Literature Review

[Germany] Benefits and challenges of recording biographical audiobooks by incurably ill parents to their children: A semi-structured interview studyPalliative Care & Social Practice; by Anja Greinacher, Sophia Enders, Lars Buschhorn, Beate Ditzen, Bernd Alt-Epping; 10/25The aim of this study is to identify positive and negative effects of a personal family audiobook recording on incurably ill patients with underage children, suggestions for improving the implementation, and feasibility in parallel with somatic treatment. Especially at an advanced stage of the disease and at a young age, the confrontation with one’s own illness is often not successful without taking one’s personal life story into account.There was evidence that the audiobook strengthened coping strategies; the concept of generativity seems particularly important. Nevertheless, the process was described as exhausting and challenging.

[Italy] Can cannabinoids alleviate behavioral symptoms in older adults with dementia? A systematic reviewJournal of Psychopharmacology; by Adele Ravelli, Chiara Ceolin, Mario Virgilio, Margherita Vergadoro, Maria Devita, Marina De Rui, Paolo Simioni, Giuseppe Sergi, Alessandra Coin; 10/25Behavioral and psychological symptoms of dementia (BPSD) affect patients’ and caregivers’ well-being. Cannabinoids may offer a promising therapeutic option for managing BPSD. Ten studies ... showed cannabinoids helped reduce agitation and nocturnal disturbances. In conclusion, cannabinoids show promise in managing BPSD in dementia, with good tolerability and safety. 

Living with dementia report emphasizes that even those with advanced disease have stories to share JAMA Medical News; by Rita Rubin, MA; 10/31/25 As the average age of the US population has risen, so has the number of people living with Alzheimer disease and related dementias. And yet, dementia is still a highly stigmatized condition, a new collection of essays published by the Hastings Center for Bioethics points out. Clinicians, caregivers, and loved ones could improve the lives of the more than 7 million people in the US who are living with dementia if they only recognized that such individuals still have their own stories to tell, even when they can’t express themselves the same way they did before their symptoms appeared. 

Clinician and parent perspectives on essential psychosocial care in pediatric cancerJAMA Pediatrics; by Kimberly S. Canter, Anne E. Kazak, Natalie Koskela-Staples, Michele A. Scialla, Kimberly Buff, Emily Pariseau, Victoria A. Sardi-Brown, Julia B. Tager, Lori Wiener; 10/25The Standards for Psychosocial Care for Children With Cancer and Their Families provide guidelines for evidence-based psychosocial care for children with cancer and their families. The Implementing the Standards Together: Engaging Parents and Providers in Psychosocial Care (iSTEPPP) study extends the standards through innovative collaborative research between clinicians and patient and family advocates, with the goal of widespread clinical implementation of standards that clinicians and parents or caregivers agree to be priorities. The 3 standards prioritized by parents and clinicians in this study offer insight into shared priorities for psychosocial care in pediatric cancer. However, misalignment on other priority standards (parental mental health, palliative care, and neurocognitive monitoring) highlights the differences in perception between parents and clinicians. Areas lacking agreement are a stark reminder of potential challenges when working to meet the holistic needs of children with chronic diseases and their families, as clinicians and parents may not agree on which needs are most important.

Compassionate care, measurable impact: Evaluation of embedded physician-led palliative care in a community oncology practiceJCO Oncology Practice; by Haibei Liu, Jillian Hellmann, Jessica Heintz, Geoffrey Daniel Moorer, Karen Miller; 10/25This analysis indicates that embedding palliative care physicians within a community oncology practice significantly increases hospice enrollment and LOS [length of stay] greater than 3 days. These findings support a cooperative care model as a practical strategy for integrating palliative care physicians into community-based oncology practices to improve patients’ EOL outcomes. 

Affirming healthcare experiences among older Black-and White-identifying gay men living with serious illness: A qualitative study in the Deep SouthAmerican Journal of Hospice & Palliative Care; by Korijna Valenti, Michael Barnett, Stacy Smallwood, Ronit Elk; 10/25Older gay men living with serious illness often face challenges related to identity, disclosure, and relational recognition in healthcare settings [and] these challenges are particularly acute in the Deep South, where affirming care remains inconsistent, and disparities persist. Three main themes were identified [in this study]: (1) Experiences of Inclusion and Visibility, (2) Positive Communication, and (3) Sharing Sexuality and Effect on Care. Clear communication, honesty, and opportunities to ask questions were critical in navigating medical decisions. Discussions of sexual orientation were context-dependent and often shaped by perceptions of safety. Recognition of chosen family members, particularly partners, was central to participants' sense of dignity and affirmation in care.

Live discharges of patients in hospice home settings-Relief or grief: A narrative studyThe American Journal of Hospice & Palliative Care; by Jacek T Soroka, Amanda L Paulson-Blom, Alla Blotsky, Jennifer L Derrick, Margaret T Mudroch; 10/25Approximately 20% of hospice patients in the US are discharged alive, often due to Medicare regulations. One of the caregivers described discharge as distressing and poorly coordinated; the other reported a positive experience shaped by prior knowledge and financial resources. Both emphasized the importance of clear communication, care planning (eg, to avoid loss of durable medical equipment), and interdisciplinary support. Live hospice discharge can cause emotional and practical disruption, especially when not accompanied by a care transition plan or access to durable medical equipment. This study highlights the need for team-based communication, sensitivity in language, and continued support. Assistant Editor's note: There can be immense ambivalence among patients and loved ones when one is discharged alive from hospice. Usually, these patients have been with hospice for many months or even years. Perhaps the discharge is viewed as good news-even GREAT news(!) that the patient has "graduated" from hospice. Maybe loved ones will throw a graduation party(!) as it means that the patient is no longer terminally ill (as defined by hospice regulations). On the other hand, some patients/loved ones can become very distraught, wondering how they will get along without having a nurse to call in the middle of the night, without their beloved aide who brightens their day with the TLC of the bath-hair-nail care, and without the support and guidance of their social worker and/or chaplain. Some patients/loved ones will feel angry and abandoned. Best practices dictate that hospices be proactive in discharge planning when the health of their long length-of-stay patients hits a plateau; discharge should never come as a surprise. There should be frequent and ongoing discussions with the patient/loved ones about the potential for live discharge. Discharge planning needs to include: how the patient will get their DME/medical supplies/medications?, who does the loved one call in the middle of the night if there is a medical crisis?, who can provide tangible support and spiritual guidance (if desired)?, and can palliative care ease the transition once hospice has discharged?

[Scotland] Spiritual and cultural influences on end-of-life care decision-making: A comparative analysis of the Arab Middle East and the United KingdomCurrent Opinion in Supportive & Palliative Care; by Hanan Hamdan Alshehri, Chris McParland, Hibah Bahri, Bridget Johnston; 10/25Spiritual and cultural factors shape end-of-life decision-making in the Arab Middle East and the United Kingdom. Arab cultures emphasize dignity through faith and family, leading to collective decisions, while the United Kingdom focuses on individual autonomy. Both allow withdrawal from futile treatment to alleviate suffering, but Arab approaches are more family centric. Additionally, spirituality in Arab cultures is often collective and religious, compared to the personal and secular practices common in the United Kingdom.

Learning to love fax again, courtesy of AI Forbes - Innovation; by Jeffrey Sullivan; 10/29/25 ... While other industries have moved on to less secure email and messaging platforms, fax still reigns supreme in healthcare. In fact, a majority of healthcare organizations still lean on fax as a primary source of communication, according to a recent survey ... The problem is that while fax is still healthcare’s go-to for sending and receiving information, many organizations haven’t updated their fax processes to adapt to current healthcare workflows that prioritize digital tools like EMRs and patient portals over traditional paper-centric practices.

An AI-powered lifestyle intervention vs human coaching in the Diabetes Prevention Program: A randomized clinical trialJAMA Network; by Nestoras Mathioudakis, Benjamin Lalani, Mohammed S. Abusamaan, Mary Alderfer, Defne Alver, Adrian Dobs, Brian Kane, John McGready, Kristin Riekert, Benjamin Ringham, Aliyah Shehadeh, Eatmata Vandi, Amal A. Wanigatunga, Daniel Zade, Nisa M. Maruthur, for the AI-DPP Study Group; 10/27/25How does referral to a lifestyle intervention exclusively driven by artificial intelligence (AI) compare with referral to a human coach–led Diabetes Prevention Program (DPP) lifestyle intervention? Among adults with prediabetes and overweight or obesity, a fully automated AI-led DPP may be a viable alternative to a DPP led by human coaches.Publisher's note: This article caught my attention because I was certain "human coaching" would out-perform the "AI-powered lifestyle intervention". I was wrong - nearly equal percentages of participants achieved the primary weight loss outcome.

Religious traditions and grief in the USA: When it's less about G-d and more about the peopleJournal of Religion & Health; by Emily Scheinfeld, Cassidy Taladay-Carter, Kelly Tenzek; 9/25Many turn to religion or spirituality for personal meaning, purpose, and guidance throughout our lifetime, including in the context of death and dying. Through the qualitative analysis of 159 open-ended survey responses from adults in the USA who had experienced the death of a parent, we examined the types of religious traditions, practices, and/or rituals that participants engaged in during their bereavement. We then explored how those practices were helpful, harmful to, or revealing of emergent interfaith family dynamics throughout their grief journeys. By better articulating the communicative role of religion in death and dying, we broaden the understanding of religion and grief in these important sociocultural contexts. We discuss implications for families and religious communities alike.

End-of-life care in the austere military environmentMilitary Medicine; by Jason David, Stevan Fairburn, Hayden Fogle, Nicholas Dulin, Russell Day; 9/25Throughout the Global War on Terror (GWOT), the U.S. military built a revolutionary capacity to deliver life-saving care-even in austere environments-through rapid evacuation, far-forward providers and resources, and advances in prehospital and trauma-critical care. However, the operational reality of future Large Scale Combat Operations (LSCO), as evidenced by wars in Ukraine, Sudan, and Gaza, will be marked by high casualty rates and limited medical resources. [This review] ... explores how medical providers must shift from curative to comfort-focused care, often without formal palliative training, and how end-of-life care protocols must be integrated into doctrine, triage systems, and commander education. We offer pragmatic guidance on clinical decision-making, communication strategies with both medical and non-medical leaders, and the delivery of pain relief, emotional support, and dignity at the end of life-even in forward-deployed, under-resourced settings.

Hospice social worker and nurse perceptions of the usability of a hospice live discharge protocol (LDP)American Journal of Hospice & Palliative Medicine; by Stephanie P. Wladkowski, Susan Enguídanos, Tracy A. Schroepfer; 9/25Live discharges from hospice are often distressing for patients, caregivers, and hospice providers alike, disrupting care continuity and leading to emotional and logistical challenges. Despite Medicare’s discharge planning requirement, no standardized process currently exists for hospice-initiated discharges, resulting in variable quality of care transitions.  An explicit Live Discharge Protocol has strong potential to enhance the quality and consistency of a live discharge from hospice care. The LDP provides a framework to help smooth the transition from hospice care and provides patients and families with post-discharge support. Feedback from hospice professionals affirmed the relevance and usability of each step within the LDP, while also identifying opportunities for refinement for future implementation.