Literature Review

Partners In Care hosts A Year to Live book discussion group starting April 5 Cascasde Business News; by CBN; 3/11/25 The Bereavement Department in conjunction with leadership at Partners In Care is hosting a community group to explore messaging in Stephen Levine’s book A Year to Live through a series of monthly sessions in 2025 and early 2026. In A Year to Live, Stephen Levine, author of the perennial bestseller Who Dies? teaches us how to live each moment, each hour, and each day mindfully—as if it were all that was left. On his deathbed, Socrates exhorted his followers to practice dying as the highest form of wisdom. Levine decided to live this way himself for an entire year, and now he shares with us how such immediacy radically changes our view of the world and forces us to examine our priorities. 

My Stories program preserves cherished memories of patients in hospice The Alpena News, Alpena, MI; by Reagan Voetberg; 3/8/25 The Hospice of Michigan in Alpena preserves the stories of patients, not in a book or photo album, but on a flashdrive. It’s called the My Stories program. Patients in hospice are given the opportunity to video record their stories and memories for their loved ones to hear once they’ve passed. Patients do not have to pay a dime to record their life stories. Alpena’s Hospice of Michigan Volunteer Program Coordinator Kristie Lukes talked about how meaningful the My Stories project is to patients and their families. Lukes coordinates volunteers to help patients with their recordings. Lukes explained further what My Stories is. “It’s a recording of the patient’s life and the stories that they want to share with family and patients,” she said. “So it becomes kind of a legacy project.” 

Parting Stone celebrates serving 10,000 families with solidified remains service Business Insider, Santa Fe, NM; Press Release; 3/5/25Parting Stone, an innovative death care company transforming the way families memorialize loved ones, is proud to announce that it has served 10,000 families with its solidified remains service. … s more families choose cremation for a loved one or pet, they seek meaningful ways to navigate grief, Parting Stone has emerged as a trailblazer in reshaping the narrative around death and memorialization. By offering a new form of remains that resembles a collection of 40–80 smooth stones, the company is helping people find comfort and connection in the grieving process. Solidified remains are a complete alternative to conventional “ashes.” … The National Funeral Directors Association predicts that by 2030, nearly 80% of Americans will choose cremation over traditional burial. Editor’s note: Click on the title’s link to see a photo.

My mother and brother have terminal cancer. I'm worried I won't feel anything when they die. Business Insider; essay by Kimanzi Constable; 3/1/25 ... My brother was diagnosed with Cutaneous T-cell lymphoma (CTCL) three years ago, and my mother found out she had stage four lung cancer a year ago. I got a call earlier this year that the cancer was spreading, and I flew to spend time with them. I knew it would be hard seeing them battling late-stage cancer, but what I walked into was my brother in the Advanced Cancer Care Center, unable to move, and my mother wanting to hold an "end of life" planning meeting. It was worse than I anticipated. It was hard to see him not moving and the nurses having to help him do everything. My mother looked like she weighed 50 pounds ... I'm worried I won't feel anything when they pass away. ... I think it might be just another day when they pass away. I've been thinking — what does that say about me? Am I a bad person for not falling on the ground and losing it for over half of my family dying? Or is this nothingness an OK feeling due to the complicated relationship we've had most of my life? ... Editor's note: Leaders, welcome to the daily world of your clinicians, especially your social workers, chaplains, and grief counselors. Read this with openness to the normalcy of this author's conflicted relationships, emotions, thoughts, and empowered actions toward "not wanting to regret how I handled this opportunity to say goodbye more healthily."

North Texas doctor helps parents facing infant loss deal with the unimaginableCBS News - Texas; by Andrea Lucia, Lexi Salazar, Katie Standing; 2/25/25[Background story for parents Yvette and Thoms Ngo upon dealing with the news that their in-utero baby girl Zoe was diagnosed with Trisomy 13, would likely miscarry, or die soon after birth. Dr. Terri Weinman, their neonatologist offered rich palliative care interventions and support.] "When we met Dr. Weinman and her team the first time, she would say things like, 'So, what are we going to do when Zoey is here,' which changed my mindset completely," Yvette Ngo said. ... For the first time, the Ngos began to consider what Zoey's life, short as it might be, could look like. "It made us more comfortable with the situation, I mean as comfortable as you can be," Thomas Ngo said. "She just gave us hope." Zoey was born on April 18, 2024. She met her parents, her siblings and her grandparents. She was baptized. "They made us little crafts and mementos for us to take home, like footprints, really ways to help cherish Zoey's life," Yvette Ngo said. "They took her heartbeat and recorded it for us. Little things that we wouldn't necessarily think of." Zoey even had a chance to go home. But after 36 hours of life, Zoey passed away in her father's arms. The perinatal palliative care Zoey received remains rare. But for families like the Ngos, it provides a small sense of control when it's needed most. "Being able to plan so much in advance and think about all the different scenarios and how we wanted it," Yvette Ngo said. " I think, looking back on our time with Zoey..." "We wouldn't have done anything differently," Thomas Ngo said. Editor's note: Pair this with "Improving knowledge, confidence, and skills in perinatal bereavement care through simulation in baccalaureate nursing students," posted 2/24/25.

BCN expands community grief care and integrative medicine with grant Bluegrass Care Navigators; News; 2/12/25 Saint Joseph Hospital and Saint Joseph East have awarded Bluegrass Care Navigators (BCN) $50,000 to support grief services and integrative medicine programs. This funding will help BCN provide essential care to more than 1,000 diverse individuals across Lexington, Frankfort, and Cynthiana and address significant health challenges in 2025. Our Community Grief Services include individual and group counseling, Camp Hope for children and adults, and crisis response. With this grant, we anticipate being able to serve more than 800 individuals through community grief counseling. Our Integrative Medicine offerings—music, art, massage therapy, and mindfulness—expand to be able to support approximately 300 patients with 800 visits, enhancing physical and mental health. ... "Together, we are creating a meaningful impact in the community and improving the mental health and well-being of those we serve,” said Liz Fowler, president and CEO of BCN. Editor's note: After this 2/12 post, multiple hospice areas served by Bluegrass Care Navigators were flooded this week, notably Harlan and Pike Counties. We thank BCN for your community grief systems already in place, with significant support ahead for those you serve. 

Founding Friends of Treasure Coast Hospice Safari Nights roars to success: Annual gala raises $198k for Youth and Family Grief Support Programs Stuart/Martin County Chamber of Commerce, Stuart, FL; Press Release; 2/10/25 The Founding Friends of Treasure Coast Hospice (FFOTCH) welcomed guests to a magnificently decorated “jungle” at its Safari Nights fundraising gala, held on January 11, at Harbour Ridge Yacht and Country Club in Palm City. The sold-out event raised $198,000 to support Treasure Coast Hospice’s Youth and Family Grief Support Programs. ... Foundation Director Agnes Palmer, CFRE [said,] “The success of Safari Nights is a testament to the unwavering commitment of the incredible volunteers who are dedicated to ensuring resources that provide comfort, hope and healing are available to those who are grieving in our community.” ... The 200-plus members of the volunteer group have raised nearly $5,000,000 to support the organization.

 St. Francis Hospice hosts Sweetheart Lunch for those grieving lost partners Fox 23 News, Tulsa, OK; 2/14/25 St. Francis Hospice in partnership with Moore Fitzgerald Funeral Service hosted their Sweetheart Lunch to help those grieving a lost partner or spouse on Valentine's Day. "We're having a Valentine's Day party—we call it Sweetheart Lunch—for people that have lost a loved one during the past year, most often a spouse," explained Joseph Moore, the owner of Moore Fitzgerald Funeral Service. "Valentine's Day is such a difficult time for people that have recently lost a spouse. There are so many memories associated with Valentine's Day and so forth. We just want to provide a place where they'll feel loved and not alone today." Charlie Dodd, a bereavement coordinator with St. Francis Hospice, said events like this give people a sense of community during a difficult time.

Sudden unexpected infant death and disparities in infant mortality in the US, 1999-2022JAMA Pediatrics; Elizabeth R. Wolf, MD, MPH; Frederick P. Rivara, MD, MPH; Anabeel Sen, MBBS, MPH; Steven H. Woolf, MD, MPH; 1/25This study found that infant mortality from SUID [sudden unexpected infant death] has increased significantly. Previous data through 2020 showed that SUID increased among Black infants. Our analysis, which included 2021 and 2022 data, showed a more generalized increase. Possible explanations include COVID-19 or other respiratory illnesses, maternal opioid use, and social media’s influence on infant sleeping practices. SUID mortality rates were notably higher among American Indian or Alaska Native, Black, and Native Hawaiian or Other Pacific Islander infants than among Asian and White infants. Disparities in SUID could reflect unsafe sleeping position, prematurity, tobacco exposure, and/or infant feeding practices; further research is needed.

Mandated time off for bereavement gaining ground Altoona, PA; by Sarah Boden; 2/10/25 When his father died from COVID-19 in 2020, James Gerraughty didn’t have to choose between working and grieving. That’s because his employer provides three days of paid bereavement for the death of a parent. This gave Gerraughty enough time to drive from the Altoona area to Buffalo, New York, to collect his dad’s remains. ... Not everyone is so lucky. Pennsylvania doesn’t have a universal bereavement leave policy. Employers offer it at their discretion, meaning many workers can experience the death of a loved one but not get time off. Other states have filled this gap in labor law, to varying degrees. California, Colorado, Illinois, Maryland, Minnesota, Oregon and Washington all mandate some form of bereavement leave. ... It takes time to process a death. So not being able to take off work can threaten a person’s mental health and livelihood, said Nisha Bowman, a social worker in Pittsburgh for Monarch Hospice.[Click on the title's link to continue reading.] Editor's note: For national advocacy for bereavement care, examine Evermore.org.

Chesapeake Life Center offers healing for those experiencing loss after DCA tragedy Southern Maryland News Net, Chesapeake, MD; 2/10/25 The Chesapeake Life Center will offer “Healing Our Community: Navigating Grief in the Aftermath of the DCA Tragedy” to support those affected by the Jan. 29 tragedy at Reagan National Airport. Chesapeake Life Center’s trauma-informed grief counselors will lead this healing workshop from 2 to 3:30 p.m. Saturday, Feb. 22, at Hospice of the Chesapeake’s center at 2505 Davis Road, Waldorf, Maryland. The session offers a supportive space for community members to connect with others who share in their loss. Together, they can learn about grief and healthy coping strategies, participate in activities to express and process emotions and create a remembrance keepsake. Adults will meet separately from the children and teens to ensure age-appropriate conversations. 

Central Coast VNA & Hospice expands hospice and support programs in the Central Coast region Chicago News; Press Release, media contact Jane Russo; 2/5/25 Central Coast VNA & Hospice, a trusted leader in home health and hospice care for over 70 years, is proud to announce the expansion of its comprehensive hospice and support programs throughout the Central Coast. ... With an increased focus on hospice care, education, and support, Central Coast VNA & Hospice is reaching more communities, including Monterey, Salinas, Hollister, and Santa Cruz. The organization’s enhanced programs include:

Garlock: How to prepare children for hardships and tragedies The Citizen; by Dr. Victor Garlock; 2/4/25 All of us must face hardships and tragedies. How well we are able to get through difficult times is a major factor affecting the overall quality of our lives. Sometimes these challenges arrive individually, as in a sudden serious illness, an accident, or the death of a loved one. Sometimes — as in last fall’s devastating floods in North Carolina or the recent wildfires in Southern California — entire communities must find a way to move forward. ... Resilience is the capacity to recover from challenges and adversity. Tragic optimism is the determination to remain optimistic and find meaning and purpose in the face of tragedy. [With children:]