Literature Review

Death can be isolating and dehumanizing. But what if it didn’t have to be?City Life, by Ben Seal; 2/17/24... In the three years since Elaine’s passing, I’ve longed for a world where more people could be given the chance to die as she did — with the fullness of life surrounding her, and with complete support, emphasizing the emotional and spiritual, not just the medical. In Philadelphia and beyond, a growing community of death-care workers — doulas, nurses, grief counselors, social workers, even funeral directors — is trying to build that world. They are reclaiming death and dying from the institutional model that has become the norm over the past century. Editor's Note: Has hospice now become so institutionalized and medical/regulatory focused that we have lost sight of "emphasizing the emotional and spiritual, not just the medical"? I ask the question, but do not draw judgment, as answers must be contextualized. 

A race against time: Cancer patient's touching keepsake for his familyBNN; 2/15/24When time was running out, 44-year-old cancer patient Yiu created a heartfelt keepsake for his family. With the help of an art therapist, he cast a realistic mold of his intertwined hands with his wife's symbolizing their love and unity. This touching story highlights the power of love and hope in the face of adversity.

The Last Portrait: Local photo exhibition captures different takes on dyingUtica Observer Dispatch, by Amy Neff Roth; 2/9/24... The 26 black-and-white photos, taken by local photographer Mark DiOrio, all capture moments in the life of someone who has been diagnosed with a terminal illness.  “I wanted to photograph them because they’ve been given news that nobody wants to hear,” DiOrio explained. “They’ve been given the news that it’s going to be their time soon. And when you’re given that kind of news, you have choices to make on how you handle it. I felt that these people, what they had to say and the emotions that they communicated in that moment were invaluable.”

The last leaf on the vine: What is lost when a generation passes away Inside Higher Ed, by Steven Mintz; 2/6/24... For my extended family, my mother is (or was, depending on when you read this piece) the last leaf on the vine, the last surviving member of a generation born in the 1920s that personally recalls the hardships of the Great Depression and the disruptions, upheavals, sacrifices and horrors of World War II. And that leaf is poised to fall.

NHPCO Publishes Culturally Sensitive Communications to Enhance Care Delivery: A resource guide for healthcare professionalsNHPCO Press Release; 1/30/24The National Hospice and Palliative Care Organization’s (NHPCO) Diversity Advisory Council (DAC) published Culturally Sensitive Communications to Enhance Care Delivery: A Resource Guide for Healthcare Professionals. ... It contains information from a multitude of NHPCO resources, such as the Hospice Through The DEI Lens report, Inclusion and Access Toolkit, Black and African American Outreach Guide, Chinese American Resource Guide, Latino Outreach Guide, and LGBTQ+ Resource Guide, as well as information from additional external research sources.

These sisters help families donate brains to scienceBrain&Life; 2/2/24Tish Hevel, 65, talks about the Brain Donor Project, a nonprofit group she and her sister, Annie McManis, 54, established after their father died of Lewy body dementia. ... "Our father was diagnosed with Lewy body dementia in 2014. In researching the disease, we kept reading about brain donation. Our father had always wanted to donate his body, so we knew he would want to donate his brain as well. And we knew scientists needed tissue. But the process of donating was complicated."

Avow Kids awarded grant for children experiencing lossFlorida Weekly - Naples Ediition; 1/25/24Avow has been awarded a $55,300 grant from Champions for Learning as part of a multi-agency Future Ready Collier collaboration project to fund resiliency programming. Funds are designated to Avow Kids, which provides support to children ages 5-17 who are experiencing grief or loss in any capacity. The grant will ensure the continued availability of the program and its resources, which are offered at no cost to participants

Craft a memorial pillow for your loved one at this DeKalb workshopShaw Local News Network; 1/22/24The DeKalb Public Library will partner with Northern Illinois Hospice to host a workshop for patrons to create pillows out of a loved one’s shirt. ... Attendees can create up to two pillows out of a T-shirt or button-down shirt. Sewers will be available to assist. Participants should not bring denim, jackets or thick fabrics. Bereavement information and support will be provided.Editor's Note: Explore this lovely, meaningful activity for your hospice's bereavement care, volunteer services, and community outreach.

The challenges facing male caregiversNext Avenue, by Sophie Okolo; 1/23/24When business owner Mark Horst (not his real name) of Pompton Plains, New Jersey, first found out his wife of 37 years was diagnosed with Alzheimer's, he didn't know what the journey would entail. Of all caregivers in the United States, 16 million, or 40%, are men. Of these men, 63% identified as primary caregivers. 

Penn Medicine provides parents tools to grieve and heal after lossPenn Medicine News, by Kim Maialetti; 1/11/24Perinatal loss is not uncommon in the United States. According to the Maternal Mental Health Leadership Alliance, 30 percent of all pregnancies end in miscarriage and 21,000 babies are stillborn each year. Additionally, more than three of every 1,000 babies born die before 28 days of life and more than five of every 1,000 die before their first birthday.

Local non-profit organizations receive over $424,000 in grant funding from Dignity HealthKEYT3, by Dave Alley; 1/16/24Dignity Health Central Coast handed out $424,496 in grant funding to nine community non-profit partnerships in San Luis Obispo and Santa Barbara counties. ... Grief Awareness Treatment and Education Project (GRATE): The Community Counseling Center, Hospice of SLO County, and the Alzheimer’s Association of the Central Coast are partnering to address grief related behavioral health needs in our community (GRATE: Grief Awareness Treatment Education.) 

‘Men who are grieving, or facing up to a terminal illness, can come here to share their experience’MSN, by Roland White; 1/14/24When volunteers from the Marie Curie charity were looking for a place where men could support each other through serious illness and bereavement, there was really only one option. They built a large shed. That’s no surprise. Sheds are very handy for storing garden tools and spare cans of oil, but they also serve an even more important function as places of male refuge. We escape to the shed in times of distress, or when we just need a bit of peace.

Handbook of Social Justice in Loss and Grief, in Routledge's Series in Death, Dying and BereavementRoutledge, Series in Death, Dying and Bereavement, edited by Darcy L. Harris and Tashel C. Bordere; pub. 2016, available The Handbook of Social Justice in Loss and Grief is a scholarly work of social criticism, richly grounded in personal experience, evocative case studies, and current multicultural and sociocultural theories and research ...  at the very junctures when people are most vulnerable—at points of serious illness, confrontation with end-of-life decision making, and in the throes of grief and bereavement. Harris and Bordere give the reader an active and engaged take on the field, enticing readers to interrogate their own assumptions and practices while increasing, chapter after chapter, their cultural literacy regarding important groups and contexts.Editor's Note: Are you eager to take a deep dive into Diversity, Equity, and Inclusion (DEI) in our worlds of loss and grief? Immerse yourself in this definitive, thanatological (the study of dying, death, and bereavement) research and its applications for you.