Literature Review

Music Therapy to facilitate Relationship Completion at the end of life: A mixed-methods studyJournal of Music Therapy; by Fu-Nien Hsie, Helen Shoemark, Wendy L Magee; 3/14/24 The concept of relationship completion is embodied as the core belief for end-of-life care in Taiwan, known as the Four Expressions in Life. ... Four themes around opportunities emerged from the interviews: the opportunity for exploration, for connection, for expression, and for healing. The integrated findings suggest that music therapy facilitated relationship completion and improved quality of life for both patients and their families. Furthermore, this study supports that the transformative level of music therapy practice within a single session for end-of-life care is attainable.

Sylvester researchers, collaborators call for greater investment in bereavement care NewsWise, by Sylvester Comprehensive Cancer Center; 3/15/24The public health toll from bereavement is well-documented in the medical literature, with bereaved persons at greater risk for many adverse outcomes, including mental health challenges, decreased quality of life, health care neglect, cancer, heart disease, suicide, and death.  ... Wendy G. Lichtenthal, PhD, FT, FAPOS, who is Founding Director of the new [Sylvester Comprehensive Cancer] Center and associate professor of public health sciences at the University of Miami Miller School of Medicine, noted, “We need a paradigm shift in how healthcare professionals, institutions, and systems view bereavement care. Sylvester is leading the way by investing in the establishment of this Center, which is the first to focus on bringing the transitional bereavement care model to life.”

Preventing adverse drug events in hospice care Hospice News, by Holly Vossel; 3/15/24 Documentation errors and a fragmented health system pose the greatest risks for adverse drug events among hospices. ... Evaluating these risks involves having solid medication reconciliation processes in place — both at the time of a patient’s admission and throughout their end-of life care experience, according to Mary Lynn McPherson, professor and executive program director of advanced post-graduate education in palliative care at the University of Maryland’s School of Pharmacy. McPherson also serves on the board of the American Academy of Hospice and Palliative Medicine (AAHPM).

[Eleventh-Hour Program] Volunteers provide companionship to patients reaching the end of lifeCharleston Area Medical Center, Vandalia Health; 3/13/24Established in April 2023, the Eleventh-Hour Program was designed to ensure no patient passes alone in the hospital. The first Eleventh Hour vigil was held on Easter Sunday in 2023. Since then, the companions have participated in 14 vigils in six nursing units at CAMC Memorial and General hospitals. 

Heart failure staging and indications for advanced therapies in adults with Congenital Heart DiseaseHeart Failure Clinics / Elsevier, by Alexander C Egbe and Heidi M Connolly; pre-publish 4/24 via onlineSummary: Heart Failure (HF) is common in adults with Congenital Heart Disease (CHD), United States, and it is the leading cause of death in this population. Adults with CHD presenting with stage D HF have a poor prognosis, and early recognition of signs of advanced HF, and referral for advanced therapies for HF offer the best survival as compared with other therapies. The indications for advanced therapies for HF outlined in this article should serve as a guide for clinicians to determine the optimal time for referral. Palliative care should be part of the multidisciplinary care model for HF in patients with CHD.

Doctor with terminal cancer shares the three things everyone should consider doing to prepare for deathYour Tango, by Alexandra Blogier; 3/12/24Kim is a resident doctor who was diagnosed with metastatic sarcoma when she was 28 years old. She invites people to see what her life is like, as both a medical resident and a cancer patient, focusing on the practice of gratitude and being present. ... Kim revealed the three most important things she’s done as a cancer patient to get the administrative side of her affairs in order, which she recommends everyone do, even if they're not sick.

What are ageing and death from a biological point of view? Polytchnique insights, by Alexis Gautreau and Clemence Guillermain; 3/12/24 Linking philosophy and biology may seem strange. Yet there are many subjects where the two disciplines come into play and are, in turn, essential to understanding them. Death is a perfect example. This biological reality remains an abstract concept until we experience it in our own lives. But, however abstract it may be, death is based on a biological reality. 

The U.S. prison population is rapidly graying. Prisons aren’t built for what’s coming Wisconsin Public Radio, by Meg Anderson; 3/12/24 ... "You don't usually build prisons with nursing home-type housing." The proportion of state and federal prisoners who are 55 or older is about five times what it was three decades ago. In 2022, that was more than 186,000 people. ... Prison systems across the U.S. have a constitutional obligation to provide adequate health care, and they’re racing to figure out how to care for the elderly in their custody — and how to pay for it.Editor's Note: This article provides current data and focuses on nursing home type care. For depth information, pair this data with a clinical journal chapter, "Palliative and End-of-Life Care in Prison" - Aston, L. (2023). Palliative and End-of-Life Care in Prison. In: Brooke, J. (eds) Nursing in Prison . Springer, Cham. https://doi.org/10.1007/978-3-031-30663-1_8

New book addresses prolonged grief disorder diagnosis and treatmentHospice Foundation of America, press release 2/26/24Hospice Foundation of America (HFA) today announced the publication of Understanding Prolonged Grief Disorder, written and edited by some of the nation’s leading grief experts and healthcare professionals. Prolonged grief disorder (PGD) is a new diagnosis in the most recent version of the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders (5th ed., text rev.) Inclusion of PGD validates the occurrence of a disorder characterized by the persistence of pervasive, intense grief. With the possible exception of posttraumatic stress disorder (PTSD), this is the first time a loss-related condition has been identified as a diagnosable condition.

Facing dementia: clarifying end-of-life choices, supporting better lives EurekAlert!, by The Hastings Center; 3/11/24A new Hastings Center special report considers how America’s aging society responds to the needs and concerns of people facing dementia. ... Three essays reconsider familiar ways of thinking and talking about decision-making and care concerning people nearing the end of life to better reflect the needs and concerns of people facing dementia. For example, “Too Soon or Too Late: Rethinking the Significance of Six Months When Dementia Is a Primary Diagnosis” takes a critical look at the “six-month rule.”

In the ICU, what is a good death? Understanding why clinicians and patients' families may disagree in Intensive Care Unit Northwestern Now, by Marla Paul; 3/7/24What is a good death for a patient in the Intensive Care Unit (ICU)? The answer to that question may depend on whether you ask a family member of a patient or the physician, who are not necessarily aligned. ... Approximately 20-30% of people who die in the U.S., die in the ICU, according to previous research. Nearly 60% of ICU admissions result in death. Wide discrepancies have been documented between a patient’s stated preferences and the end-of-life care actually delivered.

Some report images and manifestations of departed loved ones Chicaog Daily Herald, by Susan Anderson-Khleif; 3/9/24Not often, but sometimes, a person sees an image of a beloved or dear friend. A visual manifestation of their spirit, one you can actually see while awake. It could be very clear or more in a fog. It happened to me the middle of the night, two years ago. ... I had friends and readers who’ve told me of such happenings — of seeing images of dear ones — sometimes during times of stress, sometimes for seemingly no reason. It could be a voice rather than an image. Or some other sign that assures you they are around. Editor's Note: Susan Anderson-Khleif has a doctorate in family sociology from Harvard, taughts at Wellesley College, and is retired.