role The Conversation, by Beth Daley; 4/9/24 The floor nurse had just told me that my new patient – let’s call her Marie – would not stop screaming. ... No matter how much I comforted her, ... she was screaming for her daughter, April, who was on her way. ... As a seasoned bedside critical care nurse, I see firsthand the benefits that family caregivers bring to patient care in the hospital. I also witness the emotional stress that caregivers experience when their loved one comes to the ICU.
Odom co-authors American Cancer Society Caregiver Services Guide
04/11/24 at 03:00 AMOdom co-authors American Cancer Society Caregiver Services GuideThe University of Alamaba at Birmingham School of Nursing, by Laura Gasque; 4/9/24To help meet the needs of the growing number of people caring for family members and friends with cancer, the American Cancer Society has released the guide “Developing Caregiver Clinical Services: A Toolkit for Cancer Centers and Staff,” co-authored by University of Alabama at Birmingham School of Nursing Associate Professor and holder of the Doreen C. Harper Endowed Professorship in Nursing, J. Nicholas Odom, PhD, RN, ACHPN, FAAN. According to the ACS, this toolkit is the first of its kind to provide the tools and resources that oncology leaders, clinicians and staff members can use to implement for caregiver clinical services.Editor's Note: Click here to download this free, excellent resource.
People with dementia and their care partners have an increased loneliness risk
04/10/24 at 02:00 AMCare partners have an increased loneliness risk HCP Live, by Chelsie Derman; 4/8/24 The study highlights how the experience of loneliness for care partners of people with dementia changes relationship roles throughout the dementia trajectory. A new study sought to widen the knowledge gap on why people with dementia and their care partners have an increased loneliness risk and identified primary themes: losing external social networks, losses with the dyadic relationship, and the burden of a care partner supporting their loved ones.Editor's Note:
How to talk about death
04/09/24 at 03:00 AMHow to talk about death Maine Public Radio, by Jennifer Rooks and Cindy Han; 4/5/24 Talking about death is not easy. We'll discuss why stigma and discomfort can impede end-of-life conversations, for the person who may be nearing death as well as for friends and family members. We'll find out how to address the emotional and spiritual aspects of dying. And we'll discuss the more practical legal, financial and medical matters to handle before and after someone has died.Panelists: Julie Weiss, social worker, Hospice of Southern Maine; Dr. Paul Segal, nephrologist, assistant professor of medicine; helped create curriculum for end-of-life doula students, University of New England; Dr. Fernando Moreno, palliative care specialist; medical director, Hospice of Southern Maine
Remembering my daughter while being a cancer survivor myself
04/04/24 at 03:00 AMRemembering my daughter while being a cancer survivor myself Coping, by Dottie Monroe; 4/1/24 Her name was Jill, my daughter. She was a beautiful, sensitive woman who loved animals and the joys of nature. ... Can you imagine that there is any parent in the world who wouldn’t give up their own life to save their child? Or question why my child and not me because that seems so wrong? Sometimes there is no explaining the why of things, although I gave it thought for a long time. Then one day I was done with “why.”
As America’s population ages, women shoulder the burden as primary caregivers
04/04/24 at 03:00 AMAs America’s population ages, women shoulder the burden as primary caregivers PBS News; by Ali Rogin, Claire Mufson, and Satvi Sunkara; 3/30/24 Currently, 1 in 6 Americans is older than 65, a number that’s projected to rise to 1 in 4 by 2050. As older Americans’ needs for medical care and other support grow, women bear the biggest part of the burden of caring for them. Ali Rogin speaks with some women about their experiences and author Emily Kenway about the often unseen costs of caregiving.
How to look after your mental health while packing up Mum or Dad’s home
04/03/24 at 03:00 AMHow to look after your mental health while packing up Mum or Dad’s home The Conversation, 3/31/24 So Mum or Dad has died, or moved to aged care, and now you’ve got to pack up their house. It’s a huge job and you’re dreading it. It’s normal to feel grief, loss, guilt, exhaustion or even resentment at being left with this job. So how can you look after your mental health while tackling the task?
From doctor to family: Witnessing both sides of end-of-life care
03/29/24 at 03:00 AMFrom doctor to family: Witnessing both sides of end-of-life care MedPage Today's KevinMD.com, by Jessica Bloom, MD; 3/27/24We all have those moments in medicine when we know that care has become more futile. Then we do everything in our power to educate, support, gently guide, and give permission to patients and families. There are moments that treating for a cure goes against our tenet to “first do no harm.” ... Specialists and his regular physicians sat with us, listened to my family’s questions, and offered kindness along with medical advice. They gently helped my siblings let go of futile searching for treatments. ...
The burden of getting medical care can exhaust older patients
03/28/24 at 03:00 AMThe burden of getting medical care can exhaust older patients Navigating Aging, by Judith Graham; 3/27/24 [Ishani Ganguli] is the author of a new study showing that Medicare patients spend about three weeks a year having medical tests, visiting doctors, undergoing treatments or medical procedures, seeking care in emergency rooms, or spending time in the hospital or rehabilitation facilities. ... [Additionally,] more than 1 in 10 seniors, including those recovering from or managing serious illnesses, spent a much larger portion of their lives getting care — at least 50 days a year. ... When [treatment burden becomes overwhelming], people stop following medical advice and report having a poorer quality of life, the researchers found.
Community convening aims to guide solutions to inequities in caregiving
03/28/24 at 03:00 AMCommunity convening aims to guide solutions to inequities in caregiving UMass Chan Medical School, by Susan E.W. Spencer; 3/26/24Jennifer Tjia, MD, MSCE, knows from her experience as a researcher and geriatrician how demanding the role of caregiver can be and how structural barriers impact patient outcomes. She wants to see research that drives solutions to health inequities. The second community convening of the Equity in Caregiving Project, a $3.8 million, five-year grant from the National Institutes of Health, which Dr. Tjia, professor of population & quantitative health sciences, co-leads, aims to advance the conversation about what challenges family and clinical caregivers of people with serious illness are experiencing.
Meaningful conversations to have with your loved one
03/28/24 at 03:00 AMMeaningful conversations to have with your loved oneMediaFeed.org, by Merritt Whitley; 3/27/24“One of the most important concepts in the field of grief and loss is that people drift in and out of the awareness of dying,” says Kenneth Doka, a senior consultant to the Hospice Foundation of America, and professor emeritus of gerontology at the graduate school of The College of New Rochelle. “Sometimes they do talk about it, sometimes not. The dying one should control the agenda. Don’t force conversations on them.” When your loved one feels ready to talk, the following suggestions can be comforting ways to begin a conversation: ...
ND HHS launches program for relatives providing care
03/27/24 at 03:30 AM[Pediatrics] North Dakota Health and Human Services announces new pilot program CBS KX News, by Nathaniel House; 3/26/24 North Dakota Health and Human Services (HHS) has announced that family members who provide extraordinary care to either a child or adult enrolled in an eligible North Dakota (ND) Medicaid 1915(c) waiver may receive payments from the state through the new Family Paid Caregiver pilot program. State funding for the pilot program was approved from the passage of Senate Bill 2276 during the 2023 legislative session. Eligible ND Medicaid 1915(c) waivers include the Autism Spectrum Disorder Birth Through 17 Waiver, Children with Medically Fragile Needs Home and Community-Based Services Waiver, Children’s Hospice Home and Community-Based Services Waiver and the Traditional Individual with Intellectual Disabilities and Developmental Disabilities Home and Community-Based Services Waiver.
‘You can become a husband again’
03/27/24 at 02:15 AM‘You can become a husband again’ National Association of Federal Retirees (Canada); by Jennifer Campbell; 3/25/24When his wife got a much-needed bed in palliative care, a perceptive nurse told Brian Hills he could concentrate on being a husband again, instead of a caregiver.
4 things nobody tells you about watching a loved one die of cancer
03/26/24 at 03:00 AM4 things nobody tells you about watching a loved one die of cancer The New York Post; by Jessica Ariel Wendroff; 3/23/24 ... “The surgery was successful. However, tests after the operation found cancer had been present,” the Princess of Wales, 42, revealed in a bombshell videotaped statement Friday. ... While the royal insisted she is “well and getting stronger every day,” other patients’ real pain begins when the cancer has spread too far and chemotherapy and radiation no longer work, so doctors stop treatment. As the daughter of a Stage 4 bladder cancer patient, I’ve empirically learned four realities that people usually don’t talk about ...
The process of dealing with death is experiencing rebirth in a less-religious Pittsburgh
03/26/24 at 03:00 AMThe process of dealing with death is experiencing rebirth in a less-religious Pittsburgh Digital Daily; by Med St-Esprit, PublicSource; 3/24/24 Tanisha Bowman, of the North Side, a palliative care social worker for Butler Health System and a “death walker,” walks amongst the old graves in St. Mary’s Cemetery. ... From green burial to glass orbs containing ashes, the norms of funerals and burials are broadening as religious affiliation declines. ... According to a 2021 survey by Pew Research, 3 in 10 American adults are religiously unaffiliated. Data compiled by Pew Research about the Pittsburgh metro region found that 50% of adults in the region describe religion as “very important” and nearly 20% consider themselves not religious. Shifts in faith and worship mean families as well as businesses related to death and dying have had to alter their approaches.
My Mother is in Hospice Care
03/26/24 at 02:30 AMMy Mother is in Hospice Care Reformed Journal, by Doug Browser; 3/25/24 My 96-year-old mother entered hospice care a few months ago. For a while, it seemed as though she would go on forever, even though we knew that was unlikely. ... [Here’s] the thing, maybe the most striking thing I’ve learned while sitting with my mom over these last few months. Loss of memory can sometimes be a gift. ... I realize that there can be a kind of grace in not remembering a few things. ... We don’t have to go back and revisit any of it. We have this time together. ... And together we are a mom and a son, present in the moment, a moment with a surprising amount of grace. I never expected to get there.
‘I’m kinder and more compassionate’: actor Greg Wise on men and grief
03/26/24 at 02:00 AM‘I’m kinder and more compassionate’: actor Greg Wise on men and grief The Guardian, by Tim Jonze; 3/24/24 How the tragic death of his beloved sister, Clare, gave Greg Wise a new outlook on navigating the end of life. ... Wise is best known as an actor. He met [his wife, Emma] Thompson on the set of 1995’s Sense and Sensibility and has notched up more than 30 years in film and TV. But these days he has carved out a niche for himself as someone who wants to change the way we think, and talk, about the end of our lives. “Not having a proper relationship with one’s grief is one of the great ills of the world,” is how he puts it. "[Without] witnessing and accepting our own pain, we can’t have empathy – proper empathy. I don’t think we can see someone else’s suffering until we can see our own.”
Report: Alzheimer's and dementia caregivers total 840K in Florida, bear heavy burden
03/25/24 at 03:00 AMReport: Alzheimer's and dementia caregivers total 840K in Florida, bear heavy burden NPR WMFE, by Joe Byrnes; 3/22/24The number of Floridians serving as caregivers for people with Alzheimer's and other dementias is an estimated 840,000, an increase of 13,000 in just one year, according to an annual report from the Alzheimer's Association. Caregiving takes a toll on families hit by the degenerative brain disease, but a new program from the Centers for Medicare and Medicaid Services could lessen that burden. ... [This] promising resource in the works is the Guiding an Improved Dementia Experience Model, an approach that includes the patient and caregiver. The GUIDE Model -- through the Centers for Medicare & Medicaid Services -- starts in July.
Lubbock author publishes "I'm on Hospice: A Children's Book"
03/20/24 at 02:00 AMLubbock author publishes "I'm on Hospice: A Children's Book for Processing & Coping With a Terminal Illness" CBS WDTV 5; book is by Sydney Crane (author) and Nina Broen (illustrator); tv interview 3/14/24While a child is in the care of a hospice team, they will likely hear words and phrases that they do not know or have questions they are unsure how to ask. Presenting information through Riley's story, I'm On Hospice encourages conversations and facilitates a space for questions, discussion, and understanding within any relationship dynamic surrounding a terminally ill child. Riley is a nine-year-old boy whose life purpose is all about baseball, and he shares how each of his hospice caretakers helps him be comfortable and safe.Editor's Note: This book is available on Amazon and Kindle. The description above is from Amazon, as the tv interview is video.