Myotonic dystrophy type 1: palliative care guidelines

Myotonic dystrophy type 1: palliative care guidelines
BMJ Supportive & Palliative Care, by Derek Willis, Tracey Willis, Claire Bassie, Gail Eglon, Emma-Jayne Ashley, and Chris Turner; 1/22/24
Palliative care for adults with neuromuscular conditions is an emerging field. Previous guidelines regarding myotonic dystrophy and palliative care have only mentioned end-of-life care and little else. The following guidelines have been written using national experts as a description of best practice as part of the Dystrophia Myotonica National Care Guidelines Consortium.
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