Literature Review

Transforming tragedy into triumph: Lynne Hughes creates grief camp, helping 24,000 children BNN, by Emmanuel Abara Benson; 3/6/24Lynne Hughes' journey from personal tragedy to establishing Comfort Zone Camp (CZC) spotlights the transformative power of empathy and support. Losing both parents by age 12, Hughes navigated her grief with little support, a struggle that later fueled her mission to ensure no child felt as isolated in their sorrow as she did. Today, CZC stands as a beacon of hope, having supported over 24,000 grieving children across the United States. 

Rising suicide risk among seniors due to loneliness, mobility, financial insecurity, study finds McKnights Home Care, by Adam Healy; 3/5/24As the number of adults over 65 continues to grow, suicide rates among older adults have also been rising, according to data from the National Center for Health Statistics. Between 2008 and 2017, the share of suicide-related emergency department visits among adults 65 years and older more than doubled. These older adults face age-related stressors that can negatively affect mental health, such as declining physical health, reduced mental sharpness, or the loss of friends or loved ones, which can heighten the risk of suicide. 

Ziggy Marley recalls dad Bob Marley's last words to him before his death NBC News TV 10 Boston; by Randi Richardson; 2/28/24, updated 2/29/24 Ziggy Marley was 12 years old when his father, Bob Marley, died, and he cherishes their last memory together. ... He recalled being in his dad's intensive care hospital room a few days before the singer died from malignant melanoma. "I was, like, peeping through the window," Ziggy Marley, now 55, said. "And he was like, 'Come here.' So, I went in, and he was like, 'Hey ... well, young Bob, I have a song for you.' And he said these words: 'On your way up, take me up. On your way down, don’t let me down.'" 

Writing condolence cards supports nurses as well as deceased patients’ families ONS Voice, by Casey S. Kennedy; 2/29/24During extended treatment and end-of-life care, patients, their family and caregivers, and the healthcare team can form close bonds and relationships. Those ties are abruptly severed when a patient dies, leaving each party to grieve alone. For healthcare professionals, sending a condolence card can provide closure for themselves and support for a deceased patient’s family, a team of nurses reported in an article published in the December 2023 issue of the Clinical Journal of Oncology Nursing.

Communicating with patients with hearing loss or deafness—Can you hear me? JAMA Intern Med, by Dianne P. O'Leary, PhD and Timothy J. O'Leary, PhD, MD... Virtually all health care professionals want to provide the best possible care and to communicate as effectively as possible. However, ... frequent communication failures are leading to inferior care for the hearing impaired. Effective communication might require some or all of the approaches listed in [this article].

Racial differences in shared decision-making about critical illnessJAMA Intern Med, by Deepshikha C. Ashana, MD, MBA, MS; Whitney Welsh, PhD; Doreet Preiss, PhD; et al; published online 2/26/24Question: How do critical care clinicians approach shared decision-making with Black compared with White caregivers of critically ill patients?Findings: In a thematic analysis of 39 audio-recorded clinician-caregiver meetings, racial differences were most evident in the following clinician behaviors: providing emotional support to caregivers, acknowledging trust and gratitude expressed by caregivers, disclosing medical information, and validating caregivers' treatment preferences.

Being there for a loved one's final breaths NextAvenue, by Elaine Soloway; 2/26/24"I'll be downstairs," I told him one night. "And I'll be up to kiss you goodnight before I go to sleep." He smiled and squeezed my hand. I had barely settled on the couch when the hospice worker appeared at the top of the stairs. "He's gone," she said. I learned this pause is not unusual. Hospice workers report that some people who are dying wait to be alone for their final breaths.

We gave palliative care patients VR therapy. More than 50% said it helped reduce pain and depression symptomsThe Conversation; 2/22/24Our study, published this week in the journal BMJ Supportive & Palliative Care, found more than 50% of patients experienced clinically meaningful reductions in symptoms such as pain and depression immediately after a 20-minute VR session. ... Personalised VR means each person experiences content that is meaningful to that individual. So rather than asking patients to choose, for example, between a rainforest and a beach VR experience, we interviewed the patients before their sessions to gauge their interests and create a VR session tailored to them.

Death can be isolating and dehumanizing. But what if it didn’t have to be?City Life, by Ben Seal; 2/17/24... In the three years since Elaine’s passing, I’ve longed for a world where more people could be given the chance to die as she did — with the fullness of life surrounding her, and with complete support, emphasizing the emotional and spiritual, not just the medical. In Philadelphia and beyond, a growing community of death-care workers — doulas, nurses, grief counselors, social workers, even funeral directors — is trying to build that world. They are reclaiming death and dying from the institutional model that has become the norm over the past century. Editor's Note: Has hospice now become so institutionalized and medical/regulatory focused that we have lost sight of "emphasizing the emotional and spiritual, not just the medical"? I ask the question, but do not draw judgment, as answers must be contextualized. 

A race against time: Cancer patient's touching keepsake for his familyBNN; 2/15/24When time was running out, 44-year-old cancer patient Yiu created a heartfelt keepsake for his family. With the help of an art therapist, he cast a realistic mold of his intertwined hands with his wife's symbolizing their love and unity. This touching story highlights the power of love and hope in the face of adversity.

The Last Portrait: Local photo exhibition captures different takes on dyingUtica Observer Dispatch, by Amy Neff Roth; 2/9/24... The 26 black-and-white photos, taken by local photographer Mark DiOrio, all capture moments in the life of someone who has been diagnosed with a terminal illness.  “I wanted to photograph them because they’ve been given news that nobody wants to hear,” DiOrio explained. “They’ve been given the news that it’s going to be their time soon. And when you’re given that kind of news, you have choices to make on how you handle it. I felt that these people, what they had to say and the emotions that they communicated in that moment were invaluable.”

The last leaf on the vine: What is lost when a generation passes away Inside Higher Ed, by Steven Mintz; 2/6/24... For my extended family, my mother is (or was, depending on when you read this piece) the last leaf on the vine, the last surviving member of a generation born in the 1920s that personally recalls the hardships of the Great Depression and the disruptions, upheavals, sacrifices and horrors of World War II. And that leaf is poised to fall.

NHPCO Publishes Culturally Sensitive Communications to Enhance Care Delivery: A resource guide for healthcare professionalsNHPCO Press Release; 1/30/24The National Hospice and Palliative Care Organization’s (NHPCO) Diversity Advisory Council (DAC) published Culturally Sensitive Communications to Enhance Care Delivery: A Resource Guide for Healthcare Professionals. ... It contains information from a multitude of NHPCO resources, such as the Hospice Through The DEI Lens report, Inclusion and Access Toolkit, Black and African American Outreach Guide, Chinese American Resource Guide, Latino Outreach Guide, and LGBTQ+ Resource Guide, as well as information from additional external research sources.