Literature Review

All posts tagged with “Clinical News | Advanced Illness Management News.”



[Korea] Earlier palliative cancer care cuts end-of-life ED visits

07/25/25 at 03:00 AM

[Korea] Earlier palliative cancer care cuts end-of-life ED visits Medscape; ed. by Gargi Mukherjee; 7/23/25 A recent retrospective study found that earlier outpatient palliative care referrals for patients with advanced cancer were associated with a small increase in overall emergency department (ED) visits but significantly fewer end-of-life ED visits and improved advance care planning. ... A substantial proportion of patients with advanced cancer visited the ED, including during the final month of life. Earlier palliative care referrals were associated with fewer end-of-life ED visits, “emphasizing the importance of timely integration of [palliative care] to reduce unnecessary interventions and ensure goal-concordant care,” the authors wrote. The researchers also noted that the findings underscore the need for structured advance care planning discussions across care settings to enhance the quality of end-of-life care.

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10 questions to help you plan for the end of life

07/24/25 at 03:00 AM

10 questions to help you plan for the end of life Time; by Angela Haupt; 7/21/25 Talking about death doesn’t have to be morbid. If you approach the conversation the right way, “it makes us more awake to our lives,” says Dr. Shoshana Ungerleider, founder of End Well, a nonprofit that aims to change the way people talk about and plan for the end of life.  “When we avoid this discussion, we rob ourselves of one of life's most clarifying forces—and that's the awareness that our time is finite.” There are other benefits to planning ahead. ... We asked experts to share 10 essential questions to ask yourself—and your loved ones—to plan for the end of life.

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'A long, beautiful time together': Photo exhibit 'Til Death Do Us Part

07/23/25 at 02:00 AM

'A long, beautiful time together': Photo exhibit 'Til Death Do Us Part'KUT 90.5, Austin, TX; by Michael Lee; 7/21/25“Well, we have to go back five years to the beginning of the pandemic,” says photographer Becky Wilkes, recalling how she came to create the exhibit Til Death Do Us Part. ... Wilkes and her siblings found themselves making frequent trips to Waco to care for their almost-90-year-old parents, and then the looming threat of a global pandemic made an already-difficult situation worse. ... She’d already started snapping some cell phone photos to share with her siblings, but seeing her parents together again, with what seemed like a renewed sense of love and togetherness, Wilkes decided to capture more and better photos. “And then I did have a conversation with them very quickly and I requested permission to photograph them,” she says. The resulting photography exhibit, Til Death Do Us Part, chronicles that last year of her parents’ lives.  ... The story ultimately ends in their death and our understanding of their death. But the story is really about their living. And, that's really… that's really beautiful.” Editor's Note: Click here for Becky Wilkes' website page with her descriptions and photos. 

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Changing funeral preferences: NFDA’s first-of-its-kind generational report now available

07/22/25 at 03:00 AM

Changing funeral preferences: NFDA’s first-of-its-kind generational report now available National Funeral Directors Association (NFDA), Brookfield, WI; Press Release; 4/2/25 The National Funeral Directors Association (NFDA), the world’s leading and largest funeral service association, has released an unprecedented study examining consumer attitudes toward funeral service across generations. Available to funeral service professionals for download at no charge, Changing Consumer Preferences: A Generational Perspective on Attitudes Toward Funeral Service provides critical insights to help funeral service professionals adapt to evolving expectations and continue delivering meaningful memorial experiences. ... Key findings include:

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How to perform a Regret Audit: A simple question that can help you live with purpose and have fewer regrets

07/22/25 at 03:00 AM

How to perform a Regret Audit: A simple question that can help you live with purpose and have fewer regrets. Psychology Today; by Jordan Grumet, MD; 7/20/25 As a hospice doctor, I’ve spent countless hours sitting at the bedsides of dying patients, listening to the echoes of lives well-lived and those haunted by regret. As Bronnie Ware described in The Five Regrets of the Dying, many end-of-life reflections center around missed chances to live more authentically, joyfully, and meaningfully. But we don’t have to wait until our final moments to face these truths. I’ve long advocated for the hospice life review as a proactive tool. It’s a structured set of questions used by hospice professionals to help patients process their lives and find peace. The questions are simple but profound:

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My mother refused treatment for her breast cancer. Her doctors should have respected her choice. Instead they dismissed her--and criticized me.

07/22/25 at 03:00 AM

My mother refused treatment for her breast cancer. Her doctors should have respected her choice. Instead they dismissed her--and criticized me.STAT; by Joy Lisi Rankin; 7/21/25My mother died in January 2007. She told the family that she had breast cancer in 2002. We still don’t know when she knew, or when she had been diagnosed. One thing we did know: She chose not to treat the cancer. In her encounters with health care professionals — doctors, nurses, assistants — during the last years of her life, her choice was met with disbelief and disdain. “Why aren’t you treating your cancer?” “Do you understand what’s going to happen?” “You know you’re going to die, right?” A final thought went unsaid but was clear: “If you’re not going to do what I recommend, I can’t do anything for you.” [Limited access to STAT with three stories per month.]

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Ok, please help calm my anxiety. My mother has drastically improved in the last couple of days since going on hospice.

07/22/25 at 03:00 AM

Ok, please help calm my anxiety. My mother has drastically improved in the last couple of days since goin on hospice. Aging Care; by Oedgar23; 7/17/25 So in the hospital, my mother was in kidney failure. The last couple days after stopping vancomycin for about five days, her GFR had come up to 19. That’s the most recent Number and then they stopped drawing labs because we placed her on Hospice. We consulted with palliative care team. They wanted to do a feeding tube and we said no. They said she had advanced dementia. [Describes improvements since hospice.] ... What if she gets taken off hospice? ... What if she no longer qualifies for hospice, passes as normal cognitively, starts demanding to go home, does not qualify for long-term care, Medicaid, etc. ... But I am super unnerved because she looks a whole lot better than she has been looking. ...Editor's Note: Yes, we all know that the person can get better with hospice care, because of holistic person-centered care, caregiver education and support, and many more factors. This can be confusing. The dying trajectory may have been interrupted or simply calmed with better symptom management and quality of life. This daughter is asking normal, crucial questions which the hospice team needs to be addressing with her. Examine your live discharge data, Policies and Procedures, communication practices with the patient and family about recertifications, Incident Reports from upset caregivers/families, and CAHPS Hospice scores.

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Parental authority and the weight of assent: Navigating moral dilemmas in adolescent end of life care

07/19/25 at 03:25 AM

Parental authority and the weight of assent: Navigating moral dilemmas in adolescent end of life careJournal of Bioethical Inquiry; A. L. Heifner, M. M. Ortiz, T. L. Major-Kincade, C. O’Connor; 6/25 In the current era of moral pluralism, medical decisions must account for much more than clinical considerations: they must abide by legal standards of decision-making which usually prioritize parental preferences. Conflict abounds between the parent or other legal decision-maker and healthcare team in situations where the parent prefers not to disclose the severity of the adolescent’s illness or the healthcare team believes continuing lifesaving therapies are not in the adolescent’s best interest. These dilemmas challenge how we solicit adolescents’ preferences (assent) and their options for refusal (dissent). We explore the moral distress healthcare workers face navigating conflict amongst various stakeholders involved in the adolescent’s end-of-life care. Strategies to minimize moral distress are also provided.

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[Norway] iLIVE volunteer study: Volunteer and healthcare professional perceptions of newly developed hospital end-of-life-care volunteer services, in five countries

07/19/25 at 03:00 AM

[Norway] iLIVE volunteer study: Volunteer and healthcare professional perceptions of newly developed hospital end-of-life-care volunteer services, in five countriesPalliative Medicine; Tamsin McGlinchey, Stephen Mason, Grethe Skorpen Iversen, Dagny Faksvåg Haugen, Inmaculada Ruiz Torreras, Pilar Barnestein Fonseca, Miša Bakan, Berivan Yildiz, Ruthmarijke Smeding, Anne Goossensen, Agnes van der Heide, John Ellershaw; 5/25Volunteer services that provide direct support to patients receiving palliative and end-of-life care in hospitals are new and developing, but little is known about the use and experience of such services from key stakeholders. 20 Volunteers and 20 healthcare professionals were recruited. Three overall themes were generated: (1) Volunteers provided 'unique, distinct, 'community' support' bringing familiarity to an unfamiliar, medically focussed environment. (2) Volunteers were able to 'establish a connection centred on 'being there' within the acute hospital environment' despite the fast paced and highly changeable environment. (3) Through 'relational interactions adapted to the individual person' volunteers attended to patients' existential and emotional needs. These services confer benefits that are transferrable across cultures and countries, 'fusing' formal care with the informal visiting of family or friends, attending to patients' existential needs.

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Understanding the influence of culture on end-of-life, palliative, and hospice care: A narrative review

07/18/25 at 03:00 AM

Understanding the influence of culture on end-of-life, palliative, and hospice care: A narrative review Cureus; by Veena Hira, Sainamitha R. Palnati, and Saajan Bhakta; 7/15/25 ... This narrative review included 25 relevant publications related to influence of culture and patient demographics on end-of-life care, hospice, and palliative care. As each culture has its own unique views on death and dying, it is crucial to note these cultural differences when assisting with end-of-life care to best align with patients’ beliefs and values. Themes such as cultural barriers, communication preferences and family roles emerged from the publications. ... This narrative review offered a snapshot of how culture influences end-of-life decisions worldwide, specifically in East Asia, South Asia, the Middle East, Europe, and North America, while highlighting themes of 1) truth disclosure and communication preferences, 2) patient autonomy and family involvement, and 3) perception of illness and death. ... Central to providing effective end-of-life care is open, culturally tailored communication that respects patients’ and families’ values, facilitated through shared decision-making discussions. ... Ultimately, integrating cultural understandings of death and dying into end-of-life care planning is not simply a matter of sensitivity, but it is a matter of quality and equity. Health systems must not only provide choices but ensure those choices are intelligible, meaningful, and respectful within the patient’s worldview.Editor's Note: Pair this today's post, My health and my politics walk into a doctor’s office …

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Leveraging speedy admissions to support hospice growth

07/17/25 at 03:00 AM

Leveraging speedy admissions to support hospice growth Hospice News; by Jim Parker; 7/16/25 Seamless and fast admissions processes are crucial to hospice growth. Speedy hospice patient admissions can lead to improved referral numbers, profitability and length of stay. Yet, hospices need to carefully navigate their patient admission processes to maximize both quality and their revenue. The hospices that do this effectively have a core set of key performance indicators that they look at consistently, according to Tony Kudner, chief strategy officer of the consulting firm Transcend Strategy Group. “The ones that look at data and are constantly asking themselves, ‘How can we paint the fullest picture of eligibility and get to that patient as quickly as possible?’ are the ones that we would say are the ones that are successful,” Kudner told Hospice News. “The people who have that information at their fingertips and use it to drive decision making are usually the ones who are sustaining their organizations and growing.”

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Alphabet soup: replacing BMI with BRI

07/16/25 at 03:10 AM

Alphabet soup: replacing BMI with BRI The Courier, Findlay, OH; by Aidan Hester and Karen Kier; 7/12/25 ... A recent change in how we measure obesity involves a new acronym. Most medical professionals use body mass index (BMI) to assess weight and obesity. ... BMI considers a patient’s weight and height but does not account for fat distribution. It does not take into consideration a person’s muscle mass or different types of fat throughout the body. ... A recent study published by JAMA Open Network used a patient’s BRI to measure potential mortality. ... Patients in the Q1 group were considered underweight and Q4 and Q5 were evaluated as overweight. Patients in the Q1, Q4, and Q5 groups were found to have an increased risk of death. So, both being underweight and overweight were risk factors for death. Those in Q5 were 50% more likely to pass away, while Q1 and Q4 were 25% more likely when compared to Q2 and Q3.

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Time and location of specialty palliative care for women dying with metastatic breast cancer

07/16/25 at 03:00 AM

Time and location of specialty palliative care for women dying with metastatic breast cancer Breast Cancer Research and Treatment; by Andrea King, Cynthia Ortiz, Rachna Goswami, Tara L Kaufmann, MinJae Lee, Lynn Ibekwe-Agunanna, Navid Sadeghi, Donghan M Yang, Lindsay G Cowell, Timothy P Hogan, Lauren P Wallner, Megan A Mullins; 7/15/25 online ahead of print Background: Despite guideline recommendations, evidence suggests many women with metastatic breast cancer (mBC) do not receive specialty palliative care services despite high morbidity burden. ... Results: ... Most palliative care encounters were inpatient and occurred within ~ 1 month of death. ...Conclusion: Palliative care for women with mBC is infrequent and often late, with referrals seemingly driven by the imminence of death rather than metastatic diagnosis. Strategies to better identify and triage specialty palliative care needs and make timely referrals are needed.

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Hard decisions: Using legal authority over an aging parent

07/14/25 at 03:00 AM

Hard decisions: Using legal authority over an aging parent Forbes; by Carolyn Rosenblatt; 7/9/25 The phone call came to Dad’s daughter (FD) at 6 AM. Again. This time, it was the night [home] caregiver reporting that her father had fallen while trying to get out of bed. She had jumped up and tried to stop him but she could only get to him in time to break his fall. ... For months, FD had watched her father's condition deteriorate from 300 miles away, visiting as often as she could. Advanced dementia had robbed Dad of his independence, and multiple physical ailments had left him requiring round-the-clock care. He was on hospice care, ... FD [daughter and legal authority] felt compelled to make a decision about moving Dad [from home to a facility]. ...

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Grieving the living: How Hospice of St. Lawrence Valley helps caregivers cope

07/14/25 at 02:00 AM

Grieving the living: How Hospice of St. Lawrence Valley helps caregivers cope North Country Now, St. Lawrence County, NY; by Kate Favaro, Hospice of St. Lawrence Valley; 7/10/25 With caregiving comes grief, there’s no way around it. You will grieve two important things that you’ve lost: who the person you’re caring for used to be, and the things that will never be. Take the time to explore the grief you’re experiencing so you can provide the best care possible. If you’re not taking care of yourself, you won’t be able to take care of anyone else. Hospice of St. Lawrence Valley offers the following on the grief of caregiving:

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Mapping the final journey: End-of-life frailty trajectories and cause of death

07/12/25 at 03:35 AM

Mapping the final journey: End-of-life frailty trajectories and cause of deathJournal of the American Geriatrics Society; Jianhong Xu, Jonathan Ka-Long Mak, Qian-Li Xue, Chenkai Wu; 6/25Frailty trajectories at the end of life varied by cause of death, with neurodegenerative disease decedents exhibiting more severe frailty. Among 37,465 decedents, 2,895 (7.7%) died from neurodegenerative diseases [and] three distinct frailty trajectories were identified among these decedents: rapidly progressive frailty (6.9%), moderate progression of frailty (21.1%), and advanced and stable frailty (72.0%). These patterns differed significantly from those observed in decedents with other causes of death, who exhibited persistently low frailty (24.7%), intermediate and progressive frailty (46.5%), and advanced and progressive frailty (28.8%). Compared to cancer decedents, individuals with neurodegenerative diseases had higher baseline frailty and a dominant trajectory of advanced and stable frailty. Older age, lower education, and greater chronic disease burden were associated with the advanced and progressive frailty trajectory.

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Health economic analysis of an all-virtual, at-home acute care model

07/12/25 at 03:30 AM

Health economic analysis of an all-virtual, at-home acute care modelJAMA Network Open; Brad Spellberg, MD; Christopher Lynch, MD; Hal F. Yee, MD, PhD; Josh Banerjee, MD; 6/25Hospital-at-home care models send staff, durable medical equipment (DME), and therapeutics (eg, intravenous infusions) to patients’ homes to provide care. In the US, Medicare requires in-person evaluations at least twice daily to receive payment for hospital-at-home services. In the UK National Health Service, virtual wards at home are increasingly being used in lieu of inpatient care. This economic evaluation of ... patients receiving all-virtual, at-home acute care ... found that the virtual program was cost-saving (due to avoided variable hospital costs) only for unfunded patients or patients with Medicaid, but was cost-losing for Medicare and commercially insured patients due to substantial lost inpatient revenue. These findings suggest that current payer rates for inpatient care financially disincentivize development and implementation of novel acute, at-home care models, but a simple reimbursement schema could enable net savings to both hospitals and payers.

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[UK] Caring for a patient with inoperable hip fracture

07/12/25 at 03:05 AM

[UK] Caring for a patient with inoperable hip fractureBMJ Supportive and Palliative Care; Arouba Imtiaz, Amelia Collins, Fiona Rawlinson, Antony Johansen; 6/25Hip fractures pose significant challenges, particularly in managing severe incident pain in people who are not fit for surgery. We present the case of an older man with multiple comorbidities who was managed non-operatively. Standard opioids caused sedation with limited pain relief. Patient-controlled analgesia (PCA) with intravenous fentanyl provided effective, short-acting relief, allowing the patient to remain alert and engage in care. This case highlights PCA as a practical option for managing incident pain in selected palliative patients.

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Home-based palliative care for cancer patients: Evaluating a decade of nursing-led interventions

07/12/25 at 03:00 AM

Home-based palliative care for cancer patients: Evaluating a decade of nursing-led interventionsAmerican Journal of Hospice and Palliative Medicine; Júnia de Oliveira Alves, RN; Eduardo Bruera, MD; Mônica Isaura Corrêa, MD; Sonia Souza, PhD; Marília Ávila de Freitas Aguiar, PhD; Ana Paula Drummond-Lage, PhD; 6/25Home-based palliative care is an effective approach for managing advanced-stage cancer patients, particularly in regions with limited healthcare infrastructure. In Brazil, the “Better at Home” Program enables interdisciplinary teams to deliver palliative care in patients’ homes, with nurses playing a central role in providing clinical and supportive interventions. Registered nurses (RNs) were responsible for complex procedures, supervision of nursing technicians (NTs), and caregiver training, while NTs performed routine clinical tasks and assisted with daily care. Notably, 99.4% of patients died at home, suggesting alignment with palliative goals of care. These findings underscore the central role of RNs in coordinating and delivering home-based palliative oncology care within a multidisciplinary framework.

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When a fall becomes a death sentence for nursing home residents

07/10/25 at 03:00 AM

When a fall becomes a death sentence for nursing home residents Justice News Flash; by Harve J.; 7/8/25 For nursing home residents, a trip to the hospital can be far more than a temporary setback it often marks the beginning of the end. According to data reviewed in a national nursing home longevity study by Gruber Law Offices, nearly 30% of older adults die within a month of hospital discharge. These figures suggest that transitions in care, rather than stabilizing vulnerable patients, may be accelerating their decline. ... Each year, nursing homes report between 100 and 200 falls, with the average resident experiencing 2.6 falls. These aren’t isolated accidents they’re indicators of systemic risk. Many residents already face mobility challenges, and understaffing makes close monitoring difficult. The result is a cycle: a fall leads to hospitalization, hospitalization increases frailty, and frailty increases the chance of further injury or death.

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Virginia Cancer Specialists expands and rebrands its Palliative Care Program to support patients through every step of cancer treatment

07/10/25 at 02:00 AM

Virginia Cancer Specialists expands and rebrands its Palliative Care Program to support patients through every step of cancer treatment PR Newswire, Fairfax, VA; Press Release; 7/8/25 Virginia Cancer Specialists, the largest private cancer practice in Northern Virginia, named #1 practice in cancer care and all medical specialties by Castle Connolly in 2024 and 2025, is proud to announce the rebranding and expansion of its former Palliative Care Program – now called Supportive Cancer Care – to deliver more comprehensive, integrated support services to help patients better maintain quality of life throughout the treatment process. Virginia Cancer Specialists designed this newly enhanced program with 3 key objectives:

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How do you value your life?

07/09/25 at 03:00 AM

How do you value your life? Sandusky Register, Sandusky, OH; by Sue Daugherty; 7/7/25 According to the Pew Research Center, the U.S. has the second-highest number of centenarians, 108,000. Japan has the most, 146,000. As time passes, the projections are that the population of those who are age 100 and older will continue to get larger. If you are an older American who is motivated by the number of years you get to remain on this Earth, this is good news for you. If you are motivated by the quality of your life while you remain on this Earth, then you ought to become more knowledgeable about advanced directives and palliative care.

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5 ways to have a ‘good death’ — including one of the biggest mistakes people make

07/08/25 at 03:00 AM

5 ways to have a ‘good death’ — including one of the biggest mistakes people make New York Post; by Reda Wigle; 7/3/25 No one gets out of life alive — but one expert says we can take steps to make sure we leave the earthly plane riding the high of a “good death.” “While 80% of people want to die at home surrounded by loved ones, only 30% actually do,” End Well founder Dr. Shoshana Ungerleider told The Post. “This massive gap reflects our system’s inability to honor what patients actually value.” As our cultural relationship to mortality has changed, Ungerleider notes that we have become disconnected from the process of death and, in turn, fail to plan appropriately for it. But if you’re not sure where to start, she has a helpful checklist of everything you should be doing to avoid a “bad death.”

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Avera Medical Minute: Family shares their experience with hospice care

07/07/25 at 03:00 AM

Avera Medical Minute: Family shares their experience with hospice care Dakota News Now, Sioux Falls, SD; by Dakota News Now staff; 6/30/25 Hospice care is more than just medical support. At the Dougherty Hospice House, it can be considered a home away from home, where staff aim to offer patients and their families the assistance and comfort they need during this difficult time. In this Avera Medical Minute, one Sioux Falls family shares how, thanks to the hospice team, they were able to focus on spending time with their loved one. Craig Lloyd was known as a development leader in the Sioux Falls community, building homes and more throughout the city. “He had a big heart, so he just kept trying to improve things, his thought was always ‘God put me on this Earth to make it better,’” said Craig’s wife, Pat Lloyd. ... Craig was also in Florida at the time when he needed hospice care and Pat credits the work of Avera and the hospice team in making a smooth transition for Craig from there to home in Sioux Falls and then to Dougherty Hospice House.

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Palliative care in the ICU: From oxymoron to standard of care

07/05/25 at 03:05 AM

Palliative care in the ICU: From oxymoron to standard of careIntensive Care Medicine; Nancy Kentish-Barnes, Judith E. Nelson; 6/25 Palliative care can be integrated into intensive care through ICU clinicians and palliative care specialists, and these approaches are complementary and synergistic. One study found that proactive specialist involvement in ICU rounds for high-risk patients led to more and earlier family meetings and shorter hospital stays. However, collaboration challenges, such as continuity of communication, highlight the need for close team cooperation. The integrative model trains intensivists and ICU nurses to embed palliative care into routine practice, ideally starting in medical and nursing education. Research has shown that improved communication and support from intensivists and ICU nurses are associated with better bereavement outcomes for families, including reduced post-traumatic stress, anxiety, depression, and prolonged grief.

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