Literature Review

Bereaved Parent Support Study: Seeking Participants Sylvester Comprehensive Cancer Center/University of Miami Miller School of Medicine, Memorial Sloan Kettering Cancer Cancer, St. Jude Children's Hospital, and Children's Hospital of Philadelphia; 4/2/24This program is offered as a research study examining three types of support for bereaved parents who have lost a child to cancer. The study is jointly sponsored by Sylvester Comprehensive Cancer Center/University of Miami Miller School of Medicine, Memorial Sloan Kettering Cancer Cancer, St. Jude Children's Hospital, and Children's Hospital of Philadelphia; however, families need not have received care from one of these institutions. ...The counseling will be provided through videoconferencing and all activities for this study can be completed in [the participant's] home. ... There will be no charge for any support offered through the study. [Click on the title's link for more information.] 

Some prepaid funeral expenses to southern Colorado funeral home being investigated CBS TV 11 News, by Melissa Henry; 3/29/24A man and his wife wonder whether or not they will ever get more than $7,000 dollars back for prepaid funeral expenses after paying Return to Nature Funeral Home. Jon and Carie Hallford are at the center of an investigation in which they are accused of abuse of a corpse, money laundering, theft, and forgery after officials say 189 bodies were found improperly stored at a building tied to the couple’s business in Penrose.

How’s Your Soul? JAMA Network, by Daivd Vermette, MD, MBA, MHS; 3/28/24 "Brother David, how’s your soul?” The question took me by surprise. It was time for my first advisement meeting with my residency program director. In medicine, the machine runs on competence and achievement of “milestones.” Yet, as I braced for a meeting to trudge through performance evaluations and in-training exam scores, I awoke to humanity. ... Medical education has numerous models for coaching, advising, and mentoring. While these models helped develop my professional life, they missed the fundamental core of who I am: a human being. Perhaps instead we could embrace a model in medical education built on the tenets of pastoral care. ...

Hospice of Santa Barbara offers insights into family grievingSanta Barbara Independent, by Hospice of Santa Barbara; 3/26/24Grieving the loss of a family member is a deeply intricate emotional journey. Shared bonds and histories make family grief especially unique. Family grief extends beyond the individual and intertwines with the collective fabric of shared experiences, roles and responsibilities. ... It is common for death to change the family dynamic. This can be a result of several factors, including age, relationship, role, difference in coping mechanisms, heightened stress and emotions, and unresolved family issues which can lead to the resurfacing of past grievances.Editor's Note: CMS Hospice COPs §418.3 defines: "Bereavement counseling means emotional, psychosocial, and spiritual support and services provided before and after the death of the patient to assist with issues related to grief, loss, and adjustment." The interdisciplinary team needs to understand individual and family grief, within the scope of their roles and responsibilities with family members.

The process of dealing with death is experiencing rebirth in a less-religious Pittsburgh Digital Daily; by Med St-Esprit, PublicSource; 3/24/24 Tanisha Bowman, of the North Side, a palliative care social worker for Butler Health System and a “death walker,” walks amongst the old graves in St. Mary’s Cemetery. ... From green burial to glass orbs containing ashes, the norms of funerals and burials are broadening as religious affiliation declines. ... According to a 2021 survey by Pew Research, 3 in 10 American adults are religiously unaffiliated. Data compiled by Pew Research about the Pittsburgh metro region found that 50% of adults in the region describe religion as “very important” and nearly 20% consider themselves not religious. Shifts in faith and worship mean families as well as businesses related to death and dying have had to alter their approaches.

CAHPS Hospice Survey - Quality Assurance Guidelines V10.0: Technical Corrections and Clarifications, March 2024 

Improvements in Interdisciplinary Communication Following the implementation of a standardized Handoff Curriculum: SAFETIPS (Statistics, Assessment, Focused Plan, Pertinent Exam findings, to Dos, If/Thens, Pointers/Pitfalls, and Severity of Illness) Cureus, by Shaefali Shandilya and Justen M. Aprile; 3/18/24 Handoffs between medical providers serve a crucial patient safety function. While most published literature on the topic studies the handover process among physicians, robust literature is available on interdisciplinary medical communication. Little is known about the downstream effects of effective physician handover on subsequent physician and nursing interactions. ...Results: Statistical analysis revealed significant post-intervention mean score increases of one full point in four categories, namely organization and efficiency, communication, content, and clinical judgment.

Voices of Grief to host workshops for families victimized by funeral home Pikes Peak Courier, by Pat Hill; 3/18/24 In October, investigators with the Fremont County Sheriff’s Office discovered 200 bodies that had not been cremated but rather were improperly stored, many of them for four years. The owners, Jon and Carie Hallford, have been arrested and face 200 felony charges. Of 1,200 families affected, 190 of them were directly impacted. ... [Kathy] Sparnins, [filmmaker and producer of the documentary “Voices of Grief,”] who lives in Woodland Park, was recently contacted by the FBI Victim Advocacy Program to work the families whose deceased loved ones were taken to Return to Nature Funeral Home in Penrose.

When Medicaid comes after the family home The New York Times, by Paula Span; 3/16/24Federal law requires states to seek reimbursement from the assets, usally home, of people who died after receiving benefits for long-term care. ... The letter came from the state department of human services ... It expressed condolences for the loss of the recipient's mother, who had died a few weeks earlier at 88. ... Medicaid estate recovery means surviving family members may have to sell the home of a loved one to repay Medicaid, or the state may seize the property. Editor's Note: Please share this article with your hospice bereavement counselors. (Access might be limited, per NYT subscriptions.)

New book addresses prolonged grief disorder diagnosis and treatmentHospice Foundation of America, press release 2/26/24Hospice Foundation of America (HFA) today announced the publication of Understanding Prolonged Grief Disorder, written and edited by some of the nation’s leading grief experts and healthcare professionals. Prolonged grief disorder (PGD) is a new diagnosis in the most recent version of the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders (5th ed., text rev.) Inclusion of PGD validates the occurrence of a disorder characterized by the persistence of pervasive, intense grief. With the possible exception of posttraumatic stress disorder (PTSD), this is the first time a loss-related condition has been identified as a diagnosable condition.

In the ICU, what is a good death? Understanding why clinicians and patients' families may disagree in Intensive Care Unit Northwestern Now, by Marla Paul; 3/7/24What is a good death for a patient in the Intensive Care Unit (ICU)? The answer to that question may depend on whether you ask a family member of a patient or the physician, who are not necessarily aligned. ... Approximately 20-30% of people who die in the U.S., die in the ICU, according to previous research. Nearly 60% of ICU admissions result in death. Wide discrepancies have been documented between a patient’s stated preferences and the end-of-life care actually delivered.

Some report images and manifestations of departed loved ones Chicaog Daily Herald, by Susan Anderson-Khleif; 3/9/24Not often, but sometimes, a person sees an image of a beloved or dear friend. A visual manifestation of their spirit, one you can actually see while awake. It could be very clear or more in a fog. It happened to me the middle of the night, two years ago. ... I had friends and readers who’ve told me of such happenings — of seeing images of dear ones — sometimes during times of stress, sometimes for seemingly no reason. It could be a voice rather than an image. Or some other sign that assures you they are around. Editor's Note: Susan Anderson-Khleif has a doctorate in family sociology from Harvard, taughts at Wellesley College, and is retired.

Mother and daughter brave Sahara trek in memory of beloved Grace for hospice fundraiser BNN, by Wojciech Zyim; 3/7/24Rebecca Gaskell and her daughter, Imogen, from Chalfont St Peter, are embarking on a moving journey across the Sahara Desert this March to honor the memory of their daughter and sister, Grace, while raising funds for Helen & Douglas House, the hospice that provided care for Grace during her battle with a brain tumor. Diagnosed at just 12, Grace’s brave fight ended two years later, leaving her family seeking ways to give back to the hospice that offered them comfort in their darkest times.Editor's Note: The Helen & Douglas House for terminally ill children is located at Oxford, United Kingdom.