Literature Review

Father of 3 stages 'Grief Photo Shoot' to remember wife who died of cancer (exclusive): CJ Infantino and his late wife Ariana were high school sweethearts People; by Jordan Greene; 2/13/25 There are many moments forever etched in CJ Infantino’s memory, but one stands out above the rest. It was Sept. 5, 2020, when CJ and his wife, Ariana, sat their three kids down at the kitchen table in their California home and told them that Ariana, 35, was going to die. ... Ariana was diagnosed with stage 4 breast cancer in 2015 — coincidentally, on CJ’s 30th birthday. "We spent the next five-and-a-half years trying to live as much life as we could. We wanted to pack 30 years into 10," CJ says. ... After her last breath, he recalls that everyone "just went silent." ... Right away, the father of three felt isolated, as if no one could relate to his experience. He found that the things people said were often unhelpful and, at times, unintentionally harmful.  ... "I really just wanted to show my kids that, even though she’s not physically here, it’s okay to talk about her. We’re still allowed to laugh, even when we’re in so much pain," he says. "I remember the first moment I laughed or felt a hint of joy, and I thought, 'Are we allowed to do this?' " ... [Click on the title's link for the inspirational story and family photos before and after Ariana's death.] 

Perceptions of family caregiving change across demographic lines Hospice News; by Holly Vossel; 12/12/25 Family caregiver burden may be falling heavier on the shoulders of certain demographic groups compared to others, a new survey has found. Perceptions of family caregiver roles and responsibilities vary vastly across different age groups, geographic regions and genders, a new survey from BURD Home Health has found. Survey responses were analyzed by demographics such as gender, income, age and geographic location. Among the main goals was to identify patterns and disparities in how caregiving duties are perceived and distributed, according to Justin Colline, director of marketing at BURD Home Health.Editor's Note: Key findings from the source survey include ..

A flight to the North Pole Fairfax County Times, Reston, VA; by Kristin Johnson; 12/12/25 Last Saturday morning [12/6], Gate D15 at Dulles Airport was filled with families wearing Christmas sweaters and pajamas. They were waiting for a 10 a.m. departure to the North Pole. The Fantasy Flight is a 30-minute plane ride that takes off annually on the first weekend in December. The event is for the families of children currently in hospice or long-term care. ... The mood at the gate is festive, but a little chaotic. The busyness helps to dull Tabitha Johnson’s grief. Her son died in hospice three weeks ago. She decided the family should still come. 

AARP: 55 percent of family caregivers use tech to coordinate care McKnights Home Care; by Donna Shryer; 12/9/25 Technology adoption is surging on both sides of the caregiving equation. AARP estimates there are about 63 million unpaid caregivers nationwide, and among those caregivers age 50 and older, 55% now use one or more digital tools to manage routines, coordinate care or track health. Among all adults age 50+ (unpaid caregivers and care recipients), 78% say they rely on technology to stay connected with friends and family, according to AARP’s newly released 2026 Tech Trends and Adults 50-Plus report.

More people are caring for dying loved ones at home. A New Orleans nonprofit is showing them how. KFF Health News; by Halle Parker; 11/25/25 Liz Dunnebacke isn’t dying, but for a recent end-of-life care workshop in New Orleans, she pretended to be. Dunnebacke lay still atop a folding table that was dressed as a bed, complaining that her legs hurt. Registered nurse Ana Kanellos, rolling up two small white towels, demonstrated how to elevate her ankles to ease the pain. ... About 20 New Orleans residents listened intently, eager to learn more about how to care for loved ones at home when they’re nearing the end of their lives. 

Rainbow 35th anniversary cookbook available Watertown Daily Times, Jefferson, WI; by Kenyon Kemnitz, Rainbow Community Care; 11/22/25 Rainbow Community Care, a trusted independent healthcare provider serving Jefferson, Dodge, and surrounding counties, is excited to announce that its commemorative 35th Anniversary Cookbook, “Nourishing Body & Soul” is officially available for purchase. This community-sourced cookbook features over 300 recipes. It is a beautiful, heartfelt keepsake filled with the best-kept family secrets and cherished stories from the very people who built Rainbow: volunteers, local families, dedicated healthcare workers, and community supporters. All have been part of Rainbow’s 35-year journey of providing compassionate care to rural South Central Wisconsin. “This is more than just a cookbook,” said Rainbow Community Care Clinical Liaison Dana Traynere. “Every recipe tells a story of connection and community, ...Editor's Note: Yes, this creative fundraiser is "more than just a cookbook" with its family recipes filled with memories and relationships from the past for the present and family meals ahead. What favorite family recipes--filled with stories of loved ones who have died--will grace your Thanksgiving table tomorrow?

Letters without limits: Jesse Tetterton The Johns Hopkins News-Letter; by Omkar Katkade; 11/22/25 Letters Without Limits, founded by students at Johns Hopkins and Brown University, connects volunteers with palliative care and hospice patients to co-create “Legacy Letters.” These letters capture memories, values and lessons that patients wish to share, preserving stories that might otherwise be lost. By honoring these voices and preserving legacies, Letters Without Limits hopes to affirm the central role of humanism in medicine, reminding us that every patient is more than their illness and that their voices deserve to be heard.

Balancing caregiving and personal well-being: The role of palliative care WISHTV.com-8, Indianapolis, IN; by Alfonso Ruvalcaba Trujillo; 11/17/25 Nearly 60 million Americans are providing unpaid care for loved ones facing serious illness, often without the necessary support, according to recent reports. ... Dr. Michael Gabriel, National Medical Director for Carelon Palliative Care, explains that palliative care offers an extra layer of support alongside regular medical treatment, focusing on improving quality of life by addressing physical, emotional, and spiritual needs.

Hospice of Orange & Sullivan’s sixth annual community breakfast features caregivers’ emotional stories of courage, compassion and dignity FocusMedia, Middletown, NY; Press Release; 11/7/25 Hospice of Orange & Sullivan Counties, Inc.’s Sixth Annual Community Breakfast celebrated the profound difference Hospice makes through caregivers who shared touching stories of supporting patients during their final life journey. The ”Real Stories, Real Impact” panel discussion was moderated by Eric Gatsik, President and CEO of Hospice of Orange & Sullivan Counties and Heather Bell-Meyer, President and CEO of the Orange County Chamber of Commerce. About 115 attendees at the Barn at Villa Venezia connected, reflected and were inspired by stories of love, dignity and trust offered to patients at the end of their lives. 

How to prepare for your death [podcast] MedPage Today's KevinMD.com; podcast by KevinMD with Joseph Pepe; 10/31/25 Physician executive Joseph Pepe discusses his article, “A doctor’s guide to preparing for your death.” He shares practical and compassionate advice on planning for life’s inevitable end, from organizing essential documents and creating a “death folder” to protecting loved ones through wills, trusts, and life insurance. Joseph explains why facing mortality head-on allows people to live more freely and meaningfully. 

A rapid review exploring overnight camps for children with chronic or serious illness as a palliative care intervention for caregiversJournal of Palliative Medicine; by Tracy Fasolino, Benjamin Parry, Alexandra Skrocki, Janice Withycombe, Barry A Garst, Ann Gillard, Ryan J Gagnon, Robert Hollandsworth; 9/25Strong evidence supports the benefits of overnight camp for children with chronic and serious illness, yet little research exists on the role of these camps as a palliative, non-hospice intervention for caregivers. Several camps [included in this study] focused on education and disease management skills, whereas others offered an environment of relaxation and reconnection for the caregivers. Several positive themes emerged from the review, such as social well-being and psychological impact. Evidence suggests overnight camps may serve as a palliative intervention for caregivers of children with serious and chronic illnesses.

Mentorship, military legacy, and making a difference with Susan Combs Advisor Today; podcast with Susan Combs; 10/25/25 Susan Combs is the Founder of Pancakes for Roger, a nonprofit that honors veterans and amplifies their stories through a grassroots “pancakes” movement. She created it after her father, a Major General, asked for pancakes while on hospice, inspiring a campaign, book, and advocacy project.Editor's Note: Though Veteran's Day is only two weeks away, you have time to implement Susan's amazing "Pancakes for Roger" for the veterans you serve, via their annual national (and international) campaigns each February. Explore more information. 

The Family Caregiver Act—Safeguarding the human care chainJAMA Pediatrics; by Eli Y. Adashi, I. Glenn Cohen; 9/25On August 9, 2024, Jay Robert Pritzker, governor of Illinois, signed into law House Bill (HB) 2161 (Public Act 103-0797), likely the nation’s leading caregiving antidiscrimination legislation. The new law, which took effect January 1, 2025, prohibits employment discrimination against individuals saddled with family caregiving responsibilities. It is by dint of the enactment of HB 2161 that Illinois became the sixth state or district to legally require some form of this employee protection. Alaska, Delaware, Maine, Minnesota, New York, and Washington, DC, precede it, though some of these limit their protection to parents. Moreover, HB 2161 defines personal care as activities wherein a family member assumes responsibility for one or all of the basic needs of an ailing relative, replete with the provision of emotional support and/or transportation to medical appointments. A covered family member may include a child, stepchild, spouse, domestic partner, sibling, parent, mother-in-law, father-in-law, grandchild, grandparent, or a stepparent.Assistant Editor's note: "The Human Care Chain"--what a wonderfully descriptive title this is to describe the Illinois law. Those words evoke strong images of connectedness, humanness, caring, compassion, dedication, goodness, and love. As end-of-life and serious illness care providers, we understand the tremendous value, comfort and necessity of The Human Care Chain.