Literature Review

Enhancing psychosocial care at end of life: A novel simulation training programPalliative & Supportive Care; by Emilia Crnjak, Michelle Kerns, Mariah Stevens, Brianna O'Connell, Lauren Mednick; 4/26Providing psychosocial support to pediatric patients and their families at the end of life represents one of the most challenging yet vital aspects of healthcare practice. This study explored the use of simulation-based training to enhance the self-reported knowledge, skills, and comfort levels of child life specialists in providing psychosocial care during end-of-life situations. Forty-three child life specialists participated in the simulation-based training, which was combined with traditional didactic instruction, and the associated research study. Pre- and post-training surveys were used to assess impact of the training on child life specialists' self-reported knowledge of end-of-life care and comfort in providing this care. A statistically significant increase was seen in all measured aspects of self-reported knowledge and comfort in providing end-of-life care following the training.

My mother left me a garage full of mysterious ingredients—and so much more Vogue; by John Mok; 5/6/26 Late in the summer of 2024, my mother was moved into hospice after a brief hospitalization. ... I promptly returned home to Los Angeles from New York and steeled myself for her passing. The trip lasted five months. ... Over the years, I had tried to meet her in the kitchen, to learn through her homestyle dishes, to unlock some part of her Chinese heritage, even with her American adaptations. But there was never enough time. During those five months we did get a little more time—one more round of holidays and one more memorable moment, when she passed peacefully passed. ... What my mother left behind was an invitation. Our garage remains an apothecary of TCM, dried herbs, and dried seafood—all stored in repurposed mayonnaise jars and Costco biscotti containers, their labels scribbled over with her Chinese script. ...

What a new hospice center means for Cleveland – beyond health care: Bill Finn Cleveland.com, Cleveland, OH; by Bill Finn, President and CEO of Reserve Care (formerly Hospice of the Western Reserve); 5/3/26 Cleveland is no stranger to reinvention. We are a city shaped by resilience, by industry and by a deep commitment to one another. That spirit is what makes this moment so meaningful as Reserve Care opens a new lakefront care center, designed not only for patients and families, but for our entire community. ... Set along Lake Erie, the space was intentionally designed to feel different from a hospital. ... Every detail, from the views of the water to the quiet areas for conversation, supports a single goal: to ease stress and create a sense of peace. But the impact goes beyond the walls of the building. ...

Interventions for bereavement-What works, what does not, and what mightJAMA Psychiatry; by Charles F. Reynolds III, Holly G. Prigerson, M. Katherine Shear, Sidney Zisook; 4/26The 2025 publication commissioned by the Agency for Healthcare Research and Quality (AHRQ) of a systematic review of “Interventions to Improve Care of Bereaved Persons” provides a timely opportunity to continue—and to deepen—a conversation of great importance about the universal experience of grief and its burdens, both personal and related to public health. The report was prepared at the Southern California Evidence-Based Practice Center in Los Angeles; it aimed to review available evidence on screening, diagnosing, and treating children and adults with grief disorders related to bereavement. The Substance Abuse and Mental Health Services Administration convened an independent subject matter advisory panel to assess the feasibility of developing standards for high-quality bereavement and grief care.  

Iowa City Hospice hosts Walk for Dignity KCRG-9 ABC News, Iowa City, IA; by Lacey Reeves; 4/26/26 People in Iowa City walked through Willow Creek Park on Saturday in memory of loved ones who died after receiving hospice care. Iowa City Hospice hosts a Walk for Dignity every year to raise money to provide free end-of-life care to people who need it. ... “We give over $250,000 a year in unreimbursed hospice care to people in our community who don’t have insurance, because we believe that if you’re dying, you shouldn’t have to worry about how you’re going to pay for your health care,” said Sara Krieger, CEO of Iowa City Hospice. ... As the families walked, they passed by memory lane with yard signs with photos of people who have died.

Engaging bereaved parent educators in pediatric end-of-life workshops: A trauma-informed onboardingJournal of Pain & Symptom Management; by Kayla Solstad, Dannell Shu, Kelly McManimon, Stacy Remke, Susan O'Conner-Von, Anne Woll, Joseph M Miller, Miriam C Shapiro, Johannah M Scheurer; 3/26Recognizing that pediatric end-of-life (EOL) scenarios occur infrequently and are distressing for trainees and other healthcare team members, our group created pediatric end-of-life care skills (PECS) simulation-based workshops to improve trainee competence for these skills. We  ... provide interprofessional workshops, including trainees from the pediatric residency program, graduate school of nursing, and graduate school of social work. Since creation of the workshops, the group and curricula have benefited immensely from including the expertise of bereaved parent educators (BPEs), who have experienced the death of their own infant or child and have been integral team members ... from workshop creation through facilitation. Research shows that families who have experienced the death of a child appreciate an interdisciplinary approach to their care and communication at the EOL. When parents of pediatric patients were asked about priorities in EOL care, they highlighted the importance of communication, emotional expression and support by staff, and ready access to multi-disciplinary staff.

Families face identity theft following a death Hospice News; by Jim Parker; 4/8/26 When a loved one dies, the specter of identity theft can loom large, particularly through unclosed digital accounts that family members may not be aware of. Approximately 2.5 million deceased Americans have their identities stolen annually, with roughly 800,000 of these cases specifically targeted because they have died, according to the State of California Department of Justice. Managing and closing digital accounts can help mitigate the risk of identity theft, according to Donnell Beverly, Jr., CEO of Eazewell.

Westhampton teen's care packages honor her late father WN.com - Newsday; by Michael R. Ebert; 3/29/26 ... Elizabeth Sultan, a junior at Westhampton Beach High School, recently spearheaded a program called Peter's Packages, named in honor of her father, Peter, who died last year at 54 after suffering a heart attack while competing in the Jamesport Triathlon. Sultan's initiative provides curated care packages that contain items ranging from books to blankets. She said she was inspired to launch the effort after she and her brother, William, received similar comfort items from community members following their father's death.

Cleaning reframes end‑of‑life care for mental health The Philadelphia Tribune, Philadelphia, PA; by Lynn Akesson; 3/28/26... At its core, death cleaning is a decluttering practice: going through one’s belongings with the intention of reducing what survives us. But its appeal lies less in organization than in its promise of emotional relief. By transforming an abstract fear — leaving chaos behind — into a meaningful act of care, death cleaning reframes preparation for death as a process that can support psychological well-being in life. Editor's Note: For a related caregiving video specific to bereavement, visit "Re-Membering: Scrap 'Em, Store 'Em, or Stitch 'Em Together, by Composing Life Out of Loss (disclosure, a newsletter sponsor)

Hospice of St. Lawrence Valley grief services coordinator discusses deeper meaning for spring cleaning North Country Now, Potsdam, NY; by Kate Favaro; 3/26/26 There is something about those first few spring days in the North Country that makes us want to throw all the windows up and let in the fresh air and sunlight. Spring cleaning has become a ritual of sorts. ... Hospice of St. Lawrence Valley offers the following when considering a deeper meaning behind spring cleaning: ... widen your idea of what spring cleaning can involve. Start with the basics and work out from there. Clean out a drawer. Label a photograph. Update a document or password. Tell a trusted person where they can find the important papers. Sometimes the most meaningful spring cleaning happens where no one else can see it, but everyone you love will one day feel its impact.

[United Kingdom] Hundreds run in memory of mum and 'dearest friend' BBC News, Yorkshire, United Kingdom; by Fiona Callow and Heidi Tomlinson; 3/22/26 More than 200 family and friends of a woman who died of cancer last month have run a 10k in her memory.Debbie Holland, 47, spent her final days being cared for at Wakefield Hospice, two years after being diagnosed with breast cancer. A fundraising page, set up to sponsor the runners, has almost raised more than 10 times its original target of £3,000. Debbie's husband Andrew said: "We always felt we wanted to pay back. The staff in Wakefield Hospice are amazing."

Lanterns shine light on spiritual, financial help Fort Worth nonprofit gives to terminally ill FWR - Fort Worth Report, Fort Worth, TX; by Marissa Greene; 2/16/26 Nestled within a grove of trees, more than 300 lanterns twinkled around the perimeter of the Keith House on a recent evening in the Clearfork neighborhood. The pulsing glow of the tealight candle inside each white paper bag illuminated a first name and last initial inscribed into the front of the lantern. Each name represented a patient served by Project 4031, a faith-based nonprofit aiming to provide peace and comfort to terminally ill children, adults and families facing end-of-life challenges by easing financial burdens and fulfilling last wishes. 

Bridging the differences in care for grieving people: Worden's differentiation between grief counseling and grief therapyDeath Studies; by Mark D de St Aubin, William G Hoy; 2/26Worden's (1982, 2018) landmark textbook on caring for bereaved individuals differentiated grief counseling from grief therapy, defining the former as the efforts of both professional and lay caregivers to support bereaved people in normal grief. Grief therapy, he posited, is the more structured intervention offered by credentialed caregivers to support individuals coping with a more complicated experience of mourning. In this article, the authors explain Worden's perspective, describe his types of complicated mourning for which grief therapy might be warranted, and offer clinical application to the approaches Worden takes.