Literature Review
All posts tagged with “Clinical News | Advanced Illness Management News.”
The missing middle in healthcare—and why it matters | part one
06/11/26 at 03:00 AMThe missing middle in healthcare—and why it matters | part one Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Bridget Sumser and Sonya Dolan; 6/20/26 What happens between a life-changing diagnosis and hospice care? In Part One of this thought-provoking conversation, Chris Comeaux welcomes Mettle Health co-founder Sonya Dolan and Director of Counseling & Programs Bridget Sumser to explore what they call healthcare’s “missing middle.” ... Together, they unpack how Mettle Health was created to provide a different kind of support: one centered on accompaniment rather than treatment, resilience rather than answers, and human connection rather than healthcare transactions.
Father with terminal illness fights to attend MHSAA championship to see son play
06/08/26 at 03:00 AMFather with terminal illness fights to attend MHSAA championship to see son play Northeaset Mississippi Daily Journal, Tupelo, MS; by Caleb McCluskey; 6/6/26 From the time Carter Barefoot, 17, could walk, he was playing baseball, especially with his father, Alan Barefoot, who played Division I baseball in college. But illness has limited his father’s ability to enjoy the game they have shared throughout their lives. ... “He never missed a game,” Carter said. After doctors diagnosed Alan, 55, with terminal cancer and admitted him to Sanctuary Hospice, he physically could not be there for most of Carter’s junior-year season. Sanctuary made it happen, arranging for Alan to attend the playoffs in Pearl, where he watched his son’s Mooreville team become Class 4A state champion. It meant the world to Carter to see his dad there.
Challenging case: Navigating end-of-life in neuro-inclusive cancer care
06/06/26 at 03:35 AMSupporting complex decision making in dysphagia management within palliative rehabilitation
06/06/26 at 03:30 AM[Italy] Understanding the evolving role of early palliative care in myelodysplastic syndromes: A 2026 narrative review
06/06/26 at 03:05 AM[Italy] Understanding the evolving role of early palliative care in myelodysplastic syndromes: A 2026 narrative reviewAnnals of Hematology; by Pasquale Niscola, Valentina Gianfelici, Marco Giovannini, Carla Mazzone, Maria Ilaria Del Principe; 5/26Myelodysplastic Syndromes/Neoplasms (MDS) are a heterogeneous group of blood cancers characterized by a broad spectrum of symptoms and varying impacts on quality of life (QoL). Although the integration of early PC care has long been recognized as an essential part of comprehensive management for patients with solid tumors, experience in the context of MDS is still limited. However, symptom control, QoL, advanced care planning goals, the reduction of aggressive therapies, intensive care use, including intubation before death, and resource use in the end-of-life (EOL) phase are critical issues that are enhanced through early PC in MDS management. Additionally, integrating standard hematological measures with early PC leads to fewer visits and hospital admissions near the EOL, particularly during the last 30 days. Moreover, patients with early PC die at home or in hospice care at a rate nearly in line with their preferences.
We couldn't afford to pay for my mom's dementia assisted living anymore. She moved into a tiny house next door to me.
06/04/26 at 03:00 AMWe couldn't afford to pay for my mom's dementia assisted living anymore. She moved into a tiny house next door to me. Business Insider; as told to Noah Sheidlower; 5/31/26 This as-told-to essay is based on a conversation with Lori Bufka, 64, who is caring for her mother with dementia in Arizona. Assisted living became too expensive for her mother, so Bufka moved her into a trailer next to their home, where her mother would have enough space and safety. This interview has been edited for length and clarity. Editor's Note: From this essay, "She went into hospice care, and we hired someone to come for a few hours a week. It was supposed to be $37 for two hours, but when I got the bill, they tacked on mileage, so it became $92. We figured it wasn't worth it, so now hospice volunteers visit every now and then, and hospice covers medically necessary appointments. ..."
Symptom-monitoring app helps patients with advanced cancer maintain quality of life
06/04/26 at 03:00 AMSymptom-monitoring app helps patients with advanced cancer maintain quality of life The ASCO Post; by The ASCO Post Staff; 6/2/26 Use of a mobile app for proactive symptom monitoring helped patients with advanced cancer who were no longer receiving active anticancer treatment maintain their quality of life and reduced hospital utilization, according to findings from a randomized controlled trial presented at the 2026 ASCO Annual Meeting. The study evaluated SUPPORT+, a digital symptom-monitoring platform designed for patients receiving palliative care. The app sends weekly automated reminders prompting patients—or their caregivers—to complete a brief questionnaire about physical and emotional symptoms. Based on responses, the app provides self-management recommendations for mild or moderate symptoms and automatically alerts palliative care nurses when severe or worsening symptoms are reported. Nurses then follow up with patients through the app or by telephone.
Why physicians need to learn cannabis medicine now
06/03/26 at 03:00 AMWhy physicians need to learn cannabis medicine now MedPageToday's KevinMD.com; by Janice Makela, MD; 5/31/26 I am a geriatrics and hospice and palliative medicine physician with over 20 years of experience. Over the years, I have seen how cannabis has helped my patients, and I am very comfortable with my patients using cannabis. But like many physicians, I was not formally trained in cannabis medicine. ... Since then, I’ve learned a lot about cannabis. And I also learned that ... most doctors have very little knowledge about cannabis or the endocannabinoid system. ... As new policies roll out, health care providers need to take time to educate themselves about cannabis. Otherwise, how can we help our patients?
Why pre-admission is hospice’s next operational advantage
06/03/26 at 03:00 AMWhy pre-admission is hospice’s next operational advantage Hospice News; by Jack Silverstein; 5/29/26 When Dr. Darius Joshi named his San Jose, California-based hospice Redwood Hospice, the name had more significance than simply proximity to Redwood National and State Parks. [Rich metaphor of redwood trees for quality hospice care as related to referrals and admissions ...] ... Inside the rise of the pre-admission platform: three areas of improvement:
Is AI better for patients?
06/03/26 at 03:00 AMIs AI better for patients? KFF | This Business of Health; podcast hosted by Chip Kahn and with guest Patrick Conway, MD, MSc; 6/2/26 Is AI Better for patients? What is changing on the ground? Chip talks with Dr. Patrick Conway, Chief Executive Officer of Optum, a health services and technology business under parent company, UnitedHealth Group. They discuss how to ensure the health care industry’s use of AI serves patients first, particularly when the same company bears financial risk and builds the AI that decides who gets care. They also discuss whether use of AI can make value-based care the dominant payment framework, after two decades of policymaker support for the model.
‘Behind the blue’: social work's Abbie Latimer on how to support those who are suffering
06/02/26 at 03:00 AM‘Behind the blue’: social work's Abbie Latimer on how to support those who are suffering UKNow | University of Kentucky HealthCare, Lexington, KY; by Kody Kiser; 6/1/26 When someone we care about is going through something painful, many of us struggle with the same question: what do I say? On this episode of “Behind the Blue,” Abbie Latimer, Ph.D., an assistant professor in the University of Kentucky College of Social Work, discusses hospice and palliative care, serious illness communication and how people can better support one another during difficult moments. Latimer also holds an affiliate appointment in the UK College of Medicine’s Department of Internal Medicine, Division of Palliative and Supportive Care.
Sovereign Hospice releases guidance on home setup for end-of-life care
06/02/26 at 03:00 AMSovereign Hospice releases guidance on home setup for end-of-life care NEWSnet, Aubrey, TX; by Sovreign Hospice; 5/31/26 Sovereign Hospice, a Dallas-Fort Worth-based hospice and palliative care provider, has released practical guidance for families preparing to receive end-of-life care at home. ... The guidance covers room selection, durable medical equipment placement, medication organization, caregiver strategies, and a clear explanation of the services hospice offers in a home setting. It is directed at families across the Dallas-Fort Worth Metroplex who are beginning to consider hospice at home service for a loved one with a life-limiting illness.
Compassion fatigue and spiritual care competence amongst palliative care nurses: a moderated mediation model of care quality and job satisfaction
06/02/26 at 03:00 AMCompassion fatigue and spiritual care competence amongst palliative care nurses: a moderated mediation model of care quality and job satisfaction Journal of Clinical Nursing / Early View; by Enise Sürücü, Funda Veren, Hülya Kulakçı Altıntaş, Büşra Baş, and Zeynep Acar Demir; 5/30/26 Impact:
First do no harm: communication surrounding non-beneficial treatments
06/01/26 at 03:00 AMFirst do no harm: communication surrounding non-beneficial treatments American Journal of Hospice and Palliative Medicine; by Cassie Stanzler, MD, Adam Marks, MD, MPH, and Laura Taylor, MD, MSc; 5/21/26 Despite a consensus in the medical community that clinicians should not offer non-beneficial treatments (NBTs) to their patients, little guidance exists on the particular communication needs around this fraught topic. While intended in the spirit of non-maleficence, setting limits around NBTs can be seen by patients and families as abandonment, resulting in conflict. In this paper, we propose a framework to guide Palliative Care clinicians in communicating about these complex issues with patients and families. ... Our framework emphasizes proactive relationship building with patients and families, close attention to their values, and compassionate limit-setting when medically appropriate.
Early palliative integration for heart failure
06/01/26 at 03:00 AMEarly palliative integration for heart failure Medscape; by Karel De Pourcq, PhD; 5/27/26 ... Chronic conditions such as heart failure often bring relentless symptoms, repeated hospital admissions, and deep emotional and social effects for patients and their families. Bringing a palliative perspective into care widens the focus beyond disease-directed treatments to include ongoing symptom relief, emotional support, and help for overburdened caregivers. It also promotes early, shared planning about treatment intensity — deciding when worsening episodes can be managed at home vs when hospitalization is needed — and clarifying care goals as the illness progresses.
What I've learned at the bedside: Jewish wisdom for the time before death
06/01/26 at 03:00 AMWhat I've learned at the bedside: Jewish wisdom for the time before death ReformJudaism.org - Jewish Life In Your Life; by Ptarmigan Emery; 5/27/26 I have been a hospice nurse for 10 years. ... I am also a Jew, though not a particularly observant one. ... What has surprised me is how often those two parts of myself, the nurse and the Jew, have found each other in the same moment at the bedside. Jewish tradition has a great deal to say about the time before death. ... In traditional Jewish law, a person who is actively dying has a name: a goses. The rabbis gave this passage its own category, saying: this time is sacred and deserves our full attention. ...Editor's Note: Sacred Time. Without rushing or turning away, this thoughtful reflection explores how Jewish wisdom honors the moments before death as deserving presence, meaning, and our fullest attention.
New Iowa law allows ‘adult close friend’ to make end-of-life medical decisions
06/01/26 at 03:00 AMNew Iowa law allows ‘adult close friend’ to make end-of-life medical decisions KCRG-9 ABC, Iowa City, IA; by Lacey Reeves; 5/28/26 Starting in July, a close adult friend can make end-of-life medical decisions for someone who is unable to make them themselves under a new Iowa state law. When a patient can’t make medical decisions for themselves, a hierarchy establishes who can make the decisions for them. Typically a spouse, adult child or adult sibling of the patient can make those decisions. “Not everybody has a family member who is available, willing, capable to make decisions for them,” said Sara Krieger, CEO of Iowa City Hospice. Iowa City Hospice said it has been working for years to add “close adult friend” to that list through legislation.
Ketamine for depression in serious illness: Evidence, safety, and practical approaches
05/30/26 at 03:10 AMKetamine for depression in serious illness: Evidence, safety, and practical approachesJournal of Pain & Symptom Management; by Paul Noufi, Joshua B. Borris, Danielle Chammas, Cara L. McDermott, Nneka N. Ufere, Jason A. Webb, Daniel Shalev; 4/26Patients with serious illness and short prognoses often experience depression and suicidal ideation. Traditional antidepressants are limited by delayed onset, creating a need for rapidly acting therapies. Ketamine and esketamine [nasal spray] offer the strongest evidence among rapid-acting antidepressants and may be preferred when urgent symptom relief is needed. However, rigorous psychiatric trials in serious illness are lacking. Clinicians should consider prognosis, access to Risk Evaluation and Mitigation Strategies-certified esketamine programs or equivalent regulatory frameworks outside the US, and the need for an appropriate maintenance regimen when integrating ketamine into palliative care depression management.
[Turkey] A mobile health application for controlling symptoms of chronic obstructive pulmonary disease: A randomised controlled trial
05/30/26 at 03:05 AMNurse and provider perceptions of palliative care
05/29/26 at 03:00 AMNurse and provider perceptions of palliative care Nursing Management; by Eydie Tipton, Tracy Viers, and Chelsea Wilson; 5/1/26 Conclusions: Findings suggest that knowledge gaps may not be the primary barrier to palliative care (PC) utilization. Instead, systemic and cultural factors likely contribute to under-referral. Leadership-driven strategies, including standardized referral processes, enhanced interprofessional education, and supportive clinical environments, may help translate knowledge into consistent practice.Editor's Note: Yes, real persons are behind each research article we post. Read this community's pride in the palliative care nurses of Quincy, IL behind this study. Eydie, Tracy and Chelsea saw a need, developed a research project, and saw it through to publication: National journal publishes palliative care research by area nurses.
Signs it’s time for in-home healthcare: 11 warning signs
05/29/26 at 03:00 AMSigns it’s time for in-home healthcare: 11 warning signs U.S. News & World Report News; by Barbara Sadick; 5/27/26
Palliative care education boosts assisted living staff confidence, care quality for residents with dementia
05/28/26 at 03:00 AMPalliative care education boosts assisted living staff confidence, care quality for residents with dementiaMcKnights Senior Living; by Kimberly Bonvissuto; 5/27/26... Most assisted living staff members currently say they lack the training to engage in advance care planning, according to the researchers. The National Institutes of Health, which funded [this] study, said that the palliative care education intervention studied has the potential to be delivered more broadly among assisted living communities and could be vital in addressing workforce challenges in providing high-quality palliative and end-of-life care there.
Dying for a change: understanding compassionate release policies in the United States
05/27/26 at 03:00 AMDying for a change: understanding compassionate release policies in the United States ehospice; by Shivani Kaushki, PhD, MSSW; 5/25/26 As the United States prison population continues to age, the question of how society supports incarcerated individuals at the end of life has become increasingly urgent. ... Conducting a systematic review utilizing rigorous PRISMA guidelines, this study analyzed decades of research examining U.S. compassionate release policies, programs intended to allow terminally ill or severely debilitated individuals to spend their final days in the community instead of a correctional facility.
The dying dream of the dead to be at peace with life
05/26/26 at 03:00 AMThe dying dream of the dead to be at peace with life DW; by Hannah Fuchs; 5/22/26 Many people have vivid dreams shortly before death. Research suggests the dreams are not a sign of confusion — but may help both the dying and their loved ones make sense of loss. Known as End‑of‑Life Dreams and Visions (ELDVs), they often occur as dreams during sleep, and sometimes as visions while a person is awake. For those experiencing them, they can feel more vivid and real than ordinary dreams — and for those observing them from the outside, it can be unsettling. Medicine long dismissed ELDVs as episodes of sudden confusion (delirium) or as side-effects of medication. But today, the thinking is shifting.
7 dog breeds that can sense when their owner is about to die
05/25/26 at 03:00 AM7 dog breeds that can sense when their owner is about to die Doggodigest; by Gargi Chakravorty; 5/20/26 ... Stories of dogs refusing to leave their owner’s side during their final days or acting strangely before a loved one passes away have fueled curiosity about whether dogs truly possess a sixth sense about death, and scientific research has begun to explore this phenomenon, revealing that dogs’ extraordinary senses may allow them to detect subtle biological and behavioral changes in humans. Science suggests dogs may sense approaching death not through psychic ability but through scent. What follows isn’t mythology. It’s a look at seven dog breeds whose sensitivity, emotional intelligence, and extraordinary olfactory wiring make them especially attuned to the moments most of us can’t yet perceive.
