Literature Review

Drivers of disease-specific end-of-life disparities Hospice News; by Holly Vossel; 1/30/26 ... Racial and ethnic disparities persist among underserved patient populations with dementia, who have a stronger likelihood of dying without awareness or access to hospice, recent research has found. Clinicians may play a vital role in moving the needle forward. Nearly 260, 000 Black, Hispanic and white Medicare decedents with dementia-related conditions were recently examined in a new study, which was published in the Journal of the American Medical Association (JAMA) Health Forum.  Editor's Note: We posted this study in our Saturday Research newsletter, 12/27/25, End-of-life care for older adults with dementia by race and ethnicity and physicians’ role. This article gives more practical descriptions and applications for its results.

Concurrent care and equity: Addressing palliative care gaps for African American men in rural communities with a serious respiratory illnessAmerican Journal of Hospice & Palliative Medicine; by Cathy L. Campbell; 12/25Hospice and palliative care are often hard to access for African Americans (AA) living in rural areas with serious respiratory illnesses. Under the Medicare Hospice Benefit, patients must stop curative or life-sustaining treatments for their terminal illness, which limits options for concurrent care. This is a major challenge for AA men, whose average life expectancy is 67.8 years—about 10 years shorter than the national average. They also experience more care transitions in the last 6 months of life compared to White and Hispanic patients. These frequent transitions show how fragmented the health system is and how it often fails AA families. Using intersectionality and a vignette, this paper explores how overlapping factors—lived experience as AA man, rural location, and serious illness—affect access to palliative care.

Hospice telehealth once again endangered as federal shutdown looms  Hospice News; by Jim Parker; 1/28/26 The prospect of another government shutdown could result in the expiration of COVID-era telehealth flexibilities. The government experienced a lengthy shutdown in November 2025, which ended with the passing of the Continuing Appropriations Act of 2026. That bill not only funded the government through Jan. 30, but it also extended the telehealth flexibilities to that date. Now, a further extension sits in limbo as congressional lawmakers spar along partisan lines. If a new shutdown occurs, it would likely be partial, according to Logan Hoover, vice president of policy and government relations for the National Alliance for Care at Home.

Patients with terminal blood cancer stress need for transfusion access in hospice care, survey findsHematology Advisor; by Joantahn Goodman, MPhil; 1/28/26  Patients with blood cancer eligible for hospice care emphasize the importance of access to transfusion over other services, according to research published in JAMA Network Open. The survey-based study confirms that, among patients with an estimated life expectancy of 6 months or less, routine hospice services are perceived of less value than transfusion access — suggesting that palliative transfusion availability should be incorporated into hospice care universally, the authors noted in their report.

Defining palliative care quality in a tight reimbursement environment Hospice News; by Holly Vossel; 1/27/26 Palliative care delivery is undergoing an evolutionary period of change. These services are offered in several different ways across the country, which brings both benefits and challenges when it comes to defining quality in the space. Today’s palliative care providers are shaping the outlook of the field, but through diversified approaches, according to Brynn Bowman, CEO of Center to Advance Palliative Care (CAPC). The field is reaching a pivotal stage when it comes to supply and demand or resources, an issue that greater standardization could help to address, she indicated. 

Family Care Palliative & Hospice expands palliative care access for Maricopa County residents ABNewswire, Tempe, AZ; Press release by Family Care Palliative & Hospice; 1/26/25Family Care Palliative & Hospice has expanded its service offerings to meet better the growing demand for specialized end-of-life and serious illness care throughout Maricopa County and surrounding areas. ... The expansion comes at a time when demand for quality best hospice care continues to rise across Arizona. 

Changing the story data tells about Black health The Seattle Medium, Seattle, WA; by Joseph Williams; 1/26/26 When it comes to the health of Black Americans, the numbers don’t lie. ... Last August, Word In Black launched its Insights & Research Division, a data-focused department centered on the perspectives, priorities, and lived experiences of Black Americans. The goal is straightforward: find out what Black people think about the issues affecting them most, analyze the results, and use those insights to reshape the narrative.

How does palliative care work under Rhode Island Workers’ Compensation Law? WorkersCompensation.com; 1/25/26 What does it take for an injured worker in Rhode Island to receive palliative care? State regulations spell out the steps ... "Palliative care" means the first 12 visits for medical services provided by a physician licensed by the State after maximum medical improvement has been attained. ... Additional palliative care beyond the 12 visits after the employee reaches maximum medical improvement, is conditioned on the authorization of the claim administrator (insurer, self-insured employer, third party administrator) upon the request of the employee’s treating physician (Medical Provider).

Improving timeliness of palliative care referrals within the ICU: A quality improvement project Dimensions of Critical Care Nursing (DCCN); by Stephanie Fiore, Simone O'Donovan, Kerry A Milner; 1/23/26 ... Using the Model for Improvement, this quality improvement project was conducted over 7 months, including a 4-month baseline phase and a 3-month implementation phase. ICU nurses used a PC screening tool to evaluate patients within 48 hours of admission. The project aimed to increase PC screenings to 75% and ensure PC referrals within 48 hours. ...  The implementation phase saw a significant increase in PC screenings, with compliance reaching 90.9% after process adjustments. 

Palliative care staff attitudes toward music therapy for hospitalized adult patientsAmerican Journal of Hospice & Palliative Medicine; by Katherine A. Carney, Rachel M. Wiste, Susanne M. Cutshall, Christina Wood, Rachel C. Gentes, Brianna E. Larsen, Nana A. Tiwaa, Amelia E. Tetlie, Regina M. Mackey; 12/25There is emerging evidence that music therapy (MT) is an effective tool within palliative care to manage patients’ complex needs. This performance improvement project aimed to assess palliative care staff members’ attitudes toward the current utilization of MT within the institution’s hospital-based interdisciplinary practices. Top reasons for MT referral were psychosocial support, pain and symptom management, and coping. The most common symptom-focused indications were anxiety, mood, and existential distress. In this single-institution performance improvement project, staff attitudes were highly favorable toward MT for palliative care patients. MT is utilized for a variety of reasons, can be highly effective for improving patients’ quality of life, and may also be of direct benefit to staff.

Expanding the boundaries of palliative care: Diseases of the nervous system and survival prognosis in home-based programsAmerican Journal of Hospice & Palliative Medicine; by Mônica Isaura Corrêa, Igor de Oliveira Claber Siqueira, Sonia  Souza, Eduardo Bruera, Ana Paula Drummond-Lage; 12/25Home-based palliative care (HBPC) is increasingly recognized as an essential strategy for managing patients with non-oncologic and life-limiting conditions. However, prognostic factors influencing survival in this population remain underexplored. Diseases of the nervous system (DNS) were the most frequent referral diagnoses [in this study] (32.3%). Patients with Alzheimer’s disease and related dementias demonstrated longer survival than those with other DNS or no DNS diagnoses ... While PPS [Palliative Performance Scale] remains a useful tool, its discriminatory capacity was modest, underscoring the need for refined prognostic models in non-oncologic palliative care.

Patients' perceptions of autonomy in palliative care: Two patient interview exemplars Palliative Care and Social Practice; by Kristen Tulloch, Julia Acordi Steffen, John P Rosenberg; 1/19/26 Results: Four themes were identified: (a) my involvement in healthcare decisions, (b) change to my autonomy during illness progression, (c) self-assessing my abilities to exercise autonomy and (d) my coping mechanisms for loss of autonomy. Palliative care patients perceived and managed their autonomy amidst their illnesses, revealing a sense of loss of autonomy extending beyond healthcare into many daily activities. Participants wished to exercise autonomy in nuanced ways, varying in intensity across many aspects of their lives, underscoring the importance of recognising and respecting individuals' wishes for autonomy.Editor's Note: The authors’ focus on coping with loss of autonomy is essential. As illness progresses, autonomy can erode not only in medical decisions but across daily life, identity, and meaning—losses that are too often overlooked in clinical care. The frequently misapplied “Five Stages of Grief” can further blur this reality, reducing complex, personal experiences to linear expectations not supported by contemporary grief research. Understanding how patients adapt to loss of autonomy is foundational to truly person-centered palliative care.