Literature Review
All posts tagged with “Clinical News | Advanced Illness Management News.”
A nurse’s journey through advanced breast cancer: Michele’s invasive ductal carcinoma Stage 4 diagnosis
09/18/25 at 03:00 AMA nurse’s journey through advanced breast cancer: Michele’s invasive ductal carcinoma Stage 4 diagnosis Norton Healthcare, Paducah, KY; by Sara Thompson; 9/15/25 When Paducah, Kentucky, native Michele Burgess received her Stage 4 invasive ductal carcinoma diagnosis Feb. 6, 2020, she faced the advanced breast cancer the same way she approaches everything in life — head on. As a nurse manager for an inpatient hospice unit, Michele had spent years caring for others in their most vulnerable moments. Now, she would draw on that same strength for her own battle. ... Most people expected Michele to step away from her demanding career after her cancer diagnosis. After all, working in hospice while fighting breast cancer seemed like an impossible burden. But Michele saw it differently. “Why wouldn’t I continue?” she asked herself. Her work gave her purpose, and her 10-bed inpatient unit needed her steady leadership. ...
How a novel coaching intervention is building resilience and hope in adolescents and young adults with advanced cancer: A conversation with Abby R. Rosenberg, MD, MS, MA
09/18/25 at 03:00 AMHow a novel coaching intervention is building resilience and hope in adolescents and young adults with advanced cancer: A conversation with Abby R. Rosenberg, MD, MS, MA The ASCO Post; by Jo Cavaloo; 9/15/25 Each year, nearly 90,000 adolescents and young adults (AYAs; aged 15–39) are diagnosed with cancer, and approximately 9,300 die of the disease. ... AYAs are at increased risk for developing adverse long-term side effects from cancer and/or its treatment, including chronic conditions, secondary cancers, infertility, poor psychosocial health, and financial toxicity. ... The findings from a recent randomized phase III clinical trial investigating a novel resilience coaching intervention for AYA patients with advanced cancer are showing promising results in improving feelings of resilience and hope, as well as longer-term improvement in quality of life for these patients. ... In a wide-ranging interview with The ASCO Post, Dr. Rosenberg discussed the psychosocial impact of cancer on AYA cancer survivors, the results of the PRISM-AC study, and how AYA survivors are able to cope with having a terminal prognosis.
O’Neill Healthcare Hospice creating Moments of Joy
09/17/25 at 03:00 AMO’Neill Healthcare Hospice creating Moments of Joy The Villager Newspaper, Bay Village, OH; 9/15/25 At O’Neill Healthcare Hospice, our mission goes beyond providing exceptional clinical care ... One way we do this is through our Moments of Joy program, an initiative devoted to creating meaningful experiences and lasting memories for those we care for. Recently, we had the privilege of honoring our patient, Frank, with a very special moment of joy outing, ... "back to the ballpark in person." ... Programs like Moments of Joy enable us to honor our patients’ stories and interests, celebrate their passions, and provide families with cherished moments to remember.Editor's Note: See our recent related posts, "Fulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care" and "Baptist Health Floyd's 'Three Wishes' project provides comfort during end-of-life process."
Wound care at Sheridan VA gives 95-year-old Veteran a second chance: Veteran removed from hospice care at Sheridan VA after wounds heal
09/17/25 at 02:30 AMWound care at Sheridan VA gives 95-year-old Veteran a second chance: Veteran removed from hospice care at Sheridan VA after wounds heal VA News; by Jesus Flores; 9/12/25 When 95-year-old Air Force Veteran Roy Clifton arrived at Sheridan VA Medical Center (SVAMC) in March 2025, he thought he didn’t have much time left. “I had a bone infection in both feet and could barely walk,” he said. “Then I had a fall that caused a bleed in my brain. That’s when I decided to call it quits and go to hospice.” ... [Scroll ahead to this hospice's expert wound care.] Although both feet had exposed bones, and the injuries looked and smelled bad, Clifton’s body was healing. ... Clifton’s condition improved so much, he was taken off hospice care. “It made me feel great to survive hospice,” he said, smiling. “They’re all great. The staff took good care of me.”
Heart disease tops US mortality in 2024, CDC reports
09/16/25 at 03:10 AMHeart disease tops US mortality in 2024, CDC reports McKnights Long-Term Care News; by Foster Stubbs; 9/12/25 The leading causes of death in the United States in 2024 were heart disease, cancer and unintentional injury, the Centers for Disease Control and Prevention said in a September report. ... In total, there were 3,072,039 total deaths that occurred in the US in 2024 with a death rate of 722.0 per 100,000 people. This was 3.8% lower than the totals in 2023. Death rates also decreased for all race and ethnicity groups but rates for Black people remain higher than those for all other groups. Overall, death rates were highest for males, older adults and Black people, demonstrating a need for further examination of the health of these demographic groups. Heart disease caused 683,037 deaths, cancer caused 619,812 deaths and unintentional injury resulted in 196,488 deaths. Mortality statistics were collected by The National Center for Health Statistics’ (NCHS) National Vital Statistics System (NVSS) using US death certificate data. [The CDC Report is at Vital Statistics Rapid Release, Number 039, September 2025.]
St. Charles fifth graders make greeting cards for hospice patients
09/16/25 at 03:00 AMSt. Charles fifth graders make greeting cards for hospice patients Hometown Stations - ABC, CBS, FOX, NBC, Lima, OH; by Pearl Lewandowski; 9/11/25 For the past 25 years, students have taken part in making greeting cards for local hospice patients. ... “Fifth graders are at an age where they may have already lost someone, or they may have someone who's sick, or they may have aging grandparents, so there's always concerns and questions,” said Dr. Amy Mestemaker, medical director of Mercy Health Hospice. “If we can help support them or help them better understand the process, we want to do that.”
Fulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care
09/16/25 at 02:00 AMFulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care Palliative Supportive Care - Cambridge University Press; by Swasati Handique, Michael Bennett and Scott D Ryan; 9/12/25 Results: Four major themes were established using thematic content analysis: (1) impact on holistic well-being, (2) role of family in wish fulfillment, (3) cultivation of gratitude, and (4) collaborative leadership in wish fulfillment. In wish fulfillment, the results significantly pointed to the need for more intricate evaluation among patients and interventions that cover beyond the physical aspect. Significance of results: Palliative and hospice care settings should work toward securing sustainable funding for structured wish-fulfillment programs to address existing accessibility gaps and further enhance the holistic nature of care in these settings. Editor's Note: For hospice organizations that can receive donations, setting up a Wish/Bucket LIst fund makes for a meaningful, easy-to-demonstrate ROI on donated gifts. You need to have some type of discretionary review/approval process in place, with assurances of confidentiality when important to the person and/or family.
Baptist Health Floyd's 'Three Wishes' project provides comfort during end-of-life process
09/15/25 at 03:00 AMBaptist Health Floyd's 'Three Wishes' project provides comfort during end-of-life process FOX WDRB Media, Louisville, KY; Press Release; 9/8/25 Baptist Health Floyd patients and families facing end-of-life decisions now have extra support through the hospital's "Three Wishes" project. Baptist Health Floyd launched the Three Wishes Project a few months ago as a way to ease the burden faced by patients and their families who are nearing the end of their life. The program grants small, meaningful wishes to patients and their families, according to a news release. Baptist Health Floyd ICU RN Makenzie Stiffler, who leads the program, said "it is a way to humanize the death and dying process in ICU (Intensive Care Unit)."
A workflow initiative to increase the early palliative care referral rate in patients with advanced cancer
09/15/25 at 03:00 AMA workflow initiative to increase the early palliative care referral rate in patients with advanced cancer MDedge - Federal Practitioner - Quality Improvement; by Judy Lim, MD and Linda D. Nguyen, DNP, NP-C, MD; 9/3/25 ... The American Society of Clinical Oncology and the World Health Organization recommend that every patient with advanced cancer should be treated by a multidisciplinary palliative care team early in the course of the disease and in conjunction with anticancer treatment. Despite the documented benefits and the recommendations, early PC is still not often offered in clinical practice.
[UK] Does non-beneficial nasogastric tube feeding occur during end-of-life care? An audit of outcomes for those with a malnutrition universal screening tool score of 2
09/13/25 at 03:05 AM[UK] Does non-beneficial nasogastric tube feeding occur during end-of-life care? An audit of outcomes for those with a malnutrition universal screening tool score of 2Journal of Palliative Medicine; by Ross Andrew James Webster, Moitree Banerjee, Rachel King, Rosana Pacella, Antonina Pereira; 8/25The consideration of artificial nutrition and hydration (ANH) is recommended for individuals with reduced nutritional intake. However, placing long-term nonoral feeding tubes is not appropriate in those with advanced dementia or if the individual is likely to die imminently—“within hours or days”. In some instances, the provision of ANH in the weeks leading up to death may be considered a “Non-Beneficial Treatment.” In [this study a] total [of] 40 (47.6%) of 84 NGT [nasogastric tube]-flagged individuals were deceased within six months. Conclusions: NGT insertions in this cohort have a high likelihood of being considered “non-beneficial.”
Benefits and burdens of research participation: A mixed methods systematic review in palliative and end-of-life care
09/13/25 at 03:00 AMBenefits and burdens of research participation: A mixed methods systematic review in palliative and end-of-life careJournal of Hospice and Palliative Nursing; by Cara L Wallace, Stephanie P Wladkowski, Ruaa Al-Juboori, Anna Wingo, Kathryn W Coccia, Rebecca Hyde, Verna Hendricks-Ferguson; 8/25Research participation of hospice and palliative care patients and family caregivers is essential to develop and test best practices. Yet, healthcare professionals are often hesitant to ask patients and caregivers to participate in research, fearing it is too intrusive or unethical during a sensitive time. This review focused on the motivating factors, benefits, and burdens of research participation for patients with serious illness and their family caregivers. For clinicians and researchers, connecting patients and caregivers to palliative and end-of-life research may be both beneficial as a contribution to scientific literature and as an additional source of ongoing support.
Family says bear attack victim to be transferred to hospice care
09/12/25 at 03:00 AMFamily says bear attack victim to be transferred to hospice care KNWA/KFTA FOX-24, Little Rock, AR; by Justin Trobaugh; 9/9/25 The family of a Franklin County man says Sept. 8 that his condition has worsened and that he has been moved to hospice care. Vernon Patton, 72, is being held at the University of Arkansas for Medical Sciences after being attacked by a bear in the Mulberry Mountain area of Franklin County on Sept. 3. Patton was working on a gravel road with his tractor near Mulberry Mountain Lodge Park when the black bear attacked, according to Keith Stephens with the Arkansas Game and Fish Commission (AGFC). His son arrived to check on him and saw the bear actively attacking. Editor's Note: Executive leaders, traumatic events like this that lead to a hospice admission call for extra support for your clinical, direct care professionals and volunteers. They can experience secondary trauma as they tend horrific wounds, both physical (for the patient) and emotional (for family and friends). Also, what policies do you have in place to balance important community news and family privacy (e.g. staff or volunteers posting anything on social media).
Reducing family caregiver burden may prevent 30-day ED readmissions among community-dwelling older adults, study finds
09/11/25 at 03:00 AMReducing family caregiver burden may prevent 30-day ED readmissions among community-dwelling older adults, study finds McKnights Long-Term Care News; by Foster Stubbs; 9/9/25 Alleviating caregiver burden may reduce returns to the emergency department for older adults up to 30 days after a discharge, according to research published in the Journal of the American Medical Association. The study examined 1409 dyads or duos of community-dwelling patients 65 years or older and their family caregivers. ... [Questions] included items about strain in the caregiver’s role and personal life associated with caregiving. ... "We interpret these findings as evidence that caregiver burden may contribute to a negative care transition, associated with 30-day ED revisits, ..."
The hidden crisis in serious illness care and how we fix it
09/10/25 at 02:00 AMThe hidden crisis in serious illness care and how we fix itMedCityNews; by Dr. Mihir Kamdar; 9/7/25 Every year, millions of Americans with serious illnesses find themselves caught in a dangerous limbo: not sick enough to qualify for hospice, but far too ill to be served by our traditional healthcare system. The result is care that’s expensive, fragmented, and often traumatic. These patients are shuffled between a revolving door of emergency rooms and ICUs, enduring a cascade of aggressive interventions that don’t match their goals or improve their quality of life. This approach not only undermines quality, it drives healthcare spending through the roof, particularly in the last year of life. This is the hidden crisis in serious illness care. And it’s getting worse. At the root of the problem is what many in the field call the “hospice cliff.” ...
A culture shift supports disease-specific programs
09/10/25 at 02:00 AMA culture shift supports disease-specific programs American Nurse; by Elisabeth Rodgers, Kathy Watts, Krissy Feinauer, Lauri Speirs, Jessica Aguilar, and Tessa Watson; 9/8/25 An infrastructure built around a single department leads to success. Takeaways:
The keys to building solid disease-specific hospice programs
09/09/25 at 03:00 AMThe keys to building solid disease-specific hospice programs Hospice News; by Holly Vossel; 9/8/25 Understanding the most prevalent medical conditions among aging patient populations is a significant part of developing disease-specific programs that better address physical, emotional and practical needs. ... Community needs assessments play a large role in steering the direction of a disease-specific program, said Evan Dressel, director of strategy, program development and innovation at Lower Cape Fear LifeCare. ... Navigating service needs, strategic execution and establishing successful care collaborations are crucial components to consider when building a disease-specific program, according to Kelly Gadison, vice president of clinical practice, strategy and programs at Amedisys. ...
How to move a parent with dementia against family resistance—and stay legal
09/09/25 at 03:00 AMHow to move a parent with dementia against family resistance—and stay legal Advisorpedia; by Carolyn Rosenblatt; 9/3/25 The phone call came to Dad’s daughter (FD) at 6 AM. Again. This time, it was the night caregiver reporting that her father had fallen while trying to get out of bed. She had jumped up and tried to stop him but she could only get to him in time to break his fall. ... The caregiver was exasperated. She needed more help and SW did not provide it. It was the third incident in two weeks, and FD knew something had to change.
Irish man uses ChatGPT for sore throat advice, later diagnosed with stage 4 cancer
09/08/25 at 03:00 AMIrish man uses ChatGPT for sore throat advice, later diagnosed with stage 4 cancer TimesNow; by Ashima Sharda Mahindra; 9/1/25 A 37-year-old Irish man from Kerry sought advice on ChatGPT on chronic sore throat and swallowing difficulties – and was ultimately diagnosed with stage 4 esophageal adenocarcinoma, a rare and aggressive throat cancer. Warren Tierney said ChatGPT had reassured him that cancer was “highly unlikely,” which led him to a delay in seeking professional medical care. Months later, Warren was diagnosed with cancer, which has a five-year survival rate between five and ten per cent globally.
[France] Palliative care for solid organ transplant candidates and recipients: A scoping review
09/06/25 at 03:55 AM[France] Palliative care for solid organ transplant candidates and recipients: A scoping reviewTransplantation Reviews; by Liesbet Van Bulck, Fiona Ecarnot, Mathilde Giffard; 8/25Solid organ transplant patients experience high morbidity and mortality before and after transplantation. International guidelines recommend integrating palliative care into the management of patients with advanced organ failure, including transplant candidates and recipients, as it supports advance care planning, enhances communication and improves symptom management. This scoping review shows that palliative care for organ transplant has received little attention heretofore.
Sexuality and intimacy in the context of palliative and end-of-life care: A scoping review
09/06/25 at 03:20 AMSexuality and intimacy in the context of palliative and end-of-life care: A scoping reviewInternational Journal of Palliative Nursing; by Michelle Traverse, Susan D Mueller, Susan DeSanto-Madeya, Melissa A Sutherland; 8/25This scoping review identifies what is known about patient/partner sexuality and intimacy needs during end-of-life care and how healthcare professionals' (HCPs) approach these needs. A total of 18 articles were included in the review. Four themes were identified: 1) negative impact of serious illness on sexuality and intimacy, 2) barriers and facilitators to addressing sexuality, 3) tension between expansive and genital-focused approaches to sexuality and intimacy, and 4) a disconnect between patient/partner needs and HCP preparation. HCPs require clear and comprehensive training to improve their ability to address sexuality and intimacy during end-of-life care. Taking an expansive view of sexuality and intimacy during this time may facilitate HCP interventions.
Reconsidering neuraxial analgesia at end of life: Clinical, ethical, and socioeconomic perspectives
09/06/25 at 03:10 AMReconsidering neuraxial analgesia at end of life: Clinical, ethical, and socioeconomic perspectivesInterventional Pain Medicine; Sanjeet Narang , Jason Yong , David Hao, 9/25Pain is one of the most prevalent and distressing symptoms experienced by patients nearing end of life, particularly among those with cancer. While systemic opioids are the mainstay of treatment, their limitations necessitate consideration of alternative strategies. Neuraxial analgesia, including epidural and intrathecal drug delivery systems, offers targeted pain relief with reduced systemic burden. Yet despite supportive data, these interventions remain underutilized due to clinical, ethical, logistical, and socioeconomic barriers. This article examines the complex decision-making involved in offering neuraxial analgesia at the end of life, weighing risks and benefits, shifting patient goals, and the challenges of care coordination.
Top ten tips palliative care clinicians should know about intensive care unit consultation
09/06/25 at 03:05 AMTop ten tips palliative care clinicians should know about intensive care unit consultationJournal of Palliative Medicine; by Ankita Mehta, Karen Bullock, Jillian L. Gustin, Rachel A. Hadler, Judith E. Nelson, William E. Rosa, Jennifer B. Seaman, Shelley E. Varner-Perez, Douglas B. White; 8/25Critical illness and ICU stays can be extremely distressing for patients and their loved ones. Providing palliative care in the ICU, although a standard component of comprehensive care delivery, involves understanding the individual culture of each specific ICU, collaboration with multiple providers, and interfacing with surrogate decision makers while patients may not be able to communicate and are undergoing interventions that are unfamiliar to them and loved ones. These top ten tips aim to support palliative care clinicians providing consultation in ICUs. Specifically, these tips address initial relationship building with ICU clinicians and teams to foster effective collaboration, establishing goals of care by assessing health-related values, explaining treatment options, individualizing prognostic discussions, and managing end-of-life symptoms for patients while in the ICU and throughout ICU discharge transition.
Christmas for Lorie: Carmel neighborhood lights up August
09/05/25 at 02:00 AMChristmas for Lorie: Carmel neighborhood lights up August NBC WTHR-13, Carmel, IN; by Scott Swan; 8/21/25 On a warm August night, Christmas lights are twinkling on a street in Carmel. "One of our favorite traditions on Windbush is to decorate every house as much as possible," said neighbor Emily Clem. We may be 125 days away from Christmas, but for the family in this house, the beauty of the holiday needs to happen now. "When I saw the lights go up last Thursday or Friday, my heart sunk because I knew what it was," said Brady Young, who lives nearby. Lorie Graves, a 50-year-old wife and mom, is on home hospice as she battles ovarian cancer. "We did the Christmas decorations in the front yard because we have a very special neighbor right down the road who is battling cancer," said Shane Best. ... And so did the neighbors.
Why palliative care is more than just end-of-life support
09/04/25 at 03:00 AMWhy palliative care is more than just end-of-life support MedPageToday's KevinMD.com; by Dr. Vishal Parackal; 9/1/25 ... Palliative care as a system requires strong interpersonal and cross-specialty communication for smooth functioning, as patients may require expert opinions from different fields to optimize their treatment plan. Patient education for systemic follow-ups and establishing a baseline of knowledge regarding their diagnosis and potential danger signs helps create a better environment for holistic care. While we focus on the physical aspects of care and diagnosis, we often fail to realize the psychological and mental impact that such conditions can have on the patient and their family. ... The opportunity to make a meaningful difference in patients’ lives by easing their suffering and enhancing their quality of life is profoundly fulfilling. ... Editor's Note: Excellent descriptions of palliative care.
[United Kingdom] Stories of unpaid carers supporting loved ones with dementia at the end of their lives
09/04/25 at 03:00 AM[United Kingdom] Stories of unpaid carers supporting loved ones with dementia at the end of their lives ehospice, London, UK; by NIHR Applied Research Collaboration (ARC) South London; 8/30/25The artwork from Dementia Journeys, a powerful exhibition at Science Gallery London which ran from April to June 2024, can now be viewed online.The Dementia Journeys exhibition was created in response to Empowering Better End-of-Life Dementia Care (EMBED-Care) – a research programme that aims to generate a step-change in how care is provided for people at any age with any type of dementia.