Literature Review

Improving inclusive palliative care for transgender patients Hospice News; by Holly Vossel; 5/7/24... Nearly a quarter (21.3%) of 865 interdisciplinary palliative professionals indicated that they had observed some form of discriminatory care delivered to a transgender patient in a recent study published in Cambridge University Press’ journal Palliative Support Care. Furthermore, 85.3% of study participants said they witnessed disrespectful care, while inadequate and abusive care was observed by 35.9% and 10.3% of palliative teams, respectively. ... [Read more for descriptions and interventions, as discussed with Zachary Fried, licensed clinical social worker and training supervisor of Optum at Home, a subsidiary of UnitedHealth Group.] 

Letter: Volunteers make a difference in community The Meadville Tribune - Meadville, PA; by Melissa Swartwood; 4/27/24Our community is at its best when we come together to help others in a time of need. At Hospice of Crawford County, trained volunteers give their time, attention and compassion to help people and families facing the end of life to live as fully as possible. ... Our volunteers specialize in various areas of service, [many examples given]... As we wrap up Volunteer Month ... Hospice of Crawford County would like to show appreciation for our volunteer team. ... Across the United States, more than 430,000 hospice volunteers give over 19 million hours of service every year. Every single volunteer deserves our appreciation and grateful acknowledgement.Editor's Note: We highlight this example of both thanking hospice volunteers and raising community awareness about hospice volunteer opportunities. From Hospice & Palliative Care Today to your organization, we celebrate and thank your volunteers!

Retired hospice worker now a hospice volunteer Sanford Health; by Jason Anschutz; 4/25/24"It's always been in my heart," says Nicolle Aukland of Fargo, ND. ... Aukland began her professional career as a medical social worker at MeritCare before the hospital merged with Sanford Health. She then transitioned into a similar role with Hospice of the Red River Valley. She would eventually leave the health care industry, but her passion for hospice never left her. ... Now in retirement, Aukland dedicates her free time to hospice patients as a companionship volunteer at two different organizations, including Sanford Hospice House in Fargo.Editor's Note: Do you encourage your retired employees to volunteer? Or perhaps retired employees from your community's other healthcare systems? They provide you with rich experience; you can provide them with meaningful volunteering. If so, be sure to orient them to the differences between their prior professional roles and the scope of practice for your organization's volunteer roles.

Volunteers make best days possible for 600 people a day at VNA Hospice NWIGreatNews.Life, Valparaiso, IN; 5/19/24VNA Hospice NWI serves over 600 people a day. From Hospice and Palliative Care, Grief Support services for adults and children to the Medical Guardian help button and a Meals on Wheels program, the impact of VNA services around the region is tremendous. The VNA staff work tirelessly to ensure these essential services are available each day – but they can’t do it alone. Their team relies on an army of volunteers, who do everything from stuffing envelopes and labeling meal bags, to working directly with hospice patients and bereaved children, and delivering the meals. Maria Galka, Director of Development for VNA Hospice, said that the organization’s volunteers outnumber its staff by about five to one. Editor's Note: April's Volunteer Appreciation Month is still underway. Learn from this superb article, posted on an online community site. VNA Hospice NWI's astonishing volunteer program bears repeating: "... the organization’s volunteers outnumber its staff by about five to one."

[Sample] Letter: Hospice workers deserve thanks during Volunteer Appreciation Month Commonwealth Ripon Press (Ripon, WI), Letter to the Editor by Meredith Schluter; 4/18/24April is Volunteer Appreciation Month and I want to attest to the incredible impact that caring volunteers make in the lives of others in our community. Compassus Hospice in Neenah is an organization that cares for individuals experiencing life-limiting illnesses. ... From directly interacting with patients and families to working with care team members behind the scenes to help operations run smoothly, [volunteers] provide a vital service. The nationwide impact of hospice volunteers is just as significant. According to the National Hospice and Palliative Care Association, volunteers care for more than 1.5 million hospice patients each year, totaling millions of hours of care annually.Editor's Note: How are you expressing appreciation for your volunteers? This "Letter to the Editor" creates community awareness and provides a call for new volunteers. You have 11 more days to continue April's Volunteer Appreciation Month. What have you done? What more can you do?

How therapy dogs are bringing comfort to hospice patients in Metro Detroit The Detroit News, by Anne Snabes; 4/7/24 For over two months, hospice patient Virginia Favero has been getting occasional visits from Sam the beagle-mix, providing her with a canine companion. Sam isn't her dog, but he's there to bring her comfort. Sam's owner, Rachel Marshall, typically has the dog sit on a black folding chair, so Favero can reach him from her recliner chair in the Pomeroy Living community in Northville. ... "It really warms her heart when he comes," said Lynn Favero, Virginia Favero's daughter.

Central Dauphin football building connections with residents at Grane Hospice ABC TV 27 WHTM, Harrisburg, PA; by Amber Charnoff; 4/2/24 Volunteering is a cornerstone of the Central Dauphin football team and over the past 15 years the team has donated their time to Grane Hospice. ... Central Dauphin seniors Kannyon Miller and Elijah McDonald have enjoyed interacting with the residents at Grane. ... Coach McNamee enjoys stepping back and watching these relationships develop. ... “It’s so much fun watching them in action and seeing that room with the interactions between the players and the residents,” McNamee said. “There’s no doubt it’s a win-win. The residents are really enjoying it and our players are really enjoying it.”

Here’s what a doctor says actually happens when you die United Business Journal, by Nidhi Dhote; 3/26/24Death is the great equalizer; it’s a subject that intrigues and terrifies us in equal measure. Throughout human history, we’ve pondered what lies beyond the threshold of life, seeking answers in religion, philosophy, and science. Yet, despite all our advancements, the mystery of death remains largely intact. ... In this article, we’ll delve into what happens to our bodies when we die, as explained by medical professionals.

Hospice of Santa Barbara offers insights into family grievingSanta Barbara Independent, by Hospice of Santa Barbara; 3/26/24Grieving the loss of a family member is a deeply intricate emotional journey. Shared bonds and histories make family grief especially unique. Family grief extends beyond the individual and intertwines with the collective fabric of shared experiences, roles and responsibilities. ... It is common for death to change the family dynamic. This can be a result of several factors, including age, relationship, role, difference in coping mechanisms, heightened stress and emotions, and unresolved family issues which can lead to the resurfacing of past grievances.Editor's Note: CMS Hospice COPs §418.3 defines: "Bereavement counseling means emotional, psychosocial, and spiritual support and services provided before and after the death of the patient to assist with issues related to grief, loss, and adjustment." The interdisciplinary team needs to understand individual and family grief, within the scope of their roles and responsibilities with family members.

Student-run Arizona non-profit uses origami to connect with hospital [and hospice] patients The State Press, by Pippa Fung; 3/19/24The Wishing Crane Project, founded by Arizona student Charles Zhang, serves hospice and hospital patients through art. In the story of Sadako and the Thousand Paper Cranes, a young girl tried to fold 1,000 paper cranes in the hopes that it would help her push through a terminal illness. Years later, students across Arizona and at ASU are folding their own cranes [and writing hopeful messages] to support others through their difficult journeys. 

[Eleventh-Hour Program] Volunteers provide companionship to patients reaching the end of lifeCharleston Area Medical Center, Vandalia Health; 3/13/24Established in April 2023, the Eleventh-Hour Program was designed to ensure no patient passes alone in the hospital. The first Eleventh Hour vigil was held on Easter Sunday in 2023. Since then, the companions have participated in 14 vigils in six nursing units at CAMC Memorial and General hospitals. 

Last Writers craft legacies, embrace stories in hospice care The Daily Texan, by Sabrina Ye; 3/6/24 At local hospice homes, a passionate group of volunteers task themselves with writing memoirs that celebrate the richness of patients’ experiences. This heartfelt service they provide not only preserves legacies but highlights the timeless beauty of storytelling. UT Last Writers volunteer to converse with hospice patients and capture their life stories.