Literature Review

All posts tagged with “Clinical News | Disease Specific.”



Nonprofit participates in ALS Ice Bucket Challenge

06/03/25 at 03:00 AM

Nonprofit participates in ALS Ice Bucket Challenge Coeur d'Alene / Post Falls Press, Coeur d'Alene, ID; 5/31/25 Hospice of North Idaho took the plunge this week after being nominated by Kootenai Health to participate in the ALS Ice Bucket Challenge, a viral campaign aimed at raising awareness and funds to fight amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease. In a video on social media, Hospice of North Idaho’s Leadership Team and staff sat front and center Wednesday as team members gathered, cheered and doused them with buckets of ice-cold water all in the name of a great cause, Hospice of North Idaho shared in a Friday news release. ... “Hospice of North Idaho is proud to take part in this movement and show our support for those affected by ALS,” Megan Ryan, communications specialist at Hospice of North Idaho.

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US trends from 1999 to 2020: Mortality and location of deaths in ischemic stroke

06/03/25 at 02:00 AM

US trends from 1999 to 2020: Mortality and location of deaths in ischemic stroke Neurology Advisor; by Meghna Rao; 6/2/25 Patterns of ischemic stroke mortality have varied over the last 2 decades in the United States, according to study findings published in PLOS One. Stroke is one of the leading causes of mortality in the US. Researchers studied the trends in location of ischemic stroke deaths to improve end-of-life care and address health care inequities.The Centers for Disease Control and Prevention’s Wide-Ranging Online Data for Epidemiologic Research (CDC WONDER) database was used to examine trends in ischemic stroke mortality between 1999 and 2020. 

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OP-ED: How hospice care falls short for people living with dementia

06/02/25 at 03:15 AM

OP-ED: How hospice care falls short for people living with dementia Being Patient - Alzheimer's News, Advice, Stories & Support; by Maria J. Silveira; 5/30/25Only 12 percent of Americans with dementia ever enroll in hospice. This may be due to how hospice is structured and paid for in the U.S., explains University of Michigan associate professor of internal medicine Maria J Silveira. ... In contrast to the former president [Jimmy Carter's extended hospice care], his wife, who had dementia, lived only nine days under hospice care. Palliative care physicians like myself who treat both conditions are not surprised at all by this disparity. ... Strikingly, only 12 percent of Americans with dementia ever enroll in hospice. Among those who do, one-third are near death. This is in stark contrast to the cancer population: Patients over 60 with cancer enroll in hospice 70 percent of the time.

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Timing and outcomes of palliative care integration into care of adolescents and young adults with advanced cancer

05/31/25 at 03:20 AM

Timing and outcomes of palliative care integration into care of adolescents and young adults with advanced cancerOncology Practice; Jeremiah Bonnet, BA; Colin Cernik, MS; Hajime Uno, PhD; Lanfang Xu, MS; Cecile A. Laurent, MS; Lauren Fisher, MS; Nancy Cannizzaro, BA; Julie Munneke, BA; Robert M. Cooper, MD; Joshua R. Lakin, MD; Corey M. Schwartz, MD; Mallory Casperson, BA; Andrea Altschuler, PhD; Lawrence H. Kushi, ScD; Chun R. Chao, PhD; Lori Wiener, PhD; Jennifer W. Mack, MD, MPH; 5/25Adolescent and young adult (AYA) patients with cancer frequently receive intensive measures at the end of life; many also express care goals that align with a palliative approach. [In this study] nearly three quarters (73%) [of  AYA patients] were referred to palliative care before death. Thirty-six percent of palliative care referrals took place before the last 90 days of life; 30% were in the last month of life. Palliative care referrals and their timing were associated with care received at the end of life, with earlier referrals associated with fewer intensive measures near death, including chemotherapy in the last 14 days of life ... as well as intensive care unit admissions, emergency room visits, and hospitalizations in the last month of life ... Patients who were referred to palliative care were more likely to have symptoms assessed in the last 90 days of life, including pain, dyspnea, nausea, diarrhea, constipation, depression, and anxiety ... 

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An intervention to increase advance care planning among older adults with advanced cancer-A randomized clinical trial

05/31/25 at 03:15 AM

An intervention to increase advance care planning among older adults with advanced cancer-A randomized clinical trialJAMA Network Open; Angelo E. Volandes, MD, MPH; Yuchiao Chang, PhD; Joshua R. Lakin, MD; Michael K. Paasche-Orlow, MD; Charlotta Lindvall, MD, PhD; Seth N. Zupanc, BA; Diana Martins-Welch, MD; Maria T. Carney, MD; Edith A. Burns, MD; Jennifer Itty, MPH; Kaitlin Emmert-Tangredi, MSW; Narda J. Martin, MSN-ED, RN; Shreya Sanghani, MS; Jon Tilburt, MD; Kathryn I. Pollak, PhD; Aretha Delight Davis, MD, JD; Cynthia Garde, MBA; Michael J. Barry, MD; Areej El-Jawahri, MD; Lisa Quintiliani, PhD; Kate Sciacca, NP; Julie Goldman, MPH; James A. Tulsky, MD; 5/25Despite accumulating evidence of the benefits of these discussions, documentation of advance care planning (ACP) activity in the electronic health record (EHR) remains low and inconsistent for most health care systems, increasing the risk that patients will not receive care that matches their goals. In this pragmatic stepped-wedge randomized clinical trial among older patients with advanced cancer, an intervention combining patient video decision aids and clinician communication skills training increased the proportion of patients with ACP documentation. This randomized clinical trial exploring a combined intervention of patient empowerment and clinician communication skills training found a significant and clinically meaningful increase in ACP documentation rates with a scalable intervention that can be rapidly implemented across large health care systems. This approach offers an innovative paradigm with a clinically meaningful increase in ACP documentation, a widely used quality metric that reflects high-quality patient-centered care delivery.

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A ‘cloak of comfort’: an integrated approach to palliative care for cancer patients

05/30/25 at 03:00 AM

A ‘cloak of comfort’: an integrated approach to palliative care for cancer patients Sinai Health; 5/26/25 At Mount Sinai Hospital, palliative care is fully integrated into cancer care, providing comprehensive, person-centered support for those with advanced illness. Palliative care, derived from the Latin pallium meaning “cloak,” offers comfort and support to individuals with serious illnesses. Often misunderstood as solely end-of-life care, it actually provides relief at any stage of a life-threatening illness and can be provided in tandem with cancer treatment. This holistic approach addresses physical, emotional, and spiritual needs, aiming to improve quality of life for both patients and their families. In fact, early integration of palliative care can enhance symptom management, extend life and offer greater support to caregivers. Patients can receive care at Mount Sinai Hospital’s Cancer Care Clinic, at home through the Temmy Latner Centre’s home palliative care program, and in the palliative care unit at Hennick Bridgepoint Hospital.  

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CMS: Kidney Care Choices (KCC) Model

05/29/25 at 03:00 AM

CMS: Kidney Care Choices (KCC) Model CMS.gov - Centers for Medicare & Medicaid Services; 5/27/25 The Centers for Medicare & Medicaid Services (CMS) is announcing a coordinated set of changes to the Kidney Care Choices (KCC) Model starting in performance year 2026 that are expected to improve the model test by adjusting the financial methodology and participation options to improve model sustainability. In addition, the model is being extended by one year for continuation of quality care to beneficiaries through 2027. For more information, please visit KCC Model Performance Year 2026 Updates. 

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ALS and mental health: The importance of caring for the whole person

05/28/25 at 03:00 AM

ALS and mental health: The importance of caring for the whole person ALS Association; by Amber Johnstone, MSW, LISW-S; retrieved from the internet 5/27/25 ... May is ALS Awareness Month and also Mental Health Awareness month. ALS and Mental Health go hand in hand. One of the first things I tell newly diagnosed individuals that I work with is that ALS affects the whole family. And to be truthful, it affects many more than just that nuclear family unit. A person living with ALS is like a pebble thrown into a pond. That first splash is the biggest, but then the water ripples all the way out to the edges of the pond. Those ripples are all the people with which the person with ALS shares their journey. ... The ALS Association understands how important mental health can be.  ... The ALS Association is proud to offer ALS Academy to community healthcare professionals and caregivers.  ALS Academy is free, online, self-paced, catalog of ALS education videos.  

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ACC issues new tool to provide guidance on using Apple Watch for heart health monitoring

05/26/25 at 03:00 AM

ACC issues new tool to provide guidance on using Apple Watch for heart health monitoring American College of Cardiology; ACC News Story; 5/20/25 The ACC has issued a new "Leveraging Apple Watch for Cardiovascular Care" tool, designed to provide guidance for clinicians and patients using health data collected while wearing an Apple Watch to effectively track and manage cardiovascular health. Through the tool, clinicians can establish best practices for incorporating Apple Watch data relevant to a patient's care plan, create an implementation plan for collecting and responding to data, and develop processes for working with patients to ensure they are using the watch correctly and seeking care where appropriate. The tool also advises when an Apple Watch should not be used, including clinically indicated rhythm monitoring where immediate alerts to a clinician are needed. 

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Hospice volunteer donates 10,000 gift cards to cancer patients

05/26/25 at 02:00 AM

Hospice volunteer donates 10,000 gift cards to cancer patients AZ Family - CBS-5, Phoenix, AZ; by Tianna Morimoto; 5/20/25 One Valley man has made a difference in times of need for those who may be losing hope by donating thousands of gift cards, and that’s Something Good. Jeff Lewis volunteers with Hospice of the Valley and was recently recognized for donating 10,000 grocery gift cards to help cancer patients in need. Jeff is a cancer survivor and has made it his mission to help those going through treatments with no family or support. He created a nonprofit called the Froth and Bubble Foundation. Every month, the foundation provides gift cards to more than 100 people in the Valley who are struggling financially. Often, these patients have to decide between paying for food, medicine or doctor bills, and these gift cards can help them with their bills or other necessities to survive. ... “These gift cards help families bridge the gap when they need food and are juggling bills and feeling stressed,” said Hospice of the Valley Executive Director Debbie Shumway. “He is a servant leader who quietly gives back and makes a huge difference, one person at a time.” Thank you, Jeff, for all you do to help others!

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Inaugural walk raises awareness for pancreatic cancer

05/23/25 at 03:00 AM

Inaugural walk raises awareness for pancreatic cancer Columbus Jewish News, Beachwood, OH; by Becky Raspe; 5/21/25 On April 30, Wexner Heritage Village held its inaugural Zusman Hospice & Pancreatic Cancer Walkathon fundraiser. Held at Bexley’s Schneider Park, the event was held in memory of Rob Cohen, brother of Wexner Heritage Village and Zusman Hospice’s volunteer coordinator Judi Koval. Cohen died three years ago from pancreatic cancer ... under the care of Wexner Heritage Village’s Zusman Hospice “at the end of his days.” Organizing the walk to honor her brother, the event date also would’ve been her brother’s birthday, she said. 

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What caregivers should know about end-of-life rallies

05/22/25 at 03:00 AM

What caregivers should know about end-of-life rallies  AARP; by Jamie Ducharme; 5/19/25People with advanced illnesses sometimes experience unpredictable bursts of energy or clarity. Here’s how caregivers should handle these episodes. Roughly a decade after her mother was diagnosed with Alzheimer’s disease, Liz Donnarumma got her back — but only for an instant. It happened one evening in 2021, more than a year after Donnarumma first realized her mother, Theresa, didn’t recognize her. Theresa took Donnarumma’s face in her hands, called her by her nickname and thanked her. “When she put her hands on my face and I looked into her eyes, she was totally there. It was my mother,” Donnarumma says. “It was like a second, just one second, and it was gone.” Donnarumma’s mother had an episode of “paradoxical lucidity” — that is, an unexpected burst of mental clarity, despite her advanced condition. While these moments are as unexplained as they are unexpected, experts say they are more common than many people realize. ...

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Q&A: Addressing palliative care in dialysis settings

05/22/25 at 03:00 AM

Q&A: Addressing palliative care in dialysis settings Physician's Weekly; interview with Jane O. Schell, MD; 5/20/25 Jane O. Schell, MD, discusses factors that impact use of palliative care in dialysis settings for patients in the United States, as well as potential solutions. 

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Yes, you can die from a broken heart

05/21/25 at 02:00 AM

Yes, you can die from a broken heartMedscape; by F. Perry Wilson, MD, MSCE; 5/14/25 A patient comes crashing into the emergency room with severe chest pain. The EKG looks like this: A patient comes crashing into the emergency room with severe chest pain. The EKG looks like this: [graphic]. As a doctor, if you see this, you’re calling the cardiac cath lab. This is an ST-elevation myocardial infarction — the big one — indicative of a blood clot blocking blood flow to a large section of the heart. The sooner you get that blood clot out, the better chance the patient has to survive. So the patient is rushed to the cath lab, and they find… nothing. Clear coronaries. No blood clot. Further questioning reveals that the patient, an older woman, lost her husband recently. This is stress-induced cardiomyopathy, medically known as Takotsubo cardiomyopathy (TC). It’s the pathophysiologic manifestation of a broken heart. First described in 1991, Takotsubo syndrome occurs in the setting of deep psychological, emotional, or physical stress.

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Dying at home becomes more common for patients with history of ischemic stroke

05/16/25 at 03:00 AM

Dying at home becomes more common for patients with history of ischemic stroke NeurologyToday; by Susan Fitzgerald; 5/15/25 In contrast to earlier studies showing a decline in stroke prevalence and mortality, a new study found that the rates are going up and more people, particularly Black Americans, are either dying at home or arriving to the hospital dead on arrival. Experts speculate that the trend may be driven by the lack of access to hospice services and care, in general.

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Palliative and end-of-life care during critical cardiovascular illness: A scientific statement from the American Heart Association

05/16/25 at 02:00 AM

Palliative and end-of-life care during critical cardiovascular illness: A scientific statement from the American Heart Association American Heart Association; by Erin A. Bohula, MD, DPhil, Michael J. Landzberg, MD, Venu Menon, MD, FAHA, Carlos L. Alviar, MD, Gregory W. Barsness, MD, FAHA, Daniela R. Crousillat, MD, Nelia Jain, MD, MA, Robert Page II, PharmD, MSPH, FAHA, Rachel Wells, PhD, MSN, and Abdulla A. Damluji, MD, PhD, MBA, FAHA on behalf of the American Heart Association Acute Cardiac Care and General Cardiology Committee of the Council on Clinical Cardiology; and Council on Cardiovascular and Stroke Nursing; 5/15/25 Abstract: Cardiac intensive care units are witnessing a demographic shift, characterized by patients with increasingly complex or end-stage cardiovascular disease with a greater burden of concomitant comorbid noncardiovascular disease. Despite technical advances in care that may be offered, many critically ill cardiovascular patients will nevertheless experience significant morbidity and mortality during the acute decompensation, including physical and psychological suffering. Palliative care, with its specialized focus on alleviating suffering, aligns treatments with patient and caregiver values and improves overall care planning. Integrating palliative care into cardiovascular disease management extends the therapeutic approach beyond life-sustaining measures to encompass life-enhancing goals, addressing the physical, emotional, psychosocial, and spiritual needs of critically ill patients. This American Heart Association scientific statement aims to explore the definitions and conceptual framework of palliative care and to suggest strategies to integrate palliative care principles into the management of patients with critical cardiovascular illness.

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Dementia patient discharged from hospice over Medicare requirement. Here’s why it happened

05/15/25 at 03:00 AM

Dementia patient discharged from hospice over Medicare requirement. Here’s why it happened WKMG-6, Deltona, FL; by Erika Briguglio and Louis Bolden; 5/14/25A Volusia County family is left scrambling after their loved one is abruptly dropped from hospice care. To qualify for hospice, patients must have a life expectancy of six months or less. However, for dementia patients, the prognosis can be unpredictable. Hospice care can be extended as long as the patient continues to meet Medicare requirements. Unfortunately, these requirements are why Amy Yates lost coverage for her 91-year-old grandmother. ... “I think it’s she hasn’t died fast enough, and it’s costing them money that they don’t want to spend,” Yates told News 6. ... What Yates’ family is dealing with is what Medicare calls live discharge, and they are not alone. The Hospice Foundation of America reports that 17% of people in 2022 who were admitted to hospice care were discharged; about 6% of the total caseload was discharged because they no longer met Medicare requirements for care under the hospice benefit.Editor's note: What are your hospice stats for live discharges? For Length of Stay (LOS)? This factor--with the face-to-face recertification requirement--is crucial. Unfortunately, many hospices misused President Jimmy Carter's extraordinarily long LOS with misleading information about hospice care. They watered down "end-of-life" care and never mentioned anything about a basic recertification process. Warm, user-friendly language can be used with integrity, authenticity, and patient/caregiver support.

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AI tool uses face photos to estimate biological age and predict cancer outcomes

05/14/25 at 03:00 AM

AI tool uses face photos to estimate biological age and predict cancer outcomes Mass General Brigham - Technology & Innovation - Research; by Hugo Alerts, Ray Mak, Dennis Bontempi, Osbert Zalay, Danielle S. Bitterman, Fridolin Haugg, Jack M. Qian, Hannah Roberts, Subha Perni, Vasco Prudente, Suraj Pai, Christian Guthier, Tracy Balboni, Laura Warren, Monica Krishan, and Benjamin H. Kann; 5/8/25 Mass General Brigham findings suggest FaceAge tool could provide objective data to help inform treatment decisions in cancer care and other chronic diseases. Eyes may be the window to the soul, but a person’s biological age could be reflected in their facial characteristics. Investigators from Mass General Brigham developed a deep learning algorithm called FaceAge that uses a photo of a person’s face to predict biological age and survival outcomes for patients with cancer. They found that patients with cancer, on average, had a higher FaceAge than those without and appeared about five years older than their chronological age. Older FaceAge predictions were associated with worse overall survival outcomes across multiple cancer types. They also found that FaceAge outperformed clinicians in predicting short-term life expectancies of patients receiving palliative radiotherapy. Their results are published in The Lancet Digital Health.Editor's note: This summary article is published by the main source, Mass General Brigham. Various articles are being written about this new use of AI.

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Systemic functioning of Puerto Rican families with a cancer patient: A qualitative-oriented mixed-methods study

05/10/25 at 03:00 AM

Systemic functioning of Puerto Rican families with a cancer patient: A qualitative-oriented mixed-methods studyJournal of Health Psychology; Nicole M. Vélez Agosto; 4/25Puerto Ricans are part of marginalized communities that are impacted by health disparities, such as lifestyles, health behaviors and access to care (Simmons et al., 2011). The purpose of study was to assess systemic functioning in Puerto Rican families with a cancer patient using the Spanish translated version of the Family Genogram Interview (FGI) that measures Bowen’s four emotional processes in nuclear family and family of origin. Results suggested an acceptable reliability for the FGI-Spanish and higher presence of symptoms in a spouse or partner, symptoms in family of origin, focus on a child and emotional cutoff in family of origin. Qualitative findings suggested that main concerns for participants were related to family changes surrounding illness and familial roles, consistent with Bowen’s theory and clinical implications for designing systemic interventions for Puerto Rican families.

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DEMENTIA: When they don’t recognize you anymore: Dementia study looks at loved ones’ responses

05/09/25 at 01:45 AM

When they don’t recognize you anymore: Dementia study looks at loved ones’ responses Penn Live - Nation & World News; by Paula Span, KFF Health News; 5/4/25 It happened more than a decade ago, but the moment remains with her. Sara Stewart was talking at the dining room table with her mother, Barbara Cole, 86 at the time, in Bar Harbor, Maine. Stewart, then 59, a lawyer, was making one of her extended visits from out of state. ... “She said to me: ‘Now, where is it we know each other from? Was it from school?’” her daughter and firstborn recalled. “I felt like I’d been kicked.” Stewart remembers thinking, “In the natural course of things, you were supposed to die before me. But you were never supposed to forget who I am.” Later, alone, she wept.

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University of Minnesota uses VR to study Alzheimer's, death

05/06/25 at 03:00 AM

University of Minnesota uses VR to study Alzheimer's, death Government Technology (GT) - Center for Digital Education; by Richard Chin; 5/2/25 At the University of Minnesota, medical school students have been using a virtual reality experience to understand the perspective of a woman dealing with the advanced stages of Alzheimer’s. ... When the University of Minnesota offered to let me experience what it’s like to die, naturally I said yes. Aren’t we all morbidly curious about the undiscovered country, as Hamlet put it, from which no traveler returns? Except this time, happily, I would get to return because it would be a virtual death, an experience in a VR studio that’s part of the university’s Health Sciences Library system. The dying experience is part of a series of VR simulations developed by a nine-year-old California-based company called Embodied Labs. They’ve created immersive, first-person experiences of what it’s like to have dementia, Alzheimer’s or Parkinson disease, vision or hearing loss, to be socially isolated or to experience aging as a LGBTQ person. And what it’s like to die.

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Preferences for communication about prognosis among children with cancer, parents, and oncologists

05/03/25 at 03:45 AM

Preferences for communication about prognosis among children with cancer, parents, and oncologistsJAMA Network Open; Caroline Christianson, MD; Calliope Reeves; Harmony Farner, MA; Shoshana Mehler, BA; Tara M. Brinkman, PhD; Justin N. Baker, MD; Pamela Hinds, PhD, RN; Jennifer W. Mack, MD, MPH; Erica C. Kaye, MD, MPH; 4/25Should oncologists elicit communication preferences from patients with pediatric cancer and their parents before disclosing prognosis? In this study, patients, parents, and oncologists recommended preemptive elicitation of communication preferences with the goal of improving alignment of prognostic disclosure with patient and caregiver communication needs, thereby enhancing quality of care. These findings demonstrate that patients and caregivers are open to discussing prognostic communication preferences, and that oncologists also recognize the potential value in this communication approach, even as they rarely engage in it. 

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Location of terminal care in pulmonary hypertension

05/03/25 at 03:10 AM

Location of terminal care in pulmonary hypertensionCJC Open; Ramzi Ibrahim MD; Adam Habib MD; April Olson MD; Farah Shrourou; Hoang Nhat Pham MD; Mahmoud Abdelnabi MBBCh MSc; Maryam Emami Neyestanak PhD; Sabrina Soin DO; See-Wei Low MD; Bhupinder Natt MD; Mamas A. Mamas BMBCh MA DPhil FRCP; Timothy Barry MB BCh BAO; Chadi Ayoub MBBS PhD; Reza Arsanjani MD; Franz P. Rischard MD; Kwan Lee MD; 4/25Palliative care services have seen an increase in utilization in recent years, yet this uptrend has not been observed uniformly across all groups. The recent decline in mortality within inpatient facilities, despite the persistently high mortality rates of PH [pulmonary hypertension], depicts better coordinated patient-centered care, including hospice and at-home services. Nonetheless, place-of-death disparities remain, linked to demographic variables. Specifically, minority ethnic groups in the US have not experienced this increase. These populations often harbor misconceptions and unconscious biases about the nature of palliative care. The Pulmonary Hypertension Association, recognizing this gap, has advocated for the integration of palliative care into the treatment regimen for patients with PH.

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Identifying palliative care needs in heart failure patients with nurse-led screening

05/03/25 at 03:05 AM

Identifying palliative care needs in heart failure patients with nurse-led screening Journal of Hospice & Palliative Nursing; by Cantey, Christina DNP, FNP-C, AACC, CCK; Douglas-Mattis, Yhaneek DNP, AGACNP-BC; Lisiakowski, Jillian DNP, FNP-C; Fowler, Caley MSN, RN; Ejem, Deborah PhD, MA; 4/18/25 ... This quality improvement project aimed to improve the identification of unmet palliative care needs in patients with heart failure admitted to a progressive care unit by implementing a standardized nurse-administered palliative care screening tool. ... Implementing a nurse-administered screening tool effectively identified unmet palliative care needs among patients with heart failure with reduced ejection fraction and NYHA III. Despite low rates of palliative consults, standardization using IPOS could increase screening, contribute to institutional triggering palliative consultations, and improve awareness of unmet needs.

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[Taiwan] Palliative care with negative pressure wound therapy application in malignant wounds: a systematic review

05/03/25 at 03:00 AM

[Taiwan] Palliative care with negative pressure wound therapy application in malignant wounds: a systematic reviewJournal of Wound Care; Xiao-Feng Yao, Yen-Jen Wang, Yang-Sheng Lin; 4/25Of 765 articles screened, 14 eligible studies were included in the review. The location of the hard-to-heal wounds was widely distributed: five wounds on the scalp; three wounds over the anogenital area; and the remaining wounds on the trunk and extremities. The reported outcomes included: improvement of wound healing; decreased exudation and malodour of the wound; decreased pain sensation; eligibility for further treatment; and a shift to the homecare system. The findings of this study suggested NPWT [negative pressure wound therapy] could be a choice in palliative care for patients with malignant wounds. However, more studies are needed to evaluate the efficacy of NPWT in these wounds.

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