Literature Review

How a St. Louisan helps her community navigate death by filling out advance directives NPR - St. Louis on the Air; by Jada Jones; 1/28/25 When Vivial Lopez’s grandmother was on life support, her family was faced with many difficult decisions. Her grandmother did not have an advance directive, so her family did not know her final wishes. The experience of navigating her grandmother’s end-of-life plan without any direction led Lopez to advocate for families to prepare advance directives - especially those in Black and brown communities. Approximately only on ein three adults complete an advance directive for end-of-life care. Lopez works with the Gateway End-of-Life Coalition to empower members of the St. Louis community to navigate death through quality end-of-life care.  Editor's note: Click here for AARP - Find Advance Directives Forms by State, also available in Spanish.

Michigan Center for Rural Health working to expand rural palliative care Hospice News; by Jim Parker; 1/29/25Recent studies have established a dire need for palliative care in rural areas, and the state of Michigan is no stranger to this situation. To respond to the need, the Michigan Center for Rural Health (MCRH) is partnering with Stratis Health, a nonprofit consulting firm that specializes in assisting rural communities with providing palliative care services. The two organizations, which have partnered on projects related to critical care hospitals and Medicare beneficiaries, will choose five rural communities in the state with the goal of increasing their capacity to provide palliative care. In the current phase of the project, Stratis will be training MCRH staff to apply their framework for implementing palliative care programs in the target areas.

Best small footprint design of 2024: PACE Center with homelike charm Senior Housing News; by Andrew Christman; 1/27/25 Healthcare and social connections blend seamlessly in a new Program for All-Inclusive Care for the Elderly (PACE) location in Winchester, Virginia. The organization behind the project, Blue Ridge, was inspired by the “community village” concept in its new concept, which is a PACE center that conjures a more homelike than clinical atmosphere. The program resides within a compact footprint of 15,540 square feet, according to SueAnn Myers, executive director and project lead for Blue Ridge Independence at Home. Prioritizing accessibility and ease of movement, the location features wide hallways, ramps and “thoughtfully placed” handrails. Recessed carpets reduce issues for visitors with wheelchairs and the building features a warm contemporary aesthetic that draws inspiration from the surrounding Blue Ridge Mountains. Blue Ridge Independence at Home’s PACE center design in a small package snagged it the top spot in the small footprint category of the 2024 Senior Housing News Architecture and Design Awards.

Concurrent Care Collaborative a safety net for pediatric patients Noozhawk, Santa Barbara, CA; by Easter Moorman; 1/26/25 Partners for Kids has initiated Santa Barbara County’s first Pediatric Concurrent Care Collaborative designed to offer comprehensive, compassionate, and coordinated care to seriously ill children from birth to 21 years of age. Spearheaded by Kieran Shah, president/CEO of VNA Health, and Rebecca Simonitsch, Quality Initiatives Program manager for Cottage Health, nine local organizations have joined to create a safety net for pediatric patients and their families to help them receive care close to home. The groups are: CenCal Health, Central Coast Home Health & Hospice, Cottage Children’s Medical Center, Dignity Health, Hearts Aligned, Herencia Indígena, Hospice of Santa Barbara, Teddy Bear Cancer Foundation, and VNA Health. 

Hospice of Savannah awarded grant for safety improvements NBC WSAV Savannah News, Savannah, GA; by Eric Dorsch; 1/27/25 Hospice of Savannah Inc. (HSI) has announced it has been awarded a grant for repairs and home modifications. HSI will receive $1,999,111 in Older Adults Home Modification Program grant funding to complete safety and functional home modifications and limited repairs in the primary residences of two hundred eligible homeowners and renters over age 62 with low income. The work aims to improve general safety, increase accessibility, reduce falls, and improve residents’ functional abilities in the home for their safe and successful aging in place. 

Former hospice physician alleges retaliation against nonprofit healthcare provider Northern California Record; by Northern California Record State Court; 1/23/25 In a gripping legal battle that raises questions about medical ethics and employee rights, a former hospice physician has filed a lawsuit against his previous employer, alleging wrongful termination and retaliation. The complaint was lodged by Kamaldip Ghei in the Superior Court of California, County of San Francisco, on January 10, 2025, targeting Sutter Visiting Nurse Association and Hospice dba Sutter Care at Home. ... Ghei claims he was wrongfully terminated after raising concerns about the organization's practices regarding patient care. Specifically, he alleges that he was pressured to keep patients in hospice care even when it was not medically justified. ...

Stillwater Hospice CFO: A winning recipe for improving rural hospice care Hospice News; by Holly Vossel; 1/23/25 Montana-headquartered Stillwater Hospice has found a successful rhythm to strategic rural-based growth and sustainability. The strategy hinges on building culture, staffing resources and a reputation for quality, according to CFO and Co-founder Chris Graham. Launched in 2017, the hospice company serves predominantly rural-based populations in Montana, northern Wyoming and South Dakota. ... What are the most significant concerns among rural-based hospice providers currently? How have the challenges of rural care delivery evolved in recent years? "Staffing is very hard. You’ve got to find staff who are willing and like to travel because they have a lot of windshield time. It’s also the logistics of remote care. We have patients that live 75 miles or more outside of a town, then once you get there it’s another 20 miles on a dirt road that could be covered in snow and ice. ..." [Click on the title's link to continue reading.]

New telehealth rules: 5 takeaways on temporary flexibilities for 2025 Becker's ASC Review; in collaboration with Coronis Health; 1/21/25 With the passage of the American Relief Act, 2025, certain telehealth flexibilities initially introduced during the public health emergency (PHE) era have been extended. These provisions, however, are only authorized through March 31, 2025. A Jan. 9 blog post by Coronis Health breaks down what the extensions mean for telehealth providers and patients, what services and features were left out and why certain changes could become permanent in 2025. Five takeaways:

University of Rochester Medical Center plans hospital-at-home program Becker's Health IT; by Giles Bruce; 1/21/25 Rochester, N.Y.-based UR Medicine plans to launch a hospital-at-home program in summer 2025. CMS approved the health system's flagship Strong Memorial Hospital in Rochester for acute hospital care at home in June 2024. The six-hospital system has since taken a "pragmatic and deliberate approach" to building the initiative, said Justin Hopkin, MD, chief of hospital medicine at University of Rochester Medical Center. "We are listening closely to what community members want and need, while observing how other health systems overcome challenges as they scale up their hospital-at-home programs," Dr. Hopkin told Becker's.

CMS Health Equity Data Book U.S. Centers for Medicare and Medicaid Services - Office of Minority Health; by CMS Office of Minority Health; published December 2024, email notifications 1/15/25 One of the six pillars of the Centers for Medicare & Medicaid Services (CMS) 2023 Strategic Plan is to, “Advance health equity by addressing the health disparities that underlie our health system.” The CMS Office of Minority Health (OMH) aims to advance health equity by providing broader access to data about the state of health equity across CMS’ programs. This Data Book presents summary information on disparities within CMS programs as demonstrated by data related to prevalence. ... This Data Book is intended for use as a readily-available information source on health disparities within the Medicare, Medicaid, and the Health Insurance Marketplace populations. This Data Book is organized into five key sections – CMS at a Glance, Demographics, Chronic Conditions, Behavioral Health, and Social Determinants of Health – so that Data Book users can jump to the section most relevant to their data needs. Within each section, data are presented by each population type.

How poor communication is killing patients and burning out doctors Medpage Today's KevinMD.com; by Pamela Buchanan; 1/14/25 This week alone, I had two particularly heart-wrenching encounters [as an Emergency Room physician]: A 65-year-old man with metastatic lung cancer, convinced his shortness of breath was just pneumonia. When I explained the progression of his disease, he was shocked. No one had told him that his cancer was likely incurable. A 97-year-old woman brought in for “failure to thrive.” She was frail, pale, and not eating—classic signs of the final stages of metastatic cancer. When I suggested hospice care, she seemed blindsided, as if this reality was completely new to her. Both cases highlight a troubling trend: Patients often come to the ER not just for care, but for clarity. They don’t understand their diagnosis, prognosis, or treatment plan. ...

Three state snapshots of pediatric palliative care: California, Massachusetts, and VermontNational Academy for State Health Policy (NASHP); by Neva Kaye and Heather Smith; 1/13/25 Pediatric palliative care is an important component of the system of care for children with serious illness and their families. Palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical needs during difficult times. However, many children and families who could benefit from palliative care are unable to access it. State Medicaid and Title V Maternal and Child Health Service Block Grant programs are working to address this issue. ...

ECHO report exposes deadly toll of homelessness in Austin CBS Austin, TX; by Abigail Velez; 1/10/25 A report released this week by Austin's Ending Community Homelessness Coalition (Austin ECHO) revealed the human cost of the city's growing homelessness crisis. The report, analyzing six years of data, found that a staggering 1,010 unhoused individuals died in Austin between 2018 and 2023. Their average age of death: is just 50 years old, a full 20 years younger than their housed counterparts. ... The report offered a number of concrete recommendations, including: ... Develop a medical triage team to connect vulnerable individuals with appropriate care, including respite care, long-term care, substance use treatment, and hospice.