Literature Review

NHPCO Publishes Culturally Sensitive Communications to Enhance Care Delivery: A resource guide for healthcare professionalsNHPCO Press Release; 1/30/24The National Hospice and Palliative Care Organization’s (NHPCO) Diversity Advisory Council (DAC) published Culturally Sensitive Communications to Enhance Care Delivery: A Resource Guide for Healthcare Professionals. ... It contains information from a multitude of NHPCO resources, such as the Hospice Through The DEI Lens report, Inclusion and Access Toolkit, Black and African American Outreach Guide, Chinese American Resource Guide, Latino Outreach Guide, and LGBTQ+ Resource Guide, as well as information from additional external research sources.

Cancer facts & figures 2024American Cancer Society; 2024Cancer Facts & Figures 2024 is an educational companion for Cancer Statistics 2024, a scientific paper published in the American Cancer Society journal, CA: A Cancer Journal for Clinicians. These annual reports provide:

Palliative care use trends, racial/ethnic disparities, and overall survival differences among patients with metastatic breast cancerJ Palliat Med, by Jincong Q Freeman, Olasubomi J Omoleye, Fangyuan Zhao, Dezheng Huo; 2/1/24Conclusions: Palliative care utilization among MBC [Metastatic Breast Cancer] patients significantly increased but remained suboptimal. Racial/ethnic minority patients were less likely to use palliative care, and Black patients had worse survival, than White patients, suggesting the need for improving palliative care access and ameliorating disparities in MBC patients.

Urgent need to address health equity at intersection of American Heart Month and Black History Month 2024

Nurses' encounters with patients having end-of-life dreams and visions in an acute care setting - A cross-sectional survey studyJ Adv Nurse, by Alison Hession, Tim Luckett, David Currow, Michael Barbato; 1/31/24Results: Fifty-seven nurses participated from a workforce of 169 (34% response rate), of whom 35 (61%) reported they had encountered end-of-life dreams and visions. The nature of end-of-life dreams and visions encountered was similar to those reported in previous studies by patients and clinicians. Nurses generally held positive attitudes towards end-of-life dreams and visions but identified an unmet need for education and training on this aspect of end-of-life care.Editor's Note: This research was in Australia, yet has global applications. For U.S. leaders, call on your chaplains, many of whom are trained pastoral counselors to sensitively support and explore patient's "dreams and visions," in non-manipulative ways.

Caregivers: Being a ‘care partner’ for someone is not a burden Parkinson's News Today, by Marisa Wexler, MS; 1/30/24Focusing on 'burden' reduces care partner support to 'burden reduction.' ... “A singular focus on ‘caregiver burden’ and a lack of knowledge of care partners’ perceptions of [Parkinson’s] caregiving can limit care partner support to only burden reduction, which may not always be possible given the progressive nature of the disease,” wrote the scientists, who interviewed 16 caregivers to better understand their perspectives. 

Psychedelic therapy debate returns to Missouri General AssemblyMissouri Independent, by Rebecca Rivas; 1/30/24Numerous clinical studies nationwide have shown positive results from using psilocybin to treat PTSD, depressiona and substance use. Republican lawmakers are once again pushing legislation that would require Missouri to conduct a clinical study on using psilocybin, more commonly referred to as “magic mushrooms,” to treat depression, substance use or as part end-of-life care. ... In the House Veterans Committee on Tuesday, Republican Rep. Aaron McMullen of Independence plans to present an amended version of the bill that would limit its scope to only veterans. The suicide rate among veterans in Missouri is nearly double the state rate and one of the highest in the country. ... McMullen, a veteran who served in a combat unit in Afghanistan, told The Independent, “While psilocybin is not a panacea for every issue, it represents a first true scientifically-validated hope that we have to address this crisis.”

Effectiveness of an Advance Care Planning intervention in adults receiving dialysis and their families: A cluster randomized clinical trialJAMA Network, by Mi-Kyung Song, PhD, RN; Amita Manatunga, PhD; Laura Plantinga, PhD; 1/29/24In this randomized clinical trial, the [Advanced Care Planning] ACP intervention implemented by health care workers at dialysis centers improved preparation for EOL decision-making but showed mixed effectiveness on bereavement outcomes. The ACP intervention implemented in dialysis centers may be an effective strategy to the dyad preparation for end-of-life care as opposed to the current focus on advance directives.

Ethical issues in pain and palliationCurr Opin Anaesthesiol, by Marco Cascella, Alessandro Laudani, Giuliana Scarpati, Ornella Piazza; 1/30/24Summary: Palliative care in the ICU should involve a multidisciplinary team, to mitigate patients suffering and futility. Providing spiritual support in the ICU is an important aspect of holistic patient care too. Increasingly sophisticated tools for diagnosing and treating pain, as those involving artificial intelligence, might favour disparities in access, cause informed consent problems, and surely, they need prudence and reproducibility. Pain clinicians worldwide continue to face the ethical dilemma of prescribing opioids for patients with chronic noncancer pain. Balancing the need for effective pain relief with the risk of opioid misuse, addiction, and overdose is a very controversial task.

Viewpoint: Care fragmentation, care continuity, and care coordination—How they differ and why it mattersJAMA Intern Med., by Lisa M. Kern, MD, MPH; Julie P. W. Bynum, MD, MPH; Harold Alan Pincus, MD; 1/29/24Health care in the US is characterized by fragmentation, with many patients seeing multiple physicians. Indeed, 35% of Medicare beneficiaries saw 5 or more physicians in 2019.1 Having multiple physicians may be appropriate, but it may also lead to medical errors, unnecessary visits, avoidable hospitalizations, and suboptimal care if all of the physicians do not have complete information about the patient and each other’s care plans.

Will scandal at Dana-Farber Cancer Institute cause big damage? Modern Healthcare, by Caroline Hudson; 1/29/24Allegations of data manipulation in Dana-Farber Cancer Institute's research has sparked intense scrutiny of a long-revered pillar in cancer treatment and put its once-sparkling reputation into question. ... Retaining Dana-Farber's long-term standing and preserving its bottom line will depend on how fast the institute moves to control the fallout from a scandal that has made national headlines, marketing and risk management experts said.

Groundbreaking research by PFF scholarsPulminary Fibrosis Foundation; 1/22/24The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis research, advocacy, and education organization has announced five awardees for the 2023 cycle of PFF Scholars who will receive funding for their cutting-edge research. ... “The most recent PFF Scholars class is tackling some of the most urgent questions about pulmonary fibrosis,” said Scott Staszak, PFF Chief Operating Officer. “Our goal is to accelerate the Scholars’ research and support them in securing more substantial grants for their impactful work.”