Literature Review

Improving inclusive palliative care for transgender patients Hospice News; by Holly Vossel; 5/7/24... Nearly a quarter (21.3%) of 865 interdisciplinary palliative professionals indicated that they had observed some form of discriminatory care delivered to a transgender patient in a recent study published in Cambridge University Press’ journal Palliative Support Care. Furthermore, 85.3% of study participants said they witnessed disrespectful care, while inadequate and abusive care was observed by 35.9% and 10.3% of palliative teams, respectively. ... [Read more for descriptions and interventions, as discussed with Zachary Fried, licensed clinical social worker and training supervisor of Optum at Home, a subsidiary of UnitedHealth Group.] 

Keys to addressing ethical, moral distress in pediatric hospice Hospice News; by Holly Vossel; 5/6/24 Hospices may be under-prepared to navigate the complexities in end-of-life decisions among terminally ill children, as the ethical and moral considerations related to patient autonomy are vastly different for pediatric populations compared to adults. Ethical principles of autonomy vary in pediatric populations due to a number of factors, including a child’s age, developmental stage, cognitive capacity and their spiritual background and beliefs, according to Christy Torkildson, director at the Children’s Hospice and Palliative Care Coalition of California. 

Home-based pediatric hospice and palliative care provider visits: Effects on healthcare utilization The Journal of Pediatrics; by Steven M. Smith, MD; Daniel H. Grossoehme, DMin; Kate Cicozi, MD; Audrey Hiltunen, MD; Catherine Roth, MPH, CCRP; Gwendolyn Richner, BA; Stephani S. Kim, PhD, MPH; Nguyen K. Tram, PhD; Sarah Friebert, MD; May 2024 journal issue Objective: This hypothesis-generating study sought to assess the impact of home-based hospice and palliative care (HBHPC) provider home visits (HV) on healthcare use.  Conclusion: HBHPC provider HVs were associated with fewer inpatient admissions, hospital days, and intensive care unit days, and increased clinically relevant phone calls and phone calls before emergency department visit. These findings indicate that HBHPC HV may contribute to decreased inpatient use and increased use of the HBHPC team.

Chesapeake Life Center offers monthly LGBTQIA+ drop-in grief support group Southern Maryland News Net; 5/6/24 Chesapeake Life Center will host a monthly drop-in grief support group for members of the LGBTQIA+ community. ... Grief is a hard and vulnerable time, and it is important to have safe spaces to process what we are going through. This group is intended for adult members of the LGBTQIA+ community who are grieving a past or approaching death. The group will be facilitated by a licensed queer therapist but will be loosely structured to offer an opportunity for participants to share their feelings and grieve with community.Editor's Note: Hospice & Palliative Care Today does not post upcoming, local hospice events, grief support groups, volunteer trainings, etc. However, we're posting this LGBTQIA+ grief support due to its unique need, with opportunities for replication in other hospices. 

HHS finalizes disability access rule for healthcare providers Modern Healthcare, by Kara Hartnett; 3/2/24 The Health and Human Services Department finalized a rule that broadens nondiscrimination protections for individuals with disabilities in healthcare environments. ... When the rule takes effect July 1, healthcare organizations will be required to modify facilities and medical equipment to cater to patients' physical and sensory needs. Facilities will have to update features such as elevators and ramps to ensure they are functional and meet federal standards. In addition, healthcare organizations must ensure websites, mobile apps and virtual care programs are user-friendly for people with disabilities and remove disability status as a factor in clinical support tools.

Thyme Care launches virtual palliative care program, appoints medical director MobileHealthNews; by Jessica Hagen; 5/2/24 Value-based cancer care platform Thyme Care is launching Enhanced Supportive Care, a virtual palliative care support program to assist its members and caregivers with managing physical and psychological symptoms accompanying cancer diagnosis and treatment. The program will be led by Dr. Julia Frydman, the company's first medical director for palliative care. Frydman previously worked in the geriatric and palliative medicine program at New York City's Mount Sinai Health System.

Social Model Hospice: Providing hospice and palliative care for a homeless population in Salt Lake City, UtahJournal of Hospice & Palliative Nursing; by Francine Bench Jensen, PhD, RN; Deborah Thorpe, PhD, APRN; 4/24Abstract:  Health care for the homeless population is a complex challenge and represents a significant gap in care, particularly for those at the end of life. Hospice care may be desired but is rarely an option for people without residences, social support, and payment sources. Social model hospice is a unique paradigm of care delivery that offers a viable solution to make hospice and palliative care possible for this population. ... Recommendations for establishing social model hospices are made: key strategies include identifying stakeholders dedicated to alleviating end-of-life homelessness needs, doing a formal needs assessment to identify community resource deficits, and forming mentoring relationships with established programs.

New federal rule meant to strengthen nondiscrimination protections, advance civil rights in healthcare McKnights Senior Living; by Kathleen Steele Gaivin; 4/30/24 The Department of Health and Human Services on Friday released a final rule aiming to protect individuals from discrimination in healthcare, including members of the LBGTQ+ community. ... The rule “reverses a Trump-era regulation and restores gender identity and sexual orientation discrimination protections under Section 1557 of the Affordable Care Act,” Bloomberg Law reported. Section 1557 prohibits discrimination on the basis of race, color, national origin, sex, age or disability by entities that primarily provide healthcare and receive federal funding. It is enforced by the HHS Office for Civil Rights.

Premier Physician Network partners with Empatia on palliative care Hospice News; by Jim Parker; 4/30/24 Premier Physician Network (PPN) has launched an integrated palliative program among its medical group operations, in partnership with agilon health (NYSE: AGL) and its palliative arm Empatia. The program, branded as Senior Health Connect, will provide a palliative care program for Medicare Advantage patients who suffer from serious illnesses. Senior Health Connect is based on agilon’s palliative care model. “Our role there is as a partner. We bring technology. We bring insights. We can bring powerful data and care pathways,” Dr. Benjamin Kornitzer, agilon’s chief medical officer, previously told Hospice News. 

Why health systems should embrace advanced in-home care models McKnights Home Care; by Marcy Carty, MD, MPH; 4/25/24Over the next two decades, the adult demographic over 50 years of age will increase by 25 million, and with over 75% expressing a strong desire to age in place, it’s imperative to champion care models that support safe, high-quality care within the home. Despite proactive care models to support aging in the home, acute needs still arise. Health systems stand to gain manifold by embracing the paradigm shift to care in the home. By moving more advanced care delivery into peoples’ homes, systems can effectively curb acute healthcare utilization, decreasing hospital-acquired conditions and drastically improving patient and family experience.

Postpandemic, telehealth preferred in outpatient palliative care setting Rheumatology Advisor; by Lisa Kuhns, PhD; 5/1/24 Even after the SARS-CoV-2 vaccine against COVID-19 became available, patients preferred outpatient palliative care visits via video rather than in person, according to study results published in the Journal of Pain and Symptom Management. ... The researchers ... added, “Although telehealth may be preferable for reasons beyond social distancing, this survey found that COVID-19 transmission was still a [postpandemic] concern for some patients, where telehealth can be advantageous. These concerns reflect [an] ongoing sentiment [that] patients with advanced cancer, who are often immune-compromised, have with regards to the pandemic even after widespread vaccine availability and end of COVID-19 restrictions. 

WHIAANHPI and SmithsonianAPA unveil joint theme for 2024 Asian American, Native Hawaiian, and Pacific Islander Heritage Month: ‘Bridging Histories, Shaping Our Future’ U.S. Department of Health and Human Services; by HHS Press Office; 4/24/24Today, the White House Initiative on Asian Americans, Native Hawaiians, and Pacific Islanders (WHIAANHPI) and the Smithsonian Asian Pacific American Center are proud to present our joint 2024 theme for Asian American, Native Hawaiian, and Pacific Islander (AA and NHPI) Heritage Month: “Bridging Histories, Shaping Our Future.” The 2024 theme is an homage to our ancestors and invites all Americans to delve into the legacies, triumphs, and challenges that have shaped AA and NHPI communities. It embodies the spirit of our collective journey – one rooted in resilience and hope – and encourages us to forge intergenerational connections to honor our past and pave a durable path forward.

'Why we need to talk about dying': Thames Hospice and the reality of palliative careMaidenhead Advertiser; by Sam Leech; 4/27/24What is your understanding of what a hospice does?Many would suggest it is a place where people go to die – but there is much, much more to the journey of patients and loved ones at Thames Hospice [United Kingdom]. ... Catherine McLaughlin, the hospice’s chief executive, said: “This is a place where – yes, death is a big part – but it’s about how do you make memories? How do you give hope at a time when there might not be much of that? Those final days in somebody’s life is a very important time and the lasting memories are important to those who are left behind.”Editor's Note: Too often--in order to make hospice palatable to another's "sign-on-the-dotted-line-so-we-can-admit-you"--marketing professionals overtly deny that hospice is about "dying," "death," or "grief." Take note from this CEO who sensitively weaves in death, dying and bereavement for not only hospice, but also for "palliative care" with gentle, authentic conversation and questions to the public.