Literature Review

Experiences of nursing students providing end of life care for children and young people: A focus group study Elsevier, by Clair Camara, Leah Rosengarten and Jane Callum; 2/27/24This study aims to help improve understanding of the lived experiences of children's nursing students who have cared for a patient at, during, or immediately following end-of-life. The study describes the emotions experienced by children's nursing students and explores the student nurses' perceptions of education and support needs around caring for [Children and Young People] CYP during end-of-life care.

Is healthcare paying enough attention to nurse leaders?Becker's Clinical Leadership, by Erica Carbajal; 2/26/24 Early this year, the American Organization for Nursing Leadership Foundation released findings from more than 2,400 nurse leaders who were surveyed in November. Thirty-five percent of respondents indicated they were considering an exit from their roles: 12% said they intend to leave and 23% said they may leave within the next six months. When asked what the top reasons were for thinking about an exit, nurse leaders pointed to work having a negative affect on their health and well-being and not having the resources to do their job — a parallel to what bedside nurses consistently point to as drivers of burnout or reasons they've stepped away from the job. 

Are we consulting, sharing care, or taking over? A conceptual frameworkPalliat Med Rep, by José Pereira, Christopher Klinger, Hsien Seow, Denise Marshall, Leonie Herx; 2/23/24Background: Primary- and specialist-level palliative care services are needed. They should work collaboratively and synergistically. Although several service models have been described, these remain open to different interpretations and deployment.Aim: This article describes a conceptual framework, the Consultation-Shared Care-Takeover (C-S-T) Framework, its evolution and its applications.

Embracing the platinum rule in palliative care: Treating patients the way they want to be treated Anschutz, by Tari Advani, MD; 2/26/24 One of the first take aways from this journey, for me, in a mid-career directional change from emergency medicine to palliative care was a move away from the golden rule and towards the platinum rule. Treat patients the way they want to be treated, not the way we want to be treated. It is so simple, it allows people to exist in their own context, with their own histories and their own wishes. And, we, as caretakers, take the kind of care of them that they want. Where had that idea been during the past 20 years of my career? How many situations had I judged, wrongly, based on my own preferences, not the preferences of the patient.

Communicating with patients with hearing loss or deafness—Can you hear me? JAMA Intern Med, by Dianne P. O'Leary, PhD and Timothy J. O'Leary, PhD, MD... Virtually all health care professionals want to provide the best possible care and to communicate as effectively as possible. However, ... frequent communication failures are leading to inferior care for the hearing impaired. Effective communication might require some or all of the approaches listed in [this article].

Being there for a loved one's final breaths NextAvenue, by Elaine Soloway; 2/26/24"I'll be downstairs," I told him one night. "And I'll be up to kiss you goodnight before I go to sleep." He smiled and squeezed my hand. I had barely settled on the couch when the hospice worker appeared at the top of the stairs. "He's gone," she said. I learned this pause is not unusual. Hospice workers report that some people who are dying wait to be alone for their final breaths.

Advance praise for Oncology and Palliative Social Work: Psychosocial Care for People coping with Cancer Oxford Academic - Oxford University Press; 2/23/24Oncology and Palliative Social Work: Psychosocial Care for People Coping With Cancer (OPSW) fills an important gap in the serious illness literature. The book illustrates the need for integrating palliative care early in the lives of patients with cancer and illuminates the important role that social workers have in providing psychosocial support services across the cancer trajectory. 

Palliating serious illness during disasters and public health emergenciesAm J Nurs, by Masako Mayahara, Djin L Tay, Jeannette Kates, William E Rosa; 2/23/24, ahead of print 3/1/24The increase in disasters and public health emergencies in recent years is a serious public health concern. The needs of suffering victims can be multifaceted, particularly the needs of those who are from systematically marginalized populations. Palliative care nurses play a vital role in mitigating the suffering of those affected by these events. 

From classroom to clinic: End-of-life conversations — there’s empathy in foresightThe Tufts Daily, by Deeksha Bathini; 2/21/24Palliative care physicians have conversations with families to identify patient wishes, particularly when they are facing death. These physicians are equipped with training that emphasizes empathy, comfort and patient autonomy. Freedom of choice during the dying process gives patients the power to reclaim their agency amidst a process rife with uncertainty.

Why long-term hospice care might be goodNBC KPRC TV, interview with Joseph Rotella, MD MBA HMDC FAAHPM, Chief Medical Director American Academy of Hospice and Palliative Medicine; 2/21/24Most people receiving hospice care don't live for more than a few weeks. Doctor explains why receiving hospice care earlier can be beneficial.

Exploring whether a diagnosis of severe frailty prompts advance care planning and end of life care conversationsNurs Older People, by Stacey Dodson; 2/21/24Findings: Frailty appeared to be complex, multifaceted and at times difficult to identify. A diagnosis of severe frailty did not necessarily prompt advance care planning and end of life care conversations. Such conversations were more likely to happen if the person had comorbidities, for example cancer. Prognostication appeared to be challenging, partly due to the gradual and uncertain trajectory in frailty and a lack of understanding, on the part of healthcare professionals, of the condition and its effects.

Psychological issues in palliative care: Elissa Kozlov and Des AzizoddinGeriPal podcast, by Alex Smith; 2/22/24Today we talk with two psychologists who are deeply invested in addressing psychological aspects of care for people living with serious illness. Elissa Kozlov, a geropsychologist and director of a new population aging MPH at Rutgers, surveyed AAHPM members, and found that doctors reported major shortcomings in level of comfort and knowledge caring for patients with psychological illness. She conducted a systematic review and meta-analysis of 38 palliative care trials, finding that many excluded people with serious illness, and a lack of impact on psychological outcomes.  Analyzing the Health and Retirement Study, she found 60% of older adults screened positive for depression in the last year of life.