Literature Review

New report details financial, emotional toll of Parkinson’s on family caregivers McKnights Home Care; by Foster Stubbs; 2/4/25 A new report sheds a light on the unique challenges faced by family caregivers who care for loved ones with Parkinson’s disease (PD). The report, Parkinson’s Disease Caregiving in the US, features insights from secondary analysis and supplementary interviews with 10 PD caregivers. These caregivers average 31 hours of unpaid care per week; half of interviewed caregivers exceed 100 hours each week, according to the report. The National Alliance for Caregiving (NAC), with support from The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and Arcadia University, released the report.  

Hospice volunteers lend a aand at Yesterday’s Treasures, raising over $19,000 for Hunterdon Hospice TAP into Phillipsburg, New Providence, NJ; by Hunterdon Health; 2/1/25 This past holiday season, hospice volunteers generously gave their time to assist in Yesterday’s Treasures, Hunterdon Health Foundation’s upscale re-sale shop. ... To thank them for their dedication, the Hunterdon Health Foundation donated the proceeds from their time—over $19,000—back to hospice programs. These funds will help ensure that patients and their families continue to receive the compassionate care they rely on. 

[Hospice of the Western Reserve Volunteer] WWII veteran celebrates 100th birthday, years of service Fox 8 WJW-TV Cleveland, OH; 1/24/25 What were you doing on this day 100 years ago? Well, if you were World War II Veteran Bob Zonneville, you were saying “hello” to the world! On Thursday, many of his friends and family got together at David Simpson Hospice House to celebrate this incredible accomplishment. Hospice of the Western Reserve hosted the event, which had a very special meaning to both the organization and Zonneville.  Over the years, not only has this World War II veteran offered tireless support to the Hospice program, but he’s also responsible for raising nearly $100,000. Zonneville has been a passionate Hospice volunteer for decades. According to Hospice of the Western Reserve, Zonneville received the prestigious Chair’s Award for his extraordinary contributions to the hospice community in 2008. ...

Abigail E. Keller Foundation's Teddy bear drive brings Valentine's cheer to young patients CBS Austin, TX; by We Are Austin; 1/23/25 Valentine's Day is getting a little sweeter for children spending the holiday in the hospital, thanks to the Abigail E. Keller Foundation's annual teddy bear drive. Now in its sixth year, the initiative aims to spread love and comfort through cuddly companions. Melissa Keller, co-founder and president of the foundation, said the drive [describes,] "Abby passed away in February of 2019, ... Abby was full of life and joy, and she brought so much life and joy to everyone that she met. We decided on that first anniversary, we were going to collect teddy bears and take them to the hospital. And we did." ... Keller says "We support medically fragile children and their families throughout their journey and at end of life, we, support our foundation, supports them in, a couple of ways. We we help them through financial assistance. We do care baskets for families going into hospice. We do birthday boxes for children in hospice."

New data reveals the hidden costs of workplace violence in healthcare Perceptyx; by Ellen Lovell, PhD and Stephanie Schloemer, PhD; 1/17/25 Workplace violence has become an impossible-to-ignore crisis in healthcare, threatening the safety of medical professionals, patients, and institutions. The severity and frequency of these incidents have reached alarming levels, demanding immediate attention and action. ... The human cost is staggering.  ... While our research confirms the widespread nature of safety concerns in healthcare, a deeper analysis reveals significant variations across different healthcare environments and roles. This granular view helps us understand where intervention is most urgently needed. Editor's note: Although "hospice settings reported the lowest agreement at 54%," this statistic should be considered too high for comfort. Actions need to be taken to reduce it. From your professional leadership role, examine the importance of protecting hospice professionals' safety--typically in home settings--and through moments such vulnerable, emotional, conflicted times within families. What can your agency improve?

[Hospice] Volunteer coordinator whose husband unexpectedly died gets touching surprise from a Secret SantaEast Idaho News; by Nate Eaton; 12/31/24A local Secret Santa is giving [money] to deserving people in eastern Idaho this holiday season and the East Idaho News elves are helping out. Every day since Nov. 1, we’ve posted a Secret Santa surprise, and today have our last video with a wonderful woman named Gwen. Gwen currently works as the volunteer coordinator for a home health and hospice agency in Rexburg. Having her own mother on hospice, Gwen understands the grief and hardship people experience with anticipating death. Gwen is passionate about service, and cares very deeply about every resident that she sees. 

In Oregon and around the world, volunteer crafters are ready to finish your loved one’s projects The Oregonian - Homes & Garden; by Janet Eastman; 12/20/24, updated 12/24/24 Sue Heagy touches the colorful yarn circles her late daughter, Angie Kimmel, crocheted to relieve her pain and fear of dying. Kimmel was 39 and working in Corvallis eight years ago when she made her last stitch. ... Over the years, Heagy would take the pieces out to appreciate her daughter’s fine handwork. Late last year, Heagy decided it was time for the “complicated and unusual work” to be completed. She contacted the nonprofit Loose Ends Project and was matched to Bobbie Wallace, a volunteer “finisher” who lives in Arizona near Heagy. ... Heagy, who received the completed throw blanket this summer, said, “It’s so touching, so intimate” how finishers like Wallace work. “To have the sensitivity to delve into the creativity” of someone they never met. The place where Kimmel’s final stitch continued under Wallace’s hands is marked with a tiny heart-shape red button. “When I saw that, I burst out crying,” said Heagy, who has draped the throw blanket across her favorite reading chair. “Angie’s blanket hugs me,” said Heagy, “and it was a real comfort to talk to Bobbie, who has such an open heart, about my daughter.”

Fabric artist's new exhibition in Historic Overtown sheds light on 41 years of wrongful incarcerationThe Miami Times; by Morgan C. Mullings; 12/10/24Whether volunteering in hospice, designing the prison magazine or leading the drama team, Gary Tyler lived an eventful life in prison. After 41 years of living in a cell he didn’t deserve to occupy, he found new life as an artist.  “Grief Not Guilty: Reclaiming My Time” features Tyler’s original quilts, photos of his mother and floral wreaths created by Quantavia Love. The exhibit speaks to the resilience of the human spirit, and the importance of recognizing the names and faces of those yet to be freed. It is on display now at the Black Police Precinct and Courthouse Museum in historic Overtown, a space dedicated to Black police officers of the pre-civil rights era and primed for discussions on the U.S. prison system. ...  After an angry anti-busing mob attacked him and other Black students in St. Charles Parish, Louisiana, he was destined to live and die in prison. ... That prison would be one of the most notorious in the U.S. Louisiana State Penitentiary. ... Also known as Angola, Angola Plantation, The Farm, or Alcatraz of the South, Louisiana State Penitentiary is the largest maximum security facility in the country. Tyler refused to do the manual labor required at this prison farm, calling it “slave work.” 

Gift packages made for hospice patients in west Alabama WBRC 6 News, Birmingham, AL; by Kelvin Reynolds; 12/9/24 While it’s usually between people who know each other, that’s not always the case. A group in west Alabama arranged gift packages for folks using hospice and or home healthcare services who may not have many more holidays to celebrate. Anita Jones and others assembled dozens of care packages, working with Aveeno Home Health and Aveeno Hospice offices in Demopolis and Livingston to identify people in need. The company will distribute the care packages to its patients. ... McElroy Trucking from Cuba, Alabama helped pay for the items. They included books, blankets, shaving equipment, and other personal items.

Reading aloud to my friend in hospice was my long goodbye to her Thrive; by Patty Dann; 12/6/24 Reading a book aloud or being read to are constant threads in the tenderest moments of my life. When I was a child, my mother sat on my bed and read three books to me every night, so it would have been natural for me to sit on her bed and read to her during her final days. COVID-19 prevented that. Four years later, Batya, a woman in my building — the same age my mother was when she died — was in hospice at home. Each day, I read to her. ... Being with someone as they die is like taking a loved one to the airport. There’s often traffic along the way, and you never know how long it will take, but you do get the privilege of saying a final goodbye. Not being with my mother in her end days left an ache in my heart, but reading aloud to Batya helped me pass on a gift, something I was prevented from doing before.

Tidewell Foundation volunteers give back during Thanksgiving Observer, Sarasota, FL; by Jay Heater; 11/29/24Those in the parking lot of the Tidewell Hospice administration building the day before Thanksgiving in Lakewood Ranch weren't focused on the "being thankful" part of the holiday. They were concentrating on the "giving back" part. The Tidewell Foundation's fifth annual Meal Drive provided more than 500 meals that were delivered through Manatee, Sarasota, DeSoto and Charlotte counties to provide, in many cases, what might be the last holiday meal a couple or family would be able to share. Morton's Gourmet Market, the Venice Yacht Club and Michael's on East made the meals possible and then volunteers packed and delivered the meals Nov. 27. Among those in the parking lot was Bradenton's Terry Dale, who was volunteering in the event for the first time. "I am trying to give back," Dale said as she was busy handing out meals to other volunteers who drove up to take care of the delivery. "Two years ago, these people (Tidewell Hospice) were a godsend." Her husband of 47 years, Bill Dale, died at that time and Terry Dale doesn't know how she would have made it through without Tidewell Hospice. She knew the importance of the food that was being sent out with the volunteers.

From grief to giving: Volunteer Jules Sebek finds her way to Hospice of the Western Reserve The News-Herald, Ohio; by Jean Bonchak; 11/28/24 After retiring from a lengthy and successful career at a local company, Jules Sebek was inspired by her past positive experiences with Hospice of the Western Reserve to pursue a volunteer position with the agency. ... “I truly get more than I give,” she said. Sebek’s introduction to hospice came about when the agency supported her parents during their end-of-life journeys and also provided care for her husband, who died eight years ago. ... A year after his death, Sebek joined hospice volunteers as a receptionist and found the experience helpful in terms of becoming familiar with the staff and other aspects of the agency. Throughout the years, she has supported a wide range of situations and finds working with married couples particularly relatable because of her own experiences. ... “I can say ‘I know what you’re going through. I’ve been there,’” she said. “If there’s a wedding picture I’ll look at the spouse and ask them to tell me their love story. Their eyes light up.” ... “I’m constantly inspired,” she said. ... Over time she has come to realize that her work with hospice holds significant importance in her life. “I can’t not do it. It’s a calling,” she said.

Hospice staff packs Thanksgiving meals for families Coosa Valley News, Rome, GA; by Staff; 11/27/24 It was a labor of love on Wednesday morning as teammates, volunteers and family members gathered again to provide Thanksgiving meals for families served by Atrium Health Floyd Medical Center Heyman Hospice Care. The meals, made or donated by Hospice teammates, volunteers and family members, included turkey, ham, dressing, mashed potatoes, macaroni and cheese, green beans, sweet potatoes, potato salad and corn. A variety of pies and cakes were baked for dessert. Nearly 150 meals were packed up and delivered personally to the families. Melissa Washington, a social worker with Hospice, once again served as the onsite director as the food boxes were assembled and sent out. She and others were also there late Tuesday night getting things ready. “We can do this!” exclaimed Washington as she encouraged the workers lined up behind tables as the assembly line began its work. Casey Blankenship, program director for Heyman Hospice Care, said the annual event started in the 1990s.