Literature Review

Palliative care doctor: What dying feels like Mind Matters, by Denyse O'Leary; 2/15/24What does dying actually feel like? Most human beings have always believed that the essence of a human being survives the death of the body though the outcome is envisioned in a variety of ways. But, assuming that pain and distress are controlled, what does dying actually feel like? Can science tell us anything about that? 

How one hospice owner got convicted of healthcare fraud and how you can avoid that fateHospice Insights: The Law and Beyond, by Husch Blackwell; 2/21/24The owner of a Louisiana hospice was indicted and then convicted of healthcare fraud. How did that happen? In this [podcast] episode, Husch Blackwell's Meg Pekarske and Jonathan Porter talk about how a routine audit led to a whistleblower complaint by a hospice employee, which then led to the hospice owner’s criminal conviction following trial in November 2023. Most importantly, the pair discuss how other hospices can avoid that fate.

Medicare home health patients more likely to eventually receive hospice care, study finds McKnights Home Care, by Adam Healy; 2/20/24Patients who use home health later in life tend to be more likely to enter hospice for end-of-life care — particularly those without dementia. This underscores the need for better home health staff training and enhanced care continuity for Medicare patients, according to a recent study. ... Those beneficiaries who received home healthcare were more likely to enter hospice during their last year of life compared to those who did not have any home health, the study published Feb. 15 in the Journal of Palliative Medicine found.

Death and redemption in an American prisonKFF Health News / NPR, by Markian Hawryluk; 2/19/24Publisher's note: This is a "must read" article about Steven Garner, including circumstances about how he was sentenced to life without parole at the Louisiana State Penitentiary in Angola, his 26-year service in their hospice program, his release two years ago, and his hospice work since.Notable mentions: Warden Burl Cain; Jamey Boudreaux, Louisiana ~ Mississippi Hospice & Palliative Care Organization; Cordt Kassner, Hospice Analytics; Kim Huffington, Sangre de Cristo Community Care.

A year after Jimmy Carter entered hospice care, advocates hope his endurance drives awareness ABC News, by Bill Barrow, Associated Press; 2/18/24Since Jimmy Carter entered hospice care at his home in south Georgia one year ago, the former U.S. president has celebrated his 99th birthday, enjoyed tributes to his legacy and lost his wife of 77 years. Rosalynn Carter, who died in November, about six months after the Carter family disclosed her dementia diagnosis, lived only a few days under hospice supervision, with her frail husband at her bedside. Experts on end-of-life care say the Carters’ different paths show the range of an oft-misunderstood service. Those advocates commend the Carter family for demonstrating the realities of aging, dementia and death. They express hope that the attention spurs more Americans to seek out services intended to help patients and families in the latter stages of life.Editor's Note:

Live discharge of hospice patients with Alzheimer’s Disease and Related Dementias: A systematic reviewAmerican Journal of Hospice and Palliative Medicine, by Stephanie P Wladkowski, Cara L Wallace, Kathryn Coccia, Rebecca C Hyde, Leslie Hinyard, Karla T Washington; 2/24This systematic review summarizes the growing body of evidence on live discharge among hospice patients with Alzheimer's Disease and related dementias (ADRD), a clinical subpopulation that disproportionately experiences this often burdensome care transition.

A study of how Americans die may improve their end of lifeMedical Xpress, by Rutgers University; 1/24/24A Rutgers Health analysis of millions of Medicare records has laid the groundwork for improving end-of-life care by demonstrating that nearly all older Americans follow one of nine trajectories in their last three years of life.

Senior living providers can tap into $25 million grant to develop dementia-specific respite servicesMcKnights Senior Living, by Kimberly Bonvissuto; 2/7/24Senior living operators who provide, or are considering providing, respite services for family caregivers of people living with dementia can apply for a piece of $20 million in grant funding. The Alzheimer’s Association will use a $25 million, five-year grant award from the US Department of Health and Human Services’ Administration for Community Living to establish a new Center for Dementia Respite Innovation tasked with making respite services and service providers more dementia-capable. 

Hospice providers must be better regulatedScientific American, 2/1/24 (updated from last week's publication)Too many hospice providers in the U.S. are run by private equity and for-profit corporations. A lack of regulation allows them to provide abysmal end-of-life care.

Hospice Benefit Policy Manual updates related to the addition of Marriage and Family Therapists or Mental Health Counselors to the Hospice Interdisciplinary TeamCMS; 1/22/24Change Request 13437 (PDF) purpose is to manualize changes to the hospice interdisciplinary group (IDG) to include Marriage and Family Therapists (MFTs) or Mental Health Counselors (MHCs). Publisher's note: Also see CMS Hospice Open Door Forum (November 29, 2023) Q&A.

U.S. News & World Report: How to choose a hospice provider and questions to askU.S. News & World Report, by Claire Wolters; 2/14/24Hospice is a critical piece of end-of-life care for many families. Here's how to determine if hospice care is a good fit for you. [Includes "Questions to Ask Yourself," "Questions to Ask Your Hospice Provider," and "How to Choose a Hospice Provider."]Editor's Note: This high profile article provides concise information and questions for the public. Do your marketing materials address these questions? For CMS hospice CAHPS and HHS quality ratings, examine the National Hospice Locator, which provides information about every known hospice in the United States.

The Last Portrait: Local photo exhibition captures different takes on dyingUtica Observer Dispatch, by Amy Neff Roth; 2/9/24... The 26 black-and-white photos, taken by local photographer Mark DiOrio, all capture moments in the life of someone who has been diagnosed with a terminal illness.  “I wanted to photograph them because they’ve been given news that nobody wants to hear,” DiOrio explained. “They’ve been given the news that it’s going to be their time soon. And when you’re given that kind of news, you have choices to make on how you handle it. I felt that these people, what they had to say and the emotions that they communicated in that moment were invaluable.”

Medicare is booming, and providers are bracing themselvesModern Healthcare, by Alex Kacik; 2/12/24The aging of the baby boomers means Medicare enrollment growth is expected to exceed that of other major payers.