Literature Review
All posts tagged with “Clinical News | Advanced Illness Management News.”
Between crisis and comfort: Emergency Medical Services recognition and management of hospice patients: A cohort study
04/04/26 at 03:15 AMIncreasing access to pediatric palliative care in a large hospital system: Trials and triumphs from an APRN initiative
04/04/26 at 03:05 AMIncreasing access to pediatric palliative care in a large hospital system: Trials and triumphs from an APRN initiativeJournal of Hospice & Palliative Nursing; by Faith Kinnear; 4/26 According to the Pediatric Palliative Care Task Force formed in 2020 and hosted by the National Coalition for Hospice and Palliative Care, children with serious illness should have access to palliative care that meets the population’s unique needs. Taking care to assess needs, communicate with leadership teams, develop rapport with key stakeholders, and utilize the support staff already in place allowed for successful implementation of pediatric palliative care services at 2 satellite campuses over a 5-year span. Services included inpatient and outpatient patient care; ongoing family bereavement support; compiling staff resources and providing ongoing staff training in primary pediatric palliative care skills. Each satellite campus now has dedicated pediatric palliative care providers. This article outlines how the satellite palliative care programs were developed, the challenges and successes in the process, and the role of the APRN in program development.
“I just feel alone and by myself”: How adolescents experience loneliness when their parent has cancer
04/03/26 at 03:00 AM“I just feel alone and by myself”: how adolescents experience loneliness when their parent has cancer BMC Public Health; by Lydia Mckeown, Martin Dempster, Jenny Groarke & Lisa Graham-Wisener; 3/31/26... Adolescents experiencing parental cancer report intrapersonal loneliness and interpersonal loneliness across their peer group and family life. Healthcare professionals should identify if patients have young dependent children early on so they can support parents to provide age-appropriate information about cancer to their young people and signpost parents to relevant support for their children. Editor's Note: This need becomes even more urgent when a parent is dying. The Centers for Medicare & Medicaid Services Hospice Conditions of Participation reference “family” 423 times—an intentional reminder that hospcie care extends beyond the patient. Supporting parents as they support their children is both essential and expected.
QIM26-302: Hospice at the bedside: A Quality Improvement Initiative to improve end of life care and reduce inpatient mortality in a cancer center
04/02/26 at 03:00 AMQIM26-302: Hospice at the bedside: A Quality Improvement Initiative to improve end of life care and reduce inpatient mortality in a cancer center Journal of the National Comprehensive Cancer Network - JNCCN; by Matthew Murphy, Jacqueline Young, Hardik Thakkar, Sean Powell, Timothy Hembree, and David Buxton; 3/31/26 ... Patients dying in the hospital may not survive transfer to external hospice units. ... Integration of GIP Hospice beds into the hospital has streamlined delivery of timely, comprehensive EoL care for patients and bereavement support for families. The collaborative care model allows the hospital-based team to deliver care with active support from the hospice agency. Families express appreciation for the program, especially in situations when the patient is not stable for transfer.
Woman pushes for end-of-life care protections after murder charge dropped
04/02/26 at 03:00 AMWoman pushes for end-of-life care protections after murder charge dropped WRDW/WAGT, Augusta/Harlem, GA; by Liz Owens; 3/30/26 woman indicted for killing her mother with a lethal dose of morphine is pushing to change the law after prosecutors dropped the charge six months later. Rachel Waters returned to Harlem on what would have been her mother’s birthday to lay Marsha to rest and advocate for Marsha’s Law, which would provide legal protection for family members giving end-of-life care to dying loved ones. “Today is the first time I felt any meaningful sense of closure,” Waters said. “It’s very surreal. It was almost exactly a year ago that I came down to turn myself in after the indictment.”
Seniors who say they’re “not afraid of death” often still carry these quiet worries they don’t talk about
04/02/26 at 03:00 AMSeniors who say they’re “not afraid of death” often still carry these quiet worries they don’t talk about Bolde; by Julie Brown; 4/1/26 My grandmother said it so matter-of-factly that it almost stopped the conversation. ... "I'm not afraid of it," she said. "I've had a very good life. When it's time, it's time." And she meant it. I believed her completely. But then, a few minutes later, she mentioned almost in passing that she hoped she wouldn't "get confused" at the end.
Language preference is associated with goals-of-care communication and end-of-life care in dementia
04/01/26 at 03:00 AMLanguage preference is associated with goals-of-care communication and end-of-life care in dementia Journal of General Internal Medicine; by Lauren R. Pollack MD, MS, Lois Downey MA, Ruth A. Engelberg PhD, James Sibley BS, Linda K. Ko PhD, Kimiko Domoto-Reilly MD, MS, Lyndia C. Brumback PhD, Annie T. Chen PhD & Rashmi K. Sharma MD, MHS; 3/30/26 Background: People with dementia and preferred language other than English (PLOE) in the United States may face communication-related barriers to high-quality end-of-life care.Objective: Compare end-of-life care characteristics among people with dementia and PLOE versus those preferring English. ... [Efforts] to improve end-of-life care for those with PLOE might prioritize ED and hospital-based interventions, recognizing their critical safety-net functions, as well as ensure that people with dementia and PLOE and their families have sufficient cultural and linguistic support to engage in high-quality end-of-life communication with their healthcare providers.Editor's Note: Pair this with today's post, "Neenah pastor finds deeper calling after brother’s hospice journey."
Top ten tips palliative care clinicians should know about wound care
04/01/26 at 03:00 AMTop ten tips palliative care clinicians should know about wound care Journal of Palliative Medicine; by Nicole Dussault, Jared Morphew, Veronica Nwagwu, Brittany Gatta, Angela Richardson, Nancy Payne, E Foy White-Chu, Lidiette Wilson, Heather Dalton, Christopher E Winstead-Derlega, Katherine Ramos, Christopher A Jones; 3/30/26 ... In this article, we outline key tips for assessing and managing wounds, including understanding prognosis and goals of care, evaluating care settings, tailoring management to the underlying disease process, and addressing symptoms such as pain, odor, and psychosocial distress. A thoughtful, interdisciplinary approach is essential to reduce the physical and emotional burden wounds place on patients and caregivers.Editor's Note: As CMS implements the HOPE (Hospice Outcomes & Patient Evaluation) Tool as of October 1, 2025, skin and wound assessment becomes a visible quality marker in hospice—requiring structured documentation, ongoing reassessment, and clear alignment with patient goals.
Mike Schramm: 'The Pitt' and the doctrine of double effect
03/31/26 at 02:00 AMMike Schramm: 'The Pitt' and the doctrine of double effect 1819 News, Birmingham, AL; by Mike Schramm; 3/27/26 ... In season two [of The Pitt], episode eight, Drs. “Robby” and McKay begin a conversation about a patient with terminal cancer in agonizing pain who is nearing death. “Where are we with the morphine?” Robby asks, suggesting they raise the dosage. After being told (surely for the viewers) “she could stop breathing,” he gestures and asks, “Are you familiar with the doctrine of double effect?” ... “We treat pain,” Robby explains. “And if, in doing so, there’s a negative side effect, we accept it.” “Even if the negative side effect is death?” McKay asks. While this might seem intuitive to some, its history and reasonability cannot be taken for granted. This doctrine of double-effect basically affirms that a good or neutral action may be morally undertaken in good conscience, even if one knows that a secondary bad result will occur from that action.
Part of the ‘nephrology toolbox’: ASN releases conservative kidney management guidance
03/30/26 at 03:00 AMPart of the ‘nephrology toolbox’: ASN releases conservative kidney management guidance Healio; by Lucas Laboy, Susan P. Y. Wong, MD, MS, Jane O. Schell, MD, MHS; 3/27/26 The American Society of Nephrology issued new kidney health guidance on conservative management as a practical treatment option for patients with kidney failure. Key Takeaways:
The clinical dilemma of withholding futile treatment
03/30/26 at 03:00 AMThe clinical dilemma of withholding futile treatment Medscape; by Brenda Sandburg; 3/27/26 During hospital rounds, Kenneth Covinsky, MD, MPH, a professor of medicine and clinician researcher in the Division of Geriatrics at the University of California San Francisco, sometimes meets families at a wrenching crossroads: a loved one with advanced dementia is no longer eating, slowly losing weight because they no longer are hungry. They ask the question almost every time — can’t something be done? ...
Feasibility and acceptability of a self-written, tele-delivered, LGBTQ+-affirming adaptation of dignity therapy for LGBTQ+ women with advanced cancer
03/28/26 at 03:45 AMFeasibility and acceptability of a self-written, tele-delivered, LGBTQ+-affirming adaptation of dignity therapy for LGBTQ+ women with advanced cancerAmerican Journal of Hospice & Palliative Medicine; by Lexie Wille, Kristie A. Wood, Mike C. Parent; 2/26Dignity therapy (DT) is effective in addressing dignity-related existential distress in people with advanced cancer, but the traditional protocol assumes supportive family structures, uses heteronormative language, and requires synchronous clinician facilitation. These features may limit accessibility for LGBTQ+ individuals. This pilot demonstrated that a self-written, tele-delivered LGBTQ+-affirming DT adaptation was feasible and acceptable for LGBTQ+ women with advanced cancer.
Decision-making approaches used to limit potentially nonbeneficial life-prolonging interventions
03/28/26 at 03:15 AMEthical uncertainties: Diverging and emerging regulations of assisted dying/assisted suicide and the potential role of clinical ethics
03/28/26 at 03:10 AM[Canada] Exploring the factors that prevent or facilitate palliative care at ‘home’ for adults experiencing structural vulnerability: A scoping review
03/28/26 at 03:00 AMPalliative care should be integrated into cardiology therapy earlier, says study
03/27/26 at 03:00 AMPalliative care should be integrated into cardiology therapy earlier, says study Medical Xpress; by Inka Väth; 3/25/26 An international group of authors has called for a shift in cardiovascular care. ... For clinical practice, the group of authors therefore recommends a stronger structural integration of palliative care content into cardiology. This includes interdisciplinary care teams, shared treatment models, and more intensive training in internal communication and symptom management. Palliative care should also be given greater consideration in medical education. ... Palliative care should be the standard in cardiology, not the exception. After all, the success of sustainable cardiology will not be measured solely by how long people live, but by how well they can live.
End-of-life care planning for individuals with special needs
03/26/26 at 03:00 AMEnd-of-life care planning for individuals with special needsJD Supra; by Chamblis, Bahner & Stphel, P.C.; 3/23/26 Takeaways
It’s time to let stereotypes about older adults die
03/25/26 at 03:00 AMIt’s time to let stereotypes about older adults die McKnights Home Care; by Liza Berger; 3/6/26 They say there is strength in numbers. If that is true, the nation’s roughly 67 million baby boomers should not be afraid to speak up about how to talk to and refer to older adults. It’s time they did. I was reminded of this after reading a smart post by Anthony Cirillo, a caregiving expert. In the post, he talked about how people (younger ones primarily) casually make ageist comments without realizing the harm they cause. Cirillo gives the examples of a young adult referring to him as “Pops” and another asking him if he knows how to use an iPhone.Editor's Note: One of the worst memories for me about my dad's last week of life was the way a physical therapist spoke to my dad--our gentle, gentle-man-ly giant of a man in both character and stature. Fortunately, I was a strong advocate and asked him (in her presence), "Dad, am I saying it right?" Even in his vulnerable state, he voiced, "Yes. ... Yes." There was no apology. No follow-up. Years later, I invite you to pair these descriptions with our 2025 post, "Honey, Sweetie, Dearie: The perils of elderspeak."
Society of Critical Care Medicine 2026 Guidelines on the Care and Management of Pediatric and Neonatal Intensive Care Patients at the End of Life
03/25/26 at 02:00 AMSociety of Critical Care Medicine 2026 Guidelines on the Care and Management of Pediatric and Neonatal Intensive Care Patients at the End of Life Pediatric Critical Care Medicine; by Sabrina Derrington, Elizabeth G Broden Arciprete, Matthew C Lin, Simon J W Oczkowski, Amanda Alladin, Uchenna E Anani, Amanda K Borchik, Cassandra A Collins, Claudia Delgado-Corcoran, Mindy J Dickerman, Christopher G Harrod, Natalia Henner, Alexander A Kon, Mithya Lewis-Newby, Blyth T Lord, Ashley-Anne Masters, Sarah McCarthy, Katie M Moynihan, Sara M Munoz-Blanco, Lauren Rissman, Kathryn E Roberts, Amy B Schlegel, Ashleigh Schopen, Linda B Siegel, Harriett Swasey, Sarah E Wawrzynski, David J Zorko, Danielle D DeCourcey; 3/20/26 online ahead of print Objectives: To develop and provide evidence-based recommendations for EOL care and management of critically ill neonatal and pediatric patients and their families. Results: The [21-member multidisciplinary panel of experts] generated five conditional recommendations and one good practice statement, focused on advance care planning, pediatric palliative care consultation and education, systematic symptom management, bereavement support, and health equity in EOL care.
What we get wrong about comfort at the end of life: Jennifer Martnick ; Comfort care is not about retreat. It is about presence, writes guest columnist Jennifer Martnick
03/24/26 at 03:00 AMWhat we get wrong about comfort at the end of life: Jennifer Martnick Cleveland.com, Cleveland, OH; by guest columnist Jennifer Martnick; 3/22/26 When people hear the word comfort in the context of serious illness or the end of life, they often picture something passive. A quiet room. Soft blankets. And a sense that medical care has somehow stepped back. That misunderstanding is one of the most persistent myths in health care. Comfort care is not about doing less. In many ways, it requires more skill, more attention and more presence than almost any other kind of medicine. At Reserve Care (formerly Hospice of the Western Reserve), comfort care means active, expert care delivered by clinicians trained to manage pain, ease symptoms and support the emotional and spiritual needs of patients and families facing serious illness.
50 years ago, Karen Quinlan’s coma sparked the movement for patients’ rights near the end of life
03/24/26 at 03:00 AM50 years ago, Karen Quinlan’s coma sparked the movement for patients’ rights near the end of life The Conversation; by Kalpana Jain; 3/23/26 March 31, 2026, marks 50 years since a landmark decision that shapes American patients’ rights every day: the New Jersey Supreme Court ruling in the case of Karen Ann Quinlan, who had suffered an irreversible coma. Quinlan’s case established for the first time that decisions near the end of life should be made by patients and families, not by doctors and hospitals alone. As a bioethicist, I have taught and written extensively about the profound impact the Quinlan case has had on law, bioethics and the pursuit of death with dignity. A decade after the Quinlan case, New Jersey created a Bioethics Commission to study advancing health care technology in light of the decision’s principles. The commission’s proposed legislation establishing advance directives was enacted on July 11, 1991. I was privileged to lead this project, as staff to the commission. Today, all 50 states have advance directive laws that allow competent adults to plan ahead and put their wishes for end-of-life care in writing.
Study: Families pleased after meeting nursing home advance care planning specialist
03/24/26 at 03:00 AMStudy: Families pleased after meeting nursing home advance care planning specialist McKnights Long-Term Care News; by Foster Stubbs; 3/10/26 Overall, family caregivers who met with advance care planning (ACP) specialists reported positive experiences in a study published in the Journal of the American Medical Directors Association. The study enrolled 28 family caregivers of nursing home residents with dementia who had engaged in an ACP discussion with the ACP specialist in the prior three-month period. ... [Authors said,] “Their reports of needs and challenges reinforce the importance of ACP training programs like the ACP Specialist that promote routine conversations in the NH to support family decision makers for persons living with dementia.”
Facing loss & cancer: A daughter’s dual grief
03/24/26 at 03:00 AMFacing loss & cancer: A daughter’s dual grief Time.News; by Ethan Brooks; 3/22/26 ... We hadn’t told the kids yet. There was nothing definitive to say, only a growing dread. I braced myself to project a semblance of cheerfulness when Molly and Henry returned from their tournament, but it proved unnecessary. My sister called with news that eclipsed everything: our father was dying. Both our parents, long divorced, were in hospice, on opposite coasts. My mother’s decline had begun in June, but my father’s was swift, a mere week in the making and we hadn’t anticipated him going first.
How "The Pitt" can prepare you for the end of life
03/23/26 at 03:00 AMHow "The Pitt" can prepare you for the end of lifeKatie Couric Media; by Maggie Parker; 3/20/26 If you're sensitive to seeing death on screen, you shouldn't watch The Pitt. Set in a major city's emergency room, on the hit medical procedural, death is inevitable, and frequent. ... The way end-of-life issues are addressed on the show was carefully thought out and intentionally diverse. ... Unfortunately, it's rare for the media to portray death and dying authentically, according to Dr. Underleider's analysis of more than 141,000 scripted TV episodes from 2010 to 2020. ... This season, The Pitt takes its quest to realistically depict death to another level, with the introduction of a terminal cancer patient, Roxie, who knows what's coming and doesn't want to go home to face it. We spoke to Dr. Ungerleider about her reaction to Roxie's final moments, her experience working with the creators, what they get right about end of life, and why it matters. ...Editor's Note: Pair this with our previous posts, "HBO’s ‘The Pitt’ inspires viewers to consider organ donation, end-of-life planning" and "How ‘The Pitt' gets death right."
The good deaths of people who never marry: Lifelong single people are most likely to die pain-free and at peace.
03/23/26 at 03:00 AMThe good deaths of people who never marry: Lifelong single people are most likely to die pain-free and at peace. Psychology Today; by Bella DePaulo, PhD; 3/8/26 People who are single and want to stay that way are often taunted with scare stories about what will happen to them toward the end of their life—they will grow old alone, they will die alone, and all the rest. Same for people who have no children. But is the quality of the end of their lives really worse for those who never marry (or never have kids) than it is for those who are married, remarried, divorced, or widowed (or who have grown children)? We now have an answer, and it is not at all what those dire warnings predicted.Editor's Note: This Psychology Today article provides an additional focus on "people who never marry" from the article we posted on 3/20/26, “We make our own families”: Do child-free people die alone? Hospice worker shares her experience. Important: "child-free" does not necessarily mean the person never married. Likewise, "never married" does not necessarily mean the person is "child-free."
