Literature Review
All posts tagged with “Clinical News | Advanced Illness Management News.”
H.R.9703 - Improving access to transfusion care for hospice patients act of 2026
07/21/26 at 03:00 AMH.R.9703 - Improving access to transfusion care for hospice patients act of 2026 U.S. Congress.gov, House Ways and Means Committee; sponsored by Rep. Debbie Dingell (D-MI-6); bill introduced 7/15/26 H.R. 9703: To require the Center for Medicare and Medicaid Innovation to test allowing blood transfusions to be paid separately from the Medicare hospice all-inclusive per diem payment.
“I wish to be in the same room as my wife so I can hold her hand”: CalvertHealth grants husband’s final wish
07/21/26 at 02:00 AM“I wish to be in the same room as my wife so I can hold her hand”: CalvertHealth grants husband’s final wishThe Baynet, Calvert County, MD; by CalvertHealth; 7/19/26 It was one final wish Phillip “Phil” Pfanschmidt shared after learning he had terminal cancer. Just days earlier, his wife of more than 66 years, Joyce “Joy” Pfanschmidt, had entered hospice care at CalvertHealth Medical Center. Now, Phil had entered hospice as well. When members of the palliative care team asked about his wishes, he didn’t hesitate.He wanted to be with Joy.Caregivers across CalvertHealth worked together to make that wish a reality. Phil was reunited with Joy, and the couple spent precious moments together, hand in hand. Less than two hours later, Joy peacefully passed away with her hand resting on Phil’s arm.
An updated analysis of serious health-related suffering from 2021 to 2023
07/20/26 at 03:00 AMAn updated analysis of serious health-related suffering from 2021 to 2023 Journal of Pain and Symptom Management; by Afsan Bhadelia, Xiaoxiao Jiang Kwete, Tania Pastrana, Héctor Arreola-Ornelas, Jinfeng Ding, Oscar Méndez-Carniado, Lukas Radbruch, William E Rosa, Hongliang Tao, Valentina Vargas Enciso, Felicia Marie Knaul; 7/15/26 Results: Between 2021 and 2023, global serious health-related suffering (SHS) grew by 3.9% - outpacing population growth (1.8%) - driven by sharp increases in upper-middle-income countries (UMICs) (5.5%) and high-income countries (HICs) (5.2%) and notable condition-specific increases in SHS associated with lung disease (18.2%), inflammatory disease of the central nervous system (11.4%), and dementia (7.9%). Moreover, increases in SHS due to cancer were particularly stark in LICs (17.8%), while injuries markedly rose in HICs (15.9%).
Personal experience fuels Jeannie Meyer's commitment to helping the homeless die with dignity
07/20/26 at 03:00 AMPersonal experience fuels Jeannie Meyer's commitment to helping the homeless die with dignity UCLA Health; by Sandy Cohen; 7/15/26 The UCLA Health palliative care nurse is a national advocate for recording end-of-life wishes for unhoused individuals. Jeannie Meyer, MSN, didn’t realize she was homeless as a child. She thought everyone moved from place to place, hotel to hotel, and never answered the phone or the door in case a bill collector was on the other side. “I knew what ‘eviction notice’ meant when I was 5 years old,” she says. Those childhood experiences made her empathetic, but it was the pain of learning that her alcoholic father died on Skid Row that inspired Meyer, a palliative care nurse at UCLA Health, to advocate for advance care planning for homeless people.
Emotional and ethical impacts on healthcare professionals performing cardiopulmonary resuscitation
07/18/26 at 03:40 AMEmotional and ethical impacts on healthcare professionals performing cardiopulmonary resuscitationAmerican Journal of Hospice & Palliative Medicine; by Patrick J. Macmillan, Susan Hughes, Dumindra Gurusinghe, Allison Go, Chase Lancaster, Iris Price; 6/26Many studies exist outlining poor outcomes related to cardiopulmonary resuscitation (CPR) administered to patients who are elderly and/or have comorbid medical conditions with sudden cardiac arrest. Studies show only 10% of patients with out-of-hospital cardiac arrest and initial asystole survive until they reach the hospital. Less than 5% survive until hospital discharge with good neurologic function. This study presents data that suggests that there is an association between moral distress and performing CPR on individuals who are elderly with multiple comorbid medical conditions. More than sixty percent of our respondents were challenged emotionally during these types of code situations, and a similar number of healthcare workers felt the code could be considered unethical.
Restarting medications after deprescribing in adults discharged from hospital to skilled nursing
07/18/26 at 03:35 AMRestarting medications after deprescribing in adults discharged from hospital to skilled nursingJAMA Network Open; by Thomas J. Reese, Sandra F. Simmons, Eduard E. Vasilevskis, Emily K. Hollingsworth, Matthew S. Shotwell, Amanda S. Mixon; 6/26Question: Among older adults discharged to skilled nursing facilities (SNFs) after hospital-initiated deprescribing, what is the frequency and timing of medication restarts ...? In this cohort study analyzing data from 2 randomized trials with a total of 598 participants, 15.9% of deprescribed medications were restarted. Higher health literacy and longer intervention exposure were associated with fewer restarts, whereas more prescribers, higher number of baseline medications, and fewer pharmacies were associated with medication restarts; restart during the SNF stay was associated with greater 90-day hospital readmissions. Conclusions: In this cohort study, approximately 1 in 6 deprescribed medications were restarted within 90 days, with nearly half occurring soon after SNF discharge. Patient factors and markers of care fragmentation were associated with restart, suggesting that enhancing transitional care and postdischarge support may improve the durability of hospital-initiated deprescribing.
Toward home cancer care—Reducing time toxicity for the right patients with prostate cancer
07/18/26 at 03:30 AMBreast-directed palliative radiotherapy in metastatic and inoperable locally advanced breast cancer: From clinical efficacy to psychosocial impact
07/18/26 at 03:25 AM[Spain] Post-recurrence management of malignant glial brain tumors: Therapeutic strategies, evidence and limitations, palliative care, terminal sedation, and end-of-life considerations
07/18/26 at 03:05 AMWhen technology meets its limits: Integrating Medical Aid in Dying with withdrawal of a left ventricular assist device
07/18/26 at 03:00 AMVITAS medical director: improve hospice referrals for cancer patients
07/17/26 at 03:00 AMVITAS medical director: improve hospice referrals for cancer patients Hospice News; by Jim Parker; 7/16/26 Hospice utilization among some cancer patients is leveling off and slowing growth, but healthcare providers and medical educators can adopt certain strategies to move the needle. This is according to Dr. Ileana Leyva, regional medical director for VITAS Healthcare. ... Neuro-degenerative, lung and cardiac diseases are gaining more prominence among hospice diagnoses. In 2024, senile degeneration of the brain was the most common terminal diagnosis among Medicare decedents at 9%, followed by Alzheimer’s at 6%, according to the National Alliance for Care at Home. Chronic obstructive pulmonary disease rounded out the top three at 4.2%. Lung cancer was the 11th most common diagnosis that year, at 2.1%, the highest rate for any form of cancer. Hospice News spoke with Leyva about the barriers that prevent cancer patients from accessing hospice sooner and what stakeholders can do to drive improvement.
Nurse practitioner: my patient qualified for hospice. I couldn’t get her there
07/17/26 at 03:00 AMNurse practitioner: my patient qualified for hospice. I couldn’t get her there The Examiner News; by Diane Pagan; 7/15/26 ... I’ve been Marie’s primary care nurse practitioner for seventeen months. She was referred to me at the time by her PCP because she could no longer physically manage going into the office. She suffered from dementia and her gait was worsening ... Marie’s daughter chose a hospice agency close to her home. The agency reviewed my referral and notes and accepted Marie into their program. The next step was to send them a Certificate of Terminal Illness (CTI) stating that Marie had a terminal illness with an anticipated life expectancy of 6 months or less. Then the obstacle arose. I couldn’t sign the form. ... The inability of nurse practitioners to sign a CTI does not stem from their lack of education or clinical expertise in determining when a patient is nearing end of life. The restriction is rooted in federal Medicare law, written more than 40 years ago, when the role of nurse practitioners was very different than it is today.
Japan pushes to expand children’s hospices through new consultation service
07/16/26 at 03:00 AMJapan pushes to expand children’s hospices through new consultation service Europe Says, Osaka, Japan; Press Release; 7/15/26 For children with life-limiting illnesses or severe disabilities, even simple experiences such as playing freely or having friends stay overnight can be difficult. Children’s hospices aim to make such experiences possible while also providing support for their families, and efforts are underway to expand the number of these facilities in Japan. Tsurumi Children’s Hospice in Osaka, which opened in 2016, launched a consultation service in April to help people establish similar facilities across the country.
Cardiologists treating increasingly complex patients as America ages
07/16/26 at 03:00 AMCardiologists treating increasingly complex patients as America ages Medscape; by Sarah Amandolare; 7/14/26 ... Heart failure (HF) affects 15%-20% of adults over 80, according to the American Heart Association/American College of Cardiology/Heart Failure Society of America Guideline for the Management of Heart Failure. HF with preserved ejection fraction (HFpEF), which becomes more likely after age 80, is related to other common conditions of aging, including hypertension, chronic kidney disease, diabetes, and obesity. “Almost by definition, most people that have HFpEF have multiple comorbidities,” Hummel said. “You have to account for a lot of them when you’re thinking about how to help the patient best.” This population also has higher chances of developing dementia and frailty, which affect 35% of adults age 90 and older and 31% of octogenarians, respectively. Older adults hospitalized for HF also have a high likelihood of polypharmacy; 68% take 10 or more medicines.
When the expert becomes the daughter: lessons from my father's hospice journey
07/15/26 at 03:00 AMWhen the expert becomes the daughter: lessons from my father's hospice journey Provider Insights; by Annette Lee; 7/10/26 Part 4: Leadership Lessons are often Learned at the Bedside The most meaningful leadership lessons are often learned at the bedside. During my father's sixteen-day hospice journey, I experienced hospice not as a consultant, but as a daughter. These takeaways highlight the leadership decisions, clinical practices, and compassionate moments that transformed exceptional hospice care into an unforgettable experience for our entire family. My hope is that they inspire hospice leaders to continually ask not only, "Are we providing excellent care?" but also, "How will this family remember us?"Editor's Note: Click here for an excellent table, "Hospice Leadership Lessons Learned on the Other Side," with columns for "What Our Family Experienced," "Leadership Lesson," "Action for Your Hospice." It fleshes out 16 concise, practical first-hand lessons, such as "A trusted first conversation"; "Compassion over pressure"; "Information given in manageable pieces" and more.
Most Americans prefer to die at home, but the US healthcare system often prevents it
07/15/26 at 03:00 AMMost Americans prefer to die at home, but the US healthcare system often prevents it ArcaMax; by Karen Lutfey Spencer; 7/14/26 Ask people what they want at the end of their lives, and overwhelmingly the answers will revolve around comfort, dignity and time at home with loved ones. Yet the U.S. healthcare system often thwarts these wishes. Most Americans say they want to die at home, but only one-third do. What could be an intentional last chapter may instead become a roller coaster of hospitalizations and decisions made with incomplete information. News headlines reflect the challenges of facing the end of life in crisis mode. ... Unfortunately, these crisis scenarios are happening to millions of families each year.
Advance Care Planning is becoming quality data: why the conversation must be documented clearly
07/14/26 at 03:00 AMAdvance Care Planning is becoming quality data: why the conversation must be documented clearly ICD10monitor, Inver Grove Heights, MN; by Penny Jefferson, MSN, RN, CCDS, CCDS-O, CCS, CDIP, CRC, CHDA, CRCR, CPHQ, ACPA-C; 7/13/26 Advance care planning has always been personal. It is one of the most human conversations that occurs in healthcare. It asks patients, families, caregivers, and clinicians to talk about goals, values, fears, treatment preferences, and what should happen if the patient is no longer able to speak for themselves. But advance care planning is also becoming something else: quality data. In the FY 2027 IPPS/LTCH PPS proposed rule, the Centers for Medicare & Medicaid Services (CMS) proposes adopting an Advance Care Planning electronic clinical quality measure, or eCQM, beginning with the FY 2030 payment determination. CMS also proposes adopting the same eCQM in alignment with the Medicare Promoting Interoperability Program and adopting an Advance Care Planning eCQM for the PPS-Exempt Cancer Hospital Quality Reporting Program beginning with the FY 2030 program year. Editor's Note: FY 2027 Hospital Inpatient Prospective Payment System (IPPS) and Long-Term Care Hospital Prospective Payment System (LTCH PPS) Proposed Rule — CMS-1849-P
Community gathers to strike out cancer and honor loved ones during awareness event
07/14/26 at 03:00 AMCommunity gathers to strike out cancer and honor loved ones during awareness event WUFT | PBS/NPR, Gainesville, FL; by Curan Ahern; 7/12/26 Just over one year ago, Corey Williams received the news everyone dreads: a loved one being diagnosed with cancer. A local artist, poet, videographer and father of four, Williams found out in May 2025 his fiancée, Iya Burkett, had cancer. Within a month, Williams saw the disease rapidly progress. ... Williams faced one of the worst realities a man can experience: Burkett died, and he was not prepared. ... Williams also lost his mother to cancer three years prior, leaving him to face the world without the two most important women in his life. After wrestling with the losses, he planned community events to commemorate his loved ones, raise awareness and start uncomfortable conversations about preparedness — conversations that often need to be had but are avoided. ... Along with friends and family, members of Haven Hospice’s bereavement program, Healing Hearts, showed up to support Williams and his family. Burkett worked for Haven Hospice for 13 years, and the organization helped Williams transition into life without his fiancée.
Utilization of hospice and palliative care among patients with mental illness: a retrospective cohort study
07/14/26 at 03:00 AMUtilization of hospice and palliative care among patients with mental illness: a retrospective cohort study Journal of the American Geriatrics Society; by Sean O'Mahony, Utpol Das, Yuanyi Zhang, Anirudh S. Babu, Mukaila A. Raji, James Gerhart, Yong-Fang Kuo; 7/11/26 Background: Individuals with mental illness (MI) experience premature mortality and health disparities, yet little is known about their access to hospice and palliative care. Conclusions: Mental illnesses were associated with complex hospice utilization patterns characterized by longer length-of-stay, higher likelihood of enrollment far from death, lower likelihood of enrollment within 180 days before death, and lower palliative care consultation use in some groups.
Relationships between advance care planning engagement, patients’ religious practices, and spirituality
07/13/26 at 03:00 AMRelationships between advance care planning engagement, patients’ religious practices, and spirituality American Journal of Hospice and Palliative Medicine; by Robyn M. Axel-Adams, MS, MDiv, BCC, HEC-C, Emily Fox Ludden, MDiv, MGS, and Alexia M. Torke, MD; 7/2/26Background: Research has shown that people who consider themselves religious have a lower advance directive (AD) completion rate. However, advance care planning (ACP) includes a broader range of activities that are important in determining medical treatments. ... Conclusions: In contrast to prior findings of lower AD completion in more religious individuals, this study found that higher religiosity and spirituality are associated with higher ACP engagement. These results suggest ACP opportunities offered for religious congregations or spirituality focused communities may be especially successful.
[Italy] The Integrated Palliative Outcome Scale (IPOS): A tool for assessing needs and shaping individualized care plans in hospice settings
07/11/26 at 03:00 AMAddressing the emotional and psychologic toll of a cancer diagnosis
07/08/26 at 03:00 AMAddressing the emotional and psychologic toll of a cancer diagnosis Cancer Therapy Advisor; by Sabrina Martinez, MS and Jason L. Harris; 7/7/26 Patients with cancer experience distress not only from receiving a jarring diagnosis, but also a treatment regimen that can be difficult and debilitating, additional challenges to relationships that might be fraught already, significant financial stress, and the reality of death. Many also experience thoughts of fear of recurrence, stress, depression, anxiety, self-consciousness, and loneliness. The mental and emotional burden of cancer can be as difficult as enduring the disease itself. We spoke with oncologists and experts in psycho-oncology to get their perspectives on delivering “bad” news, working with loved ones and caregivers, resources for those involved in the patient’s cancer journey, and survivorship issues that should be addressed.
Dignity therapy: What matters most in end-of-life care?
07/08/26 at 03:00 AMDignity therapy: What matters most in end-of-life care? Medscape; by Irene Salvetti, MD; 7/7/26 ... Many patients, especially in advanced stages of illness, express the fear of no longer being themselves, of becoming a burden, or of losing their sense of meaning, role, and memory. In these experiences, suffering is not merely physical but also related to identity, relationships, and spirituality. The way patients perceive themselves as viewed by others is an important determinant of their sense of dignity. Dignity therapy was developed to give voice to this often-overlooked aspect of the experience of illness. ... Harvey Max Chochinov introduced dignity therapy as a brief psychotherapeutic intervention for individuals with advanced or terminal illness, with the goal of preserving a sense of personal dignity during times of frailty, dependence, and the approach of death.
[Canada] Palliative care is a fundamental human right
07/07/26 at 03:00 AM[Canada] Palliative care is a fundamental human right TroyMedia; by Rebecca Vachon; 7/6/26 ... Despite the fact that everyone dies, and despite the fact that something like 180,000 Canadians and their families interact with some form of end-of-life care in a year, I keep confronting the perception that palliative care is a niche issue, not one of broad interest. But this reaction only underscores the poll's findings: namely that many Canadians continue to misunderstnad what palliative care is and isn't. On a more positive note, however, when Canadians do understand it, palliative care is, in fact, identified as a priority issue.
Civility requires the willingness to engage - a dispute with a neighbor revealed how much motivation matter
07/06/26 at 03:00 AMCivility requires the willingness to engage - a dispute with a neighbor revealed how much motivation matter The Conversation; by Deborah Mower; 7/2/26 ... I’m an ethicist and moral psychologist who researches moral conviction and civility, which I treat as a respectful approach toward conflict resolution. I’ve spent my career studying misunderstandings and disagreements. I teach students ways to better navigate differing interpretations, complex conversations, moral dilemmas and bitter disputes. Civility research matters for ethics education across every discipline, especially fields such as law or medicine where contentious political and moral disagreements are likely to arise. Consider, for instance, the tense conversations between healthcare professionals who disagree about whether the best course of treatment for a patient is to turn to hospice services.
