Literature Review

How death doulas support entire familiesCure, by Alex Biese; 2/27/24... Death doulas, also known as end-of-life doulas, “provide companionship, comfort, and guidance to those facing a terminal illness or death” via non-medical holistic support encompassing “emotional, spiritual, and practical care,” according to the International End-of-Life Doula Association.

Right-sizing interprofessional team training for serious-illness communication: A strength-based approach PEC Innvov, by Liana Eskola, Ethan Silverman, Sarah Rogers, Amy Zelenski; distributed 2/28/24Objective: Palliative care communication skills help tailor care to patients' goals. With a palliative care physician shortage, non-physicians must gain these serious illness communication skills. Historically, trainings have targeted physician-only groups; our goal was to train interprofessional teams.

Surgeon shares biggest lesson: ‘Never underestimate the power of hope Mofitt Cancer Center, by Corrie Pellegrino; 2/27/24An Interview with Dr. Monica Avila. ...[Question] What is the biggest lesson you’ve learned from a patient?[Response] I think the biggest lesson is to never underestimate the power of hope and the power of the patients’ will to live. I’ve had patients literally placed on hospice care who I have taken to the operating room, had successful optimal debulking for ovarian cancer and who are living life right now after chemotherapy. So I never underestimate patients’ ability to keep going and keep living.

Study gives credence to range of dementia caregiver decision toolsMcKnights Home Care, by Kristen Fischer; 2/27/24A new study analyzes some evidence-backed tools to help substitute decision-makers make choices to honor an individual’s medical, personal and end-of-life wishes. ... Substitute decision-makers are family members or friends of older adults who cannot speak for themselves (such as those with dementia). Data from the study, which was published on Saturday in Journal of the American Society of Geriatrics, was derived from 25 articles published between 2003 and 2022. 

Subcutaneous patient-controlled analgesia in home-based palliative care: "It's as straightforward as pushing a button, right at my fingertips" J Pain Palliat Care Pharmacother, by Miguel Julião, Patrícia Calaveiras, Eduardo Bruera, Paulo Faria de Sousa; 2/26/24Subcutaneous patient-controlled analgesia (SCPCA) in home-based palliative care is a potentially valuable option for providing effective pain relief to some patients, particularly when conventional analgesic approaches prove ineffective or are refused.

Communicating with patients with hearing loss or deafness—Can you hear me? JAMA Intern Med, by Dianne P. O'Leary, PhD and Timothy J. O'Leary, PhD, MD... Virtually all health care professionals want to provide the best possible care and to communicate as effectively as possible. However, ... frequent communication failures are leading to inferior care for the hearing impaired. Effective communication might require some or all of the approaches listed in [this article].

Medical marijuana testing: Mississippi revokes license of lab that covered 70% of state's supply, raising patient access concerns Benzinga - Investing.com; by Maureen Meehan; 2/25/24Mississippi’s Department of Health (MSDH) revoked the license of Rapid Analytics, a medical cannabis testing lab, citing “significant deviations from regulations” following a two-month investigation. 

'Goes beyond words': UNC Health incorporates music in health careThe Daily Tar Heel, by Akash Bhowmik; 2/25/24At UNC Health, music is a space for emotional and physical support and remains an important strategy for improving and humanizing patient care during times of crisis, music therapists Maryrose Nelson and Joyu Lee said. ... [Music therapists at UNC Health] help achieve clinical therapeutic goals – including treating pain and physiological injuries, promoting mental health outcomes and providing end-of-life care. Therapies are managed by licensed professionals who have graduated with a degree in music therapy, completed an internship experience and passed a national exam supervised by the Certification Board for Music Therapists. 

Vancouver hospital asked wrong family whether to pull the plug on patientKGW8 NBC News; 2/21/24In a terrible case of mistaken identity that has never been publicly disclosed, KGW found PeaceHealth Southwest Medical Center in Vancouver allowed a family to pull the plug on the wrong man. “We made life-ending decisions for a person we don’t even know,” said Danielson’s husband, Gary.

Not all mourning happens after bereavement – for some, grief can start years before the death of a loved one The Conversation, by Beth Daley; 2/22/24For many people, grief starts not at the point of death, but from the moment a loved one is diagnosed with a life-limiting illness. Whether it’s the diagnosis of an advanced cancer or a non-malignant condition such as dementia, heart failure or Parkinson’s disease, the psychological and emotional process of grief can begin many months or even years before the person dies. This experience of mourning a future loss is known as anticipatory grief.Editor's Note: All clinical team members need to be equipped to tune into and validate grief that is already underway. Social workers and chaplains--especially--need to be trained to tend grief in the present, and to know how to make high-acuity referrals to bereavement counselors.  

Exploring whether a diagnosis of severe frailty prompts advance care planning and end of life care conversationsNurs Older People, by Stacey Dodson; 2/21/24Findings: Frailty appeared to be complex, multifaceted and at times difficult to identify. A diagnosis of severe frailty did not necessarily prompt advance care planning and end of life care conversations. Such conversations were more likely to happen if the person had comorbidities, for example cancer. Prognostication appeared to be challenging, partly due to the gradual and uncertain trajectory in frailty and a lack of understanding, on the part of healthcare professionals, of the condition and its effects.

We gave palliative care patients VR therapy. More than 50% said it helped reduce pain and depression symptomsThe Conversation; 2/22/24Our study, published this week in the journal BMJ Supportive & Palliative Care, found more than 50% of patients experienced clinically meaningful reductions in symptoms such as pain and depression immediately after a 20-minute VR session. ... Personalised VR means each person experiences content that is meaningful to that individual. So rather than asking patients to choose, for example, between a rainforest and a beach VR experience, we interviewed the patients before their sessions to gauge their interests and create a VR session tailored to them.

What are death doulas?SwiftTelecast, by Shawn Butlere; 2/21/24... That’s why some people turn to end-of-life doulas. They are among the professionals who can help someone prepare for their death and reflect on their life: their greatest joys and regrets, any fears or worries on their mind, and how they want to be remembered. ... Unlike hospice, the cost of a doula is not covered by Medicare. ... Doulas may charge an hourly rate, from $45 to $100, or on a sliding scale. Or you may be quoted a flat fee from $500 to $5,000.