Literature Review

Community invited to see Edina Thespians' one-act play, 'Wit' Sun Current, Coon Rapids, MN; by Alex Kautzman; 1/20/25Edina High School Thespians are ... looking forward to showing off their hard work to the community in two performances at the Edina Performing Arts Center. ... "Wit" centers on Vivian Bearing, a brilliant poetry professor, as she undergoes an experimental and extremely aggressive chemotherapy treatment. As Vivian undergoes treatment at the hands of impersonal doctors, she discovers that human compassion may be more important than intellectual wit.Editor's note: This Wit telepay is based on the 1999 Pulitzer Prize-winning play by Margaret Edson. Its 2001 television drama film was directed by Mike Nichols, written by and starring Emma Thompson. Wit has been used extensively for community and clinical education, fostering conversations about ethics, palliative care/hospice, advance directives, quality of life, and more. Click here for more information. Wit can be streamed via Max and the Max Prime Video Channel.

Medical schools report steep drop in enrollment of Black and Hispanic students after Supreme Court ruling STAT; by Usha Lee McFarling; 1/9/25Enrollment of Black and Hispanic students in medical schools dropped precipitously last year after the Supreme Court banned the consideration of race in admissions, according to data released Thursday by the Association of American Medical Colleges. The number of Black enrollees fell by 11.6% compared to last year, while the number of Hispanic enrollees decreased 10.8%. The numbers were even starker for Indigenous students; the number of American Indian or Alaska Natives dropped by 22.1%, while students who were Native Hawaiian or Pacific Islanders dropped by 4.3%. 

How agilon health trains primary care physicians to provide palliative care Hospice News; by Jim Parker; 1/8/25 The senior care company agilon health (NYSE: AGL) has scaled a palliative care education model for its physician partners throughout most of the markets they serve. ... A 2023 study published in the Journal of Pain and Symptom Management found that the primary care-led, integrated approach to palliative care that agilon employs were two-thirds less likely to die in a hospital and on average spent five more days at home near the end of life. Hospice News sat down with agilon’s CMO, Dr. Karthik Rao, to talk about the ways the company prepares physicians to provide palliative care to their most seriously ill patients. [Key goals include:]

[Cure] Top palliative care stories from 2024 Cure; by Alex Biese; 12/28/24 This year, CURE® worked to provide education and insight that underscored the importance of palliative care in cancer treatment. Early integration of palliative care, whether through in-person visits, telehealth or ongoing emotional support, can make a significant difference in a patient's quality of life. Here are some of the top articles on the topic of palliative care from 2024.

Hospice study reveals contrasting views on managing dementia behaviors McKnights Long-Term Care News; by Donna Shryer; 12/20/24 A new study finds that healthcare providers and family caregivers often disagree on how best to manage dementia behaviors during end-of-life care. The research, published in the Journal of the American Geriatrics Society, involved interviews with 23 hospice clinicians and 20 family caregivers. With dementia affecting 33% of adults over age 85 and now ranking as the primary diagnosis for Medicare hospice services, understanding these differing perspectives about managing dementia behaviors has become increasingly important. The study found that while both groups identified agitation as the most concerning behavioral symptom, they approached it from different angles. Clinicians primarily worried about physical safety risks, while family caregivers were more distressed by personality changes in their loved ones.

10 Years of making the world a more livable place for all bereaved people Evermore; by Joyal Mulheron, Executive Director; 12/21/24   Fourteen years ago today, I was sitting on my couch, trying to make sense out of what just happened to our family. Our terminally ill daughter, Eleanora, had died a few weeks prior. While others sang holiday songs and gleefully exchanged gifts, it was a profoundly painful, dark, and isolating time for me. Within a few short years, I quit my career because I saw tragedies saturating our national headlines, leaving a trail of unseen and unsupported bereaved people in their wake, and I believed our nation should prioritize the needs of all bereaved people. ... This is what I set out to change. ... Evermore’s groundbreaking advocacy efforts resulted in our nation’s first Report to Congress, which provided an overview of grief and bereavement services in the United States. Next year, a report analyzing more than 8,000 scientific studies will be published, reviewing the highest quality interventions for bereaved people — which was championed by Evermore and endorsed by Congress. Editor's note: Click on the title's link to continue reading Evermore's trailblazing, state-of-the-art leadership and advocacy with Congress, the government's Substance Abuse and Mental Health Services Administration (SAMHSA), Newsweek, PBS, Harvard's Public Health magazine, Penn State, the University of California, and more. Click here to join Evermore's mailing list, and to learn from Joyal Mulhuron, Evermore's inspiring, soulful Founder/Executive Director. 

National Alliance for Care at Home and Transcend Strategy Group publish Rural American Hospice Insights Report National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 12/19/24The National Alliance for Care at Home (the Alliance) and Transcend Strategy Group published the results of new research exploring perceptions of hospice care among rural and small-town communities. This survey of 400 people is part of the Alliance’s commitment to health equity and to breaking down barriers to accessing hospice and home care through knowledge sharing, data collection, and collaborative discussion. Along with key research findings, the Rural American Hospice Insights report offers recommendations for hospice providers to help increase understanding of hospice care and help overcome barriers to access. Key findings and recommendations include:

Characteristics of patients enrolled in hospice presenting to the emergency department American Journal of Emergency Medicine; by Kayla P Carpenter, Fernanda Bellolio, Cory Ingram, Aaron B Klassen, Sarayna S McGuire, Alisha A Morgan, Aidan F Mullan, Alexander D Ginsburg; 12/9/24, online ahead of print Emergency Departments (EDs) frequently care for patients with life-limiting illnesses, with nearly 1 in 5 patients enrolled in hospice presenting to an ED during their hospice enrollment. This study investigates the reasons patients enrolled in hospice seek care in the ED, the interventions they receive, and their outcomes. ... Patients enrolled in hospice most frequently presented to the ED for trauma [36%; with 15% for pain, 12% for catheter/tube malfunction]. Most received laboratory studies and imaging. Nearly half of patients were admitted to the hospital and short-term mortality was high, particularly for patients enrolled in hospice for needs for ED care? Ie.,

Commentary: The coat my mother never wore National Public Radio - WBUR, Boston, MA; by Karen Propp; 12/11/24 Shortly before Thanksgiving 2018, I bought my 87-year-old mother a winter coat — a silvery-gray one that matched her hair. None of us could remember the last time she had left the house, spoken in full sentences or walked without assistance, but my father hoped that a new ultra-light coat might change things.  ... Having been close to others with progressive or terminal illnesses, I did not share his optimism. But it felt cruel to dash my father’s hope, so I hung the coat in the front hall closet, as if it were a talisman that could bring us a miracle. My mother died peacefully, late in the morning that December 24. By the time the men from the funeral home arrived, it was already dark outside. ...Editor's note: Click on the title's link to read how this simple coat evoked a daughter's grief, coping, and realization of her mother's qualities within herself. Non-clinical leaders: in case you're not aware, the extensive body of grief research reveals that grief does not have a last "stage" of "acceptance." Rather, mourning begins with a first step or "task" of accepting realities of the loss (Worden), with another step or "task" of establishing enduring connection (Worden)--which this daughter found within herself. These are not stages. Rather, they are ongoing cycles (mini and macro), with other identified, individualized dynamics.

Embracing well-being at the end of life Phaneuf Funeral Homes & Crematorium; by Phaneuf; 12/5/24At the 29th Annual Fall Hospice & Palliative Care Conference, Dr. Ira Byock delivered a thought-provoking keynote challenging the misconceptions surrounding hospice and palliative care and illuminating a brighter path forward for individuals, families, and caregivers. ... Far too often, hospice and palliative care services are seen as a last resort or equated with “giving up.” Dr. Byock pushed back against this notion, emphasizing that hospice and palliative care are not about death but about life. “Hospice and palliative care are about living as fully and as well as possible through the end of human life,” Dr. Byock said. Rather than signifying the end of healthcare options, palliative care provides comfort, dignity, and even joy for individuals facing life-limiting conditions. Dr. Byock shared that families often express relief and gratitude after beginning hospice care, lamenting that they hadn’t learned about it sooner. These experiences highlight a common issue: Hospice care is often introduced too late, preventing families and patients from reaping its full benefits. 

2025 BrightSpring brighter futures and hospice nursing scholarships now open BrightSpring Health Services - Careers; 12/3/24 Applications are being accepted from now through Friday, February 28, 2025, at 5 p.m. ET. For more information and to apply, visit https://cflouisville.awardspring.com/Home/Scholarships.  ... The BrightSpring Brighter Futures Scholarship awards one $10,000 per year scholarship, renewable for up to four years as long as the student maintains good academic standing with their college or university. ... The BrightSpring Hospice Nursing Scholarship awards four $5,000 per year scholarships, renewable for up to two years as long as the student maintains good academic standing with their college or university.Editor's note: How might your hospice organization partner with universities/colleges to provide a similar program for professional career growth?

Health professions students’ reflections about principles of interprofessional collaboration after shadowing interprofessional palliative care roundsAmerican Journal of Hospice and Palliative Medicine; Jeannette Kates, PhD, APRN, FPCN; Ceasia Brown, BA; Jenna Campolieto, BA; Maria Brucato, PhD; 10/24Future healthcare professionals are educated on collaborative practice methods through interventions that may include shadowing. While shadowing allows students to learn from and about other health professions, it often fails to offer an opportunity for the student to work and collaborate with other health professionals. These results suggest that shadowing offers an opportunity to identify and learn interprofessional competencies in interprofessional palliative care curricula, as made evident through student reflection assignments.

Expert advocates for timely palliative care for patients experiencing heart failure during address to URI College of Nursing The University of Rhode Island. Kingston, RI; by Patrick Luce; 11/14/24 While palliative care is common for patients diagnosed with life-threatening conditions like cancer or Alzheimer’s Disease, it is less commonly prescribed to patients suffering from heart failure, a missed opportunity to provide enhanced care for those critical patients, according to Yale University Professor Shelli Feder, who addressed Rhode Island nurses, students and professors during [the URI College of Nursing Distinguished Lecture] on Nov. 13. ... Feder detailed a study ... that shows access to palliative care varies widely among patients suffering from heart failure. Reasons vary from heart failure often being diagnosed late, rendering palliative care irrelevant, to some local hospital systems lacking processes to refer cardiovascular patients to palliative care providers. Feder urges medical facilities to adopt specific policies for referring patients to palliative care to help guide providers’ behavior toward timely referral to palliative experts.