Literature Review

Effectiveness of an Advance Care Planning intervention in adults receiving dialysis and their families: A cluster randomized clinical trialJAMA Network, by Mi-Kyung Song, PhD, RN; Amita Manatunga, PhD; Laura Plantinga, PhD; 1/29/24In this randomized clinical trial, the [Advanced Care Planning] ACP intervention implemented by health care workers at dialysis centers improved preparation for EOL decision-making but showed mixed effectiveness on bereavement outcomes. The ACP intervention implemented in dialysis centers may be an effective strategy to the dyad preparation for end-of-life care as opposed to the current focus on advance directives.

Anorexia Nervosa: Evaluating disparities in places of death in the United States over 22 years using the CDC WONDER databaseCureus / NCBI, by Nirmal Patel, Rahul Tyagi, Deepanwita Biswas, Ayesha Birjees, Chetana Rajesh 6, Sadia Khan; posted via NCBI 1/30/24Conclusions:[This] study found that death in home and hospice was more common than in medical or hospital nursing facilities in all four analyzed groups. These findings highlight the critical need for significant advancements in end-of-life care, particularly in home and hospice settings.

Viewpoint: Care fragmentation, care continuity, and care coordination—How they differ and why it mattersJAMA Intern Med., by Lisa M. Kern, MD, MPH; Julie P. W. Bynum, MD, MPH; Harold Alan Pincus, MD; 1/29/24Health care in the US is characterized by fragmentation, with many patients seeing multiple physicians. Indeed, 35% of Medicare beneficiaries saw 5 or more physicians in 2019.1 Having multiple physicians may be appropriate, but it may also lead to medical errors, unnecessary visits, avoidable hospitalizations, and suboptimal care if all of the physicians do not have complete information about the patient and each other’s care plans.

Criteria for enrollment of patients with COPD in palliative care trials: A systematic reviewJ Pain Symptom Manage, by Natalia Smirnova, Allison V Lange, Amanda Glickman, Kristen Desanto, Cara L McDermott , Donald R Sullivan, David B Bekelman, Dio Kavalieratos; 1/25/24Context: Use of palliative care interventions in chronic obstructive pulmonary disease (COPD) has increased in recent years and inclusion criteria used to identify patients with COPD appropriate for palliative care vary widely. We evaluated the inclusion criteria to identify ways to improve enrollment opportunities for patients with COPD.

Groundbreaking research by PFF scholarsPulminary Fibrosis Foundation; 1/22/24The Pulmonary Fibrosis Foundation (PFF), the nation’s leading pulmonary fibrosis research, advocacy, and education organization has announced five awardees for the 2023 cycle of PFF Scholars who will receive funding for their cutting-edge research. ... “The most recent PFF Scholars class is tackling some of the most urgent questions about pulmonary fibrosis,” said Scott Staszak, PFF Chief Operating Officer. “Our goal is to accelerate the Scholars’ research and support them in securing more substantial grants for their impactful work.”

Local author shares a message of hope to caregivers in Newnan Parkinson's support groupThe Newnan Times-Herald, by Gary May; 1/22/24Hughes wrote "Parkinson's Caregivers - Yes, There is HOPE!" about her experiences over 23 years caring for her husband Carlton, who had Parkinson's disease. Her mission is to encourage and support both caregivers and their loved ones as they transition through the stages of the progressive disease, from diagnosis, to daily living, to the advanced stages and finally, to hospice care.

Hillman Foundation issues RFP for Serious Illness and End of Life program

A psychologist offers advice on 'being there' for aging parentsForbes, by Mark Travers; 1/22/24As our parents age, we find ourselves on a challenging emotional journey, one that often remains unspoken but deeply felt. It’s the journey of anticipatory grief, a complex mix of emotions and thoughts that arise as we witness our parents becoming older, weaker and more frail. This concept, often overshadowed by post-loss grief, is equally devastating.

Hospice of the Valley launches living will campaignAhwatukee Foothills News, by Lin Sue Flood; 1/23/24National research shows that only about a third of Americans have created a living will or advance healthcare directive. ... Three nonprofit organizations — Mercy Care, Hospice of the Valley and Contexture — are launching a community education campaign to ensure that Arizonans’ wishes are honored. ... Choose Your Person is an awareness campaign urging all adults to choose someone to be their healthcare power of attorney. 

Myotonic dystrophy type 1: palliative care guidelinesBMJ Supportive & Palliative Care, by Derek Willis, Tracey Willis, Claire Bassie, Gail Eglon, Emma-Jayne Ashley, and Chris Turner; 1/22/24Palliative care for adults with neuromuscular conditions is an emerging field. Previous guidelines regarding myotonic dystrophy and palliative care have only mentioned end-of-life care and little else. The following guidelines have been written using national experts as a description of best practice as part of the Dystrophia Myotonica National Care Guidelines Consortium.Requires subscription or purchase

New research challenges the commonly held view that opioids are the most powerful pain relieversSciTechDaily, by University of Sydney; 1/21/24A University of Sydney-led study challenges the prevailing view of opioids as the most effective pain relievers for cancer, revealing significant evidence gaps and suggesting NSAIDs as a potential alternative. This research advocates for more informed choices in cancer pain management, emphasizing patient empowerment and the consideration of non-opioid options.

Cervical cancer increasing in women in their 30s and 40s, new report finds NBC News, by Liz Szabo; 1/20/24Among women in their 30s and early 40s, incidence has been edging upward. Diagnosis of cervical cancer among women ages 30 to 44 rose almost 2% a year from 2012 to 2019.

Race, ethnicity, and cancer type influence which patients access hospice careOncology Nurse Advisor, by Jennifer Larson; 1/19/24... [A] researcher from a comprehensive cancer center in North Carolina conducted a clinical literature review to investigate research outcomes of hospice use in the United States. ... A total of 17 quantitative studies, published between 2017 and 2023, was included in this review. Notable differences by cancer type were found. ... The analysis also showed disparities in hospice use by race and ethnicity.