Literature Review

Mom of 4 is placed in hospice care 2 weeks before son's wedding. On his big day, she's on the dance floor with a smile (exclusive) People; by Jordan Greene; 11/14/24 ... In October, before entering hospice care, Liv recalls how her mom was in the hospital, and all she could talk about was attending the wedding. With Olivia's health deteriorating, Liv says her brother Salvatore and his fiancée Kelsey had even considered holding the wedding ceremony in the hospital room if necessary. But that contingency plan quickly became unnecessary. On Nov. 2, their mom defied expectations and arrived at Basilica Hudson in Hudson, New York, alongside the other 105 guests to watch her son walk down the aisle — turning the hopes of her kids and everyone else in attendance into a reality. In fact, Liv says her mom exceeded even the best-case scenario the family had imagined. ...

Teen honored with Meritorious Civilian Award after rescuing grandparents in house fire [grandmother in hospice care] Chattanoogan.com, Chattanooga, TN; 11/12/24The Whitfield County Fire Department awarded the Meritorious Civilian Award for Bravery to 15-year-old José Fernando Espinoza on Monday in recognition of his exceptional courage during a house fire on Oct. 19. The award honors civilians who show extraordinary heroism in life-threatening situations, celebrating Fernando’s selfless actions that saved his grandparents. Shortly after midnight on Oct. 19, firefighters were dispatched to a fire on Ricky Drive, where flames had rapidly overtaken the home. Though most of the family managed to escape safely, Fernando’s grandparents remained trapped inside. His grandmother, bedridden and in hospice care, and his grandfather, who chose to stay with the grandmother, were unable to make it out on their own. In an extraordinary display of bravery, Fernando reentered the burning home through a window and, pushing through thick smoke and flames, managed to pull both grandparents to safety.

A doctor’s life-changing realization about empathy after becoming a patient [podcast] MedPage Today's KevinMD.com; podcast by KevinMD; 11/10/24 Join us for a conversation with Fazlur Rahman, a hematology-oncology physician and author of Our Connected Lives. In this episode, we explore how Fazlur’s journey from physician to patient transformed his understanding of empathy. He reflects on the importance of personal connection in medicine, the impact of a lack of empathy on both doctors and patients, and the need for medical education to include the humanities to foster compassionate care. This episode dives deep into the role empathy plays in improving patient outcomes and doctor-patient relationships. Fazlur Rahman is a hematology-oncology physician and author of Our Connected Lives. He discusses the KevinMD article, “From doctor to patient: a life-changing lesson in empathy.”

After Hurricane Helene, the VA in Western NC is making sure that no veteran is left behind  Southern Living; by Abigail Wilt; 11/11/24The agency has contacted 100% of the high-risk veterans they identified before the storm—some visits requiring mile-long hikes up unstable mountainous terrain. As Western North Carolina continues to pick up the pieces on a long road to recovery following the devastation of Hurricane Helene, teams from the local VA are going above and beyond to care for veterans. ... That service extended deep into the mountains. Prior to the storm, the VA identified over 2,600 vulnerable veterans at highest risk, including patients going through chemo treatments and those with spinal cord injuries, mobility issues, and home oxygen needs. When the floodwaters hit, the Emergency Department never closed. Immediately following Helene, the VA began addressing the oxygen needs of 1200 vulnerable veterans, Young shared, and a task force was mobilized to perform wellness checks. But as many roads were washed out and phone and internet service inconsistent, these wellness checks often took the form of compassion on foot. “We contacted 100% of the high-risk veterans, either by phone or in person at their homes,” Young said. “Some visits required mile-long hikes up unstable mountainous terrain to reach veterans, including those determined to stay in their homes."

“I’m 68 and totally alone”: 50 people share what it’s like being seniors AOL.com - Bored Panda; by Dominyka; 11/9/24 People are different in their upbringing, in their tastes, even in their looks. But all people do have one thing in common: we're all heading towards the same end. With the exception of Bryan Johnson, maybe. Still, we're all aging, whether we like it or not. And with aging comes social isolation; according to a 2024 Medicare report, 57% of adults aged 65 and older report feeling lonely. The users of Quora recently tackled this problem when one person wrote: "I'm 63 years old and so lonely. Does it matter to anyone?" Many older people rushed to the comments to share their stories, highlighting the sad realities they face today. Bored Panda sought the expertise of the anti-ageism activist Jacynth Bassett, Founder and CEO of Ageism Is Never In Style about how important social connections are to us as we age. We also spoke with her about the right terminology when referring to older people and how we can all spot ageist attitudes in ourselves. 

Specialized hospice care program honors and supports veterans facing terminal illness NBC 10 News - WSLS, Southwest and Centeral Virginia; by Kelly Marsh; updated 11/7/24 In Southwest Virginia, a quarter of people with a terminal illness is a veteran, a statistic that highlights the unique challenges many former service members face in their final days. In response to this, several specialized hospice programs in the region have been developed to offer care that specifically addresses the needs of veterans as they navigate the end-of-life journey. For many veterans, the experience of facing terminal illness is compounded by the physical and emotional toll of their military service, particularly conditions like Post-Traumatic Stress Disorder (PTSD), depression, and anxiety. ... The We Honor Veterans program, created through a partnership between the National Hospice and Palliative Care Organization and the U.S. Department of Veterans Affairs, encourages hospice centers to offer a heightened level of care for veterans. Across Southwest Virginia, multiple hospice programs have achieved the highest level of recognition—Level 5—demonstrating their commitment to providing veterans with the best possible care. One such program is based in Franklin County. Despite its size, Carilion Hospice in Franklin County has earned a five-star status for its exceptional veteran services ...Editor's note: We thank and recognize all hospice organizations that find meaningful ways to support and honor your veterans. Click here for more information about NHPCO/The Alliance for Care at Home's We Honor Veterans program.

[England] Woman doing race for hospice that helped husband BBC News; Lorna Bailey and Andrew Dawkins; 11/4/24 A woman is taking part in a 120km (75-mile) race over four days through the deserts of Jordan for a hospice that helped care for her husband. Charlotte Rochenard-Taylor, from Warwick, said running became a way for her to cope with grief, after Jamie died from a brain tumour in June last year. She is participating in the Marathon des Sables to raise money for Myton Hospice, which has sites in Coventry, Warwick and Rugby. Ms Rochenard-Taylor said it was "just a way to keep alive, if that makes sense, getting again out of my comfort zone to just feel like fully alive". One of her husband's last wishes was to die at home, stated the runner, who made it her "mission for this to happen". She added: "Thanks to the Myton Hospice, the at-home team... that was made possible." ... "I [found] that running actually became for me a way to cope with the grief, just to get out there and just get the rage out and just... mental wellbeing really." Ms. Rochenard-Taylor, who broke her pelvis a few years ago, said the charity was close to her heart, and the race starting on Tuesday was an ideal way to support it.

PositivelyJAX Award - The purple bench of compassionate St. AugustineNews4JAX; by Melanie Lawson; 11/1/24 This month’s PositivelyJAX Award goes to something unique: a bench. But it’s no ordinary bench—it’s The Purple Bench, powered by people and conversation. The concept was brought to life by a group called Compassionate St. Augustine, sparking empathy and understanding in anyone willing to sit down and listen. This purple bench, located just outside the gates of the Lincolnville Community Garden in St. Augustine, often sits empty, waiting for someone to take a seat and begin a conversation.  When I approached, Eileen Reid was happy to join me. In just a short 10-minute conversation, I got to know her—a retired hospice nurse ... “I’ve been around a lot of endings, and endings are beginnings, but now, now I’m beginning a whole different phase of my life, and it’s interesting. ...”Editor's note: Click on the title's link for the community news article. Click here for a photo and description of this Purple Bench Initiative: "The Purple Bench initiative was formed to challenge the community to engage in compassionate practices despite different backgrounds, religions, ethnicities, and views. In a world divided by polarizing opinions, it is increasingly important to find common ground to help those in need."

I'm a palliative care nurse and I look after patients on their deathbeds - these are the top 5 regrets I hear from people in their final days DailyMail.com; by Ellen Coughlan; 10/30/24 When people are faced with their own mortality they experience a variety of emotions and gain perspective on their lives. A palliative care nurse, who works at Old Colony Hospice in Massachusetts, wrote a blog post, which has since resurfaced, revealing the top five regrets people express on their deathbed.  ...

80-year-old 'Mom' cares for homeless men in Philadelphia ABC News 7, New York, NY; by Matteo Iadonisi; 10/30/24 Cecelia Robinson has earned the nickname 'Mom' during her two decades of showing motherly love to homeless residents at St. John's Hospice. Her work in environmental services and housekeeping ranges from taking out the trash to developing relationships with clients and making sure their needs are met. Specifically, she works in the Good Shepherd residence at St. John's Hospice, which cares for men who are considered medically fragile. Robinson has helped men like Craig Freeman, who utilized the Good Shepherd for transitional housing and has since moved into his own apartment. Watch the video [here] to see Robinson's story in action.Editor's note: Do you need inspiration? Click here to view this beautiful story about Cecelia Robinson's care for homeless residents at St. John's Hospice.

The ‘perfect way to die’ in North Dakota CBS KX News, Bismarck, ND; by Brendan Rodenberg; 10/27/24 Death is not something people tend to look forward to at the end of their lives, but it is important to discuss nonetheless — and while many have ideas of how they would like to pass away, these vary immensely across America. This begs the question: How would North Dakotans like to spend their last moments?  ... [An insurance poll that surveyed 3,000 people from across the nation indicated]  that the perfect death for a North Dakotan would be to pass while hiking White Butte, the state’s highest point. ... The survey also delved deeply into other aspects of one’s last moments, including those surrounding them and what occurs after the moment of death. Below is a list of the most prevalent takeaways from this part of the study.

Finding purpose and joy through the gift of volunteering SMA News Today - Bionews, Inc., Pensacola, FL; by Jasmine Ramos; 10/24/24 My physical limitations don't define my ability to give back to others. Volunteering has given me more joy and meaning than I ever imagined possible. Living with spinal muscular atrophy (SMA) means I can’t move my own body, but that hasn’t stopped me from finding ways to move others. Whether supporting disaster relief efforts or creating meaningful moments for hospice patients, my work gives me a sense of freedom and fulfillment that transcends physical limitations. Every task, no matter how small, reminds me that we all have the power to make an impact. My body may not move independently, but through volunteering, my heart and spirit are constantly in motion, reaching out to touch the lives of others. ... Working with the hospice center brought a different set of rewards. I help create monthly newsletters that inform, comfort, and connect patients and their families.

Farmer in hospice takes one last trip to the farm Sanford Health; by Mick Garry; 10/23/24 Marvin Miller grew up on a farm near Parker, South Dakota, and then farmed the land himself after his mother and father retired. ... He is being cared for at Sanford Health’s Ava’s House, an acute-level, inpatient hospice facility in Sioux Falls, that provides 24-hour nursing care to patients. When Marvin was asked if he had anything he wanted to see or to do before his health would not permit it, he admitted ... that he would like to see the farm and crops and get another chance to take a tour of Parker, a town of about 1,200, a half-hour southwest of Sioux Falls. ... The staff at Ava’s House quickly began finding a way to make it happen. With financial assistance from the Sanford Health Foundation, they were able to rent a wheelchair van that the Millers could use to make the trip. ... The Millers are grateful the Ava’s House staff made the effort to help Marvin at a difficult time. Just as farming goes outside the scope of a normal job, so does caring for people at Ava’s House. “We’re very appreciative of the staff at Ava’s House,” Paula said. “They’re wonderful people. They set it up and organized the whole trip for us. We got to share a day at the farm with our kids.”