Literature Review

Amid trauma and burnout, it ‘takes courage’ to reflect on mental, emotional well-being Healio; by Jennifer Byrne; 7/31/24 ... [William E. Rosa, PhD, MBE, MS] began to realize that in the stressful, devastating situations he and his colleagues faced daily, there was much to be learned from the principles of trauma-informed care. ... “This is the idea that cultivating an awareness can prevent us from re-traumatizing ourselves and others,” he said. “I think it starts with reflecting on — and telling the truth about — our mental and emotional well-being. That takes courage.” In acknowledging the emotional scars, brokenness and vulnerability that comes from tragedy and loss, individuals can begin to heal a lifetime of stored and unresolved trauma, Rosa said. “As a workforce, you and I see unacceptable rates of suicide, burnout, moral distress and attrition,” he said. “It’s time that we come to safe and supported terms with our trauma — not just as individuals, but as a collective, not only for the patients and families we serve, but for us to survive.”Editor's Note: In this article, Dr. Rosa identified "the emotional impact of taking yet another patient off the ventilator at the end of life." Recent articles we've posted in this newsletter about trauma-informed care been in our "Top Reads." While those articles focused on trauma-informed care of the persons you serve, this focuses on the persons who serve, your all-important direct patient care clinicians.

Proactive fall prevention: Elevating patient safety and healthcare excellenceHealthCare Business News; by Amy Hester; 7/26/24... The significance of fall prevention cannot be overstated, as it directly impacts patient outcomes and overall healthcare quality. With the patient safety solutions market growing at an expected rate of 11.2%, the importance of proactive fall prevention strategies becomes even more evident. ... In the United States, preventable medical errors, including falls, are the third leading cause of death. The impact of falls on patient health and recovery is profound, often leading to longer hospital stays, delayed recovery and increased risk of subsequent falls.Editor's Note: Proactive fall prevention is especially important for persons needing palliative or hospice care. As the person's health and mobility declines, they have to adjust to these changes mentally, emotionally, physically, and relationally. Recognizing decline can feel like defeat. Asking for help can be tough. Family members can expect the person to move more independently more than possible, leading to falls.

No One Dies Alone: a movement against isolation and loneliness in the final hours The Optimist Daily; by The Optimist Daily Ediorial Team; 7/27/24 The fear of dying alone is one of the most powerful and agonizing feelings that many harbor, especially during the COVID-19 pandemic. For some, this fear sadly becomes a reality. To address this issue, the No One Dies Alone (NODA) initiative trains and supports volunteers who provide companionship to people in their final hours. ... The NODA concept began in 1986 in Oregon, United States [by] Sandra Clarke, a nurse. ... [Alison] Bunce founded Compassionate Inverclyde (CI) in 2016 as an Ardgowan Hospice-funded project, where she worked as director of care. Starting with 20 volunteers, CI sought to sit with people who were dying alone, initially in hospices and local hospitals before extending to private homes. Today, CI has grown substantially, with over 100 volunteers available to provide companionship at a moment’s notice.

Tips to secure hospice volunteers through engagement, education Home Health Line; by Mary Kent Wolff; 7/18/24 Many hospice providers are struggling to find volunteers and maintain Medicare compliance after the pandemic. Providers that strengthen training programs and consider participant and patient needs and interests could see an increase in long-term volunteers. [Additional subscription may be required.]

Empowering ‘deeply undervalued’ caregivers would improve ‘lifeline for older adults’ McKnights Senior Living; by Kimberly Bonvissuto; 6/28/24 Direct care workers and family caregivers remain “deeply undervalued” and often overlooked despite calls for investment in the care economy, according to the authors of a new report. “These caregivers provide a lifeline for older adults, people with disabilities, and people living with chronic conditions,” PHI and the National Alliance for Caregiving said in an issue brief released Wednesday. “Empowering them in their roles will help to ensure high quality, responsive care to meet the needs and preferences of millions of Americans now and in the future.” The organizations called on providers, Congress, the Department of Labor, the Centers for Medicare & Medicaid Services, the federal Health Resources and Services Administration, states, managed care plans and advocates to invest in the “essential partnership” between direct care workers and family caregivers. The new brief includes insights from a variety of stakeholders ...  The result is a list of recommendations that prioritize improvements to direct care jobs.Editor's Note: Our sponsor, Composing Life Out of Loss, equips hospice and palliative care organizations with caregiver education and support video libraries to strengthen relationships between the direct care professional and the family caregiver, with timely information for the entire family. Contents are written to CMS CoPs, CAHPS, and contemporary grief research; English and Spanish.

Paramedics helping hospice patients make final memories with family CKXS 99.1 News, St. Wallaceburg, Ontario; 6/7/24A new hospice program in Chatham-Kent is giving patients a chance to take one last end-of-life journey with their loved ones. Chatham-Kent EMS and the Chatham-Kent Hospice have partnered to create the Lasting Memories Program, which allows palliative patients to take a day trip to a location of their choosing. The program helps families create lasting memories of their loved ones in the final days through a trip to the farm, a ride to the lake, or enjoying a sporting event. Local paramedic Jon Benoit was credited for helping to get the program off the ground by coordinating services between the hospice and Medavie Health Services. “Medavie is really good about letting us use their ambulances and helping get this program running and supporting us through it… but the medics doing the actual program, it’s all volunteer time,” he said. Staff at the hospice work with families on coordinating the outing with volunteer paramedics, who escort them throughout the excursion, alleviating any health or medical concerns.

19 myths about dying people need to stop believing Million Dollar Sense; by Anuradha Supun; 5/29/24 

Manatee County hospice volunteer celebrates patients' birthdays dressed in costumes Specturm News 9, Manatee County, FL; by Rick Elmhorst; 5/13/24 A Manatee County woman is bringing joy to people in hospice care by celebrating their birthdays. Pam Freas volunteers with Chapters Health Lifepath Hospice by dressing in costumes and visiting patients for their birthdays. She also helps manage the supplies for milestone birthday celebrations, including packing birthday bags full of blankets and pillows. Freas recently visited a young boy named Jackson who was in home hospice care. She dressed as a dinosaur since Jackson loves dinosaurs. Although Jackson has a difficult time communicating, Freas spent time talking with him to brighten his day.

Volunteering in hospice helps Macalester students contemplate death's mysteries up close MSN - Minneapolis Star Tribune; by Katy Read; 5/10/24 "You think it will never happen to you, that it cannot happen to you, that you are the only person in the world to whom none of these things will ever happen," author Paul Auster wrote about humans' difficulty confronting our own mortality. ... Auster himself died last month at age 77. ... How can humans fully grasp the inevitability of our own death? It's a tough question to answer, maybe close to impossible. Three Macalester College students who just finished a course called the Anthropology of Death and Dying don't have the answer. Their professor, who has spent much of his career studying death as an anthropologist and a former hospice nurse, doesn't have an answer. A hospice nurse doesn't have the answer. And a hospice patient with lung cancer doesn't have the answer, even knowing he soon will confront its reality firsthand.

Elder abuse is easy to missNextAvenue; by Leida Snow; 5/6/24 Here is what to look for if you suspect a caregiver--whether a relative or a professional--is mistreating a loved one. ... People are living longer in their own homes outside of nursing homes or other institutional settings, which means that at some point each of us is likely to be a caregiver or looking for continuing health care for a loved one or ourselves. ... "My husband was in home hospice for the last months of his life." ... [A bereaved caregiver describes incidents with her husband's care.]  Then I ... went to the other room and called the agency's 24-hour number. 'I want her out of here,' I said. 'Please send someone else as soon as you can.' Lou briefly rallied the next morning, but he died later that day. Did the aide hasten his death? I believe she did."

University of Texas club puts life's memories into book for people receiving hospice care Austin American-Statesman; by Nicole Villalpando; 4/27/24 "What would you like your legacy to be?" Galilea Dupree asks Bob Bell, as she and two other University of Texas students gather around the dining room in Bell's North Austin home. ... Bob, 92, has congestive heart failure. After three strokes and two heart attacks, he began receiving services with Hospice Austin in November. He is one of nine people in hospice who are having their stories told by UT students as part of the Last Writers club. The club works with Hospice Austin and Compassus hospice to identify people who would like to have their stories told.

Hospice volunteers share their ‘why’ The Journal, by Lores Morton; 4/21/2024 From volunteer Lores Morton: Why am I a volunteer for Hospice of the Panhandle? It is for our patient’s caregivers, to give them break relief; to share what may be missing with patient’s spiritual support; to be a memory keeper — legacy; to give simple visitation; and, also, to volunteer administratively for Light Up a Life. ...  From volunteer Kelly Orwig, "My why has evolved, but at the core, is that I love people. I love people who need love. Death and dying are natural, but over our lives, we’ve been socialized to fear death to the point that we fear those who are dying. ...." 

Longview Marines honored for helping fellow veterans during their time in hospice care CBS 19 Tyler, TX; by Alan Kasper and Zak Wellerman; 4/18/24 A Longview hospice took time to recognize some very valuable volunteers Wednesday afternoon. Members of AccentCare Hospice & Palliative Care in Longview honored two Marines Corp. veterans who volunteer their time and help fellow veterans going through hospice care. Vietnam War veterans Jim Jones and Will Haggard have spent the past 12 years as part of a contingent from the Longview Marine Corp League, meaning they help make their last moments better for those in hospice care. ... Pam Fletcher, AccentCare Hospice executive director, said the hospice facility appreciates having volunteers like Jones, Haggard and others.