Literature Review
All posts tagged with “Clinical News | Advanced Illness Management News.”
3 Wishes Program humanizes end-of-life care
04/21/26 at 02:00 AM3 Wishes Program humanizes end-of-life care University of Washington Department of Medicine; by Vishva Nalamalapu; 4/15/26 In hospitals, healthcare teams tend to zero in on patients’ conditions and treatments. When patients are nearing the end of their lives, however, it’s important for them to feel like their whole selves. Matthew Smith, a physician assistant at UW Medical Center – Montlake in Seattle, founded the hospital’s 3 Wishes Program to create experiences and keepsakes that recognize the patient’s personality. Wishes commonly fall into one of three categories: humanizing the room, connecting with loved ones and creating keepsakes for them. Costs for attaining these wishes tend to be minimal and covered by donations. Since it began in 2022, the program has fulfilled about 1,500 wishes for more than 600 patients.
Development of a novel psychosocial intervention to improve symptom management for adolescents and young adults with advanced or recurrent cancer
04/18/26 at 03:25 AMEnd-of-life loneliness, social isolation, and symptom burden: A nationally-representative study
04/18/26 at 03:15 AM[China] Effectiveness of animal-assisted therapy for dementia patients: An evidence mapping of randomized controlled trials, systematic reviews, and meta-analyses
04/18/26 at 03:05 AMSovereign Hospice: addressing late-stage renal condition care gaps in Fort Worth
04/17/26 at 03:00 AMSovereign Hospice: addressing late-stage renal condition care gaps in Fort Worth MyCarrollCountyNews.com, Dallas, TX; by Sovereign Hospice; 4/16/26 End-stage kidney disease affects hundreds of thousands of Americans each year. When kidneys can no longer sustain life without dialysis or a transplant, families are left to make decisions that few feel prepared for. Sovereign Hospice ... is drawing attention to a gap many families face: not knowing that hospice care services exist as a legitimate, fully supported option at this stage of illness. ... For patients with end-stage kidney disease, the shift away from aggressive treatment means that symptom management becomes the priority. Common symptoms at this stage include fatigue, pain, restlessness, and fluid retention. The interdisciplinary team is trained to address all of these through individualized care plans.
[Global] Compassionate communities in action: global stories of care, loss and connection
04/16/26 at 03:00 AM[Global] Compassionate communities in action: global stories of care, loss and connection Taylor & Francis Group, London, UK; edited by Emma Hodges and Manjula Patel; ebook published 1/1/26 Compassionate Communities in Action: Global Stories of Care, Loss and Connection brings together practical examples of compassionate cities and communities from around the world. Together they provide a practical road map, highlighting what has worked and what has been challenging, alongside reflections from the communities profiled. ... Demonstrating public health palliative care in practice, this guide is an essential read for people working in the field of palliative and end‑of‑life care, as well as academics, students, and policymakers with an interest in the area. ... The Open Access version of this book, available at https://www.taylorfrancis.com, has been made available under a Creative Commons Attribution-Non-Commercial-No Derivative Licence CC-BY-NC-ND. Editor's Note: This 334 page book is available for free download via the links above.
Music in the last hours: finding humanity in the ICU
04/15/26 at 03:00 AMMusic in the last hours: finding humanity in the ICUAmerican Journal of Hospice and Palliative Medicine, from Piura, Peru; Carlos F. Ugas-Charcape, MD, PhD and Cristopher A. Tarazona Chapilliquen; 3/27/26Objective: To describe the use of personalized music as a comfort measure during the final hours of life in the ICU and reflect on its impact on the patient, family, and care environment. ...Conclusions: Personalized music represents a simple, patient-centered adjunct that may enhance comfort and dignity in the final hours of life.Editor's Note: For more detailed research, case studies and therapeutic guidance for using music in the "last hours" with hospice and palliative patients and families, I invite you to explore "The Final Cadence," a chapter in my book Music of the Soul - Composing Life Out of Life.
The power of showing up: how families can support loved ones who are aging or ill
04/15/26 at 03:00 AMThe power of showing up: how families can support loved ones who are aging or ill Good Men Project; by Harvey Max Chochinov; 4/14/26 For many families, visiting a loved one who is aging or seriously ill can feel surprisingly hard. ... What if the problem is not that families have too little to offer, but that we misunderstand what truly helps? ... By emphasizing presence over fixing, dignity over distraction, and meaning over outcomes, it helps families:
Your wishes, your voice: Ochsner doctors encourage families to plan ahead for National Healthcare Decisions Day
04/14/26 at 03:00 AMYour wishes, your voice: Ochsner doctors encourage families to plan ahead for National Healthcare Decisions Day NOLA.com; by Amanda McElfresh; 4/12/26 Every year on April 16, National Healthcare Decisions Day serves as a reminder that medical emergencies rarely arrive with warning. When they occur, the decisions surrounding treatment often must be made within minutes. For healthcare providers, including those in Ochsner emergency departments, the day highlights a simple yet powerful message: Conversations about medical wishes should happen long before a crisis unfolds.
Bridging access gaps in pediatric palliative care
04/14/26 at 03:00 AMBridging access gaps in pediatric palliative care Hospice News; by Holly Vossel; 4/10/26 ... Serious and terminally ill children can have a wide range of complex, unique needs along their illness trajectories, said Dr. Kimberly Curseen, the board president for the American Academy of Hospice and Palliative Medicine (AAHPM). Building collaborations with community organizations is key to better understanding the gaps in care that exist across diverse and underserved pediatric patient populations, Curseen indicated.
Expanding access to palliative care for patients with advanced liver disease
04/14/26 at 02:00 AMExpanding access to palliative care for patients with advanced liver diseaseAAAS - EurekAlerts!, Philadelphia, PA; describes JAMA Internal Medicine at doi: 10.1001/jamainternmed.2026.0571; 4/13/26 A new multicenter trial led by Manisha Verma, MD, and Victor Navarro, MD, at Jefferson Einstein Philadelphi Hospital demonstrates a new approach that could potentially transform access to palliative care for patients with ALD and address a major care gap. In the PAL LIVER trial, a large cluster-randomized study conducted across 19 U.S. centers, researchers evaluated whether hepatologists trained in primary palliative care could match the effectiveness of palliative care specialists in delivering quality-of-life benefits to patients with ALD, including those with decompensated cirrhosis and liver cancer. With 935 patients enrolled, this is one of the largest trials to date in liver disease palliative care.
Improving quality for gender-diverse hospice patients
04/13/26 at 03:00 AMImproving quality for gender-diverse hospice patients Hospice News; by Holly Vossel; 4/8/26 Various factors impede the ability of transgender and gender-diverse individuals to receive goal-concordant care at the end of life. Individuals in the LGBTQIA+ community often face greater risks of privacy violations, cultural suppression, disrespect and trauma compared to others, according to Amanda Monteiro, palliative care social worker at Mount Sinai Hospital. ... LGBTQIA+ individuals are often referred to hospice or palliative care later in their disease trajectories compared to others, according to Dr. Alexis Drutchas, palliative care physician at the Dana-Farber Cancer Institute. ... Clinicians need better tools to help guide end-of-life conversations with gender-diverse patients and their loved ones, said Dr. Ramón Rodriguez, palliative care physician at Massachusetts General Hospital.Editor's Note: For a definitive, groundbreaking resource, examine LGBTQ-Inclusive Hospice and Palliative Care : A Practical Guide to Transforming Professional Practice, by Kimberly D. Acquiva.
Connecting palliative care and age‑friendly care to support what matters most
04/13/26 at 03:00 AMConnecting palliative care and age‑friendly care to support what matters most Institute for Healthcare Improvement; by Marian Grant; 4/8/26 ... The 4Ms Framework of an Age-Friendly Health System identifies the core subjects that should drive the care of older adults. The 4Ms (What Matters, Medication, Mentation, and Mobility) align with the approach of palliative care teams and are part of their comprehensive assessment. Age-friendly leaders and team members can use the expertise of palliative care colleagues to implement the 4Ms. Editor's Note: Click here for a great graphic of this "4Ms Framework." It states, "For related work, this graphic may be used in its entirety without requesting permission. Graphic files and guidance at www.ihi.org/AgeFriendly.
Racial disparities in non-stigmatized supportive care medication use in pancreatic cancer
04/11/26 at 03:25 AMRacial disparities in non-stigmatized supportive care medication use in pancreatic cancerJournal of Pain & Symptom Management; by Olga Monika Trejos Kweyete, Chardaé Whitner, David L. Deremer, Yi Guo, Jiang Bian, Lisa Scarton, Sherise C. Rogers, Diana J. Wilkie, Xiwei Lou, John M. Allen; 3/26Pancreatic cancer (PC) is associated with a high symptom burden that contributes to reduced health-related quality of life (HRQoL) and adverse clinical outcomes. This study examined racial and ethnic differences in the use of non-stigmatized SCMs [supportive care medications] during end-of-life care among patients with PC. SCM use was defined as at least one outpatient prescription claim for antiemetics, appetite stimulants, cognitive aids, headache aids, or sleep aids. Racial and ethnic disparities persist in the use of non-stigmatized SCMs among patients with PC at the end of life. These findings extend prior evidence on inequities in cancer symptom management and underscore the need for interventions that promote equitable access to supportive care medications across diverse populations.
Spiritual distress screening by nurses to increase comprehensive spiritual support of patients
04/11/26 at 03:10 AMSpiritual distress screening by nurses to increase comprehensive spiritual support of patientsJournal of Hospice & Palliative Nursing; by Nair, Archana; Patterson, Dorothy; Hauver, Bethany; Labadie, Chelsey; 4/26This project aimed to address a gap in nurses’ awareness of spiritual care and comprehensive spiritual support of patients in a breast oncology clinic at a National Cancer Institute (NCI)-designated Comprehensive Cancer Center through interdisciplinary collaboration with chaplaincy. Following education, nurses screened patients during their initial visit to the breast surgical oncology clinic who were experiencing moderate to severe distress for related existential themes of distress using an assessment tool and referred them to chaplaincy or social work based on the screening results. Nurse-initiated chaplain referrals increased significantly during the study period, with the most common distress themes being stress, hopes/fears, and assistance/help. Patient acceptance of referrals averaged 18.7% for chaplaincy and 33.1% for social work. By enhancing nurses’ understanding of spiritual care and the role of chaplaincy, the clinic was able to improve the provision of comprehensive spiritual support, contributing to holistic patient care.
End-of-life decisions for unrepresented patients: Is the best interest standard best? Is the medical futility standard futile?
04/11/26 at 03:00 AM
Sovereign Hospice shares what MS families should know about palliative care
04/10/26 at 03:00 AMSovereign Hospice shares what MS families should know about palliative care Press Services, Dallas/Fort Worth, TX; Press Release; 4/9/26 As National Healthcare Decisions Day approaches on April 16, 2026, Sovereign Hospice, a service area business based in Aubrey, Texas, is drawing attention to the care options available to families affected by multiple sclerosis. MS is a complex, progressive neurological condition, and many families reach critical decision points without a clear picture of what palliative care or hospice care can offer them.
Challenges in the end-of-Life care for patients with severe persistent mental illness: a case series
04/09/26 at 03:00 AMChallenges in the end-of-Life care for patients with severe persistent mental illness: a case series Psychogeriatrics; by Kaushadh Jayakody, Isha Bajaj, Doug Blomeley; 4/7/26 Conclusions: ... This study emphasises the importance of improved clinician training, clearer referral pathways and integrated care models in addressing this disparity. Implementing these measures will aid in addressing longstanding inequalities and ensure individuals with SPMI receive appropriate and timely palliative and EOL care.
How does Parkinson’s progress? End-stage symptoms and what to expect
04/09/26 at 03:00 AMHow does Parkinson’s progress? End-stage symptoms and what to expectMass General Brigham; by Todd M. Herrington, MD, PhD; 4/7/26 The journey with Parkinson’s disease looks extremely different from person to person. ...
How does hospice care adapt to different home environments?
04/09/26 at 02:00 AMHow does hospice care adapt to different home environments? Healthcare Business Today; by Editorial Team; 4/7/26 There isn’t just one way to do hospice care at home. Every home has its own noise level, layout, privacy restrictions, and rhythm of care, so the care team adapts to the space instead of making the space fit the care. ... Care Adjustments That Fit Real Homes
Quality improvement project: Implementing a mortality screening tool post hospital discharge to guide goals of care conversations and improve hospice admissions
04/08/26 at 03:00 AMQuality improvement project: Implementing a mortality screening tool post hospital discharge to guide goals of care conversations and improve hospice admissions Geriatric Nursing; by Chelsea Goston, TeriAnn Benson, Heather Coats; 4/2/26 online ahead of print Problem: Bloom Healthcare has insufficient identification and under use of hospice services for eligible patients with chronic conditions. This gap leads to unnecessary hospitalizations, high costs, and suboptimal end-of-life experiences. ...Conclusions: The prognosis screening tool effectively facilitates timely hospice admissions and goals of care conversations in home-based care settings, enhancing end-of-life care and patient centered outcomes.
National Healthcare Decisions Day (NHDD) — April 16
04/06/26 at 03:00 AMNational Healthcare Decisions Day (NHDD) — April 16 The Conversation Project - Institute for Healthcare Improvement; retrieved from the internet 4/3/26National Healthcare Decisions Day (NHDD) exists to inspire, educate and empower the public and providers about the importance of advance care planning.
‘Startling’: Palliative care services often not provided for severe brain metastases
04/06/26 at 03:00 AM‘Startling’: Palliative care services often not provided for severe brain metastases Healio; by Josh Friedman; 3/3/26 Half of patients with the most severe brain metastases may not be receiving palliative care consultations. Those who do have a significantly higher likelihood of filling out advance directive documentation and getting hospice care, and they have similar OS as those who did not receive consultations. ... “We have to rephrase the word fighting,” [Rohit Singh, MD, medical oncologist and assistant profess at University of Vermont] said. “I tell my patients, you’re not giving up fighting [getting palliative care]. You’re fighting for what’s better for you. You’re fighting for your quality of life. That’s you making it better. You’re not giving up anything. You are making sure whatever time we have aligns with your goals.”Editor's Note: Powerful communication from Dr. Singh. Reframing “fighting” can serve as a catalyst for alignment—across patients, families, and care teams. Palliative care isn’t surrender; it’s a deliberate choice to prioritize what matters most.
