Literature Review

Hospice's bad reputation amid fraud crisis will hurt patients, industry experts warn U.S. News & World Report; by Laurie Udesky and KFF Health News; 7/30/26... “The fraud situation has done a lot of damage to the reputation of hospices overall and undone a lot of the progress that had been made in destigmatizing hospice,” said Lauren Hunt, an associate professor at the University of California-San Francisco’s Philip R. Lee Institute for Health Policy Studies who focuses on hospice care. “Policymakers should pursue targeted strategies that root out fraud and abuse without overburdening the many providers who are doing the right thing.” ... Hunt said she’s heard from California healthcare providers who are reluctant to refer patients to hospice because they’re unsure the patients will receive high-quality care and from patients who don’t know which hospice providers they can trust. 

Quality domains in home-based pediatric hospice and palliative care: Adolescent and young adult perspectivesBMC Palliative Care; by Daniel H Grossoehme, Claire A Crawford, Jhansi Chandra Ellakula, Toluwalase Ajayi, Justin N Baker, Sarah Friebert, Lisa Humphrey, JillAnn Jarrell, Rachel Thienprayoon, Pamela S Hinds; 7/26Previous research with pediatric providers and caregivers concluded that pediatric hospice and palliative care have unique attributes. Not known is how adolescent hospice and palliative care patients understand quality palliative care. Methods: Semi-structured interviews with 10-26 year-olds who received home-based hospice and/or palliative care visits in the prior three years at six diverse sites in the United States. The results address an important gap by including adolescent/young adult patients' voices regarding delivery of home-based hospice and palliative care. Clinical implications include prioritizing and making time to build trusting relationships directly with the AYA, empowering them to participate in their care to the extent appropriate and prepare for transition to adult care when needed, providing support for family members, and training for all providers in generalist spiritual care.

Why traditional primary care fails frail elders and the future need for specialized models | part one Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Dr. Bethany Snider; 7/29/26 Traditional primary care wasn't designed for today's frail elders—and that gap may be one of healthcare's greatest challenges. As America's population ages, healthcare leaders face an urgent question: Is the traditional primary care model enough to care for frail older adults with complex medical, functional, and social needs?  In Part One of this thought-provoking conversation, Chris Comeaux welcomes Dr. Bethany Snider, Chief Medical Officer of Everent Health, to explore why the future of serious illness care requires a fundamentally different approach. Together, they unpack the emerging concept of the frail elder practice—a longitudinal, interdisciplinary model that extends beyond office visits to meet patients where they are, both physically and emotionally.

Poverty level affects end-of-life care in adolescent and young adult cancer patients  Cancer Therapy Advisor; by Liam Andrew DAvenport, MA; 7/24/26 Adolescent and young adult (AYA) cancer patients from high-poverty neighborhoods face disparities in end-of-life (EoL) care, according to research published in the Journal of the National Comprehensive Cancer Network. AYA patients from high-poverty neighborhoods have more emergency department visits and hospitalizations, and less hospice use, than their low-poverty counterparts, study researchers reported. ... Eligible patients had been diagnosed with cancer and died between 12 and 39 years of age, and were enrolled in one of the participant health systems for more than 90 days prior to their death. 

The effect of palliative care involvement in vascular patients at the end-of-lifeJournal of Vascular Surgery; by Angela McCarthy, Kristy Wrana, Emma Triantafyllou, Ya-Huei Li, Carol Strycharz, Lindsay Lynch, Edward D Gifford; 6/26Vascular surgeons frequently manage critically ill patients and support complex end-of-life decision-making. Despite well-documented benefits of palliative care in serious illness, prior studies report that only 25% of vascular patients near the end of life received such support. Those without a palliative consult were more likely to undergo a code (18.0% vs. 6.6% ... ). After palliative consultation, the proportion of patients with a code status of do-not-resuscitate increased from 50.0% to 77.4%, and the proportion with a full code designation decreased from 50% to 22.6%  ... Patients with the goal of care to allow natural death increased to more than half of the patients from 18.4% after the palliative consultation ... These findings highlight an opportunity for vascular surgeons to proactively integrate palliative care, improving alignment between clinical interventions and patient preferences.

[Italy] Fever in a palliative care setting: Clinical insights and implications from a prospective observational cohort studyPalliative Medicine; by Stefania Cheli, Elena Angeli, Oscar Corli, Sofia Dinegro, Agostino Zambelli, Tania Carta, Romina Shazivari, Michaela Smolikova, Paolo Franceschi, Francesco Molà, Yara Silva Cruzeiro, Emilio Clementi, Andrea Gori; 5/26Fever is a frequent but complex symptom in adults with a limited prognosis, arising from multifactorial causes beyond infection. The study was conducted in an inpatient hospice palliative care unit within the Luigi Sacco Hospital in Milan, Italy (January and December 2024). Fever occurred in 40% of patients, with a median onset of 5.5 days after admission. In 39.7% of cases, fever was attributed to infections, mainly catheter-associated urinary tract infection. Its strong association with medical devices highlights the need for proportional, personalised interventions that primarily consider prognosis, symptom relief, and quality of life.

Only one in five U.S. young adults with advanced cancer receive palliative care as part of treatment, study shows American Cancer Society, Atlanta, GA; Press Release; 7/23/26 Young adults with advanced cancer face unique challenges that make palliative care especially important. This population often experiences physical, emotional, and social needs while undergoing treatment, related to their developmental and life-stage transitions. However, a new study by researchers at the American Cancer Society (ACS) reveals that despite a small increase in use over time, only 18.3% of young adults in the United States with advanced cancer received palliative care as part of treatment in 2023. The study is published today in the Journal of the American Medical Association (JAMA) Network Open. 

Palliative Care team manifests dreams of butterbeer and Harry Potter Vanderbilt Health News, Nashville, TN; by Jill Clendening; 7/20/26 After Mike Guth and his family learned that his pancreatic cancer had advanced beyond treatment, the Vanderbilt Health Palliative Care team worked magic to make a dream trip possible. ... Mike, 53, a beloved high school social studies teacher in southern Indiana and father of four, was diagnosed with Stage 2 pancreatic cancer in early 2025. ... Mike has always loved the magical lore of Harry Potter, excitedly consuming the books and movies with their children (now adults). Mike perhaps seized inspiration from the plot twists of the fantasy series to say he still longed to visit The Wizarding World of Harry Potter in Orlando, Florida. With careful planning to manage symptoms and stay on top of hydration, the Vanderbilt Health Palliative Care team surprised the Guths and said his dream was doable. ... Palliative care physician Zack Watson, MD described, "for him to have that time with his kids and his wife. Hopefully, this gave them an anchor of joy in the midst of this really tough time." On July 14, Mike died peacefully at home, surrounded by his loved ones.

Some kids come here for vacation. Others come to die. Either way, parents are grateful USA TODAY, San Leandro, CA; by Madeline Mitchell; 7/20/26 ... There are mainly two kinds of families who come to George Mark's Children's House. Some come for respite, entrusting their medically fragile but otherwise stable children to skilled nurses while parents leave for a much-needed break from around-the-clock caregiving. Others come for pediatric end-of-life care, a rare and essential service that changed the trajectory of CEO Shekinah Eliassen's life. These parents stay with their children at George Mark and can bring the patient's siblings, too, to soak in their last days together. "This type of service, I believe, should be part of the system of pediatrics," Eliassen says, adding that families never see a bill for their visits. Her son, Lars, died at George Mark when he was 21 days old, after he was born having seizures. 

Personal experience fuels Jeannie Meyer's commitment to helping the homeless die with dignity UCLA Health; by Sandy Cohen; 7/15/26  The UCLA Health palliative care nurse is a national advocate for recording end-of-life wishes for unhoused individuals. Jeannie Meyer, MSN, didn’t realize she was homeless as a child. She thought everyone moved from place to place, hotel to hotel, and never answered the phone or the door in case a bill collector was on the other side. “I knew what ‘eviction notice’ meant when I was 5 years old,” she says. Those childhood experiences made her empathetic, but it was the pain of learning that her alcoholic father died on Skid Row that inspired Meyer, a palliative care nurse at UCLA Health, to advocate for advance care planning for homeless people.

Reach of palliative care in Parkinson disease-Progress and gaps after a national team-based implementation projectNeurology in Clinical Practice; by Sandhya Seshadri, Umer Akbar, Peggy Auinger, Nicole Andrea Lessard, Megan Dini, Sally A. Norton, Hillary D. Lum, Jodi Summers Holtrop, Janis M. Miyasaki, Christina L. Vaughan, Benzi M. Kluger; 6/26While clinical trials demonstrate PC [palliative care] improves quality of life for PWP  [people with Parkinson disease] and carepartners, little is known about the impact of PC on their experiences of receiving care in real-world settings. At COEs [Parkinson's Foundation US-based Centers of Excellence], [surveyed] PWP reported significant increases in non-motor symptom (NMS) assessment ... and pain management ...  Emotional and spiritual needs were addressed more frequently ... Advance care planning (ACP) discussions [and documentation] rose ... Communication ratings and knowledge of PC were high (>85%) and stable across surveys.