Literature Review

Mercy Medical Center unveils Andy Yee Memorial Palliative Care Unit WWLP 22 News, Springfield, MA; 6/18/24 Springfield city officials joined Mercy Medical Center for a tour of the upcoming Andy Yee Memorial Palliative Care Unit. Patients who are severely sick or coming to their last days will now have another space to get the care that they need. The work for the Andy Yee Memorial Palliative Care Unit is underway at Mercy Medical Center. This new space on the 5th floor of the facility will help to enhance patient care. ... In the next phase comes the renovation and remodeling of eight patient rooms. This new unit will help Mercy Medical providers care for about 300 patients a year. 

Top oncologists say everyone with advanced cancer needs early palliative care. Here are 6 things to know ABC News, New York; by Lindsey Ulin, MD; 6/20/24This year, the American Society of Clinical Oncology — the world’s leading oncology organization — recommended palliative care for everyone with advanced cancer at the time of diagnosis and while receiving treatment. ... By next year, 693,000 people in the United States will have advanced breast, prostate, lung, colorectal, bladder, or skin cancer. ... “What I’m really excited to see is that these guidelines are taking a step back and thinking about [palliative care] from the time of diagnosis,” Dr. Arif Kamal, chief patient officer for the American Cancer Society and an associate professor at Duke University specializing in oncology and palliative care, told ABC News. “It should particularly be used in areas to help people stay on treatment, such as in clinical trials or hematologic malignancies.” Here are six things to know about palliative care:

‘I tried to get into their shoes and their culture’. Care worker experiences in cultural end-of-life care: Interpretative phenomenological analysis Journal of Clinical Nursing / Early View; by Elizabeth Lambert RN, BN (Hons), Jo Gibson RN, BN, PhD, MAdvNsgPrac, Kasia Bail RN, BN(Hons), GCHE, PhD Aim: What are care workers' lived experiences caring for people of culturally and linguistically diverse backgrounds during end-of-life care?What does this paper contribute to the wider global community? This study highlights the importance of understanding care workers’ experiences in providing culturally appropriate end-of-life care.

Dying of heart failure: how do we improve the experience? The Medical Journal of Australia - MJA; by Dominica Zentner, Vithoosharan Sivanathan, Jennifer Philip and Natasha Smallwood; published online 6/17/24 ... Despite the improvements afforded by multiple pharmacological, surgical and interventional developments in heart failure, the goal of therapy remains delayed disease progression for many. Cognisant of this reality, recent heart failure guidelines all highlight the important role of palliative care. ... The MJA recently published an article regarding the imperative of reframing palliative care. ... We suggest that ...

East Anglia's Childrens Hospice releases heartwarming film: Ten-year-old "wants to show other children that hospice isn't a scarey place." EACH - East Anglia's Children's Hospices, United Kingdom; 6/17/24 "What's particularly special is that it was initiated by Charlotte. She told us she wanted to be part of a film, to show other children that a hospice isn't a scary place." ... A powerful new film has been released to showcase the work of a children’s hospice through the eyes of a spirited ten-year-old receiving care. Charlotte Freegard stars in the three-minute production, speaking about her experiences at The Treehouse, in Ipswich. “What’s particularly special is that it was initiated by Charlotte. “She told us she wanted to be part of a film, to show other children that a hospice isn’t a scary place. Instead, it’s somewhere they can have fun and create special memories.

Staff training key to improving hospice quality smong LGBTQ+ patientsHospice News; by Holly Vossel; 6/13/24Hospice staff training models with culturally appropriate LGBTQ+ components are key to improving quality outcomes among an increasingly diverse base of underserved seniors. Ongoing staff education and communication skill building are two significant pieces of bridging gaps of hospice care among LGBTQ+ seniors, according to Jerry Farmer, vice president of diversity, equity and inclusion at AccentCare.

Advocates rally in DC for the future of hospice: NHPCO and HAN amplify provider voices on Capitol Hill NHPCO; Press Release; 6/13/24 More than 100 hospice and palliative care advocates from across the country met with over 150 congressional offices this week to discuss key legislative and regulatory priorities for ensuring and expanding access to hospice and palliative care. The meetings were part of Hospice Action Week, hosted in Washington, DC by the National Hospice and Palliative Care Organization (NHPCO) and its advocacy affiliate, the Hospice Action Network (HAN). “The cornerstone of effective advocacy is storytelling. It’s about sharing why hospice holds personal significance and why serious illness and end-of-life care policy should resonate with our lawmakers,” said Logan Hoover, NHPCO’s VP of Policy & Government Relations. “From Hawaii to Rhode Island, advocates from 35 diverse states came to DC this year. The relationships they’re building with Members of Congress hold the potential to shape the future of the healthcare landscape.” 

Hope in oncology: Where art and science collide Medscape; by Sharon Worcester, MA; 6/12/24 Carlos, a 21-year-old, laid in a hospital bed, barely clinging to life. Following a stem cell transplant for leukemia, Carlos had developed a life-threatening case of graft-vs-host disease. But Carlos' mother had faith. "I have hope things will get better," she said, via interpreter, to Richard Leiter, MD, a palliative care doctor in training at that time. "I hope they will," Leiter told her. "I should have stopped there," said Leiter, recounting an early-career lesson on hope during the ASCO Voices session at the American Society of Clinical Oncology (ASCO) 2024 annual meeting. "But in my eagerness to show my attending and myself that I could handle this conversation, I kept going, mistakenly." ... Carlos' mother looked Leiter in the eye. "You want him to die," she said. ...Editor's Note: Click on the title's link to continue reading this insightful reflection and discussion about the importance of "hope." Engage your oncology/palliative/hospice chaplains (hopefully CPE trained and Board Certified) with your medical team members to explore this core belief in "hope." Alert: AI referrals for palliative and hospice care are increasing exponentially. Clinicians must be sensitive to the human dimensions and dynamics of "hope" (which shift and change), and not be driven just by technological data.

Key factors for establishing and sustaining a successful palliative radiation oncology program: a survey of the Society for Palliative Radiation Oncology Annals of Palliative Medicine; by Deborah C Marshall, Kavita Dharmarajan, Randy Wei, Yolanda D Tseng, Jessica Schuster, Joshua A Jones, Candice Johnstone, Tracy Balboni, Simon S Lo, Jared R Robbins [Palliative Radiation Oncology Programs] PROPS are not widespread, exist mainly within academic centers, are outpatient, have access to palliative care specialists by referral, and have specialized clinical processes for palliative radiation patients. Lack of committed resources was the single most important perceived barrier for initiating or maintaining a PROP. Best practice guidelines, educational resources, access to palliative care specialists and standardized pathways are most important for those who wish to develop a PROP. These insights can inform discussions and help align resources to develop, grow, and maintain a successful PROP.

How to choose the right hospice care - Brain & Life Magazine Brain & Life; by Hallie Levine; June/July 2024 Hospice care is designed to help patients die with dignity and provide support to their families. These tips can help ensure it does. ... [Case study examples follow.] In hospice, “the focus shifts from treating the disease to managing symptoms and maintaining quality of life,” says James Gordon, MD, FAAN, a neurologist and retired hospice and palliative care expert at the University of Washington in Seattle. “Patients and their families often get to a point where they ask themselves if the cure is causing more suffering than it's worth,” Dr. Gordon says. “If they are close to the end of life, it's often time for hospice.”Editor's Note: We chose this article because its source, Brain & Life Magazine. This can be an excellent disease-specific resource for your serious illness, palliative, hospice, and bereavement team members. "Brain & Life is powered by more than 40,000 neurologists worldwide who are committed to keeping you and your family better informed." Visit its "Disorders A-Z: Neurologic Disorders Resource Center (brainandlife.org)." 

Higher sepsis mortality in safety-net hospitals linked to fewer post-discharge care options Contagion Live - Infectious Diseases Today; by Kenneth Bender, PharmD, MA; 6/9/24 Purportedly higher sepsis mortality in safety-net hospitals reflects less a difference in acute care than opportunities to discharge to hospice. By extending the measure of sepsis-related mortality from in-hospital events to occurrences within 30 days after the diagnosis, the purported higher mortality rate of sepsis treated in safety-net hospitals decreased to parity with non-safety-net hospitals, in a retrospective national cohort study. The investigators note the particular challenges of safety-net hospitals, which care for a disproportionately high share of low-income and underinsured patients, include fewer resources and narrower operating margins, as well as patient populations with decreased access to preventative care and more complex disease presentations.

What does death look like for those experiencing homelessness in Southern Nevada?

Better bereavement and palliative care priorities are needed internationally ONS Voice - Oncology Nursing Society; by Elisa Becze, BA, ELS; 6/7/24 Palliative and bereavement care should be a health policy priority, an international team of public health scientists reported in Lancet Public Health. They called for interprofessional health workers, organizations, and systems to “shift bereavement care from an afterthought to a public health priority.” The authors cited evidence that bereaved individuals are at increased risk for numerous adverse outcomes, including prolonged grief disorder, mood and anxiety disorders, existential distress, decreased work productivity, adverse health behaviors, cancer, heart disease, suicide, and death. They added that the burden is particularly high for vulnerable groups, including those living in communities with limited resources. Healthcare professionals’ barriers to providing bereavement care are similar to those for palliative care, they said, including: