Literature Review

‘Good’ death different for everyone Altoona Mirror, Altoona, PA; 7/26/24 The social and economic inequities patients suffer in life often shapes their death” was a key point of a July 13-14 article in the Review section of the Wall Street Journal. ... In the article, which was written by Dr. Sunita Puri, a palliative care physician and the author of “That Good Night: Life and Medicine in the Eleventh Hour,” Puri focuses on the conundrum many families face when dealing with the question of where to spend the final days of life. ... “New research classifies the rise in home deaths as progress,” the message immediately under the article’s headline begins, “but we need to look more closely at what these deaths look like.” ... Puri, now 10 years into her physician career, says it is now clear to her that there is much more to a “good” death than where it occurs. “Presuming a home death is a success obscures important questions about the process,” she wrote. “Did this person die comfortably? Did their caregivers have the resources and guidance they needed? Was dying at home a choice or simply the only option?” 

Cultivating humility, making connections in a contentious world Tallahassee Democrat; by Rev. Candace McKibben; 7/27/24 The first time I remember hearing about “cultural humility” was some years ago when I served as a member of the Diversity and Inclusion Team at Big Bend Hospice. I recall reading an article by Silvia Austerlic, a Bereavement Manager and Hospice Latino community liaison, at Hospice of Santa Cruz County. She explained what is required to relate in the best interests of patients and families is not “cultural competence,” which is where our team had been focused, but “cultural humility.” “Cultural competence,” while it may be well-meaning, is a framework to help providers understand, appreciate, and work with individuals from diverse cultures. It is focused on gaining knowledge. “Cultural humility,” on the other hand, is focused on relationships. ... Yet another form of humility that seems critically important to me in our time is “religious humility.” This form of humility involves celebrating the inherent dignity of every individual, regardless of their religious affiliation.

“At home, even the walls help”: Exploring the palliative care needs, experiences, preferences, and hopes of older people with serious illness in Ukraine (July 2024) OCHA Services; by HelpAge; 7/24/24 Older Ukrainians living with serious illness face significant concerns and challenges within the political, environmental, and social context of the ongoing armed conflict, according to a new report published by HelpAge International, in partnership with HelpAge USA. ... The report highlights an innovative project funded by GlobalGiving which provides palliative care services in Ukraine. It underscores the profound challenges faced by older people due to the combined toll of disease and the ongoing war, and offers key recommendations to enhance their care and support. “Our findings reveal the unimaginable burden faced by older people living with serious illnesses in the midst of war. We are deeply grateful for the generous support of GlobalGiving, which has allowed us to highlight these issues and work to ensure that older people’s needs and preferences are included in healthcare system planning during humanitarian crises,” said Cindy Cox-Roman, CEO and president of HelpAge USA.

Making DEI matter in post-acute care HomeCare; by Jerry Farmer; 7/18/24 In today’s dynamic health care landscape, the importance of diversity, equity and inclusion (DEI) cannot be overstated. DEI represents policies and procedures that promote the representation and participation of diverse groups of individuals who encompass all ages, races, ethnicities, abilities, disabilities, genders, religions, cultures and sexual orientations. ... Here are some of the key factors our company focused to reach diversity, equity and inclusion milestones: 

Nursing homes ‘can’t escape’ need for increased palliative care access: researchersMcKnights Long-Term Care News; by Josh Henreckson; 7/17/24 Nursing home residents could greatly benefit from expanded access to palliative care, but providers need more access to standardized tools, staff education and relationships with clinicians to make informed decisions about care, specialists say. ... Several key “themes” could be the foundation for a more formalized method of identifying palliative care needs for nursing home patients, researchers found. They included factors such as patients with uncontrolled symptoms and otherwise serious illnesses, as well as patients with indicators of significant decline such as frequent rehospitalizations. 

What does "palliative care" represent in research using secondary data? Journal of Pain and Symptom Management; by J. Brian Cassel; 7/18/24 While much research has been done regarding "palliative care" using retrospective cohort studies of large datasets, the data sources may not be capturing specialty palliative care services. This article aims to clarify what source data are used in such studies, how specialty palliative care services are determined to have been provided or not, and mismatches between the nature of the data and the interpretation of researchers. 

End-of-life care is a profound and essential aspect of medical practice Market.US Media, New York; by Samruddhi Yardi; 7/19/24 According to End-of-Life Care Statistics, End-of-life care, also known as palliative care, refers to the comprehensive medical, emotional, and psychological support provided to individuals who are nearing the end of their lives, often due to terminal illnesses or conditions. [This article includes data on the following:]

Top ten tips palliative care clinicians should know before their patient undergoes surgery? Journal of Palliative Medicine; by Rachel Hadler, Lara India, Angela M Bader, Orly N Farber, Melanie L Fritz, Fabian M Johnston, Nader N Massarweh, Ravi Pathak, Sandra H Sacks, Margaret L Schwarze, Jocelyn Streid, William E Rosa, Rebecca A Aslakson; 7/15/24 online ahead of print Many seriously ill patients undergo surgical interventions. Palliative care clinicians may not be familiar with the nuances involved in perioperative care, however they can play a valuable role in enabling the delivery of patient-centered and goal-concordant perioperative care. ... This article, written by a team of surgeons and anesthesiologists, many with subspecialty training in palliative medicine and/or ethics, offers ten tips to support palliative care clinicians and facilitate comprehensive discussion as they engage with patients and clinicians considering surgical interventions.

Why CommonSpirit Health is investing in the home Becker's Helath IT; by Giles Bruce; 7/18/24 Chicago-based CommonSpirit Health has grown into the country’s largest Catholic provider of care at home. ... Becker's recently sat down with Trisha Crissman, interim executive director of CommonSpirit Health at Home, to discuss the metamorphosis of at-home care. ... [In 2010] ... we established hospice as another service line for the organization. ... And that brings us to where we find ourselves today — as the largest Catholic care-at-home provider in the country, with 84 locations and soon to be about 15 states, serving about 15,000 patients daily, with skilled home healthcare, hospice, palliative care, home infusion. We have many solution models, including "hospital at home," SNF [skilled nursing facility] at home, and ED [emergency department] diversion solutions.

A personal approach: Patient Care Coordination Inc. celebrates a decade of inclusive healthcare Classic 96.7 FM BWZ, Philadelphia, PA; 7/17/24Philadelphia-based Patient Care Coordination Inc. (PCC), led by Founder and Executive Director Paul S. Rimar, proudly commemorates its 10th anniversary. With a steadfast commitment to inclusivity, particularly within the LGBTQ community, PCC has grown to serve over 6,500 participants across 21 counties in Pennsylvania, delivering high-quality, value-based healthcare services. ... A cornerstone of PCC’s mission is its dedication to the LGBTQ community. Rimar’s personal experiences with LGBTQ-specific challenges have profoundly influenced PCC’s inclusive policies and practices. ... [Rimar's] comprehensive background, including roles in long-term care, hospice, managed care, and transplantation, has been instrumental in PCC’s evolution and success.

Advanced practice providers have an important role in kidney supportive care Healio; by Christine Corbett, DNP, FNP-BC, CNN-NP, FNKF; 7/15/24For more than 2 decades, nephrologists and patients have recognized the key role nephrology advanced practice providers have played in the care of patients with chronic kidney disease. ... With its attention to the psychosocial and spiritual aspects of care in addition to the physical, it is expected that nephrology nurse practitioners would also play a major role in the palliative care for patients with kidney disease. ... As part of the kidney care team, APPs [advanced practice practitionsers] educate patients about kidney failure treatment options, including palliative dialysis and active medical management without dialysis. Also, nurse practitioners have been noted to play a significant role in the palliative care skills of goals-of-care conversations, advance care planning and Portable Orders for Life-Sustaining Treatment (POLST, or similar term depending on the state) completion.

AccentCare unveils new hospice care center in Miami-Dade County accentCare, Miami, FL; 7/10/24 AccentCare, a nationwide leader in home health, hospice and personal care services, ... announced the opening of a new inpatient hospice center in Miami. Expanding its footprint in South Florida, AccentCare’s new facility aims to address the region’s diverse population and growing need for greater access to personal and high-quality hospice care. “We are thrilled to expand our presence in the Miami area, offering compassionate and personalized hospice care for more patients and their families in Florida’s diverse communities,” said Andy Johnston, President of Hospice & Personal Care Services, AccentCare. ... AccentCare’s new 30,000-square-foot hospice center offers a range of services, including nursing care, pastoral care, medical social work, respite services, 24-hour critical home care and bereavement support for families. 

Palliative care is underutilized in nursing homes EurekAlert! AAAS; by Regenstrief Institute; 7/16/2O Palliative care, specialized medical care focusing on providing relief from the symptoms -- including pain -- and the stress of serious illness, is underutilized in nursing homes, despite the large number of nursing home residents living with a serious illness such as cancer, dementia, Parkinson’s disease, heart failure or chronic obstructive pulmonary disease. A qualitative study, published in the Journal of the American Geriatrics Society, analyzes lack of palliative care referrals for nursing home residents and proposes ways to address this healthcare gap. In addition to examining existing referral patterns, the authors explore recommendations for ideal criteria and create a substantive framework for palliative care referrals in nursing homes. Editor's Note: You can access the article here, “Palliative care in nursing homes: A qualitative study on referral criteria and implications for research and practice” is published in Journal of the American Geriatrics Society.