Literature Review

Cambia Health Foundation releases comprehensive evaluation of Sojourns Scholar Leadership ProgramBusiness Wire, Portland, OR; Press Release; 4/30/26 Cambia Health Foundation today released the results of a comprehensive evaluation of its Sojourns Scholar Leadership Program, demonstrating the significant impact of a 10-year, $25 million investment in developing the next generation of palliative care leaders. The evaluation, conducted by Future Work Design, confirms that the program successfully achieved its goals of identifying, cultivating and advancing emerging leaders who are transforming care for people with serious illness, while generating insights and capturing key learnings.

Alzheimer's Disease Facts and Figures - Annual Report Alzheimer's Association; Press Release; 4/22/26 Alzheimer's Disease Facts and Figures (PDF), an annual report released by the Alzheimer's Association, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system. Download the following:

End-of-life guidelines [in the ICU] emphasize unified care American Association of Critical-Care Nurses, in "Clinical Voices April 2026"; 4/21/26 New guidelines for end of life (EOL) care in the ICU call for clearer communication with families, stronger support for decision making and coordinated teamwork across disciplines to align treatments with what patients can realistically achieve and reduce suffering. “Society of Critical Care Medicine Clinical Practice Guidelines on Adult End-of-Life Care in the ICU ,” in Critical Care Medicine, highlights the need for standardized processes, including identifying legal surrogates, using shared decision making tools and adopting protocolized withdrawal pathways. Additional priorities include early palliative care involvement, spiritual support and focused education to reduce conflict. Recommendations are summarized in three major areas:

Expanding access to palliative care for patients with advanced liver diseaseAAAS - EurekAlerts!, Philadelphia, PA; describes JAMA Internal Medicine at doi: 10.1001/jamainternmed.2026.0571; 4/13/26 A new multicenter trial led by Manisha Verma, MD, and Victor Navarro, MD, at Jefferson Einstein Philadelphi Hospital demonstrates a new approach that could potentially transform access to palliative care for patients with ALD and address a major care gap. In the PAL LIVER trial, a large cluster-randomized study conducted across 19 U.S. centers, researchers evaluated whether hepatologists trained in primary palliative care could match the effectiveness of palliative care specialists in delivering quality-of-life benefits to patients with ALD, including those with decompensated cirrhosis and liver cancer. With 935 patients enrolled, this is one of the largest trials to date in liver disease palliative care.

Expert panel updating NCHPC’s Palliative Care Clinical Practice Guidelines Hospice News; by Kevin Ryan; 4/1/26 The National Coalition for Hospice and Palliative Care (NCHPC) has chosen a panel of 33 palliative care experts to develop the 5th edition of the Clinical Practice Guidelines for Quality Palliative Care. Originally created in 2004, through the National Consensus Project, the guidelines established the first national, evidence-based standards for the palliative care field. The guidelines have been updated four times since 2004 and have been endorsed by more than 90 health and professional health care worker organizations.  

New program and book examine best practices around end-of-life care for people living with Alzheimer’s Disease and related dementias (ADRD) Hospice Foundation of America, Washington, DC; by Lisa Veglahn;3/25/26 Hospice Foundation of America (HFA) will present its 33rd annual Living with Grief® educational program, Best Practices in Hospice Care for Advanced Dementia, addressing optimal care for the fastest growing segment of the hospice population. The program will be held live via Zoom on April 14, 2026, from noon—2 pm ET. According to the National Institutes of Health, researchers estimate that 42% of Americans over the age of 55 will at some point develop a form of dementia, all of which are terminal illnesses. ... In addition to the upcoming program, HFA has published a new volume of scholarly and personal work, Alzheimer’s Disease and Dementia: A Guide for Hospice Clinicians, edited by Kenneth J. Doka and Amy S. Tucci. The book offers valuable insights and practical approaches to delivering compassionate, person-centered end-of-life care to individuals with dementia and their loved ones. Editor's Note: Hospice Foundation of America has long defined standards for hospice education, and once again leads at a pivotal moment as dementia impacts Baby Boomers' end-of-life care. From their early satellite broadcasts that convened clinicians nationwide to today’s expansive reach, HFA has consistently translated complexity into practical, practice-changing insight. This work challenges us not only to learn, but to lead—bringing greater clarity, skill, and compassion to those living with dementia and those who walk beside them.

The good deaths of people who never marry: Lifelong single people are most likely to die pain-free and at peace. Psychology Today; by Bella DePaulo, PhD; 3/8/26 People who are single and want to stay that way are often taunted with scare stories about what will happen to them toward the end of their life—they will grow old alone, they will die alone, and all the rest. Same for people who have no children. But is the quality of the end of their lives really worse for those who never marry (or never have kids) than it is for those who are married, remarried, divorced, or widowed (or who have grown children)? We now have an answer, and it is not at all what those dire warnings predicted.Editor's Note: This Psychology Today article provides an additional focus on "people who never marry" from the article we posted on 3/20/26, “We make our own families”: Do child-free people die alone? Hospice worker shares her experience. Important: "child-free" does not necessarily mean the person never married. Likewise, "never married" does not necessarily mean the person is "child-free."

How closed-ended survey questions and narrative comments interact in characterizing caregivers’ overall assessment of hospice care Rand.org, published in American Journal of Hospice and Palliative Medicine; by Denise D. Quigley, Anagha Alka Tolpadi, Danielle Schlang, Joshua Wolf, Rebecca Anhang Price, Melissa A. Bradley; April 2026 online ahead of  print Introduction: Responses to open-ended questions on experience surveys provide rich information and are useful for quality improvement (QI). We examine the usefulness of the Consumer Assessment of Healthcare Providers and Systems (CAHPS) Hospice Survey comments for informing hospice QI.Conclusion: Closed-ended questions on the CAHPS Hospice Survey elicit comprehensive insights on hospice care experiences. While many caregivers elected to provide open-ended feedback, a minority of these comments were actionable for QI, and comments did not provide substantial, unique information. CAHPS Hospice Survey measures are sufficient, without open-ended comments, to guide QI, prioritize actions, benchmark performance and assist caregivers in hospice selection.

Call for applications: Investigator in Residence ProgramASCENT press release; 3/2/26The Advancing the Science of Palliative Care Research Across the Lifespan (ASCENT) Consortium invites applications for its 2026 Investigator in Residence Program. The goal of this program is to increase the number of palliative care investigators, expand the range of institutions where palliative care research is performed, and develop scientific and leadership capabilities leading to future successful grant proposals, both through ASCENT and extramurally. Applications due Thursday, March 26 at 5:00 pm PT.

C-TAC report: From metrics to momentum - accelerating the spread of community-based palliative care The John A. Hartford Foundation, Washginton, DC; 3/4/26 The Coalition to Transform Advanced Care (C-TAC) and and The John A. Hartford Foundation (JAHF) have released a report, "From Metrics to Momentum: Accelerating the Spread of Community-Based Palliative Care." The report summarizes discussion from a September 2025 C-TAC national convening of clinical, policy, payer, and delivery system leaders that was focused on accelerating the spread of community-based palliative care and identifying meaningful approaches to measuring access. 

Cambia Health Foundation releases comprehensive evaluation of Sojourns Scholar Leadership Program Business Wire, Portland, OR; Press Release; 3/3/26 Cambia Health Foundation today released the results of a comprehensive evaluation of its Sojourns Scholar Leadership Program, demonstrating the significant impact of a 10-year, $25 million investment in developing the next generation of palliative care leaders.  ... The program’s goals were measured against more than 175 sources, as well as 18 individual interviews, 5 focus groups and a comprehensive written survey completed by 117 individuals, including program participants and industry experts. Notable findings include:

2025 Facts and Figures Report now available to Alliance members The National Alliance for Care at Home; Alexandria, VA and Washington, DC; Press Release; 3/3/26 The National Alliance for Care at Home (the Alliance) published the 2025 edition of Facts and Figures, an annual report on key data points related to the delivery of hospice care, including information on patient characteristics, location and level of care, Medicare hospice spending, hospice provider characteristics, and quality of care. Facts and Figures – the leading resource for hospice providers and others interested in understanding the work of the community – has been published annually for over two decades. The findings in this report reflect patients who received care in 2024, provided by hospices certified by the Centers for Medicare & Medicaid Services (CMS) and reimbursed under the Medicare Hospice Benefit. ... The full 2025 Facts and Figures report is available for Alliance members online. The Executive Summary is available to the public.  Editor's Note: Pair this national data with the The Alliance and the Research Institute for Home Care release 2025 Hospice Chartbook that we posted on 2/20/26. The RIHC Hospice Chartbook mainly provides state views with some national treands, whereas this Facts and Figures report is mainly a national view with time trends.