[Ghana] A qualitative study on the experiences of family caregivers of children with End Stage Kidney Disease (ESKD)

[Ghana] A qualitative study on the experiences of family caregivers of children with End Stage Kidney Disease (ESKD)
BioPsychoSocial Medicine; Edward Appiah Boateng, Mabel Baaba Bisiw, Rosemary Agyapomah, Isaac Enyemadze, Joana Kyei-Dompim, Samuel Peprah Kumi, Dorothy Serwaa Boakye; 8/24
Family caregivers, mostly parents, are greatly involved in the care of their children with end stage kidney disease (ESKD) globally. The majority of the family caregivers [in Ghana] experienced anxiety, fear, uncertainty, and hopelessness in response to the children's diagnosis and care ... [and] ... the thought of the possibility of the children dying was deeply traumatizing for our participants. Most participants reported bodily pains and physical ailments because of lifting and caring for the children. Financial constraint was also a key issue for all the family caregivers. All the family caregivers had their psychological well-being compromised as a result of the challenges they encountered physically, socially, and spiritually.