Literature Review
All posts tagged with “Research News | Journal Article.”
Older adults’ end-of-life care: Are retrospective assessments patterned by proxy relationship to decedent?
09/26/26 at 03:05 AM
[Germany] Unmet needs of heart failure patients across the different domains of palliative care – A qualitative interview study
09/26/26 at 03:05 AM[Germany] Unmet needs of heart failure patients across the different domains of palliative care – A qualitative interview studyHeart & Lung; by Chiara Pfeffer, Felix Schoenratha, Lennart Tügend, Anahita Khamseh, Susanne Jöbges, Johann Ahne, Asita Behzadie, Moritz Blum; 9/26Currently, palliative care provision for patients with heart failure (HF) is limited and usually not tailored to the specific needs they might have. In this study, we sought to gain a better understanding of the needs and expectations expressed by patients with HF regarding palliative care. Participants expressed needs and expectations across all eight domains of palliative care. Some needs were specific to HF, e.g. for more HF expertise among all healthcare providers. Other needs were more generally associated with serious illnesses, e.g. long term access to psychological counselling for patients and caregivers, help with coming to terms with limited life expectancy, or provision of information in accessible language. Patients with HF express a host of unmet needs, many of which could be addressed by palliative care.
[France] Deactivation of cardiac devices at the end of life: Clinical and ethical challenges
09/26/26 at 03:00 AMS.E.L.F.: Lessons in institutional cultural humility approach from an academic health center
09/26/26 at 03:00 AMIBM study finds 60% of employees worry AI is eroding critical thinking skills
09/22/26 at 03:00 AMIBM study finds 60% of employees worry AI is eroding critical thinking skills Complete AI Training; 9/21/26 A new IBM study finds that 60% of employees worry AI is eroding their skills, with critical thinking cited most often as declining. The research, released September 21, 2026, surveyed 1,500 CHROs and 8,800 employees globally, revealing a gap between the skills HR leaders say AI demands and what workers prioritize. While 71% of CHROs identify the ability to supervise, validate and override AI outputs as the workforce's most essential skill, only 29% of employees rank judgment as important. At the same time, CHROs cite critical thinking (57%) and human judgment (48%) as among the most important workforce capabilities.
Compassionate leadership: Is it compatible with profit-driven health care?
09/19/26 at 03:30 AMMissed opportunities for goals-of-care conversations in a patient with end-stage juvenile Huntington’s disease: A case report
09/19/26 at 03:25 AMMissed opportunities for goals-of-care conversations in a patient with end-stage juvenile Huntington’s disease: A case reportAmerican Journal of Hospice & Palliative Medicine; by Ignacio Borque, Nuria Perez ´ de Lucas, Alicia Gonzalez, Eduardo Bruera; 8/26Juvenile Huntington’s disease (JHD) is a rare, severe neurodegenerative disorder with early onset, high symptom burden, and a predictable trajectory toward advanced disability and premature death. Despite this, goals-of-care (GOC) conversations and advance care planning are often delayed, leading to reactive, crisis-driven decisions and increased emotional burden for families and clinicians. We present a 30-year-old woman with genetically confirmed JHD, diagnosed at age 14, who declined progressively over more than 15 years. Despite longstanding neurological follow-up and repeated hospital admissions, palliative care referral occurred only 20 days before death. Late palliative care integration limited anticipatory planning and shifted complex decisions into a stage with little room for deliberation, when cognitive and clinical deterioration constrained meaningful participation.
Palliative care and hospice utilization in patients with relapsed or refractory diffuse large B-cell lymphoma in the era of CART and novel immunotherapies
09/19/26 at 03:20 AMTop ten tips palliative care clinicians should know when caring for seriously ill patients with stimulant use disorders
09/19/26 at 03:15 AMTop ten tips palliative care clinicians should know when caring for seriously ill patients with stimulant use disordersJournal of Palliative Medicine; by Rebekka DePew, Nicole Dussault, Kyle Quirk, Erin Vipler, Josh Borris, Sandra DiScala, Teddy Scheel, Katrina Nickels, Gregg Robbins-Welty, Janet Ho; 8/26Stimulant use disorder (StUD) is common in the hospice and palliative care (PC) setting, though guidance for clinicians remains limited. Stigma around stimulant use is widespread and can lead to impaired clinician/patient communication, poor symptom control, and lower quality of care. PC clinicians should be able to diagnose StUD, understand the potential pharmacologic and nonpharmacologic management options, engage with patients in a trauma-informed way, and refer to addiction medicine colleagues when appropriate. When utilizing opioids for pain management, PC clinicians should be aware of the impact of stimulant use on opioid risk and toxicity. In this article, a multidisciplinary group of PC, hospice, addiction medicine, psychiatry, ethics, and pharmacy clinicians presents ten practical tips for caring for seriously ill patients with current or prior StUD.
Personalized sedation goals for agitated end-of-life delirium: Secondary analysis of RECORD trial
09/19/26 at 03:10 AMIntegrating care across the life course supports goal-aligned end-of-life care
09/19/26 at 03:05 AMIntegrating care across the life course supports goal-aligned end-of-life careNature - Communications Medicine; by M. Courtney Hughes; 7/26As global populations age and lifespan increases, health systems too often conceptualize “healthy aging” and “end-of-life care” as distinct phases. Yet emerging evidence from geroscience, palliative care, and health systems science suggests that aging and dying lie on a continuum of adaptation and care.
[The Netherlands] Walking a tightrope: Meaningful encounters in the care for people with dementia and severely challenging behaviour
09/19/26 at 03:00 AMNational trends in types of hospice disenrollment among older adults with dementia, 2012–2019
09/17/26 at 03:00 AMNational trends in types of hospice disenrollment among older adults with dementia, 2012–2019 Journal of the American Geriatrics Society; by Lauren J. Hunt, Siqi Gan, Krista L. Harrison, Melissa D. Aldridge, Claire Ankuda, W. John Boscardin, Alexandra K. Lee, and Alexander K. Smith; 9/15/26 Key Points
Effective palliative care for hospice transitions
09/16/26 at 03:00 AMEffective palliative care for hospice transitionsJAMA Internal Medicine; by May Hua, MD, MS, Miguel Cid, MPH, Claire Barshied, PhD, Rachel C. Shelton, ScD, MPH, Grace Hu, MPH, Natasha Stekl, MPH, Carrie Brill, BS5; Elise C. Carey, MD, and R. Sean Morrison, MD; 9/14/26 Question: What factors impact the ability of palliative care teams to affect hospice use for patients with metastatic cancer?Findings: In this qualitative study across 6 sites with interviews among 93 clinicians and patients, institutions with high and low performance in hospice use exhibited substantive differences in the relationship between palliative care and oncology teams. At high-performing sites, the relationship was characterized by mutual trust and respect, warmth and familiarity, and empathy for each other, while at low-performing sites, the relationship was characterized by a lack of trust and familiarity as well as negative regard for each other.Meaning: These findings suggest that the relationship between palliative care and oncology teams is a modifiable factor that could affect care delivery and patient outcomes.
Enhancing quality of life for terminally ill veterans during the COVID-19 pandemic and beyond
09/15/26 at 03:00 AMEnhancing quality of life for terminally ill veterans during the COVID-19 pandemic and beyond Medscape | Federal Practitioner; by Denise Kresevic, PhD, RN, APN-BC, Marilyn Swanson, DNP, RN, FNP-C, Muralidhar Pallaki, MD, Bridgette Wasil, MSN, RN CHPN, Rosalie Diaz, PsyD, and Christopher J. Burant, PhD; 9/14/26 Background: Honoring individualized preferences for end-of-life interventions for veterans is a priority for families and caregivers. Medications used to treat symptoms such as pain, anxiety, and delirium may also result in sedation, making it difficult to balance comfort while minimizing sedation. ... Conclusions: The See Me, Hear Me, Comfort Me model may help hospice teams better align end-of-life care with individual preferences. ...
Perceived importance of good death components among patients with advanced cancer and family caregivers
09/15/26 at 03:00 AMPerceived importance of good death components among patients with advanced cancer and family caregivers JAMA Network; by Hammoda Abu-Odah, PhD, Gulbeyaz Can, PhD, Sotirios Plakas, PhD, Juanjuan Zhao, PhD, Xixi Wang, MSN, Alexandros Stergiou, MSc(c), Ourania Govina, PhD, Kimya Kilicaslan, PhD, Bahar Ozdemir, MD, Matthew J. Allsop, PhD, Mitsunori Miyashita, PhD, Alex Molassiotis, PhD, Janelle Yorke, PhD, and Frances Kam Yuet Wong, PhD; 9/14/26Importance: Although the concept of a good death is central to palliative care policy and practice, empirical evidence is largely derived from high-income Western or single-country contexts, limiting cross-setting relevance.Objective: To determine the importance of good death components, compare priorities across settings, and examine patient–caregiver differences and setting-by-role interactions. ... Conclusions and Relevance: In this cross-sectional study, patients with advanced cancer and family caregivers across 5 settings shared a broad aspiration for a good death, but priorities varied across settings. Emotional peace, dignity, and family connection were consistently highly valued. These findings suggest that culturally sensitive palliative care models should recognize both shared end-of-life priorities and setting-specific meanings of a good death.
How Latine families navigate pediatric loss amid broken systems: A qualitative study with caregivers and providers using Liberation Psychology
09/12/26 at 03:40 AMHow Latine families navigate pediatric loss amid broken systems: A qualitative study with caregivers and providers using Liberation PsychologyAdvances in Nursing Science; by Patricia Buzelli, Tolu O Oyesanya, Angelli Aguilar, Rosa M Gonzalez-Guarda; 8/26This study explored the challenges and strengths shaping Latine families' experiences of pediatric loss in the United States context. Eighteen semistructured interviews with healthcare providers (n = 7) and bereaved Latine caregivers (n = 11) were carried out using an integrated qualitative descriptive and Liberation Psychology approach. Four themes emerged that are heavily shaped by individual and contextual factors: (1) Unsupportive and hegemonic systems, (2) caregiver and provider discordance regarding end-of-life care, (3) caregiver identity transcendence in the "natural distress of grief," and (4) supportive networks and their limitations. Results highlight sociocultural realities that inform needed structural, policy, and practice changes.
PHarmacist avoidance or reductions in medical costs in PALLiative care inpatient services: PHARM-PALL
09/12/26 at 03:35 AMPHarmacist avoidance or reductions in medical costs in PALLiative care inpatient services: PHARM-PALLJournal of Palliative Medicine; by Celena Wilson, Jennifer Ku; 8/26Inpatient palliative care (PC) pharmacists have been shown to improve clinical and team outcomes. To quantify the cost avoidance (CA) associated with a full-time inpatient PC pharmacist based on clinical interventions. Conclusions: A PC pharmacist may help avoid significant health care costs, particularly in the areas of deprescribing, identifying untreated indications, and using PC expertise to make therapeutic recommendations.
Facilitating supportive care decision-making for persons with dementia: Qualitative insights from health care professionals
09/12/26 at 03:30 AMAdvance care planning in an urban hospital: Sustainability and growth in documenting care plans over four-years
09/12/26 at 03:25 AMAdvance care planning in an urban hospital: Sustainability and growth in documenting care plans over four-yearsAmerican Journal of Hospice & Palliative Care; by Khadeja Kausar, Edward Coffield, Sampath Gopalan, Regina Tarkovsky, Sarah Egan, Robert A Press, John Marshall; 8/26Many acute care patients are admitted without advance care plans (AC-Plans) which may result in patients receiving care misaligned with their preferences. Accordingly, ACP [advance care planning] is needed within hospitals, however, implementation barriers exist. [In this study] the hospital's ACP program components included: primary palliative care, simulation-based training, and ACP and AC-Plan training and education. The percentage of patients with ACPs at discharge increased from 4.4% to 19.1% from the first to fourth program year. The odds of having an AC-Plan at discharge in years 2, three, and four were 3.44, ... 5.87, ... and 8.97 ... times higher than the odds of having one during the first program year. The growth and sustainability of the hospital's ACP program demonstrates that barriers to ACP within hospitals can be overcome and successful programs implemented.
Timing prompts for advance care planning discussions and advance directive completion
09/12/26 at 03:20 AMTiming prompts for advance care planning discussions and advance directive completionJAMA Network Open; by Neil S Wenger, Fernando Javier Sanz Vidorreta, Chi-Hong Tseng, Victor Gonzalez, Ron D Hays, Maryam Rahimi, Lisa Gibbs, Katherine Santos, Rebecca L Sudore, Anne M Walling; 8/26Objective: To compare the association of an appointment-based ACP [advance care planning] behavioral intervention delivered with the patient just before a primary care visit vs a non-appointment-based intervention. Among patients receiving appointment-based interventions, 1143 (40.2%) had ACP discussion documentation in the EHR [electronic health record] compared with 714 (27.5%) of patients receiving only non-appointment-based interventions ... Appointment-based interventions were associated with more AD or POLST and documented ACP discussions than non-appointment-based interventions across all 3 ACP intervention groups.
Digital Deception: Survey Bots and the Ethics of Data Integrity
09/12/26 at 03:15 AMDigital Deception: Survey Bots and the Ethics of Data IntegrityEthics & Human Research; by W Frank-Ito, LA Eldridge, J Matthews; 9/26The rapid growth of artificial intelligence and automated systems has significantly impacted digital survey-based research, particularly when recruitment is conducted via social media platforms. This case study details the erosion of data integrity in a 2025 follow-up survey, originally designed to replicate a successful 2021 study. Despite implementing increasingly sophisticated antifraud mechanisms such as CAPTCHA, IP geo-restrictions, and behavioral validation, survey bots repeatedly infiltrated the study, rendering the dataset unusable. This highlights a critical tension between broad digital accessibility and the vulnerability of online research to fraud. Moreover, the use of financial incentives to participate in research, while effective in increasing response rates, was found to amplify bot activity and raise ethical dilemmas surrounding compensation and data quality... The authors call for the urgent development of fieldwide standards, institutional support, and robust fraud prevention strategies to preserve the methodological and ethical integrity of digital research.
