Literature Review

Exposure to a loved one’s death and advance care planning: Moderating effects of ageAmerican Journal of Hospice and Palliative Medicine; by Peiyuan Zhang, MS, Sarah Clem, MSW, Roderick Rose, PhD, John G. Cagle, PhD; 6/24Despite documented benefits of Advance Care Planning (ACP), it is still under-utilized in the U.S. Our study aimed to examine whether experiencing a loved one’s death is associated with one’s own ACP behavior among adults in the U.S. and the potential moderating effect of age. ... Exploring an individual’s previous experience with a loved one’s death might be an effective way to broach the concept of ACP among adults of all ages. This strategy may be particularly useful in facilitating discussions of end-of-life medical wishes with doctors among younger adults than older adults.

Palliative care for cancer patients is found to be as effective given virtually as in personSTAT; by Angus Chen; 6/2/24Comfort can be delivered to patients with advanced cancer virtually just as well as in person, according to a new study presented on Sunday at the American Society of Clinical Oncology annual meeting in Chicago. That’s welcome news to palliative care experts who have, in many cases, preferred the convenience and efficacy of telehealth sessions for both themselves and their patients since the Covid-19 pandemic forced virtual visits. ... Palliative care experts are also looking at other ways to help more patients get seen. In another abstract presented at ASCO in Chicago and published in JAMA by MGH’s Temel, she showed the frequency of palliative care visits could be stepped down for patients with fewer physical or emotional symptoms — also without any loss in palliative care efficacy.

The other side of the curtainJAMA; by Paige Stevens; 5/23/24Each day, clinicians have a sacred opportunity to foster the patient-physician bond and provide holistic care to patients. Too many times, the stress and hectic nature of my daily life as a physician has caused me to lose sight of this special connection and sometimes shortchanged the care that I provided. This journey has taught me more about being a physician than any of my years of formal education ever could. Now, having experienced medicine from the other side of the curtain, I am forever thankful that the physicians and nurses who cared for me took the time to learn my story and attend to all my needs—medical, emotional, and spiritual. These are the moments that I am most thankful for and the moments that will stay with me forever.

“When I do have some time, rather than spend it polishing silver, I want to spend it with my grandkids”: a qualitative exploration of patient values following left ventricular assist device implantationBMC Palliative Care; by Avery C. Bechthold, Colleen K. McIlvennan, Daniel D. Matlock, Deborah B. Ejem, Rachel D. Wells, Jesse LeJeune, Marie A. Bakitas, J. Nicholas Odom; 5/24Values are broadly understood to have implications for how individuals make decisions and cope with serious illness stressors, yet it remains uncertain how patients and their family and friend caregivers discuss, reflect upon, and act on their values in the post-left ventricular assist device (LVAD) implantation context. This study aimed to explore the values elicitation experiences of patients with an LVAD in the post-implantation period. ... Clinicians should consider assessing the values of patients post-implantation to facilitate shared understanding of their goals/priorities and identify potential changes in their coping.

Procedural interventions for terminally ill children – Are we aiding palliation?Journal of Palliative Care; by Hannah Phillips, MD, Sarah Perry, MS, Laura A Shinkunas, MS, Erica M Carlisle, MD; 5/24Many children undergo surgery or an invasive procedure during their terminal hospital admission. The types of procedures, patients, and the intent of the procedures has not been well defined. Understanding these details may help pediatric surgeons better determine the clinical settings in which certain procedures will not enhance palliation or survival. ... 132 children met inclusion criteria. Most children were White and less than one year old. The most common type of diagnosis was cardiac in nature. Children underwent an average of three procedures. 75% were intubated and 77.5% had palliative care involved. Patients who were less than one year old at death were more likely to have been intubated, had longer terminal hospital stays, and had more procedures. Those who were intubated underwent more procedures and had longer hospital stays. Those with longer palliative care involvement had fewer procedures. ... Ongoing study may help refine which procedures may have limited impact on survival in the chronically ill pediatric population.

Deaths of despair surged among Black people over past decadeJAMA Network; by Emily Harris; 5/24Guided by findings reported in 2015, researchers have thought that the uptick in midlife deaths of despair—those resulting from suicide, drug overdose, and alcoholic liver disease—disproportionately affected White people. Now, new data published in JAMA Psychiatry illustrate that the decrease in life expectancy from deaths of despair among people aged 45 to 54 years is not unique to White individuals.Publisher's Note: Some hospices exclude suicide, drug overdose, alcoholic liver disease, etc., from hospice utilization calculations or consideration - should we?

The complexity of physician powerScience; by Laura Nimmon; 5/16/24Inequitable variation in physician effort and resource use is revealed. Power is present in all human relationships. Thus, there is no interaction in which power and its potential to exert influence is not relevant in medicine. Although the role of power in medical interactions is important, few studies investigate how physicians allocate effort and execute their power when interacting with patients. ... The nature of physicians’ relationships with patients is characterized as top down and asymmetrical (1). This unequal relationship is thought to be a product of physicians possessing legitimized expert knowledge and legal decision-making authority and patients who are reliant on care and services. Underpinning this power afforded to physicians is societal trust that physicians will always act altruistically and ethically toward patients.Publisher's Note: Also see the related article How power shapes behavior: Evidence from physicians by Stephen D. Schwab, Manasvini in the same issue. [They] investigate how physician power in the US Military Health System interfaces with sociological phenomena such as hierarchy, status, and authority. Their findings reveal the variability and complex mechanisms through which physician power is exerted, ultimately providing nuance about how the ethics of physician power is understood as it interfaces with other hierarchical systems of power.

Medical aid in dying to avoid late-stage dementiaJournal of the American Geriatrics Society; by Thaddeus Mason Pope, Lisa Brodoff; 4/24Many patients with dementia want the option of using medical aid in dying (MAID) to end their lives before losing decision-making capacity and other abilities that impact their desired quality of life. But, for over two decades, it has been widely understood that these patients cannot (solely because of their dementia diagnosis) satisfy three statutory eligibility requirements in all U.S. MAID laws: (1) decisional capacity, (2) the ability to self-administer the life-ending medications, and (3) a terminal condition with 6 months or less to live. Now, because of recent statutory amendments together with the use of voluntarily stopping eating and drinking (VSED) to quickly advance to a terminal condition, this dementia exclusion from MAID might no longer apply. If combining VSED and MAID is now a possibility for patients with dementia, then clinicians need more guidance on whether and when to support patients seeking to take this path. In this article, we begin to provide this guidance. 

Impact of a Nurse-Led Palliative Care Screening Tool on Medical Oncology UnitsClinical Journal of Oncology Nursing; by Kaitlyn Whyman, Katherine Thompson, Michelle M. Turner; 2/24There is a lack of early integration of palliative care in patients with advanced cancer, which has been shown to result in suboptimal quality of life across their disease continuum. Standardized palliative care screening tools are valuable for identifying patients with early palliative care needs but have yet to be adapted into standard practice in the oncology community. This project aimed to determine whether a nurse-led palliative care screening tool increased palliative care consultations, decreased the average length of stay, reduced readmission rates among adult patients with solid tumor malignancies, and improved knowledge and confidence among nurses regarding palliative care.

Training opportunities for managers in home health, hospice, and community-based care settingsThe Journal of Nursing Administration; by Ann M Nguyen, Alfred F Tallia, Tami M Videon, Robert J Rosati; 6/24The aim of this study was to identify areas for developing management skills-focused continuing education for managers working in home health, hospice, and community-based settings. For all 33 management tasks, managers with 6+ years of experience reported greater confidence than managers with 0 to 5 years of experience. Tasks with the lowest confidence were budgeting, interpreting annual reports, strategic planning, measuring organizational performance, and project planning. Managers were clustered into 5 "profiles." Management training is not 1-size-fits-all. Healthcare organizations should consider investing in training specific to the identified low-confidence areas and manager roles to better support and develop a robust management workforce.

Hospice Readmission, Hospitalization, and Hospital Death Among Patients Discharged Alive from HospiceJAMA Network; by Elizabeth A. Luth, Caitlin Brennan, Susan L. Hurley, Veerawat Phongtankuel, Holly G. Prigerson, Miriam Ryvicker, Hui Shao, Yongkang Zhang; 5/24This retrospective cohort study of burdensome transitions following live hospice discharge found that non-Hispanic Black race, short hospice stays, and care from for-profit hospices were associated with higher odds of experiencing a burdensome transition. These findings suggest that changes to clinical practice and policy may reduce the risk of burdensome transitions, such as hospice discharge planning that is incentivized, systematically applied, and tailored to needs of patients at greater risk for burdensome transitions.

A survey of Jewish attitudes and experiences relating to end-of-life care and the “right to die”American Journal of Hospice and Palliative Medicine; by Christopher M. Moreman, Ayona Chatterjee; 3/24We conducted a survey of Jewish attitudes towards, and experiences with, end-of-life care. Questions fell into three areas: (1) Expectations for Jewish end-of-life care; (2) Experiences with such care; and (3) Attitudes toward the “right to die.” Examining denominational differences in belief in, and adherence to, Halakha (Jewish law), we confirm many expectations described in the literature. We find notable nuances in specific areas of need across Jewish denomination, and in terms of acceptance of the withdrawal of life support vs assisted suicide. Care for the nuances of Jewish belief is indicated for effective and satisfying Jewish end-of-life care.