Literature Review

Deactivation of cardiac devices at the end of life: clinical and ethical challenges Current Heart Failure Reports; by Marie-Gabrielle Courtès, Fiona Ecarnot, Mathilde Giffard; 8/13/26 Device deactivation in patients with heart failure is an increasingly relevant clinical and ethical challenge as the use of cardiovascular implantable electronic devices expands. ... Deactivating implantable cardioverter defibrillators can prevent painful and unnecessary shocks at the end of life, which may otherwise prolong dying without improving quality of life. Multidisciplinary involvement, including palliative care consultation, is essential to support patient-centered decision-making and symptom management. This review synthesizes the latest evidence and consensus on device deactivation in heart failure, emphasizing the need for communication, initiated early in the disease course, as well as individualized care, and integration of patient preferences throughout the disease trajectory.Editor's Note: What Policies and Procedures does your organization have in place? What interdisciplinary education do you ensure for all IDG members regarding this challenge for patients, families, and legal representatives? This clinical and ethical challenges presents potentially horrific trauma for the patient and those present when the person is actively dying and dies. Clincial and legal knowledge, preparations, and communications, and documentation are crucial.

Spiritual aspects of palliative and end-of-life care: highlights - compiled by by Barry R. Ashpole ehospice; by The International Association for Hospice & Palliative Care; 8/10/26 The International Association for Hospice & Palliative Care's literature search is intended as an advocacy, research, and teaching resource for colleagues who have a special interest in palliative and end-of-life care. Its goal is to keep its readers abreast of “current thinking” and also of emerging or related issues. ... The current posting focusses on the spiritual aspects of palliative and end-of-life care.

LATE vs Alzheimer’s: Biomarkers, Mixed Dementia, and Clinical Realities with Nate Chin and Sterling Johnson GeriPal; podcast by GeriPal with Sterling Johnson and Nate Chin; 8/6/26 Up until just a couple years ago, an 85-year-old patient presenting with gradual, amnestic memory loss was almost automatically presumed to have Alzheimer’s disease. However, new biomarkers and the recognition of conditions like Limbic-predominant age-related TDP-43 encephalopathy (LATE) are reshaping our understanding of cognitive decline in older adults. It’s looking more clear that pure Alzheimer's dementia is rare in older adults, and co-occurring pathologies that may include Alzheimer’s, LATE, Lewy Body, and vascular neuropatholigies, are the rule rather than the exception. ... Sterling Johnson is a clinical neuropsychologist and researcher who leads the CLARiTI study, which is attempting to uncover the intersecting causes of dementia.  Nate Chin is the medical director and Clinical Core Co-Leader for the Wisconsin Alzheimer’s Disease Research Center (ADRC), the host of the Dementia Matters podcast, and author of a new book When Memory Fades.  

[Sweden] Expressing wish to die not a desire to hasten death but an opportunity for dialogue: studyMcKnights Long-Term Care News; by Foster Stubbs; 8/4/26An advanced healthcare at patients’ homes (AHCPH) patient’s expression of a wish to die should be understood by nurses as an opportunity for dialogue and assessment rather than as a straightforward indication of a desire to hasten death, according to a study published in Global Qualitative Nursing Research. ... One overarching theme was identified over the course of the study, “Alleviating suffering by Engaging With the Patient’s Lifeworld.” 

Hospice doctor reveals the loved ones who will visit and those who won’t in your final dreams Upworthy; by Cecily Knobler; 8/1/26 “They had a pivotal role in the formation of who you were.” ... Hospice physician and neurologist Dr. Christopher Kerr, MD, PhD, recently appeared on The Oprah Podcast to discuss his experiences with people as they neared their last breath. After interviewing over 1,500 patients described as being in “lucid” mental states, he has discovered a common theme among the memories of their dreams. ... “End-of-life experiences testify to our greatest need to love and be loved, ... To be nurtured and feel connected. To be remembered and forgiven. They provide continuity between and across lives. ... The most common thing they would dream about is seeing their deceased loved ones. And it wasn’t just anybody. It was those that loved and secured the most. So there’s almost this form of final justice. If somebody withheld love, one parent, they were excluded, but the one who nurtured and loved and secured was included.”

Poverty level affects end-of-life care in adolescent and young adult cancer patients  Cancer Therapy Advisor; by Liam Andrew DAvenport, MA; 7/24/26 Adolescent and young adult (AYA) cancer patients from high-poverty neighborhoods face disparities in end-of-life (EoL) care, according to research published in the Journal of the National Comprehensive Cancer Network. AYA patients from high-poverty neighborhoods have more emergency department visits and hospitalizations, and less hospice use, than their low-poverty counterparts, study researchers reported. ... Eligible patients had been diagnosed with cancer and died between 12 and 39 years of age, and were enrolled in one of the participant health systems for more than 90 days prior to their death. 

New $11.8M federal grant will launch Dartmouth Health’s aging research center Valley News, New Hampshire Public Radio; by Olivia Richardson; 7/23/26 Dartmouth Health has received nearly $12 million to create a program to study the needs of people aging with serious illnesses. The $11.8 million federal grant comes from the Centers of Biomedical Research Excellence program, through the National Institute of General Medical Sciences. The program helps states that have historically received less National Institutes of Health funding to expand their research capacity. Close to $3 million has been included in the award to help fund Dartmouth’s Geisel School of Medicine’s participation in the program. Dartmouth Health has named its aging study program the Center for Aging with Serious Illness. The grant will allow the center to collaborate with other research institutions, support early-career clinician-scientists, and broaden the Dartmouth Health research community focusing on older adults with serious illness.

Difficult discussions: How UTC nursing faculty are using AI to teach the hardest conversations in care The University of Tennessee Chattanooga, Chattanooga, TN; by Chuck Wasserstrom; 7/20/26 Two University of Tennessee at Chattanooga College of Nursing faculty members recently shared their work on AI-assisted simulation with an international audience, leading a webinar on how the technology can help prepare graduate nurse practitioner students for difficult conversations in palliative care: Dr. Chris Doneski, director of UTC’s acute care nurse practitioner program and a simulation faculty member, and Dr. Rosebelle Peters, nursing simulation program director and senior lecturer. ... The presentation centered on a gap the two faculty members see in graduate nursing education. Doneski said students often receive training in procedures, prescribing and transition to practice, but communication training for difficult situations can be harder to build in meaningful ways. ... The recorded webinar is available through HealthySimulation.com. Users must register for a free account to view it.

Cardiologists treating increasingly complex patients as America ages Medscape; by Sarah Amandolare; 7/14/26 ... Heart failure (HF) affects 15%-20% of adults over 80, according to the American Heart Association/American College of Cardiology/Heart Failure Society of America Guideline for the Management of Heart Failure. HF with preserved ejection fraction (HFpEF), which becomes more likely after age 80, is related to other common conditions of aging, including hypertension, chronic kidney disease, diabetes, and obesity. “Almost by definition, most people that have HFpEF have multiple comorbidities,” Hummel said. “You have to account for a lot of them when you’re thinking about how to help the patient best.” This population also has higher chances of developing dementia and frailty, which affect 35% of adults age 90 and older and 31% of octogenarians, respectively. Older adults hospitalized for HF also have a high likelihood of polypharmacy; 68% take 10 or more medicines.

What do UK hospice websites communicate about the meaning of palliative care? BMJ Supportive & Palliative Care; by Lucy Williams, Charlotte Browne, Paul Perkins, and Vanessa Taylor; 6/30/26Objectives: Hospice websites are an important source of information for the public. This study examined whether information communicated about palliative care aligned with WHO and the International Association for Hospice and Palliative Care (IAHPC) definitions of palliative care. ... Conclusions: Key information was often missing, and opportunities to educate the public and address misconceptions are being lost. Hospice websites need reviewing and content updating to help improve public understanding of palliative care. Editor's Note: What does your website communicate? What information does it omit, and why? In a time of heightened scrutiny and rampant fraud, examine your website for strengths, gaps, and opportunities to educate and support the public with integrity, authenticity, and empowered choice.

Hospice care provider and compassion fatigue research projectPersonal communication; by Michelle Jackson; 6/10/26Researchers at Missouri State University are conducting a research survey regarding compassion fatigue, resilience, and participation in meaningful activities for hospice care providers. Participation deadline 7/12/26. For additional information and to participate, click here.

Kids should be involved in their health care. Here's how to make that happen Medical Express; by Stuart Ekberg, Anthony Herbert, Katie Ekberg, The Conversation; 6/12/26 Research suggests children who actively participate in their own treatment recover faster from surgery, have less anxiety and feel more valued. ... Our new research suggests this may be because we focus too much on what children say, while ignoring the many other ways children communicate. Our study focused on pediatric palliative care services. ... This can include severe cerebral palsy, genetic syndromes such as Trisomy 18, neurological and metabolic conditions such as childhood dementia, and advanced cancers such as leukemia and brain tumors. ... We focused on pediatric palliative care services because they support children of all ages, from infants to young adults. And they support children who can speak and also children who do not speak.

The ASCENT Consortium to Publish Two Requests for ApplicationsASCENT Consortium press release; 6/4/26The ASCENT Consortium is pleased to announce plans to publish a Request for Applications (RFA) for the ASCENT Research Scholar and Pilot and Exploratory Studies Awards Programs.