Literature Review

2025 Pediatric Facts and Figures Report now available National Alliance for Care at Home, Alexandria, VA; Press Release; 7/8/26 The National Alliance for Care at Home (the Alliance) published the 2025 Pediatric Facts and Figures, a report that provides an overview of pediatric palliative care and hospice in the United States and presents the results of a national survey of providers. The survey that informed the report had a response rate of 56% and yielded 295 entries representing distinct pediatric programs. Responses represent all 50 states and Washington, DC, and the survey was active from May through August of 2024. The report takes a close look at topics like pediatric patient characteristics, location and access to care, reimbursement for care, provider characteristics, barriers and facilitators to care, and concurrent care.  [Download]

[Canada] Palliative care is a fundamental human right TroyMedia; by Rebecca Vachon; 7/6/26 ... Despite the fact that everyone dies, and despite the fact that something like 180,000 Canadians and their families interact with some form of end-of-life care in a year, I keep confronting the perception that palliative care is a niche issue, not one of broad interest. But this reaction only underscores the poll's findings: namely that many Canadians continue to misunderstnad what palliative care is and isn't. On a more positive note, however, when Canadians do understand it, palliative care is, in fact, identified as a priority issue.

Guardianship and hospice care fail dying patients MedPage Today's KevinMD.com; by Kirsten Engel, MD & Madha Tripathi; 6/3/26 “Mr. L” is alone, lying flat on his back in a slightly inclined bed, eyes squeezed shut, hands raised in the air as immobile fists. He has not spoken in weeks. ... The medical team calls it catatonia, a severe psychiatric syndrome that has rendered him mute, immobile, and medically fragile. The psychiatric care team has recommended comfort measures, and our hospice team is ready to accept him. ... Mr. L cannot access hospice because an overworked stranger appointed by the court has not yet returned the hospital’s calls. This is a guardian, a professional fiduciary who has never met Mr. L, who must sign the papers first. So we wait for the court to hold a hearing to approve the order. And Mr. L, still, silent, and suffering, waits with us.

Civility requires the willingness to engage - a dispute with a neighbor revealed how much motivation matter The Conversation; by Deborah Mower; 7/2/26 ... I’m an ethicist and moral psychologist who researches moral conviction and civility, which I treat as a respectful approach toward conflict resolution. I’ve spent my career studying misunderstandings and disagreements. I teach students ways to better navigate differing interpretations, complex conversations, moral dilemmas and bitter disputes. Civility research matters for ethics education across every discipline, especially fields such as law or medicine where contentious political and moral disagreements are likely to arise. Consider, for instance, the tense conversations between healthcare professionals who disagree about whether the best course of treatment for a patient is to turn to hospice services.

CMS proposes community-based palliative care benefit Hospice News; by Jim Parker; 7/1/26 The U.S Centers for Medicare & Medicaid Services (CMS) has proposed coverage of community-based palliative care through the Medicare home health benefit. CMS included the palliative benefit in its 2027 proposed home health rule. ... The agency emphasized that palliative care under the home health benefit would be separate from hospice care and could support patients earlier in the course of serious illness.

My parents moved in with us before my dad got sick. It made all the difference when he passed. Business Insider; by Justin Murphy; 6/27/26

Pediatric home-based hospice and palliative care: A scoping reviewBMC Palliative Care; by Ellen Davis, Daniel H Grossoehme, Toluwalase Ajayi, Justin N Baker, Pamela S Hinds, Lisa Humphrey, Jill Ann Jarrell, Rachel Thienprayoon, Sarah Friebert; 5/26Pediatric palliative and/or hospice care is provided across a broad spectrum of settings, ranging from inpatient to outpatient to a child's home. Pediatric home-based hospice and/or palliative care teams offer a specialized, interdisciplinary approach to care, allowing children to stay in the home while offering comprehensive support. Common themes emerged [in this review] including studies analyzing models of care, characterizing the population, end-of-life decision making, clinical outcomes of home-based hospice and/or palliative care, costs and economic impact, family experiences, quality domains, specific treatment modalities, and the use of telehealth. Overall, the available literature supported home-based hospice and/or palliative care as an effective model of care, reducing the burden on families, improving quality of life, and allowing families to stay in their preferred setting for care without sacrificing clinical outcomes.

Referral and utilization patterns for home-based palliative care services among older adults BMC Palliative Care; by Joohyun Chung, Aaron Langlois, TylaAnn Burger, David L Chin; 6/11/26 Background: Home-based palliative care (HPC) improves quality of life for individuals with serious illness but remains underutilized in the United States, with persistent disparities in access. HPC is also frequently misconceived as appropriate only at the end of life. ... Results: ... Patients who received HPC were more likely to be older, female, insured through Medicare Part B, and referred from larger hospitals. Conclusion: These findings underscore ongoing structural disparities in access to home-based palliative care and highlight the need for targeted strategies to improve equitable access to HPC services.

Dying patients shouldn’t have to choose between dia­lysis care and com­fort The Boston Globe, Boston, MA; by Patricia Ramsden; 6/22/26 ... Medi­care cur­rently requires most end-stage kid­ney fail­ure patients to choose between dia­lysis and hos­pice bene­fits. ... People dying from other ter­minal ill­nesses do not face this harsh choice. For sev­eral years, Dia­lysis Clinic, Inc. (DCI), the only national not-for-profit dia­lysis organ­iz­a­tion, has col­lab­or­ated with not-for-profit hos­pice organ­iz­a­tions to offer con­cur­rent pal­li­at­ive dia­lysis and hos­pice care to selec­ted patients in Ten­nessee and West­ern Pennsylvania. A 2026 col­lab­or­a­tion between DCI and Care Dimen­sions, the largest hos­pice pro­vider in the state, expan­ded that model to East­ern Mas­sachu­setts. However, this innov­at­ive pro­gram, rely­ing on phil­an­thropic fund­ing, remains avail­able only to a few patients.

Cincinnati Children's opened 6 locations in 2025. Here's why Cincinnati Enquirer, Cincinnati, OH; by Carly Gist; 6/12/2026 Cincinnati Children's is expanding its access to care across the region, including in Northern Kentucky. The health system reported in its latest Community Impact Report, released to the public June 9, that six new locations opened in 2025, including facilities in previously underserved communities such as Clermont and Clinton counties. Rural areas often have limited access to specialized and emergency care, placing residents at a higher risk of health challenges and death, according to the Centers for Disease Control and Prevention.

Tuesday Health brings community-based palliative care to Massachusetts in partnership with Commonwealth Care AllianceNEWSnet PR Newswire, Boston, MA; Press Release by Tuesday Health; 6/16/26Tuesday Health announced a partnership with Commonwealth Care Alliance (CCA) to deliver community-based palliative care to eligible members across Massachusetts, effective July 1, 2026. The partnership expands access to relationship-based care for individuals who are dual eligible for Medicare and Medicaid and enrolled in CCA’s Senior Care Options (SCO) and One Care programs. ... Tuesday Health delivers evidence-based, provider-led palliative care wherever patients call home, through interdisciplinary teams of nurses, nurse practitioners, social workers, and physicians.