Literature Review

Not all mourning happens after bereavement – for some, grief can start years before the death of a loved one The Conversation, by Beth Daley; 2/22/24For many people, grief starts not at the point of death, but from the moment a loved one is diagnosed with a life-limiting illness. Whether it’s the diagnosis of an advanced cancer or a non-malignant condition such as dementia, heart failure or Parkinson’s disease, the psychological and emotional process of grief can begin many months or even years before the person dies. This experience of mourning a future loss is known as anticipatory grief.Editor's Note: All clinical team members need to be equipped to tune into and validate grief that is already underway. Social workers and chaplains--especially--need to be trained to tend grief in the present, and to know how to make high-acuity referrals to bereavement counselors.  

Identity shifts throughout HCT: A holistic approach to patient, caregiver supportHematology Advisor; by Katie Schoeppner, MSW, LICSW; Leah Christianson, OPN-CG; Hailey Hassel, MSW, LICSW; Cortney Alleyne, MPH; 2/20/24Patients undergoing hematopoietic cell transplant (HCT), their caregivers, and family members often experience dramatic shifts in their identity during and after the transplant process. These shifts can cause significant disruption in their lives, even among the most stable family and friend units. With holistic guidance and informed, empathetic care from professionals on healthcare teams, these patients and their support persons can better cope with the identity-related challenges they face.Editor's Note: See the patients you serve as persons. While this article focuses on person undergoing hematopoietic cell transplant, its rich insights about the patient/person's "tangible and intangible identity shifts" apply to the persons you serve, whatever the diagnosis. Read this article to develop your empathy and its practical applications throughout the services your organizations provide.

Funerals becoming a thing of the past as end-of-life rituals change County Life, by Sharon Harrison; 2/16/24As times are changing, more and more people don’t want a traditional, religious funeral and instead are seeking alternatives to align with present day values. 

The Last Portrait: Local photo exhibition captures different takes on dyingUtica Observer Dispatch, by Amy Neff Roth; 2/9/24... The 26 black-and-white photos, taken by local photographer Mark DiOrio, all capture moments in the life of someone who has been diagnosed with a terminal illness.  “I wanted to photograph them because they’ve been given news that nobody wants to hear,” DiOrio explained. “They’ve been given the news that it’s going to be their time soon. And when you’re given that kind of news, you have choices to make on how you handle it. I felt that these people, what they had to say and the emotions that they communicated in that moment were invaluable.”

Children to have a place to grieve: Shepherd’s Cove Hospice plans musical-themed activity garden at Albertville facility Sand Mountain - The Reporter, by Mary Bailey; 2/6/24Shepherd’s Cove Hospice is in the beginning stages of building a space where children can grieve and cope with loss on site at their facility. The “Shepherd’s Cove Activity Garden” will be a place where children will be able to run, play and continue to be children while dealing with their emotions.

NHPCO Publishes Culturally Sensitive Communications to Enhance Care Delivery: A resource guide for healthcare professionalsNHPCO Press Release; 1/30/24The National Hospice and Palliative Care Organization’s (NHPCO) Diversity Advisory Council (DAC) published Culturally Sensitive Communications to Enhance Care Delivery: A Resource Guide for Healthcare Professionals. ... It contains information from a multitude of NHPCO resources, such as the Hospice Through The DEI Lens report, Inclusion and Access Toolkit, Black and African American Outreach Guide, Chinese American Resource Guide, Latino Outreach Guide, and LGBTQ+ Resource Guide, as well as information from additional external research sources.

Corby boy, 10, set for Arctic trek in tribute to fatherBBC News, by Kate Bradbrook & Brian Farmer; 2/2/24A 10-year-old boy once told he might never walk can look forward to days of "wonder" as he prepares to trek in the Arctic in memory of his late father. Caeden, who has cerebral palsy, was born 12 weeks early. But Caeden, of Corby, Northamptonshire, has climbed Ben Nevis and is now set to meet the Arctic challenge. Mountain guide John Cousins said the "biggest danger in such conditions comes from the cold". Caeden is due to travel to Sweden on Monday with mother Lisa, brother Ashton, 12, and sister Khya, 14.

The healing power of remembering and recordingLocalTownPages - Franklin; 1/30/24Every person on this earth holds space in the lives of those around them. We fill that space with our voices, talents, wisdom, laughter, touch, beliefs, innovations, style, and even occasionally with our struggles. Each human experience is unique and varied, complex and beautiful.

Mom enters hospice in final days of cancer and releases viral song for 7-year-old sonPeople, by Jordan Greene; 1/25/24Cat Janis shared her final wish – for her song 'Dance You Outta My Head' which she wrote for her 7-year-old son — to go viral. 

Craft a memorial pillow for your loved one at this DeKalb workshopShaw Local News Network; 1/22/24The DeKalb Public Library will partner with Northern Illinois Hospice to host a workshop for patrons to create pillows out of a loved one’s shirt. ... Attendees can create up to two pillows out of a T-shirt or button-down shirt. Sewers will be available to assist. Participants should not bring denim, jackets or thick fabrics. Bereavement information and support will be provided.Editor's Note: Explore this lovely, meaningful activity for your hospice's bereavement care, volunteer services, and community outreach.

The challenges facing male caregiversNext Avenue, by Sophie Okolo; 1/23/24When business owner Mark Horst (not his real name) of Pompton Plains, New Jersey, first found out his wife of 37 years was diagnosed with Alzheimer's, he didn't know what the journey would entail. Of all caregivers in the United States, 16 million, or 40%, are men. Of these men, 63% identified as primary caregivers. 

Penn Medicine provides parents tools to grieve and heal after lossPenn Medicine News, by Kim Maialetti; 1/11/24Perinatal loss is not uncommon in the United States. According to the Maternal Mental Health Leadership Alliance, 30 percent of all pregnancies end in miscarriage and 21,000 babies are stillborn each year. Additionally, more than three of every 1,000 babies born die before 28 days of life and more than five of every 1,000 die before their first birthday.

NAVC announces Pet Peace of Mind as the 2024 NAVC gives Marquee Award recipient