Literature Review

NHPCO's CaringInfo program launches new consumer blog, insights NHPCO Press Release; 4/15/24 CaringInfo, a program of the National Hospice and Palliative Care Organization (NHPCO), has launched a new consumer blog, Insights, offering timely and practical content on serious-illness care and services from a variety of perspectives in both English and Spanish. ... CaringInfo also offers more information about advance directives and free advance directives and instructions for all 50 states plus Puerto Rico and Washington DC in both English and Spanish, downloadable as PDF files.

In two states, transforming the model for palliative care [CA & HI]Undark, by Meredith Lidard Kleeman; 4/16/24 "Being ill is like a full-time job,” said Andrew E. Kaufman, a 60-year-old author. Kaufman lives with myasthenia gravis, a neuromuscular disease, as well as other chronic conditions, and his self-care requires a lot of time — and communication. The cascade of his own needs “is frustrating and causes anxiety and a whole host of issues.” Lucky for Kaufman, he lives in California, where he has help from a palliative care team. California is one of the first states in the country to require insurance companies that administer Medicaid benefits to fully cover palliative care services for eligible residents. Editor's Note: Click on the title's link to read more, as this use redefines "palliative care."

Houston hospital says doctor’s changes to a database made patients ineligible for liver transplants NBC News 13; by Jamie Stengle and Carla K. Johnson, The Associated Press; 4/12/24 A Houston hospital has halted its liver and kidney transplant programs after it says a doctor manipulated a database for liver transplant patients, making them ineligible to receive a new organ. ... Data from OPTN [The Organ Procurement and Transplantation Network] shows that four patients died or became too ill for a transplant in 2021, 11 in 2022, 14 in 2023, and so far this year, that number was at five.

Implementing spiritual care education into the teaching of palliative medicine: An outcome evaluation BMC Medical Education; by Yann-Nicolas Batzler, Nicola Stricker, Simone Bakus, Manuela Schallenburger, Jacqueline Schwartz, and Martin Neukirchen; 4/15/24 Objective: This is a novel, interprofessional approach in teaching undergraduate medical students about spiritual care in the format of a seminar. The aim of this study is to assess if an increase in knowledge about spiritual care in the clinical context is achievable with this format. ... Conclusions: We conclude that implementing spiritual care education following an interprofessional approach into existing medical curricula, e.g. palliative medicine, is feasible and well perceived among medical students. ...

The Maine Death with Dignity Act Annual Report - Data from calendar year 2023 Produced by Data, Research, and Vital Statistics Maine Center for Disease Control and Prevention Department of Health and Human Services; 4/12/24 In accordance with 22 MRS § 2140(17), the Department of Health and Human Services (Department) [has generated and made available] to the public an annual statistical report of information collected under the Maine Death with Dignity Act. ... This report is for patients who completed a written request for medication to hasten their death in calendar year 2023. Patients who completed the oral request but not a written request within the calendar year will be included in the subsequent year’s report.

Tracking layoffs, closures in healthcare nationwideModern Healthcare; 4/12/24Modern Healthcare is tracking closures and layoffs from health systems, digital health companies, insurers and other related businesses nationwide to better understand how labor costs and concerns are impacting the industry in rural communities and cities alike. 

Black nurses advance bias suit over patients’ racial preferences Bloomberg Law, by Patrick Dorrian; 4/15/24 The US District Court for the Middle District of Florida rejected the argument of Good Shepherd Hospice Inc. and parent Chapters Health System Inc. that the two women failed to claim they experienced an adverse employment action as a result of the alleged discriminatory practice. It’s enough that the women say the scheme caused them to be passed over for work assignments, impacting them financially, the court said.

Birth and death are the most singular events we experience – and the contemplation of death, as of birth, should be a thing of beauty, not ignobility. – Jacob K. Javits 

Goals of care among patients with advanced cancer and their family caregivers in the last years of life JAMA Network; by Semra Ozdemir, PhD; Isha Chaudhry, MSc, Chetna Malhotra, MD; et al; 4/11/24 Conclusions and Relevance: In this cohort study of patient-caregiver dyads, findings suggested the importance of interventions aimed at reducing discordance in goals of care between patients and caregivers and helping them develop realistic expectations to avoid costly, futile treatments.

‘Are nursing homes our only option?’ These centers offer older adults an alternative. Rhode Island Current, by Anna Claire Vollers; 4/12/24PACE centers attract bipartisan interest and, in some states, scrutiny. ... PACE (Program of All-Inclusive Care for the Elderly) centers provide government-funded medical care and social services to people older than 55 whose complex medical needs qualify them for nursing home care, but who can live at home with the right sort of help. ... Nationally, PACE centers are owned by a variety of health care organizations, including nonprofits, for-profit companies, large health care systems and religious organizations. ... [The] explosive growth has come with challenges ...

Today is National Healthcare Decisions Day. Are your advance directives in place? Updated? Have you communicated your decisions with those involved?

Comment: Rule must change to allow dialysis as end-of-life care HeraldNet, by Matthew Rivara and Mackenzie Daniek; 4/13/24More than 1 in 7 American adults live with chronic kidney disease, making it one of the most common chronic disease conditions in the United States. ... Medicare will generally not reimburse health care providers for dialysis treatments if a patient has elected to enter hospice care, as dialysis treatments are considered by Medicare to be “curative” rather than “palliative” care. Because of this, most patients getting dialysis for ESRD must forego all dialysis treatment after entering a hospice program.