Literature Review

All posts tagged with “Clinical News | Advanced Illness Management News.”



Akron-area teen remembered for facing cancer with grace, laughter

03/19/26 at 02:00 AM

Akron-area teen remembered for facing cancer with grace, laughter Akron Beacon Journal, Akron, OH; by Ralph N. Paulk and Marilyn Miller Paulk; 3/18/26 Darren Hampton smiled and laughed almost incessantly. ... His family reminisced how he fought an agonizing battle with grace and a seemingly habitual smile long after he was diagnosed with cancer in 2016 at age 7. ... Darren wasn’t afraid to die,” Hampton said. “He understood what was going on.” ... Then, shortly after arriving at the hospice center, he asked Abood, “Are you telling me I don’t have to go to school?” Yet, he expressed a willingness to take his state tests. “He was always concerned about his schoolwork,” ... "(Darren) was full of energy and always positive. He wanted to step in and change the world. He talked about recycling in rivers and lakes.” ... On the day he died, Darren summoned his family.  ... 

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Hospital workers are revealing the heartbreaking regrets patients had on their deathbeds, and I'm at a loss for words

03/18/26 at 03:00 AM

Hospital workers are revealing the heartbreaking regrets patients had on their deathbeds, and I'm at a loss for words BuzzFeed Staff; by Liz Richardson; 3/16/26 You may have heard about people's last words, but if there's anything even more haunting, it's the regrets they have on their deathbed. And, as you can imagine, those who work closely with dying patients have heard some unforgettable final regrets that stick with them for years. ... Several users shared the striking and heartbreaking regrets their patients shared, and wowww, it will hit you hard. Here's what they had to say: ... Editor's Note: This article reflects a more popularized perspective than we typically feature, but it raises themes that are deeply familiar in serious illness and end-of-life care. Hospice and palliative care teams are trained to meet these moments with presence, skilled communication, and interdisciplinary support—helping patients and families explore reflection, meaning, and connection in ways that extend far beyond the headlines.

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Facing death as a doctor: Knowledge vs nature

03/18/26 at 03:00 AM

Facing death as a doctor: Knowledge vs natureMedscape; by Sarah Amandolare; 3/12/26 The decision to enroll her father in hospice care came easily for Janet Abrahm, MD. Abrahm, a palliative care doctor and former oncologist, helped her father — an internist who died of prostate cancer at home — understand the program’s benefits, such as family bereavement services, and that he could be readmitted to the hospital if needed. “Most doctors don’t know that,” said Abrahm, who is also a professor of medicine at Harvard Medical School in Boston and the author of Comprehensive Guide to Supportive and Palliative Care for Patients with Cancer. “They think it’s a one-way street, I imagine — that you put somebody in hospice and then that’s it. ... The level of engagement physicians have with death in their practice may inform how they want to die — and how they counsel loved ones facing a serious illness. But a new study suggests even as they face end-of-life decisions through the lens of their expertise, physicians can also be swayed by the same financial, familial, and existential burdens afflicting their patients. 

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Antibiotics in hospice: Applying the four-quadrant approach to improve patient-centered care

03/18/26 at 03:00 AM

Antibiotics in hospice: Applying the four-quadrant approach to improve patient-centered care Oxford Academic | Clinical Infectious Diseases; by Patrick D. Crowley, Karen M. Meagher, Amelia K. Barwise; 3/5/26The use of antibiotics in the hospice setting is complicated by differing patient goals, elevated side effects, and limited information regarding effectiveness. Here, we describe a case and apply the four-quadrant approach (4QA). This includes analyzing the case through the lenses of (1) medical indications related to improving function and reducing symptoms; (2) patient preferences ...; (3) quality-of-life factors that include managing infectious symptoms versus antibiotic side effects; and (4) contextual features, which include antimicrobial resistance concerns and cost considerations. Antibiotics may be beneficial in some cases and should not be denied to patients enrolled in hospice care. More robust evidence-based information about outcomes is needed to inform discussions at the time of enrollment. Applying the 4QA to a case can help determine the best approach for each individual patient.

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Alzheimer’s definitions, biomarkers, and antibodies: Halima Amjad, Barak Gaster, and Heather Whitson

03/18/26 at 03:00 AM

Alzheimer’s definitions, biomarkers, and antibodies: Halima Amjad, Barak Gaster, and Heather WhitsonGeriPAL podcast; by Alex Smith, Eric Widera, Halima Amjad, Barak Gaster, Heather Whitson; 3/12/26It’s an era of breakthroughs in Alzheimer’s research, yet for many clinicians, it’s also a time of profound uncertainty. We are currently navigating competing definitions of the disease, multiple new biomarkers coming on market seemingly every week, and the clinical rollout of new amyloid antibodies. How do we translate this rapid-fire science into daily practice? On this week’s GeriPal podcast... we dive deep into:

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Is hospice over-sedating my mom?

03/17/26 at 03:00 AM

Is hospice over-sedating my mom? AgingCare; by Ginger May; 3/11/26 This might be a common question. Mom was signed on to hospice nine days ago. ... Prior to hospice, she was alert and going down to meals each day and participating in conversations. ... Hospice recommended a small dose of morphine to reduce the cough and as they explained "to relax the airway." [Descriptions of her mother's decline. ...] Yesterday, I talked to the hospice nurse and told her I thought it was too much. The nurse disagreed and said mom needed it to prevent "air hunger" and is more comfortable with it than without it. I felt like if I disagreed too much, I was depriving my mother of "comfort." ...Editor's Note: Yes—this is a common question. Families often wonder whether medications intended for comfort are instead taking their loved one away too quickly. Leaders, listen carefully to this daughter’s experience with the hospice nurse. When families question a medication or express fear, what actually happens next? Are their concerns welcomed? Or, dismissed and perhaps even debated? Communication at the bedside does more than explain care. It shapes whether families carry trust—or regret—into bereavement.

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Translating palliative care narratives into art: An arts-based knowledge translation pilot with young adult artists

03/16/26 at 03:00 AM

Translating palliative care narratives into art: An arts-based knowledge translation pilot with young adult artists Palliative Care and Social Practice; by Kristina A. Smith, Philippe Blanchard, Susan Law, and Kelli Stajduhar; 2/25/26 Objectives: This knowledge translation project explored arts-based approaches for translating palliative care narrative data into creative forms, examining the feasibility of converting research narratives into accessible art forms that could facilitate engagement with death-related topics. Results: Over 25 artistic works illustrating death and dying experiences were created. The collaborative translation process revealed that undergraduate artists could effectively interpret and visualize complex palliative care narratives through diverse artistic approaches. Course evaluations and informal feedback indicated that artists found the experience meaningful and challenging, and expressed interest in further exploration of death-related topics. Editor's Note: Go to this article and scroll down past "Results" to see photos of these artworks and their descriptions.

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Palliative care often comes late for veterans with COPD; use increases modestly

03/16/26 at 03:00 AM

Palliative care often comes late for veterans with COPD; use increases modestlyU.S. Medicine - The Voice of Federal Medicine, Atlanta, GA; by Mary Anne Dunkin; 3/13/26 Chronic obstructive pulmonary disease (COPD) is associated with substantial symptom burden, functional decline and frequent hospitalizations, making early palliative care an important component of comprehensive management. Yet, despite an increased focus by the VA on such care, new research suggested that many veterans with COPD still receive little or no palliative support—and, when they do, it often begins late in the course of illness. 

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"I don't get to feel this good very often:" Virtual reality intervention for veterans receiving end-of-life care

03/14/26 at 03:20 AM

"I don't get to feel this good very often:" Virtual reality intervention for veterans receiving end-of-life careJournal of Palliative Medicine; by Megan E Gately, Steven D Shirk, Anastasia Canell, Alexandra Laffer, Melanie Corle, Kristen Dillon; 2/26We explored the use of VR [virtual reality] with patients receiving inpatient HPC [hospice and palliative care]. Twenty-five veterans with complex medical and psychiatric comorbidities at a Veterans Affairs hospital participated. Data related to self-reported pain and well-being, as well as session feedback, were gathered. Despite some challenges with setup, 91% reported enjoyment, and 90% would participate again. Travel experiences were most popular, allowing reminiscence and touring of bucket-list destinations. Program feedback suggested improvements in anxiety, mood, and boredom.

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Sovereign Hospice guides Dallas-Fort Worth families through hospital discharge

03/13/26 at 03:00 AM

Sovereign Hospice guides Dallas-Fort Worth families through hospital discharge The Malone Telegram, Aubrey, TX; by Baaba Sampson; 3/12/26 Families facing hospital discharge for a loved one with a terminal illness often feel overwhelmed by the sudden shift in care responsibilities. Sovereign Hospice addresses this challenge by providing seamless coordination between hospital teams and home-based hospice services. The organization serves all counties within the Dallas-Fort Worth Metroplex, offering same-day admission and round-the-clock support.

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"Black box" artificial intelligence for mortality prediction: a mixed-methods study of palliative care team, patient, and caregiver perspectives

03/13/26 at 03:00 AM

"Black box" artificial intelligence for mortality prediction: a mixed- methods study of palliative care team, patient, and caregiver perspectives Annals of Palliative Medicine; by Beatrice Bridge, Ahmed Y Alasmar, Lauren Gunn-Sandell, Regina M Fink, Stacy M Fischer, Elizabeth Juarez-Colunga, Eric G Campbell, Matthew DeCamp; 2/26/26 Background: New artificial intelligence (AI)-based mortality prediction algorithms could support both patients' prognostic awareness and person-centered palliative care. ... Results: Among 53 interviewees, 18 expressed only concern about black box AI-based prognostication, 17 expressed only unconcern, and 18 interviewees expressed mixed sentiments. Reasons for concern related to: data transparency, mistrust of machines or their creators, patient-clinician communication, bias, and accuracy. Reasons for unconcern related to: inexplicability not unique to AI, greater accuracy, not using AI in isolation, trust in science, and being evidence-based. Notably, "accuracy" and "trust" appeared in both.

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Webinar for free CME/CE credit: Determining prognosis in cancer and non-cancer diagnosis

03/13/26 at 03:00 AM

Webinar for free CME/CE credit: Determining prognosis in cancer and non-cancer diagnosis VITAS Healthcare; Press Release; for 3/18/26, 1pm EDT Supported by evidence-based data, this webinar will help physicians and healthcare professionals identify hospice-eligible patients with advanced illnesses, including cancer, cardiac disease, lung disease, dementia, liver disease, stroke, and HIV/AIDS. Attendees will explore trajectories of dying, functional decline, and factors that support accurate diagnoses and prognoses for cancer and other key diseases that lead to hospice referrals. ... Presented by Lauren Loftis, MD

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Palliative care for multiple sclerosis: Managing progressive disease with compassion

03/12/26 at 03:00 AM

Palliative care for multiple sclerosis: Managing progressive disease with compassion Ashland localtownpages, Aubrey, TX; by Press Services; 3/5/26 Multiple sclerosis presents unique challenges that require specialized support throughout the disease journey. Patients experience unpredictable symptoms including fatigue, pain, mobility issues, and cognitive changes. These symptoms shift and intensify over time, affecting daily life for both patients and their families. Sovereign Hospice addresses these complex needs through palliative care and hospice at home service across the Dallas-Fort Worth Metroplex.

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Penn Medicine Collaborative providing holistic care to cancer patients

03/11/26 at 03:00 AM

Penn Medicine Collaborative providing holistic care to cancer patients healthleaders; by Christopher Cheney; 3/10/26 Key Takeaways:

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Thyme Care launches Integrated Social Support model, bringing proactive oncology social work to 8 million Americans upon diagnosis

03/11/26 at 03:00 AM

Thyme Care launches Integrated Social Support model, bringing proactive oncology social work to 8 million Americans upon diagnosis PR Newswire, Nashville, TN; by Thyme Care; 3/5/26 Thyme Care today announced the public launch of its Integrated Social Support (ISS) model, a redesigned approach to oncology navigation that positions licensed master's-level social workers as the first to intervene when members experience barriers to navigating their cancer. The announcement coincides with National Social Work Month in March, recognizing the essential role social workers play in improving health outcomes. An estimated 44% of individuals affected by cancer experience psychosocial burdens, which are associated with poorer health, clinical, and economic outcomes for patients and caregivers. Thyme Care's ISS model flips the approach by making licensed social workers one of the first points of contact for social, emotional, and practical needs, assessing members from day one and throughout their journey ...

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Longer-running state POLST programs improve end-of-life outcomes for SNF patients

03/11/26 at 03:00 AM

Longer-running state POLST programs improve end-of-life outcomes for SNF patients McKnights Long-Term Care News; by Kimberly Marselas; 3/9/26 Nursing home patients are more likely to die in the facility or in hospice than in a hospital in states with mature POLST programs, according to a new, first-of-its kind study. Physician Orders for Life-Sustaining Treatment, also known as POLST or MOLST, are standing orders meant to assist in decision-making at the end of life to ensure patients’ treatment preferences are documented. ... Researchers behind the new study said results suggest continued implementation and long-term use of POLST programs streamlined advance directives among residents, helped lessen unnecessary hospitalizations and limited aggressive care at the end of life. 

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Developing a tool to advance person-centred care in hospice: The little things are the big things

03/11/26 at 03:00 AM

Developing a tool to advance person-centred care in hospice: The little things are the big thingsPalliative Care and Social Practice; by Mary Ellen Macdonald, Sophia Salmaniw, Lisa McNeil-Campbell, Anne Frances D’Intino, Lynette Sawchuk, Cyndi Corbett, Logan Lawrence; 2/23/26 Person-centred care has become the cornerstone of quality palliative and end-of-life care. Yet, there is a dearth of both practical guidance and tools to operationalize how to ensure palliative end-of-life care is optimally person-centred. Noting this lacuna, a new hospice in Eastern Canada developed and piloted their own tool, called the SELFY (Share, Explore, Learn and Focus on You!), the intention being to standardize their institution’s commitment to high-quality person-centred hospice care.

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Delivering palliative care in mental health nursing settings: A systematic review

03/10/26 at 03:00 AM

Delivering palliative care in mental health nursing settings: A systematic review Journal of Psychiatric and Mental Health Nursing; by Oladapo Akinlotan, Allen O'Connor, Ruben Seetharamdoo, Mo Ghoorun; 3/6/26 Palliative care can provide comfort, alleviate suffering, and improve quality of life; however, access to palliative care for people with mental illnesses at the end of their lives is extremely poor. As the need for palliative care is expected to rise significantly in the future, palliative care must be considered a global health priority. ...  Recommendations: Although care for people with complex mental illness is complex while dying, conversations around palliative care need to be as part of a therapeutic relationship and engagement. Also, palliative care staff have an important role in communicating end-of-life planning to patients' families and carers.

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Family says Farmington man who died en route to hospice 'knew he was dying in jail'

03/10/26 at 03:00 AM

Family says Farmington man who died en route to hospice 'knew he was dying in jail' ABC 40/29 News, Rogers, AR; by Adam Roberts and Carlee Gilpin; 3/7/26 The family of a 74-year-old Farmington man who died in jail said they tried for weeks to get him moved to a health care facility. James Edward Gore was arrested on Feb. 9, accused of stabbing two women. He died on Feb. 25 while being moved from jail to hospice care. The family held a news conference Friday, Mar. 6. They accused the prosecutor's office, the judge presiding over the case, and the sheriff's office of delaying hospice care and not communicating with the family. ... James Edward Gore was arrested after police say he used scissors and a knife to stab two women on Feb. 9. At the time, a family member told police Gore had just had a tumor removed from his frontal lobe. He also recently had a stroke, medication issues, and cancer.

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Chronic pain and unrecognized grief: epistemic barriers to personal and social recognition

03/10/26 at 03:00 AM

Chronic pain and unrecognized grief: epistemic barriers to personal and social recognition Medicine, Health Care and Philosophy; by Christopher Jude McCarroll, Ying-Tung Lin, Dominik Koesling, and Claudia Bozzaro; 3/29/26 What is it to grieve? What is the nature of grief? ... Importantly, a close examination of the phenomenology of chronic pain helps illuminate the ways in which it also involves the kind of losses that we can grieve over. The losses involved in experiences of chronic pain impact one’s practical identity in ways that can lead to grief. This chronic pain grief remains largely unrecognized, however. We outline four epistemic barriers to recognizing the grief involved in experiences of chronic pain. ...

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Oncologist perspectives on timely hospice referral: A qualitative study

03/10/26 at 02:00 AM

Oncologist perspectives on timely hospice referral: A qualitative study American Journal of Hospice and Palliative Care; by Andrew Lynch, Andrea Altschuler, Joseph P Cosgrove, Hannah Whitehead, Corey Schwartz, Raymond Liu, Mina Chang; 3/7/26 Background: Late hospice referral rates are on the rise and are associated with negative outcomes at the end of life (EoL). Rates of late hospice referral vary drastically from oncologist to oncologist, and behavioral and psychological factors among individual oncologists have been identified as potential contributors to this variability. ...  Conclusions: Numerous factors independent of hospice eligibility were reported to influence hospice referral practices among oncologists. While some factors represent challenging cultural and social barriers to timely hospice referral, other system- and patient-specific barriers offer opportunities for potential interventions. 

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Hyperactive delirium during hospice patients’ last week of life in a home care setting

03/09/26 at 03:00 AM

Hyperactive Delirium during hospice patients’ last week of life in a home care setting 

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Themed digest for palliative care professionals: Spiritual support for children

03/05/26 at 03:00 AM

Themed digest for palliative care professionals: Spiritual support for children ehospice | PACED; February 2026 Spiritual support remains one of the most complex and, at the same time, most essential elements of palliative care. In the February PACED digest, we present articles exploring the integration of spiritual care into nursing practice, families’ experiences in paediatric palliative care, and the role of professionals in discussing end-of-life issues with children and adolescents. This issue includes materials on professional competencies, system-level recommendations, and parents’ lived experiences. Together, they offer insight into how spiritual and value-based questions shape clinical practice and influence the quality of support provided to families. ...

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Why time becomes ever more precious towards the end of our days

03/05/26 at 03:00 AM

Why time becomes ever more precious towards the end of our days ehospice; by Brian Dolan, OBE; 3/2/26 In health care, conversations about finance, workforce, and facilities often dominate the agenda. Yet, the most valuable and universal currency within our health systems is something less tangible but far more immediate: time. ... Time is the thread that connects patients and staff, shaping experiences, outcomes, and well-being. For patients, time is deeply personal. It is the time that comes dripping slow as hours are spent waiting in emergency departments, days of confinement to a hospital bed, and, ultimately, the quality of the life they return to when they are finally discharged. For staff, time determines how effectively they can deliver care, make decisions, and balance the demands of an increasingly pressured system. 

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How family caregivers are shaping their own future

03/04/26 at 03:00 AM

How family caregivers are shaping their own future AARP; by Paul Wynn; 2/18/26 Applying hard-learned lessons from caring for others, nearly half of caregivers are planning their own legal, financial and medical futures. Helen Bundy Medsger spent three decades caring for multiple family members, including her parents and sister, an experience that shaped both her advocacy and her determination to plan ahead so her two children don’t inherit the challenges she faced as a caregiver. ... 

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