Literature Review

Video conversation aids to assist in goals-of-care discussions with older adults in a medical setting: A systematic reviewAmerican Journal of Hospice & Palliative Care; Ashna S Karpe, Mokunfayo O Fajemisin, Stephanie Martinez Ugarte, Lara Ouellette, Martin L Blakely, Gina H Khraish, Shreyans V Sanghvi, Min J Kwak, Jessica L Lee, Lillian S Kao, Thaddeus J Puzio; 12/25Goals-of-care (GOC) discussions align medical treatment with older adults' preferences, yet are hindered by communication barriers, provider discomfort, and misinformation. Video-based decision aids improve understanding and reduce decision conflict, though data on their use in older populations remain limited. Video variability and differences in measured outcomes limited comparisons and generalizability. Video-based decision aids show promise for improving knowledge and aligning treatment preferences. Further studies are needed to investigate the impact of video-based decision aids on GOC conversations in older adults in acute care settings.

Patients' perceptions of autonomy in palliative care: Two patient interview exemplars Palliative Care and Social Practice; by Kristen Tulloch, Julia Acordi Steffen, John P Rosenberg; 1/19/26 Results: Four themes were identified: (a) my involvement in healthcare decisions, (b) change to my autonomy during illness progression, (c) self-assessing my abilities to exercise autonomy and (d) my coping mechanisms for loss of autonomy. Palliative care patients perceived and managed their autonomy amidst their illnesses, revealing a sense of loss of autonomy extending beyond healthcare into many daily activities. Participants wished to exercise autonomy in nuanced ways, varying in intensity across many aspects of their lives, underscoring the importance of recognising and respecting individuals' wishes for autonomy.Editor's Note: The authors’ focus on coping with loss of autonomy is essential. As illness progresses, autonomy can erode not only in medical decisions but across daily life, identity, and meaning—losses that are too often overlooked in clinical care. The frequently misapplied “Five Stages of Grief” can further blur this reality, reducing complex, personal experiences to linear expectations not supported by contemporary grief research. Understanding how patients adapt to loss of autonomy is foundational to truly person-centered palliative care.

Trends in pediatric palliative care - A newsletter Trends; by the Siden Research Team; 1/20/26 In 2024 TRENDS published it’s 100th issue and enrolled its 1000th newsletter subscriber, the newsletters growth shows no signs of stopping. The Siden Research Team continues to center ways to foster the pediatric palliative care community and ultimately improve care for our patients. ... ith no journal dedicated to pediatric palliative care, finding relevant articles required scouring pediatric journals for palliative literature and palliative journals for paediatric literature – clearly there was a gap in effective dissemination of relevant articles. ... The Siden Research Team took initiative to bridge this gap. In June 2016 the first search and resulting citation list was compiled.

Existential communication with patients and families: A qualitative exploration of multidisciplinary oncology clinicians’ experiencesAmerican Journal of Hospice & Palliative Medicine; by Megan Miller, William E. Rosa, Haley Buller, Meghan McDarby, Alix Youngblood, Betty R. Ferrell; 12/25Existential concerns are inherent in serious illness and at the end of life, yet communication to address such concerns can be challenging. Themes across clinicians’ experiences of existential communication with patients and families included existential questions, guilt/regret, fears about the future, grief, preparing for death, values and goals of care, spiritual concerns, and letting go. Meaningful experiences included bearing witness; providing emotional support and information; easing suffering; learning and growing; and the honor of accompanying patients and families through the end of life. Challenges included discomfort when talking about death; facing denial; being unable to “fix it”; resistance to palliative care among oncology team members, patients, and families; fear of saying the wrong thing; navigating conflicting values; responding to spiritual concerns; barriers to inclusive, high-quality care; and struggling with emotions.

All hands on deck: A case report of an interdisciplinary team preventing elder financial abuse at a skilled nursing facilityCureus; by Grace Yi, Nicholas S. Cho, Karen Galvez-Maquindang, Christine Sun, Navid Darouian; 12/25Elder financial abuse (EFA) is a common but under-reported form of maltreatment among elderly individuals. This case describes an 84-year-old woman with cognitive deficits residing in a skilled nursing facility (SNF), who was exploited by a purported friend who took funds, important documents, and attempted to designate herself as the patient’s power of attorney. The situation was quickly identified by the multidisciplinary care team at the SNF and mitigated through early action and collaboration. The case emphasizes the importance of multidisciplinary efforts to identify at-risk patients and the establishment of protocols surrounding abuse identification and reporting to protect elderly patients from financialexploitation and preserve their autonomy, dignity, and quality of life.

Caregivers’ positive emotional language predicts their depression trajectories after dementia caregiving ends  The Journals of Gerontology; by Jenna L Wells, Julian A Scheffer, Suzanne M Shdo, Claire I Yee, Kevin J Grimm, Alissa B Sideman, Bruce L Miller, Jennifer M Merrilees, Katherine L Possin, Robert W Levenson; 12/25There are striking differences among caregivers of people with dementia in their health and well-being during active caregiving and after caregiving has ended. A key factor influencing caregiver health is the emotional quality of the caregiver-care recipient relationship, which may be reflected in the emotional language caregivers use when describing this relationship. Caregivers who use more positive words when describing their connection with the care recipient may be more resilient, underscoring the potential role of positive emotional qualities of the caregiving relationship in preserving caregivers’ mental health after caregiving ends.

Prevalence rate of depression in palliative and hospice care: A narrative reviewJournal of Social Work in End-of-Life & Palliative Care; by Reid M. JacobsDepression is a common but not universal experience among individuals receiving hospice and palliative care. Though much research exists on depression in this population, there is little consensus on the actual prevalence rate, with estimates varying drastically. This is due, in part, to non-standardized definitions of what constitutes depression, variance based on assessment methods and tools, and the presence of somatic symptoms that may be due to physical illness and not depression, thus distorting the prevalence rate in this population. Depression can cause significant negative consequences for individuals and those who care for them, robbing them of precious time, increasing suffering, and decreasing overall quality of life. This narrative review seeks to understand depression’s prevalence among people living with severe and life limiting illness based on the existing literature.

Intention to engage in advance care planning among community dwelling adults: A quasi-experimental studyAmerican Journal of Hospice and Palliative Medicine; by Lesley J. Thweatt, Katherine C. Hall, Shena Gazaway, Deborah J. Konkle-Parker, Lei Zhang; 12/25The validated Advance Care Planning Engagement Survey measured intention, knowledge, contemplation, self-efficacy, and readiness at baseline, 2-weeks, and 3-months following use of The Conversation Project Starter Guide. Advance care planning education positively influenced both the intention to engage [group] (commitment to making a change soon) and readiness to engage in advance care planning [group] among community-dwelling adults. The Conversation Project Starter Guide had a significant impact on intention to engage scores over time, with the most dramatic change observed between baseline and 2-weeks post-education. Chronic illness was a significant predictor of advance care planning engagement among community-dwelling adults.

Automated lymph node and extranodal extension assessment improves risk stratification in oropharyngeal carcinomaJournal of Clinical Oncology; by Zezhong Ye, Reza Mojahed-Yazdi, Anna Zapaishchykova, Divyanshu Tak, Maryam Mahootiha, Juan Carlos Climent Pardo, John Zielke, Benjamin H. Kann; 12/25Extranodal extension (ENE) is a biomarker in oropharyngeal carcinoma (OPC) but can only be diagnosed via surgical pathology. We applied an automated artificial intelligence (AI) imaging platform integrating lymph node autosegmentation with ENE prediction to determine the prognostic value of the number of predicted ENE nodes... Automated, AI-ENE node number is a novel risk factor for OPC that may better inform pretreatment risk stratification and decision-making.Publisher's Note: An interesting, and apparently effective, use of AI in prognostication.

Natural language processing to assess palliative care processes and health care utilization in seriously ill older adults with severe traumaJournal of Palliative Medicine; by Daniel I Hoffman, Sydney Moore, Mengyuan Ruan, Masami Tabata-Kelly, Kate Sciacca, Tamryn F Gray, Stuart R Lipsitz, Christine S Ritchie, Charlotta Lindvall, Zara Cooper; 12/25National guidelines recommend palliative care (PC) alongside life-sustaining treatment for older adults with severe trauma. However, outcomes associated with PC for these patients are not well-defined... Natural language processing was used to measure documentation of five inpatient PC processes: code status limitations, goals-of-care (GOC) conversations, hospice discussions, PC consultations, and health care proxy designations... PC was not associated with reduced health care utilization in older adults after trauma but was associated with one-year hospice enrollment. GOC conversations, specialty PC, and inpatient hospice discussions had low utilization, highlighting target areas for improvements in care delivery.