Literature Review
All posts tagged with “Clinical News | Disease Specific.”
Palliative care in liver transplantation
06/21/25 at 03:45 AMPalliative care in liver transplantationCurrent Transplantation Reports; Michelle Ng, Elliot Tapper; 5/25 Palliative care is an underutilized resource due to the misconception that being a liver transplant candidate precludes patients from accessing these services. However, early integration of palliative care has become increasingly important for both pre- and post-liver transplant patients as it not only improves patient outcomes, but also promotes quality of life that extends beyond graft or patient survival. We discuss strategies to manage pain, ascites, hepatic encephalopathy, pruritis, muscle cramps, sexual dysfunction, depression, anxiety, insomnia, and malnutrition. These symptoms are best addressed with a multi-modal approach with non-pharmacologic therapies as an adjunct.
[China] Efficacy of music therapy on quality of life in cancer patients: A systematic review and meta-analysis
06/21/25 at 03:05 AM[China] Efficacy of music therapy on quality of life in cancer patients: A systematic review and meta-analysisPsycho-Oncology; Ting Luo, Suting Zhang, Mi Zhao, Hong Song, Shuo Wang, Jing Han; 5/25Music therapy was effective in improving the QoL [quality of life] of patients with cancer, with passive music therapy being superior to active-passive music therapy. Meanwhile, anxiety and depression were relieved as well.
How long was Adriana Smith on life support? Brain‑dead nurse's baby delivered by C‑section
06/20/25 at 03:00 AMHow long was Adriana Smith on life support? Brain‑dead nurse's baby delivered by C‑section Enstarz; by David Unyime Nkanta; 6/18/25 The 31-year-old nurse was declared brain dead early in her pregnancy—her baby was born via C-section nearly four months later, sparking legal and ethical debate. Adriana Smith, a 31‑year‑old nurse in Atlanta, was declared brain dead in mid‑February after suffering serious blood clots in her brain. Despite devastating diagnosis, she remained on life support for nearly four months—a decision doctors said was legally necessary under Georgia's strict abortion laws. This rare case of maternal somatic support—keeping a brain-dead woman alive to deliver a baby—is highly unusual. On 13 June, doctors at Emory University Hospital performed an emergency c‑section, delivering a boy they named Chance, weighing just 1 lb 13 oz (around 830 g). ... Smith's mother, April Newkirk, described the ordeal as 'torture,' saying: 'I see my daughter breathing, but she's not there.' The family maintain that they were never allowed to make treatment decisions, a situation that has deeply distressed them and prompted calls for change.
Scaling early palliative care in value-based community oncology: A technology-enabled approach
06/19/25 at 03:00 AMScaling early palliative care in value-based community oncology: A technology-enabled approach American Journal of Managed Care (AJMC); by Biqi Zhang, Samyukta Mullangi, Alphan Kirayoglu, Stephen G. Divers, Julia L. Frydman; 6/18/25 Key Takeaways:
Sky Harbor program teaches TSA to help passengers with dementia. It's the 1st of its kind in U.S.
06/18/25 at 03:00 AMSky Harbor program teaches TSA to help passengers with dementia. It's the 1st of its kind in U.S. 91.5 KJZZ Phoenix; by Kathy Ritchie; 6/17/25 For the first time anywhere in the U.S., Transportation Security Administration officers at Sky Harbor Airport are learning how to help travelers living with dementia. "So during this simulation, we're going to be wearing sunglasses, headphones, and both pairs of gloves," said Calli Carlson with Hospice of the Valley during a recent training session. "It's going to be about an 8-minute experience. So those headphones are going to tell you what to do with your blue bag. Do the best that you can." She’s leading the agents in a simulation so they experience what it's like to have dementia. "So this interactive Dementia Moments training is one of the first trainings that has been provided to TSA agents." This simulation uses special glasses that impair vision, headphones to mimic audio distortion and gloves which affect dexterity.Editor's Note: Bravo! Do you provide any similar type of training for your employees and volunteers, designed to simulate contexts and interactions with persons with dementia? Surely, you can!
Families demand end to Medicare waiting period for early-onset Alzheimer’s patients
06/17/25 at 03:20 AMFamilies demand end to Medicare waiting period for early-onset Alzheimer’s patients Washington Examiner; by Elaine Mallon; 6/15/25 Jason Raubach was diagnosed at 50 years old with early-onset Alzheimer’s disease — a diagnosis that affects nearly 200,000 Americans. He received the diagnosis in 2018, completely upending life for his family. His youngest child was just a freshman in high school. ... Shortly before receiving an official diagnosis, Jason Raubach lost his job, having to move his family onto a consolidated omnibus budget reconciliation act health plan, or COBRA plan, which allows a person to keep their health insurance even after losing their job. “It wasn’t cheap,” Elizabeth Raubach said.However, once diagnosed, Jason Raubach had to wait two and a half years before he could receive coverage under Medicare, health insurance for those 65 years and older or those with qualifying disabilities. But Elizabeth Raubach, along with dozens of other caretakers for people diagnosed with Alzheimer’s, called on Congress in a letter to eliminate the 29-month waiting period required for those under the age of 65 to receive coverage under Medicare. ...
Nurse practitioners step in as geriatrician ranks shrink
06/17/25 at 03:00 AMNurse practitioners step in as geriatrician ranks shrink The Washington Post; by Jariel Arvin; 6/15/25 On Fridays, Stephanie Johnson has a busy schedule, driving her navy-blue Jeep from one patient’s home to the next, seeing eight people in all. Pregnant with her second child, she schleps a backpack instead of a traditional black bag to carry a laptop and essential medical supplies ... “Our patient isn’t just the older adult,” Johnson said. “It’s also often the family member or the person helping to manage them.” Johnson isn’t alone. Today, nurse practitioners are increasingly filling a gap that is expected to widen as the senior population explodes and the number of geriatricians declines. The Health Resources and Services Administration projects a 50 percent increas in demand for geriatricians from 2018 to 2030, when the entire baby boom generation will be older than 65. ...
Navigating the ‘Long Goodbye’ Help for caregivers of those with Alzheimer’s Dementia
06/17/25 at 03:00 AMNavigating the ‘Long Goodbye’ Help for caregivers of those with Alzheimer’s Dementia The Journal; by Renee Bledsoe, LPN, CHPLN, Hospice of the Panhandle; 6/16/25 ... [Important statistics:] ... Right now, there are more than 38,000 individuals over the age of 65 in West Virginia with Alzheimer’s Dementia and about 65,000 caregivers. The estimated total lifetime cost of care for someone with Dementia is more than $400,000 and about 70 percent of that cost is borne by family caregivers in the form of unpaid caregiving and out-of-pocket costs. Sixty-six percent of caregivers live with the person for whom they are caring. More than half provide care to a parent or in-law, and about a quarter of those are also caring for at least one child. It comes as no surprise that 59 percent of dementia caregivers report high emotional stress, and 38 percent report high physical stress, according to the 2025 Alzheimer’s Disease Facts and Figures report. ... Hospice of the Panhandle is no stranger to the emotional, physical and financial challenges that the caregivers of those with Alzheimer’s Dementia in our area face every day. ...
Sex and racial/ethnic differences in end-of-life care preferences in persons with Parkinson's Disease and related disorders
06/14/25 at 03:25 AMSex and racial/ethnic differences in end-of-life care preferences in persons with Parkinson's Disease and related disordersMovement Disorders; Whitley W Aamodt, Lynn Eickholt, David G Coughlin, Lisa Solomon, Katharine A Rendle, Carly Marshall, Joaquin A Vizcarra, Nabila Dahodwala; 5/25In persons with Parkinson's disease (PD) and related disorders (PDRD), rates of end-of-life (EoL) hospitalization are greatest, and rates of hospice utilization lowest, among men and persons of color. In adjusted models, women with PDRD were more likely than men to prefer religious/spiritual support at the end of life. Compared with White participants with PDRD, non-White participants were more likely to consider EoL hospitalization, less likely to consider medical aid in dying, and less familiar with palliative care. In four focus groups involving 14 questionnaire respondents, contributors to EoL decision-making included medical knowledge/information, personal experiences, family dynamics, religion/spirituality, and resources/cost. Conclusions: EoL care preferences differ by sex and race/ethnicity in persons with PDRD. These preferences are influenced by multiple factors and may contribute to differential EoL outcomes, emphasizing the need for individualized, culturally competent EoL care.
Fostering a team-based approach to elevate neuro-oncology care
06/10/25 at 03:00 AMFostering a team-based approach to elevate neuro-oncology care CancerNetwork; by Sylvia Kurz, MD, PhD; 6/9/25 Sylvia Kurz, MD, PhD, spoke with CancerNetwork® about the importance of collaborating with multiple disciplines to elevate the level of care and meet the needs of patients with brain tumors.
Palliative care for patients with end-stage renal disease-An examination of unmet needs and experiencing problems
06/07/25 at 03:30 AMPalliative care for patients with end-stage renal disease-An examination of unmet needs and experiencing problemsJournal of Hospice & Palliative Nursing; Darawad, Muhammad W. PhD, RN; Reinke, Lynn F. PhD, ANP-BC, FPCN, FAAN; Khalil, Amani PhD, RN; Melhem, Ghaith Bani PhD, RN; Alnajar, Malek MSN, CNS, RN; June 2025Patients with end-stage renal disease face numerous physical, emotional, and financial burdens, necessitating palliative care (PC) interventions. This cross-sectional study ... revealed that 64.7% of participants experienced significant challenges, primarily financial difficulties (78.5%), autonomy concerns (68.8%), and a need for information (68.0%). More than half (51.9%) reported needing PC [palliative care], particularly for managing fatigue (78.3%), pain (79.8%), and depression (72.9%). Unmet needs were common (47.6%), with the most notable gaps in financial support (52.5%) and information provision (50%). These findings underscored the urgent need for tailored PC interventions for end-stage renal disease patients, particularly in addressing symptom management, psychosocial and spiritual support, financial support, and information deficits, to enhance their quality of life.
Where adults with heart failure die: Insights from the CDC-WONDER database
06/07/25 at 03:25 AMWhere adults with heart failure die: Insights from the CDC-WONDER databaseCirculation: Heart Failure; Farman Ali, Shaaf Ahmad, Aman Ullah, Ali Salman, Adarsh Raja, Faizan Ahmed, Prinka Perswani, Ahsan Alam, Jishanth Mattumpuram, Muhammad Talha Maniya, Hamza Janjua, Tyler J Bonkowski, Aravinda Nanjundappa; 5/25This study underscores the shifting trends in the locations of death among patients with HF [heart failure], with a ≈2-fold increase in HF-related deaths occurring at home over the past 2 decades. Hospice/nursing home deaths increased from 30.95% ... in 1999 to 34.71% ... in 2017, but declined to 29.54% ... by 2023. Young adults (20-34 years) had the highest proportion of inpatient deaths. Sex, ethnicity, and urbanization were significant predictors of death location, with men, White individuals, and those in large metropolitan areas more likely to die in medical facilities.
Gaps in the coordination of care for older adults with or at risk for cardiovascular disease
06/06/25 at 03:00 AMGaps in the coordination of care for older adults with or at risk for cardiovascular disease The American Journal of Managed Care; by Lisa M. Kern, MD, MPH,Joselyne E. Aucapina,Samprit Banerjee, PhD, Joanna B. Ringel, MPH, Jonathan N. Tobin, PhD, Semhar Fisseha, MPH, Helena Meiri, MA, RN, Madeline R. Sterling, MD, MPH, Kurt C. Stange, MD, PhD, Monika M. Safford, MD, Paul N. Casale, MD, MPH; 6/3/25 ... To determine whether older adults with cardiovascular disease (CVD) or CVD risk factors perceive gaps in communication among their providers and whether they consider those gaps to be consequential, we conducted a cross-sectional survey of Medicare beneficiaries 65 years and older with CVD or CVD risk factors and highly fragmented ambulatory care (reversed Bice-Boxerman Index score ≥ 0.85).
Nonprofit participates in ALS Ice Bucket Challenge
06/03/25 at 03:00 AMNonprofit participates in ALS Ice Bucket Challenge Coeur d'Alene / Post Falls Press, Coeur d'Alene, ID; 5/31/25 Hospice of North Idaho took the plunge this week after being nominated by Kootenai Health to participate in the ALS Ice Bucket Challenge, a viral campaign aimed at raising awareness and funds to fight amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease. In a video on social media, Hospice of North Idaho’s Leadership Team and staff sat front and center Wednesday as team members gathered, cheered and doused them with buckets of ice-cold water all in the name of a great cause, Hospice of North Idaho shared in a Friday news release. ... “Hospice of North Idaho is proud to take part in this movement and show our support for those affected by ALS,” Megan Ryan, communications specialist at Hospice of North Idaho.
US trends from 1999 to 2020: Mortality and location of deaths in ischemic stroke
06/03/25 at 02:00 AMUS trends from 1999 to 2020: Mortality and location of deaths in ischemic stroke Neurology Advisor; by Meghna Rao; 6/2/25 Patterns of ischemic stroke mortality have varied over the last 2 decades in the United States, according to study findings published in PLOS One. Stroke is one of the leading causes of mortality in the US. Researchers studied the trends in location of ischemic stroke deaths to improve end-of-life care and address health care inequities.The Centers for Disease Control and Prevention’s Wide-Ranging Online Data for Epidemiologic Research (CDC WONDER) database was used to examine trends in ischemic stroke mortality between 1999 and 2020.
OP-ED: How hospice care falls short for people living with dementia
06/02/25 at 03:15 AMOP-ED: How hospice care falls short for people living with dementia Being Patient - Alzheimer's News, Advice, Stories & Support; by Maria J. Silveira; 5/30/25Only 12 percent of Americans with dementia ever enroll in hospice. This may be due to how hospice is structured and paid for in the U.S., explains University of Michigan associate professor of internal medicine Maria J Silveira. ... In contrast to the former president [Jimmy Carter's extended hospice care], his wife, who had dementia, lived only nine days under hospice care. Palliative care physicians like myself who treat both conditions are not surprised at all by this disparity. ... Strikingly, only 12 percent of Americans with dementia ever enroll in hospice. Among those who do, one-third are near death. This is in stark contrast to the cancer population: Patients over 60 with cancer enroll in hospice 70 percent of the time.
Timing and outcomes of palliative care integration into care of adolescents and young adults with advanced cancer
05/31/25 at 03:20 AMTiming and outcomes of palliative care integration into care of adolescents and young adults with advanced cancerOncology Practice; Jeremiah Bonnet, BA; Colin Cernik, MS; Hajime Uno, PhD; Lanfang Xu, MS; Cecile A. Laurent, MS; Lauren Fisher, MS; Nancy Cannizzaro, BA; Julie Munneke, BA; Robert M. Cooper, MD; Joshua R. Lakin, MD; Corey M. Schwartz, MD; Mallory Casperson, BA; Andrea Altschuler, PhD; Lawrence H. Kushi, ScD; Chun R. Chao, PhD; Lori Wiener, PhD; Jennifer W. Mack, MD, MPH; 5/25Adolescent and young adult (AYA) patients with cancer frequently receive intensive measures at the end of life; many also express care goals that align with a palliative approach. [In this study] nearly three quarters (73%) [of AYA patients] were referred to palliative care before death. Thirty-six percent of palliative care referrals took place before the last 90 days of life; 30% were in the last month of life. Palliative care referrals and their timing were associated with care received at the end of life, with earlier referrals associated with fewer intensive measures near death, including chemotherapy in the last 14 days of life ... as well as intensive care unit admissions, emergency room visits, and hospitalizations in the last month of life ... Patients who were referred to palliative care were more likely to have symptoms assessed in the last 90 days of life, including pain, dyspnea, nausea, diarrhea, constipation, depression, and anxiety ...
An intervention to increase advance care planning among older adults with advanced cancer-A randomized clinical trial
05/31/25 at 03:15 AMAn intervention to increase advance care planning among older adults with advanced cancer-A randomized clinical trialJAMA Network Open; Angelo E. Volandes, MD, MPH; Yuchiao Chang, PhD; Joshua R. Lakin, MD; Michael K. Paasche-Orlow, MD; Charlotta Lindvall, MD, PhD; Seth N. Zupanc, BA; Diana Martins-Welch, MD; Maria T. Carney, MD; Edith A. Burns, MD; Jennifer Itty, MPH; Kaitlin Emmert-Tangredi, MSW; Narda J. Martin, MSN-ED, RN; Shreya Sanghani, MS; Jon Tilburt, MD; Kathryn I. Pollak, PhD; Aretha Delight Davis, MD, JD; Cynthia Garde, MBA; Michael J. Barry, MD; Areej El-Jawahri, MD; Lisa Quintiliani, PhD; Kate Sciacca, NP; Julie Goldman, MPH; James A. Tulsky, MD; 5/25Despite accumulating evidence of the benefits of these discussions, documentation of advance care planning (ACP) activity in the electronic health record (EHR) remains low and inconsistent for most health care systems, increasing the risk that patients will not receive care that matches their goals. In this pragmatic stepped-wedge randomized clinical trial among older patients with advanced cancer, an intervention combining patient video decision aids and clinician communication skills training increased the proportion of patients with ACP documentation. This randomized clinical trial exploring a combined intervention of patient empowerment and clinician communication skills training found a significant and clinically meaningful increase in ACP documentation rates with a scalable intervention that can be rapidly implemented across large health care systems. This approach offers an innovative paradigm with a clinically meaningful increase in ACP documentation, a widely used quality metric that reflects high-quality patient-centered care delivery.
A ‘cloak of comfort’: an integrated approach to palliative care for cancer patients
05/30/25 at 03:00 AMA ‘cloak of comfort’: an integrated approach to palliative care for cancer patients Sinai Health; 5/26/25 At Mount Sinai Hospital, palliative care is fully integrated into cancer care, providing comprehensive, person-centered support for those with advanced illness. Palliative care, derived from the Latin pallium meaning “cloak,” offers comfort and support to individuals with serious illnesses. Often misunderstood as solely end-of-life care, it actually provides relief at any stage of a life-threatening illness and can be provided in tandem with cancer treatment. This holistic approach addresses physical, emotional, and spiritual needs, aiming to improve quality of life for both patients and their families. In fact, early integration of palliative care can enhance symptom management, extend life and offer greater support to caregivers. Patients can receive care at Mount Sinai Hospital’s Cancer Care Clinic, at home through the Temmy Latner Centre’s home palliative care program, and in the palliative care unit at Hennick Bridgepoint Hospital.
CMS: Kidney Care Choices (KCC) Model
05/29/25 at 03:00 AMCMS: Kidney Care Choices (KCC) Model CMS.gov - Centers for Medicare & Medicaid Services; 5/27/25 The Centers for Medicare & Medicaid Services (CMS) is announcing a coordinated set of changes to the Kidney Care Choices (KCC) Model starting in performance year 2026 that are expected to improve the model test by adjusting the financial methodology and participation options to improve model sustainability. In addition, the model is being extended by one year for continuation of quality care to beneficiaries through 2027. For more information, please visit KCC Model Performance Year 2026 Updates.
ALS and mental health: The importance of caring for the whole person
05/28/25 at 03:00 AMALS and mental health: The importance of caring for the whole person ALS Association; by Amber Johnstone, MSW, LISW-S; retrieved from the internet 5/27/25 ... May is ALS Awareness Month and also Mental Health Awareness month. ALS and Mental Health go hand in hand. One of the first things I tell newly diagnosed individuals that I work with is that ALS affects the whole family. And to be truthful, it affects many more than just that nuclear family unit. A person living with ALS is like a pebble thrown into a pond. That first splash is the biggest, but then the water ripples all the way out to the edges of the pond. Those ripples are all the people with which the person with ALS shares their journey. ... The ALS Association understands how important mental health can be. ... The ALS Association is proud to offer ALS Academy to community healthcare professionals and caregivers. ALS Academy is free, online, self-paced, catalog of ALS education videos.
ACC issues new tool to provide guidance on using Apple Watch for heart health monitoring
05/26/25 at 03:00 AMACC issues new tool to provide guidance on using Apple Watch for heart health monitoring American College of Cardiology; ACC News Story; 5/20/25 The ACC has issued a new "Leveraging Apple Watch for Cardiovascular Care" tool, designed to provide guidance for clinicians and patients using health data collected while wearing an Apple Watch to effectively track and manage cardiovascular health. Through the tool, clinicians can establish best practices for incorporating Apple Watch data relevant to a patient's care plan, create an implementation plan for collecting and responding to data, and develop processes for working with patients to ensure they are using the watch correctly and seeking care where appropriate. The tool also advises when an Apple Watch should not be used, including clinically indicated rhythm monitoring where immediate alerts to a clinician are needed.
Hospice volunteer donates 10,000 gift cards to cancer patients
05/26/25 at 02:00 AMHospice volunteer donates 10,000 gift cards to cancer patients AZ Family - CBS-5, Phoenix, AZ; by Tianna Morimoto; 5/20/25 One Valley man has made a difference in times of need for those who may be losing hope by donating thousands of gift cards, and that’s Something Good. Jeff Lewis volunteers with Hospice of the Valley and was recently recognized for donating 10,000 grocery gift cards to help cancer patients in need. Jeff is a cancer survivor and has made it his mission to help those going through treatments with no family or support. He created a nonprofit called the Froth and Bubble Foundation. Every month, the foundation provides gift cards to more than 100 people in the Valley who are struggling financially. Often, these patients have to decide between paying for food, medicine or doctor bills, and these gift cards can help them with their bills or other necessities to survive. ... “These gift cards help families bridge the gap when they need food and are juggling bills and feeling stressed,” said Hospice of the Valley Executive Director Debbie Shumway. “He is a servant leader who quietly gives back and makes a huge difference, one person at a time.” Thank you, Jeff, for all you do to help others!
Inaugural walk raises awareness for pancreatic cancer
05/23/25 at 03:00 AMInaugural walk raises awareness for pancreatic cancer Columbus Jewish News, Beachwood, OH; by Becky Raspe; 5/21/25 On April 30, Wexner Heritage Village held its inaugural Zusman Hospice & Pancreatic Cancer Walkathon fundraiser. Held at Bexley’s Schneider Park, the event was held in memory of Rob Cohen, brother of Wexner Heritage Village and Zusman Hospice’s volunteer coordinator Judi Koval. Cohen died three years ago from pancreatic cancer ... under the care of Wexner Heritage Village’s Zusman Hospice “at the end of his days.” Organizing the walk to honor her brother, the event date also would’ve been her brother’s birthday, she said.
What caregivers should know about end-of-life rallies
05/22/25 at 03:00 AMWhat caregivers should know about end-of-life rallies AARP; by Jamie Ducharme; 5/19/25People with advanced illnesses sometimes experience unpredictable bursts of energy or clarity. Here’s how caregivers should handle these episodes. Roughly a decade after her mother was diagnosed with Alzheimer’s disease, Liz Donnarumma got her back — but only for an instant. It happened one evening in 2021, more than a year after Donnarumma first realized her mother, Theresa, didn’t recognize her. Theresa took Donnarumma’s face in her hands, called her by her nickname and thanked her. “When she put her hands on my face and I looked into her eyes, she was totally there. It was my mother,” Donnarumma says. “It was like a second, just one second, and it was gone.” Donnarumma’s mother had an episode of “paradoxical lucidity” — that is, an unexpected burst of mental clarity, despite her advanced condition. While these moments are as unexplained as they are unexpected, experts say they are more common than many people realize. ...