Literature Review
All posts tagged with “Clinical News.”
My top 10 list for living with cancer
11/22/24 at 03:10 AMMy top 10 list for living with cancer Cure; by Kelly Irvin; 11/19/24 I’m coming up on the ninth anniversary after my diagnosis of stage 4 ovarian cancer in January 2016. As always, this causes me to ponder my life as someone living with cancer for the rest of my life. I ponder why I’m still here and others are not. Have I used this time well? What have I learned that might be of use for other “lifers,” as well as those just starting on this journey? It’s that last question I’m focused on here. The following is my top 10 list for living with cancer when there’s no likelihood of hearing those magical words “cancer-free.”
Rise in pancreatic cancer tied to better detection, study suggests
11/22/24 at 03:00 AMRise in pancreatic cancer tied to better detection, study suggests Becker's Hospital Review; by Elizabeth Gregerson; 11/19/24 The rise in pancreatic cancer diagnoses can be attributed to previously undetected disease and not a rise in cancer occurrence, according to a study published Nov. 19 in the Annals of Internal Medicine. Researchers from Boston-based Brigham and Woman's Hospital and Austin, Texas-based Dell Medical School analyzed U.S. Cancer Statistics and National Vital Statistics System data of adults aged 15-39 from between 2001 and 2019 for the study. Here are five notes from their findings:
The work of hospicing
11/22/24 at 03:00 AMThe work of hospicing Stanford Social Innovation Review; by Vanessa Andreotti and Habib Nabatu; Winter 2025 issue, 11/20/24As we stand at the precipice of endings—of species, ecosystems, organizations, and systems themselves—the work of hospicing is to move beyond fear and embrace the deep transitions ahead with wisdom. To be stewards of this time, we must develop the practices and capacities to tend to these endings, not with urgency or control, but with a kind of stillness that invites the birth of new ways of being. Endings are not failures; they are part of a cycle that requires presence, reverence, and humility. Our hyperfocus on growth and expansion has left us ill-prepared to sit with death—whether it be the death of industries or the biosphere—and this discomfort with grief prevents us from being fully alive in the present. How might we allow the crumbling of outdated structures without rushing to rebuild too quickly? How might we hold space for what is irreversibly changing, without rushing to save or fix it? ...
Walking pneumonia is booming − and targeting the young and the poor
11/21/24 at 03:10 AMWalking pneumonia is booming − and targeting the young and the poor USA Today, Arlington, VA; by John Bacon; 11/20/24 Infections of the bacteria that cause walking pneumonia, a lesser evil of the more serious illness of pneumonia, is seeing a dramatic jump after a lengthy decline that came with the start of the COVID-19 pandemic, health officials say. Most alarming is the sharp increase in children infected with the disease. And, as with COVID-19, the impact of the disease can hit low-income Americans the hardest. The Centers for Disease Control and Prevention said infections from the bacteria that can cause walking pneumonia are common: An estimated 2 million infections occur each year in the United States. However, the true number isn't known, in part because so many people get it without seeking medical help and in part because there is no nationwide reporting system. The infections dropped off during the COVID pandemic but are now booming. Hospital emergency department discharge data from April to October showed an increase in infections of the bacteria among all age groups, according to the CDC.
Facing terminal cancer, former flight attendant granted final wish to fly one last time
11/21/24 at 03:00 AMFacing terminal cancer, former flight attendant granted final wish to fly one last time CBS News 13, Sacramento, CA; by Ashley Sharp; 11/19/24 A special last wish was granted for a Calaveras County hospice patient facing a daunting diagnosis. Janet McAnnally, 79, was diagnosed with stage 4 lung cancer which spread to her spine. She knows she doesn't have long, but that did not stop the former flight attendant from taking to the skies one last time. ... McAnnally is now in the care of Hospice of Amador and Calaveras, ... Turning the page back to 1971, McAnnally was a flight attendant for seven years for Trans World Airlines, based in Chicago. ... The hospice center, under its Last Wish Program, reached out to local United Airlines pilot Rob Davids to help fulfill McAnnally's wish for one final flight high above Calaveras County. "I just felt lucky to be part of it and give her that chance," Davids said. "I just appreciate every flight like it's the last." At 79, for the first time, McAnnally even got to pilot the plane herself during their hour-long flight. ...
Family caregivers deserve to be a valued part of the healthcare continuum
11/21/24 at 03:00 AMFamily caregivers deserve to be a valued part of the healthcare continuum MedCity News; by Cara McCarty Abbott; 11/20/24 Family caregivers are a critical part of the healthcare system. Not only are they part of America’s safety net, but they are also critical partners to hospice providers when caring for loved ones with serious illnesses or at end of life. With 53 million U.S. caregivers actively involved in healthcare decisions for their loved ones, enhancing support for these caregivers can contribute to patient clinical outcomes and improve a sense of well-being among families facing a difficult experience. ... When caregivers aren’t supported, it’s not only the people who suffer; it’s also the organizations that they most interact with during the caregiving process. ... Hospice providers cannot turn this tide alone. This complex, systemic issue requires a comprehensive approach. ...
Is your doctor using ‘never words’ that make you feel worse?
11/21/24 at 03:00 AMIs your doctor using ‘never words’ that make you feel worse? Everyday Health; by Lisa Rapaport; 11/19/24 Words matter — especially when it comes to how doctors speak to patients and families facing a scary medical diagnosis. That’s because the exact words doctors use to explain complex health situations can make or break whether people feel heard and respected during appointments — and influence whether they follow doctors’ orders afterwards, according to a new survey published in Mayo Clinic Proceedings. Key Takeaways:
People with Parkinson’s Disease (PD) face disproportionate rates of harm in hospital setting
11/20/24 at 03:00 AMPeople with Parkinson’s Disease (PD) face disproportionate rates of harm in hospital setting Parkinson's Foundation, New York and Miami; Press Release; 11/18/24 The Parkinson’s Foundation published a new article in the December issue of The Joint Commission Journal on Quality and Patient Safety titled “Protecting Parkinson’s Patients: Hospital Care Standards to Avoid Preventable Harm.” The article identifies sustainable solutions to improve care in the hospital for people with Parkinson’s disease (PD) and details how these solutions may be generalized to develop a practical, disease-agnostic care model for all hospital and health systems that wish to avoid preventable harm. ... People with PD are at increased risk of hospitalization, with more than 300,000 people with PD hospitalized each year. While hospitalized, people with PD face increased risk of preventable harm, including longer hospital stays and deterioration of PD symptoms. Adverse outcomes range from temporary, such as higher rates of delirium, to permanent damage, including higher mortality.
Hospice of the Panhandle veteran volunteers reflect on their service to veteran patients
11/19/24 at 03:00 AMHospice of the Panhandle veteran volunteers reflect on their service to veteran patients The Journal, journal-news.net, Martinsburg, WV; by Hospice of the Panhandle; 11/17/24 In recognition of Veterans Day, we asked our veteran volunteers at Hospice of the Panhandle to talk about why they perform this service for their fellow veterans. Hospice performs Veteran Recognition ceremonies to all veteran patients and families who wish to take part. ... Leroy James — Being a Veteran who served during the Vietnam era, I can appreciate the importance of the work that Hospice does when recognizing a veteran’s service to our country. Several of the veterans who I have had the honor of recognizing served during the Vietnam War years. They were grateful that we took the time to show our appreciation when the country did not do so upon their return from serving overseas. [Click on the title's link to continue reading volunteers' stories.]
Mother, doctor, CEO: one woman’s journey to reshape health care [podcast]
11/19/24 at 03:00 AMMother, doctor, CEO: one woman’s journey to reshape health care [podcast] MedPage Today's KevinMD.com; podcast by KevinMD; 11/16/24 We dive into the powerful story of a physician-mother whose world changed with the onset of COVID-19. Our guest, Arian Nachat, a palliative and emergency medicine physician, shares her journey through the pandemic, balancing the demanding roles of mother and doctor. From navigating childcare crises and homeschooling to reimagining her career beyond the confines of traditional health care, she sheds light on the struggles faced by frontline workers. Listen as she reveals how these challenges inspired her to reshape her path, create a health care company addressing critical system gaps, and advocate for a patient-centered, physician-led approach to medicine.
'Art helps me deal with my cancer diagnosis'
11/19/24 at 03:00 AM'Art helps me deal with my cancer diagnosis' BBC News, West Midlands, United Kingdom; by Sophie Madden; 11/18/24 After being diagnosed with pancreatic cancer, Wendy Brookfield said she had lots of emotions. But a referral to art therapy through the Severn Hospice, based in Shrewsbury, Shropshire, helped her deal with what she was going through. "There is so much going on in your mind that being able to go along to art therapy, I could just get it out and get it down on paper," she said. "It just such a good outlet for me." Her therapy sessions led to her starting a book of sketches which she regularly filled in, sometimes during her treatment sessions. They inspired the hospice to host its own art exhibition, built around Ms Brookfield's work and with other pieces created by patients.
Facing the tomorrows: Finding comfort, care and courage in hospice
11/19/24 at 02:00 AMFacing the tomorrows: Finding comfort, care and courage in hospice Concord Monitor, Concord, NH; by Rachel Wachman; 11/16/24 Yvette Lascelle has a favorite saying: “It is what it is.” “Whatever happens, happens,” Lascelle said with a faint smile. “They try to prevent it, but you can’t always prevent it.” The 81-year-old has been fighting multiple myeloma, or plasma cell cancer, for over a year and a half. In the past month, however, her condition has rapidly declined. Not knowing how many days she has left, she takes each one as it comes and savors the small moments – sitting with her brothers in the morning or sipping on eggnog in the afternoon. Her room at the hospice house in Concord is rarely quiet. Nurses check on her frequently and help maintain her comfort. Her priest comes by to guide her in prayer. Family and friends fill the space. Her daughter, Karen, sometimes sets up a small makeshift office and works remotely from the red chair by the window. Her son, Dan, visits after work with his wife and son. Lascelle lays underneath her lilac quilt, watching the world unfold from her bed and cherishing this time with her loved ones while it lasts. “Every day I’m happy to wake up,” the grandmother of four said. “You face the tomorrows. That’s it. It’s better than what I expected.” ...
Expert advocates for timely palliative care for patients experiencing heart failure during address to URI College of Nursing
11/18/24 at 03:00 AMExpert advocates for timely palliative care for patients experiencing heart failure during address to URI College of Nursing The University of Rhode Island. Kingston, RI; by Patrick Luce; 11/14/24 While palliative care is common for patients diagnosed with life-threatening conditions like cancer or Alzheimer’s Disease, it is less commonly prescribed to patients suffering from heart failure, a missed opportunity to provide enhanced care for those critical patients, according to Yale University Professor Shelli Feder, who addressed Rhode Island nurses, students and professors during [the URI College of Nursing Distinguished Lecture] on Nov. 13. ... Feder detailed a study ... that shows access to palliative care varies widely among patients suffering from heart failure. Reasons vary from heart failure often being diagnosed late, rendering palliative care irrelevant, to some local hospital systems lacking processes to refer cardiovascular patients to palliative care providers. Feder urges medical facilities to adopt specific policies for referring patients to palliative care to help guide providers’ behavior toward timely referral to palliative experts.
Hazel Dell couple face manslaughter charges in death of relative, 87, in their care
11/18/24 at 03:00 AMHazel Dell couple face manslaughter charges in death of relative, 87, in their care The Columbian, Clark County, WA; by Becca Robbins; 11/14/24A Hazel Dell couple are facing charges of manslaughter and criminal mistreatment for the 2022 death of an 87-year-old relative who was under their care. ... In April 2022, state Adult Protective Services referred a report to Clark County sheriff’s detectives about the March 18 death of Marilyn Rogers at a Longview hospice facility. The woman had lived with Joel and Kathryn Rogers, her son and daughter-in-law, at their apartment before her death, according to a probable cause affidavit. ... Emergency room staffers noted Marilyn Rogers had multiple ulcers and pressure wounds that appeared to be infected. She also showed signs of dehydration and malnourishment. Blood work showed she also suffered from sepsis due to infection. ... Doctors recommended Marilyn Rogers be placed in hospice, and once she was, staff said Kathryn and Joel Rogers never visited her. Hospice staff said they struggled to get in touch with the couple for the roughly 10 days Marilyn Rogers resided there, the affidavit states.
It's not just pumpkin spice time--it's time for the family conversation!
11/15/24 at 03:00 AMIt's not just pumpkin spice time--it's time for the family conversation! Dunlap Bennet & Ludwig; by George Reilly; 11/13/24 “Quality family time” is a phrase often heard in the period from Thanksgiving to New Year’s, sometimes even with air quotes, to describe what many people believe to be a necessary, but not necessarily enjoyable, time of family togetherness. ... Whatever your perspective on this “quality family time,” chances are that for most of you, it was/will be a missed opportunity to discuss very important matters with your loved ones—namely what happens in the event of disability or death; who takes care of what; a parent’s (or grandparents, or your own) wishes on the end of life medical care and funeral/burial/cremation choices; your wishes on guardians for minor children; and other critical, but admittedly sensitive and gloomy topics. ... Consider these statistics from surveys conducted by the Conversation Project: ... 92% of Americans say it’s important to discuss their wishes for end-of-life care, but only 32% have had such a conversation! [Click on the title's link to continue reading.]
Death is a natural part of life, but our society struggles to support those who are grieving.
11/15/24 at 03:00 AMDeath is a natural part of life, but our society struggles to support those who are grieving. Iowa Public Radio (IPR); host Charity Nebbe; 11/14/24 After a profound loss, the instinct is often to try and ease the pain for those who are grieving, but grief counselor Lynette Jordan says the pain of grief needs to be felt. This hour, host Charity Nebbe speaks with Jordan as well as mother and son Brianna and Grayson Wills about how they developed an open dialogue of grief in the seven years since the death of Grayson's twin brother, Calder. She also speaks with CL Lepley, who through experiencing many difficult losses since age five has become an expert in supporting those who are grieving. Guests:
In 2023, the majority of home health aides and personal care aides were women
11/15/24 at 02:00 AMIn 2023, the majority of home health aides and personal care aides were women U.S. Bureau of Labor Statistics - TED: The Economics Daily; 11/13/24 In honor of National Home Care and Hospice Month, we are highlighting data about two of the most common occupations that provide care to people with illnesses or disabilities in a home or community-based setting—home health aides and personal care aides. In 2023, women accounted for 87 percent of all home health aides and 80 percent of personal care aides. Workers in these two occupations assist people with activities of daily living (such as feeding or bathing), though home health aides generally focus more on their patients’ health and safety, while personal care aides often assist with other tasks (such as errands and housekeeping). Across all occupations, 47 percent of workers were women. Home health aides and personal care aides were more likely to be Black or African American (30 percent and 25 percent, respectively) than were workers overall (13 percent). Forty-two percent of home health aides and 27 percent of personal care aides were foreign born, higher than the average of 19 percent for workers overall. ... [Click on the title's link to continue reading.]
New Health Equity Guide from Center to Advance Palliative Care provides a roadmap to transform care for black patients with serious illness
11/14/24 at 03:00 AMNew Health Equity Guide from Center to Advance Palliative Care provides a roadmap to transform care for black patients with serious illness Cision PRWeb; by Center to Advance Palliative Care; 11/13/24 Having medical concerns dismissed, not being believed when reporting pain, and facing multiple barriers to care are just three of the experiences reported to Center to Advance Palliative Care (CAPC) in a focus group of Black patients with serious illness. In fact, when Black people in the United States are living with a serious illness like cancer, heart failure, or dementia, they experience disproportionately high suffering compared to white patients—often due to poor pain management, low-quality communication from their care teams, and high family caregiver burden. To address these inequities, CAPC has released a new, comprehensive guide, Advancing Equity for Black Patients with Serious Illness, to equip palliative care leaders and health equity change agents with practical tools to implement meaningful change. Drawn from research, examples of health equity initiatives from across the country, and the wisdom of health equity leaders, the guide provides a practical roadmap for transforming care for Black patients, and their families and caregivers.
Meals on Wheels substantially reduces risk of senior hospitalizations: report
11/14/24 at 03:00 AMMeals on Wheels substantially reduces risk of senior hospitalizations: report McKnights Home Care; by Adam Healy; 11/8/24 Home-delivered nutritious foods programs can help keep seniors out of the hospital and reduce their feelings of social isolation, according to a new report by Meals on Wheels and home care technology firm WellSky. The report examined how Meals on Wheels programs helped seniors recover after being discharged from a hospital stay. Each meal delivery also involved a social determinants of health assessment, which allowed Meals on Wheels staff to engage with participants and gauge their wellness and safety. After 30 days of the program, the researchers observed an 85% decrease in hospitalizations among participants. Approximately 98% of meal recipients said that Meals on Wheels helped their recovery, and 61% said it lowered their feelings of social isolation.Editor's note: While we know hospice patients experience a significant decline in appetite, the person's changing needs for nutrition continue. Pair this data with several recent articles we've posted regarding seniors' struggles compounded by living alone, isolation, and depression. We invite you to explore this educational/support video for caregivers/families of persons experiencing serious illness, palliative, or hospice care: Small Words - Big Meanings: EAT. Disclosure: Composing Life Out of Loss is a sponsor of our newsletter.
National Partnership for Healthcare and Hospice Innovation, and American Cancer Society unveil Advanced Cancer Guide to Support Patients & Families Facing Terminal Cancer
11/14/24 at 02:00 AMNational Partnership for Healthcare and Hospice Innovation, and American Cancer Society unveil Advanced Cancer Guide to Support Patients & Families Facing Terminal Cancer Cision - PR Newswire, Washington, DC; 11/13/24 Today, the National Partnership for Healthcare and Hospice Innovation (NPHI), the national voice for nonprofit serious illness care providers, proudly introduces the Advanced Cancer Care Patient & Caregiver Guide, developed in collaboration with the American Cancer Society. This essential resource is designed to assist individuals living with cancer and their caregivers by providing critical information that enables them to receive care in the comfort of their own homes. ... This comprehensive guide aims to minimize hospital and emergency room visits, easing stress for patients, families, and medical facilities alike. Drawing on the expertise of over 100 serious illness care providers and the American Cancer Society, it delivers practical, reliable support for those navigating cancer care at home. Editor's note: The National Partnership for Healthcare and Hospice Innovation (NPHI) is a sponsor for our newsletter.
Educating patients and clinicians on end-of-life care and discussions
11/12/24 at 03:25 AMEducating patients and clinicians on end-of-life care and discussions CancerNetwork - home of the journal Oncology; by Kelley A. Rone, DNP, RN, AGNP-c CancerNetwork® sat down with Kelley A. Rone, DNP, RN, AGNP-c, to discuss the importance of speaking compassionately and ensuring patient awareness when leading end-of-life discussions among those with gastrointestinal (GI) cancers. The discussion also focused on combating burnout in the clinic, using opioids to help manage pain and other symptoms, and educating all members of a multidisciplinary team on initiating end-of-life conversations with their patients. ... As part of leading these end-of-life conversations, Rone emphasized the necessity of addressing the discomfort patients tend to feel when talking about the fact that they may die from their cancer. ... When working with other members of a multidisciplinary care team, Rone illustrated the challenge of having physicians understand that their treatments may fail in younger patients and helping other oncologists become more experienced in speaking about death with patients. ...
A doctor’s life-changing realization about empathy after becoming a patient [podcast]
11/12/24 at 03:10 AMA doctor’s life-changing realization about empathy after becoming a patient [podcast] MedPage Today's KevinMD.com; podcast by KevinMD; 11/10/24 Join us for a conversation with Fazlur Rahman, a hematology-oncology physician and author of Our Connected Lives. In this episode, we explore how Fazlur’s journey from physician to patient transformed his understanding of empathy. He reflects on the importance of personal connection in medicine, the impact of a lack of empathy on both doctors and patients, and the need for medical education to include the humanities to foster compassionate care. This episode dives deep into the role empathy plays in improving patient outcomes and doctor-patient relationships. Fazlur Rahman is a hematology-oncology physician and author of Our Connected Lives. He discusses the KevinMD article, “From doctor to patient: a life-changing lesson in empathy.”
Location of pediatric deaths in the US
11/12/24 at 03:00 AMLocation of pediatric deaths in the US JAMA Network - JAMA Pediatrics; by Sarah H. Cross, PhD, MSW, MPH; Khaliah A. Johnson, MD; Maura A. Savage, MSW; Dio Kavalieratos, PhD; 11/11/24Historically, most seriously ill children in the US have died in hospitals despite a presumed preference for home death. Among the general population, home and hospice facility deaths have increased in the past 2 decades, whereas hospital and nursing facility deaths have decreased; however, recent patterns in location of pediatric deaths are unknown.
Elderly man sat with injuries for days after his mobile home burned and collapsed
11/12/24 at 02:30 AMElderly man sat with injuries for days after his mobile home burned and collapsed WCBD Charleston, South Carolina; by Tim Renaud; 11/11/24 An elderly Colleton County man sat injured in his yard for days after his mobile home burned and collapsed. Colleton County Fire Rescue said 9-1-1 received a call reporting the fire and injured man around 10 a.m. Friday. Crews arrived to find the single-wide mobile home had already collapsed with the injured man sitting in his yard. The man told firefighters that the home burned down “one or two days ago,” fire rescue said. He suffered burns to his face and hands and was not able to call for help. “He sat injured in the yard since that time,” the agency said. The man’s hospice nurse stopped by to check on him, and that’s when she discovered the fire. She provided initial aid and called 9-1-1. Emergency crews took the elderly man to the burn center at the Medical University of South Carolina for treatment. His condition is unknown. The cause of the fire is under investigation.
Veterans and Alzheimer's: 6 lifestyle tips for staving off the disease
11/12/24 at 02:15 AMVeterans and Alzheimer's: 6 lifestyle tips for staving off the disease NOLA.com, New Orleans, Louisiana; by Dana Territo; 11/11/24 Are veterans more prone to Alzheimer’s disease? According to the U.S. Department of Veterans Affairs, veterans are more likely to develop Alzheimer's disease and other dementias than the general public, and the number of veterans with Alzheimer's is expected to grow. For instance, in 2021, an estimated 457,391 veterans had Alzheimer’s disease, and that number is projected to increase by 8.4% to more than 488,000 by 2033. Age is the biggest risk factor for Alzheimer’s disease as a whole, and veterans are more likely to have health conditions that further increase that risk, including high cholesterol, traumatic brain injury, post-traumatic stress disorder and depression. Additionally, homelessness contributes to that risk as homeless veterans are more likely to have an Alzheimer’s diagnosis than those who are stably housed.